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Renegade

Anyone Suffered Or Suffer From Asthma/shortness Of Breathe?

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There are a minority of people that have celiac disease whom do not get better on gluten free alone and need help from steroids. So take care. In the meantime, do you use a food journal, in case there is anything you may have missed?

I think the fact that I've been on oral steroids 3 times in a year is probably why I was able to cope. I wonder how sick I would have been if it werent for that little extra help!

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No, I don't need to, I always eat the same things and I remember everything I eat.

If you always eat the same things there may be something you are eating daily that your body doesn't like. Try dropping one thing at a time out of your diet for a couple weeks and then adding it back and watching for a reaction. This is where a food and symptom journal can be helpful. With intolerances the reactions can be delayed for up to a week so keeping a written record can help pinpoint items that may be an issue.

According to my allergist we are most likely to be intolerant of things we eat every day. That was why when he prescribed my elimination diet starting point it was with 5 foods I almost never ate.

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No, I don't need to, I always eat the same things and I remember everything I eat.

The fact you say you always eat the same things, reinforces my thinking that it could be a vitamin or mineral deficiency. If you don't vary your diet, you could be missing out on vital nutrients.

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I eat fruits or veggies with any meal, and I take multivitamins supplements, I reintroduced cereal as I tolerate them very well and will eat gluten-free bread back if I tolerate it too.

 

I eat a variety of 3 different meat, 5 fruits and 4 veggies a day and I had no corn,starch or bread,oat,cereal, my only grain being rice.

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Hi All,

I'm crashing the party only because the breathing thing is what gets me most.  Short version:  I was on acid reflux meds for 6 years and my GERD always seemed to escalate to the point where I needed stronger meds.  I also chewed tums like it was my job.  Last summer I was on 2 nexium a day (had to be specially approved by my insurance co.) and things were still escalating.  I'm a professional singer, so not being able to breathe well is a real problem.  I thought that the GERD was aggravating the asthma (I've always had allergy induced asthma).  I also had vocal issues and my vocal stamina sucked.  I went to a great ENT and he sent me to a great GI doc.  Long story short- after swallowing test, 24 hr PH probe down the nose, additional endo with bravo and 48 hr PH probe off all meds: I NEVER HAD GERD.  When she went down for the bravo she biopsied my small intestine (something she says she does routinely) and since then I've been gluten-free.  Since GERD is a major issue for singers, I asked my excellent GI doc what to do if students had symptoms.  She said before going on meds, you should get a definitive dx by doing the bravo test.  I don't know how many of you who wrote in were actually diagnosed with acid reflux or were "kinda diagnosed" as I was. I have had 2 barium tests where they saw a little bit of something after turning me all around because my insurance co. required that for the med I "needed".

 

It wasn't until the first time I was glutened after starting the diet that I found out what my symptoms are: shortness of breath, severe anxiety, a weird and weak feeling in my thigh muscles (no idea on that one), extreme congestion, dry skin days after or other skin issues, fatigue, fog, and the usually GI issues (C in my case, bloating , and severe pain underneath my ribs and on my sternum that I always thought was the GERD).  I was on meds for the GERD, allergy meds for the congestion and a daily steroid inhaler for the breathing, all of which I didn't need if I just ate gluten-free and probably weren't doing much good anyways.  BTW the congestion is what was causing me to have more phlegm from the post nasal drip, which was wreaking havoc on my singing.  Usually singers will notice small changes in the voice/larynx that non-singers would not.  When I am short of breath no inhaler will help.  I just have to wait it out. I would LOVE for some doc to do a study on those of us that have this issue.  I've had the lung functioning tests and twice pulmonologists have told me there's nothing wrong with me.  I never wheeze as I did when I was younger and had an actual asthma attack.  The rescue inhaler helps my overall lung function just a bit when I'm a-symptomatic.  The once a day inhaler I was taking before DX had no effect (shocked my doc!)

 

Oddly, Years ago- at the start of the chest pain and "acid" issues, I had a spontaneous partially collapsed lung.  After I healed and the X-Rays said I was fine, I was always out of breath, couldn't walk long distances, took the elevator for 1 floor out of necessity (yikes), and had those pains in my sides.  I even persisted until a thoracic surgeon saw me.  Everything was fine.  I'm not sure if the two are connected, but they may be.  The pains in my sides/chest are the same celiac pains I know today.   Very slowly over the course of six months, I returned to normal.  I still don't know why I had the problem and why it went away.

 

Honestly, Renegade, I wonder if there's something that you're missing that isn't glutening you on a regular basis?  The sinus issues, breathing issues, and fatigue are all symptoms (at least they can be and might be for you too).  Also, I know you're a young male- are you tall and lanky?  When my lung went down, they were so surprised because I didn't fit the normal physical profile for that (young, male, tall and lanky build).  Just another thing to consider.  I tried to be very descriptive so you could tell if we were on the same page or not as far as symptoms go.

 

I hope you get some answers.  This is all very frustrating and I'm still struggling at times even at my one year mark.  But there are days that are spectacular and I wonder how I ever felt bad.  Those are the absolute best!

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Hi All,

I'm crashing the party only because the breathing thing is what gets me most.  Short version:  I was on acid reflux meds for 6 years and my GERD always seemed to escalate to the point where I needed stronger meds.  I also chewed tums like it was my job.  Last summer I was on 2 nexium a day (had to be specially approved by my insurance co.) and things were still escalating.  I'm a professional singer, so not being able to breathe well is a real problem.  I thought that the GERD was aggravating the asthma (I've always had allergy induced asthma).  I also had vocal issues and my vocal stamina sucked.  I went to a great ENT and he sent me to a great GI doc.  Long story short- after swallowing test, 24 hr PH probe down the nose, additional endo with bravo and 48 hr PH probe off all meds: I NEVER HAD GERD.  When she went down for the bravo she biopsied my small intestine (something she says she does routinely) and since then I've been gluten-free.  Since GERD is a major issue for singers, I asked my excellent GI doc what to do if students had symptoms.  She said before going on meds, you should get a definitive dx by doing the bravo test.  I don't know how many of you who wrote in were actually diagnosed with acid reflux or were "kinda diagnosed" as I was. I have had 2 barium tests where they saw a little bit of something after turning me all around because my insurance co. required that for the med I "needed".

 

It wasn't until the first time I was glutened after starting the diet that I found out what my symptoms are: shortness of breath, severe anxiety, a weird and weak feeling in my thigh muscles (no idea on that one), extreme congestion, dry skin days after or other skin issues, fatigue, fog, and the usually GI issues (C in my case, bloating , and severe pain underneath my ribs and on my sternum that I always thought was the GERD).  I was on meds for the GERD, allergy meds for the congestion and a daily steroid inhaler for the breathing, all of which I didn't need if I just ate gluten-free and probably weren't doing much good anyways.  BTW the congestion is what was causing me to have more phlegm from the post nasal drip, which was wreaking havoc on my singing.  Usually singers will notice small changes in the voice/larynx that non-singers would not.  When I am short of breath no inhaler will help.  I just have to wait it out. I would LOVE for some doc to do a study on those of us that have this issue.  I've had the lung functioning tests and twice pulmonologists have told me there's nothing wrong with me.  I never wheeze as I did when I was younger and had an actual asthma attack.  The rescue inhaler helps my overall lung function just a bit when I'm a-symptomatic.  The once a day inhaler I was taking before DX had no effect (shocked my doc!)

 

Oddly, Years ago- at the start of the chest pain and "acid" issues, I had a spontaneous partially collapsed lung.  After I healed and the X-Rays said I was fine, I was always out of breath, couldn't walk long distances, took the elevator for 1 floor out of necessity (yikes), and had those pains in my sides.  I even persisted until a thoracic surgeon saw me.  Everything was fine.  I'm not sure if the two are connected, but they may be.  The pains in my sides/chest are the same celiac pains I know today.   Very slowly over the course of six months, I returned to normal.  I still don't know why I had the problem and why it went away.

 

Honestly, Renegade, I wonder if there's something that you're missing that isn't glutening you on a regular basis?  The sinus issues, breathing issues, and fatigue are all symptoms (at least they can be and might be for you too).  Also, I know you're a young male- are you tall and lanky?  When my lung went down, they were so surprised because I didn't fit the normal physical profile for that (young, male, tall and lanky build).  Just another thing to consider.  I tried to be very descriptive so you could tell if we were on the same page or not as far as symptoms go.

 

I hope you get some answers.  This is all very frustrating and I'm still struggling at times even at my one year mark.  But there are days that are spectacular and I wonder how I ever felt bad.  Those are the absolute best!O

The only thing I see that could be glutening me on a regular basis is the fork I use from, work, it goes throw a dishwasher but people use those fork all the time with gluten food. Looks clean so I take it, but I'll be bringing my own fork from now on.

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I don't think it could be the fork as long as it's washed...  Do you take pills of any kind?  Do you share food prep space with family or room mates?  Do you ever taste soap, shampoo, or hand sanitizer?  Chap stick?  Do you lick stamps or envelops at work?  Anything that goes in your mouth is a potential hazard- it doesn't have to be food. 

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I don't think it could be the fork as long as it's washed...  Do you take pills of any kind?  Do you share food prep space with family or room mates?  Do you ever taste soap, shampoo, or hand sanitizer?  Chap stick?  Do you lick stamps or envelops at work?  Anything that goes in your mouth is a potential hazard- it doesn't have to be food. 

I share an appartment and dishes wish someone that eat oatmeal that can be cross contaminated and other spices buts its about it. She's gluten-free but no celiac. All my food is prepared by myself.

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Ooooooo- thanks IH!!!  It was just weeks ago when I found out I really could eat blue cheese, now I can also lick envelops till my heart's content!  (This may sound sarcastic, but I am being completely sincere).  You continue to be a fount o' knowledge for me!

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Ooooooo- thanks IH!!!  It was just weeks ago when I found out I really could eat blue cheese, now I can also lick envelops till my heart's content!  (This may sound sarcastic, but I am being completely sincere).  You continue to be a fount o' knowledge for me!

 

Not sure if you ever watched "Seinfeld", but all I can think of is when Susan (George's fiance) died after licking all those wedding invitation envelopes. :D

 

When I first went gluten-free, I read all kinds of things about envelopes, blue cheese, vitamin E, etc and it made my head spin.

I would actually  wet the envelope flap with water to seal it.

 

Then, I read something either Gemini or Peter posted --about the envelope thing being a myth--and I started researching what else could be misinformation. Turns out, there's plenty of it circulating. :unsure: 

 

I find that Tricia Thompson's articles really help dispel some myths and inaccuracies about "hidden gluten".

 

If we believed everything about "big bad gluten" that we read on the internet,, we'd never leave our homes or eat a thing. 

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Envelope adhesive MAY however, contain corn. So any of you who have a corn intolerance or allergy should continue to use water instead of licking them.

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Not sure if you ever watched "Seinfeld", but all I can think of is when Susan (George's fiance) died after licking all those wedding invitation envelopes. :D

 

When I first went gluten-free, I read all kinds of things about envelopes, blue cheese, vitamin E, etc and it made my head spin.

I would actually  wet the envelope flap with water to seal it.

 

Then, I read something either Gemini or Peter posted --about the envelope thing being a myth--and I started researching what else could be misinformation. Turns out, there's plenty of it circulating. :unsure: 

 

I find that Tricia Thompson's articles really help dispel some myths and inaccuracies about "hidden gluten".

 

If we believed everything about "big bad gluten" that we read on the internet,, we'd never leave our homes or eat a thing. 

I'm a huge Seinfeld fan and was probably thinking of Susan licking envelops when I wrote that as well!  Thanks for introducing me to Tricia Thompson.  I will definitely check her out.  When so many little unrelated things turn out to be gluten related, I find it really difficult to separate celiac stuff from other medial stuff (or just plain over-thinking).  Still trying to figure that out for myself.  At any rate, I think my husband will be glad not to lick all of my envelops in the future!

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Yep, this is definitely not gluten related, last few days have been so bad, I've been reaching for my breathe so much that if I swallow my throat hurt. It coming t the point that i am worried of brain damage at this point from lack of oxygen, hope I can last like that before I see the doctor. I'll update when he tell me what he found.

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Yep, this is definitely not gluten related, last few days have been so bad, I've been reaching for my breathe so much that if I swallow my throat hurt. It coming t the point that i am worried of brain damage at this point from lack of oxygen, hope I can last like that before I see the doctor. I'll update when he tell me what he found.

If its that bad, call an ambulance! Go to the hospital!

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Envelope adhesive MAY however, contain corn. So any of you who have a corn intolerance or allergy should continue to use water instead of licking them.

But, for this discussion, its gluten free. Not to confuse people - corn is considered gluten free.

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Yep, this is definitely not gluten related, last few days have been so bad, I've been reaching for my breathe so much that if I swallow my throat hurt. It coming t the point that i am worried of brain damage at this point from lack of oxygen, hope I can last like that before I see the doctor. I'll update when he tell me what he found.

Wondering how you are doing, Renegade.  Have you been to the doc?  Gotten any answers?  Still having a hard time?

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I actually was misdiagnosed as having asthma 3 years ago. I was prescribed Albuterol and actually used it for 2 years because there were times when I was short of breath.  I also had chronic sinus infections and a severe bout of vertigo. I went on a raw food vegetarian diet for 6 months and felt great. I fell off the wagon and started consuming  gluten products again and wham! All these symptoms crashed in on me, panic attacks, raceing heart, brain fog, falling into a weird deep sleep and when I woke I had feelings of doom. Olf course stress was the diagnosis and I was put on an antidepressant. It was kind of funny cuz for a while friday nights were a night mare for me , my husband and I usually went out for dinner and I would have a weird episode after. Fast forward a year later and after all that time of eating cereal for breakfast bread for lunch etc I had a complete blood panel done to check thyroid function and viola, the Dr, called me to personally inform me that I have Celiac.  So yes, I do think you can suffer from shortness of breath. Inflammation is inflammation and I think it can wreak havoc in in your throat, broncheal tubes. I also have trouble with my throat sometimes i feel like food is getting tight.  I think everyone can have different symptoms.

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Wondering how you are doing, Renegade.  Have you been to the doc?  Gotten any answers?  Still having a hard time?

I went tot he doctor, it's of course as bad as before, ups and down as always, see the last thread I made.

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