Jump to content

  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

First Experience At Refusing The Food Someone Cooked For Me.

Renegade

By Renegade
in Coping with Celiac Disease

Recommended Posts

Renegade Contributor
Renegade
Posted

Wen I arrived home today, my roommate who is already eating gluten-free for personal reasons(she doesn't have any severe intolerance) cooked a whole meal of veggies for me and before I ate it I asked her if it was gluten-free and she said yes.

 

Well i took a first bite and I could taste the clear taste of cayenne pepper and I knew exactly which package she used, and on it, it sas "may contain wheat and etc... So of course I told her I couldn't have it because the cayenne is cross-contained and she said "it may". My answer was that if it say it may, then it definitively does, so she ate it and walked out to do some bicycle exercise to lose the calories she ingested as shes on diet.

 

This remembered me of a post someone said, "if you love me then don't cook for me" which is what I told her.

 

This really pissed me off and I'll be even more vigilant next time someone try to cook for me, I already have my diet and meal planned, I don't need to have people poison me, hopefully it doesn't affect my recovery much, only ate 2 veggies.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Well done for doing what you needed to do, massive step.

I can't decide, almost a year in, if it gets easier, but I am certainly better at doing as a routine sort of thing, without being a bit cut up after. I am probably a bit less, err, emphatic and snarky about how I manage to do it.

Everyone in your life is still just learning about this ( including you).

Hope you stopped in time, and are feeling ok.

bartfull Rising Star
bartfull
Posted

Good for you! It isn't easy telling well meaning friends that you can't eat something they made special for you, but you did it. I had people trying to cook for me at first and finally I just told people I made a new rule for myself, that if I didn't cook it, I can't eat it.

 

 

I hope the "may" turns out to be a "didn't", and this doesn't set you back. Stick with it, kiddo. You're learning, and with a little time and patience you'll be full speed ahead on healing. :)

psawyer Proficient
psawyer
Posted

"May contain" is generally a warning about possible trace amounts from within the same facility. It is not the same as "does contain" and many such products are, in fact, safe to use. Also, be aware that "may contain" is a voluntary disclosure--just because you don't see it doesn't mean it isn't true.

IrishHeart Veteran
IrishHeart
Posted

And you can tell people in your life how to prepare food for you safely. I did it ---and it worked out well.

notme Experienced
notme
Posted

And you can tell people in your life how to prepare food for you safely. I did it ---and it worked out well.

i had to think hard about that one, ih - i do have a short list of people i trust to cook for me, the immediates:  my hubs, my daughters, my bff's daughter, NOT MY SON lolz, not my bff <aka 'crumbhands'   <_<

 

i suppose it just depends - my very dear friends (bless their hearts) we hang out with them on a regular basis....  will *never* get that just one mistake is *not* ok.  so i bring my own.  better safe than sorry.  people who love you will get over/used to it.

 

good for you, renegade :)

IrishHeart Veteran
IrishHeart
Posted

i had to think hard about that one, ih - i do have a short list of people i trust to cook for me

 

me too.

And there are some I know who will never, ever get it right. 

My dear friends who have done this successfully took the time to read up on CC.

They passed a "label reading 101 class" the hubs and I gave them lol. 

and

(1) They all got pretty-colored flexible cutting boards from me as a "gift"--used only when I come to dinner  :)

(2) they check with me on ingredients beforehand

(3) I assist with dinner prep--they run the ingredients past me,  and I make the salad ( I also drink wine while I watch, that sort of thing)

(4) I bring dessert--as that one seems to stump them the most.

 

I am grateful that 3 sets of friends have been so understanding and willing to learn.

Most of the time, I am the one cooking for them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

I'm with Peter.  May contain does not mean definitely does contain.  I hope that you thanked her for trying even if you can't eat it safely.  It is not her fault that she doesn't understand how careful you have to be about cross contamination.  It is easy to get grumpy about these things and important not to take it out on others.

Renegade Contributor
Renegade
Posted
  • Author

I'm with Peter.  May contain does not mean definitely does contain.  I hope that you thanked her for trying even if you can't eat it safely.  It is not her fault that she doesn't understand how careful you have to be about cross contamination.  It is easy to get grumpy about these things and important not to take it out on others.

I explained myself to her after she got back to make sure there was no misunderstanding and to be sure I didn't piss her off ;P

w8in4dave Community Regular
w8in4dave
Posted

I have not let hubbs cook for me yet. :) Altho he had Schwans man out ugh... said we were having pizza, I said I cannot eat pizza, he said Ohh yea I got you some steaks. (I thought that was sweet)Altho they "do not" say Gluten free , they are just meat, no breading no seasoning. Just meat. I let my daughter cook a burger for me yesterday :) We bought some Gluten free bread , :) Her kids didn't like the bread but I did! It had sunflower seeds in it :) ... 

I hope your room mate was not angry with you, and all is well . 

laura1959 Apprentice
laura1959
Posted

Since she is also gluten-free (or trying), maybe it would be good for both of you to look over information about cross-contamination together and then go through the cupboards and get rid of everything that might be a source for CC.  It sounds like all you'd need to do to make this work would be to get her to step up her game on the gluten front a bit.  This shouldn't be too hard.  Good on you for sticking up for what you need!  

Renegade Contributor
Renegade
Posted
  • Author

Since she is also gluten-free (or trying), maybe it would be good for both of you to look over information about cross-contamination together and then go through the cupboards and get rid of everything that might be a source for CC.  It sounds like all you'd need to do to make this work would be to get her to step up her game on the gluten front a bit.  This shouldn't be too hard.  Good on you for sticking up for what you need!  

Well shes departing next week anyway.

w8in4dave Community Regular
w8in4dave
Posted

Well hopefully if you get another room mate things go well :) 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      New Study Reveals Hidden Gut Damage in Celiac Disease—Even Without Gluten (+Video)

      After reading the study on Mucosal reactivity to cow's milk protein in coeliac disease I stopped eating processed foods that have milk as an ingredient. Though Gluten Free, "in a fraction of coeliac patients, Cows Milk protein challenge may induce an inflammatory reaction of the same magnitude, as did gluten challenge". After three months my lower belly...
    2. Wheatwacked
      - Wheatwacked replied to Ginger38's topic in Coping with Celiac Disease
      6

      The Struggle Has Overtaken Me

      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.
    3. cristiana
      - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Hi @CC90 Ah... that is very interesting. Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time? I could be wrong, but I would not be at all surprised if they find something on the next attempt. Coeliac damage can be very patchy, as I understand...
    4. CC90
      - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Hi Cristiana Yes I've had the biopsy results showing normal villi and intestinal mucosa. The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.
    5. Wheatwacked
      - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives. An elevated level means your immune system is reacting to gluten. Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis o...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,196
    • Most Online (within 30 mins)
      10,442
    Spider2026
    Newest Member
    Spider2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      The Struggle Has Overtaken Me

      By Wheatwacked · Posted

      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Coeliac or not coeliac

      By cristiana · Posted

      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Coeliac or not coeliac

      By Wheatwacked · Posted

      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Coeliac or not coeliac

      By trents · Posted

      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
×
×
  • Create New...