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      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Renegade

Apparently You Guys Were Right, It's All In My Head!

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So I went to the clinic, didn't wait for the weekend, skipped 12 hours of work, unpaid of course and told the doctor about all my symptoms, to my impression she actually listened and requested to have a full check of my issue via blood test and stomach as well as colon/intestine exam.

 

The next day I got my blood test done,got tested for a list of all stuff like thyroid,vitamin B12, Biochemistry (urine test) and just a handful of other stuff I can't remember because I don't have the paper anymore, they took 5 ingestion, 2 for other test and 3 for lactose. I will be getting the stomach and colon exams in September.

 

Well so apparently all I have is a lactose intolerance and everything else is fine.

 

So i guess my symptoms such as:

 

-Neck Pain

-Extreme fatigue

-Cutting out ,exercise and ton of other foods

-Digestive issue

-Stomach pain when eating almost anything

-Constipation

-Shortness of breathe

-Feeling of throat inflammation

-Brain fogs

-Eye pain to the point I had to rest 12 hours yesterday not cause of fatigue but simply because having my eyes open hurt too much.

and just so many more

 

Those are probably all in my heads, most likely has to be related by my pathetic panic attacks right? As this is what you guys been suggesting.

 

I'll be getting a copy of my results tonight so maybe you experts can have a look and confirm it's indeed all in my mind.

 

Guess I must also not been gluten intolerant or celiac, might wanna go back to eating it again as it only got worse since i quit.

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Well it doesn't seem to be gluten number one

Number two you don't like this forum and have made it clear that we are rude even though you have received tons of advice

Number three I have all the symptoms your talking about and I've been gluten free over 2 months. Guess what my dr is suggesting? Lactose or even a milk allergy because I actually get short of breath and stuffy nose etc. I've had the neck pain all week.

I know I can't eat gluten but you've never really confirmed that right?

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I didn't start to feel really well, besides some intestinal improvements, until I was 6 months gluten-free; in fact (for a while) I felt worse after a few months gluten-free. I am now over one year gluten-free and I still have symptoms that my hubby has never experienced although they are less severe than they used to be. It's not an overnight fix.

 

If you think it's NCGI then stick with the diet for longer and look into other options in the meantime.... and drop dairy.  Good luck.

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I had already dropped dairy, except milk in my coffee there and there and had some lactose free milk, i had cut yogurt and was already on almond milk for moths before getting all those symptoms.

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If you are still having occassional dairy in your coffee, and lactose free milk, that's not dropping dairy. I would consider that dairy-lite.  Try going 100% dairy free including dairy in baked goods and in junk foods like nachos as well. It couldn't hurt to tighten it up a bit.

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If you are still having occassional dairy in your coffee, and lactose free milk, that's not dropping dairy. I would consider that dairy-lite.  Try going 100% dairy free including dairy in baked goods and in junk foods like nachos as well. It couldn't hurt to tighten it up a bit.

I did not have junk food in over 4 months. I though dairy was bad because of lactose, is there more to it then just lactose?

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Dropping dairy means reading every label for hidden dairy. Not just looking for milk but for all of its possible derivatives, in every food you eat that has ingredients.

 

If part of what they're doing next month includes a scope you need to be eating gluten for a biopsy to show celiac if you do actually have it. It sounds like the doctor is looking for problems, not telling you the issue is in your head. Not the same thing at all.

 

My daughter is lactose intolerant and it took 18 years to get a diagnosis. She was incredibly sick before they discovered her issue. She wasn't sleeping well, was in constant pain, but especially when she ate, alternating C and D, so much more that pointed to a textbook celiac case. But her blood work and biopsy were negative, she responded (at least partly) to a lactose free diet and everything comes back if she has diary. I wouldn't make assumptions about what dairy can or can't do to your whole system when it doesn't agree with you.

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Well....that is the joy of figuring these things out. I would say, given the fact that a large portion of the people here went 20, 30+ years having symptoms before they got diagnosed....you're right on track! ;)

 

But seriously. No one here ever said anything was in your head. You were given good advice. Your choice if you follow it or not.

Saying you dropped dairy and still have it in your coffee and baked goods and other things that you're eating or drinking is like saying you're gluten free but still having a sandwich with regular bread for lunch.

 

It's hard. We all know this. We've all been frustrated by it. Some spent their whole lives sicker than you have been on your sickest day. Get all your test results back and yes, post them. You at least have one diagnosis right now. This is a good thing! Did the doctor tell you it's all in your head? It sure doesn't seem like it if you were diagnosed with lactose intolerance. Do you have all the results from the other tests that were run or are you still waiting for them?

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Hard? I couldn't give less a crap about giving up dairy, only reason I was having it in my coffee was because I wouldn't bring my almond milk at work because I wouldn't ever drink enough almond milk at work to drink the whole thing before it spoil, I'll be off work at the end of the mount, it will be easy then. I was already off yogurt and cheese or any dairy thing beside butter, once in a blue moon.

 

What's hard is the fact I had cut, so many things only to get just as sick and worse, was it weed, coffee, nuts, nightshades, garlic, dairy, gluten, oat, grains,cross-contamination or hell even hidden magic, it could have been anything. 

 

The doctor didn't say it was in my head, but said that there was nothing else in my blood results so she didn't contact me as nothing was alarming, you guys on the forum did mention several times that all of this looked like anxiety, anxiety is in your head.

 

So now you guys are saying that dairy could be what this been all along! There must be a lot of hidden dairy in vegetables,rice,fruits,meat and almond milk, as this is what i been eating for the past 2 months

I really doubt that a little bit of milk and 1/2 spoon of butter would make me so sick, specially since for days I would not have it at all and still be just as sick. It's not like i was having it regularly, also, I only felt bad ONCE after having milk and that was from a chocolate bar but I guess a little bit of milk once in a week which doesn't make me feel bad is enough to make me feel like I am physically dying every day.

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Remember we are not doctors. I think you are putting way to much responsibility and blame on this forum. I mean the subject line alone reads we are to blame basically. I can't really help much anymore and not sure anyone else here can.....

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One more person to advise that dropping dairy means ALL dairy.  I continued for about a year to just use cream in my coffee and had pretty bad D almost constantly.  It was when I finally dropped all dairy that I started to heal from the damage dairy was doing to my body.  

 

And I know it's frustrating when you feel like people are telling you that things are all in your head.  I know a lot of people on this board have felt that way for sure!  This should be the place that you don't feel that way.   Getting rid of gluten, corn and dairy cleared up 90% of my issues.  The frustrating thing is that uncovering the rest of the puzzle is hard.  And it seems like food sensitivities can come and go (I've had to drop eggs, but then got them back)

 

This process will teach you to listen to your body, and not worry so much about outside noise.  I don't use this board much anymore, but in the beginning this place was an absolute lifesaver.  

 

Good luck in your journey!

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  I believe you were brought up the fact that you have anxiety attacks early on in your postings.

 

Looks like you found a doctor to help you.  Obviously you haven't died as you threatened to a few times.  :D   When you kept insisting that you couldn't breathe, we all told you that was serious (if it was true) and needed immediate attention. 

 

It appears you don't need or want our help any longer.  I hope this doctor can help you with your issues. 

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While anxiety is literally in your head because it involves being an issue with your brain, that doesn't make it an "in your head" as in an imaginary issue or one that is to be taken lightly. When that was suggested, no one was saying that the problem wasn't serious or that you shouldn't seek medical attention. They were simply relating what their experiences were when they had issues with anxiety and how that related to causing all sorts or problems. My only real anxiety issues are in relation to the dentist or a few (very serious) phobias. When I have a dentist appointment coming up I get incredibly ill for days beforehand as I get more and more worried about how it will go. And if I have a panic attack, I will be sick for days or sometimes more than a week after. It alters every aspect of my life when it happens. I get tired, pain, GI issues, headaches, worse than usual insomnia, appetite disruption and mood issues. It goes away, but not right away. Having something chemically altered in your head can impact so much of your body, and it isn't imaginary or less real than having any other disease or illness. So I think you need to get over the idea that having this sort of issue is less of an issue or should be a "non-issue" or maybe isn't really real. Would you treat a beloved family member that way? Tell them that? No? Than why would you do it to yourself?

 

You're saying that we (the forum) are saying it could have been dairy all along? Your doctor is telling you you have a dairy problem. Not us. We have been telling you repeatedly and often to seek medical care. Beyond that we have been relating what have been our collective experiences and how they may related to your situation. That is what a community does. You have been combative and dismissive and yet we have tried to help. You are still being combative by trying to blame us for misdiagnosing you all along when we should have just told you it was a dairy problem. When we have told you all along (again) that we were sharing opinions or our own experiences and to seek medical care. I'm glad you finally did. Now you will be able to get definitive answers for what is wrong and be able to treat it accordingly.

 

I can tell you that from what I have seen my daughter experience, cutting out most, nearly all or all but this tiny bit I don't think I can live without for the next month will leave you with symptoms related to your lactose intolerance. Being lactose free means FREE, not lactose light. You can get a small container to bring a week's worth of almond milk to work in for your coffee. Or, as I long ago learned in situations where I had to choose between coffee without milk or no coffee, I prefer my coffee with just sugar to not at all. You may find the same is true if you give it a go a few times.

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I did not have junk food in over 4 months. I though dairy was bad because of lactose, is there more to it then just lactose?

 

Yes. Some people have problems with more than just the sugar (lactose) in milk. Some have issues with the casein (protein) too and possibly the whey. My son's behaviour is affected by milk. He is much calmer and more focused when he is dairy free, and by dairy free I mean zero dairy in anything.

 

Dairy may not be the cause of all of your problems, but it might be causing some of them. You did say your doctor found you have a problem with dairy, right? Work with that for now.

 

Earth's balance is a very nice butter substitute that you might consider. Coconut oil is tasty for cooking and baking. 

 

For your coffee, a can of coconut milk might be good for at work, or take a small amount of almond milk in a jar to work and freeze the rest for the following week.

 

As for the anxiety, yes it is in your head, but so are my migraines - it doesn't mean that you are making it up.Gluten induced anxiety is a symptom of gluten intolerance. Anxiety can also be caused by a number of other health related issues. Perhaps try googling the causes and you will find something that fits for you and then do more research into it. 

http://www.medicalnewstoday.com/info/anxiety/what-causes-anxiety.php

http://www.mayoclinic.com/health/anxiety/DS01187/DSECTION=causes

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The thing is you guys think It could have been anxiety, as in I was having stress for who knows why, I wasn't having anxiety, I wasn't being in a panic attack, I did get anxiety before and this is how I can tell that how i was feeling in those very moment was NOT anxiety but you guys still suggested that how I was feeling was likely to be anxiety. Meaning that yes it is in my head to feel panicked for whatever reason but there is nothing wrong with my mind, yes i had a crap ton of stress out for so many things but no I wasn't in a state of panicking, i been managing my stress, I am not saying this to protect my ego, I am saying this because I know how I feel and how it feel to be panicked because again, i have been and know how it feels like and ths I can tell when I am not in this state.

 

My doctor has never mentioned the word dairy, she said LACTOSE intolerance and suggested lactose free milk and lactose free products, which I been doing already by having lactose free milk a FEW times since last week before that I had occasion milk at work and been on almond milk for MONTHS.

 

I will definitively go lactose,casein and whey free and see if this does anything, although I am sure it won't as everything I cut so far has done nothing to improve but there is nothing to lose from this at that point.

 

As far as my breathing, no it didn't kill me, doesn't make it any less be imaginating it.

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Ya know mate i used to drink almond milk every day then i started feeling sick from it and i have no other diary products, so you could try dropping it like ive no idea what is in it that caused it for me but i just got rid of it. Also the whey in my protein shake but its tolerable. GL

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Ya know mate i used to drink almond milk every day then i started feeling sick from it and i have no other diary products, so you could try dropping it like ive no idea what is in it that caused it for me but i just got rid of it. Also the whey in my protein shake but its tolerable. GL

How would it feel when it would make you sick, nausea, cramps,digestive issue?

 

And how fast would you get a reaction?

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I did not have junk food in over 4 months. I though dairy was bad because of lactose, is there more to it then just lactose?

 

Yes, there is also the protein called caseine.  I'm sorry you are having a hard time.  I've not read all the responses, just wanted to say that sometimes people can react to things without having an actual allergy or proven intolerance to it. 

 

My step mum can't have a whole load of things but no tests have shown her what she can or can't have, she just knows what makes her feel bad and what makes her feel good and chooses the food that makes her feel good.  That means no garlic, onion, shallots, chickpeas and some other things, I get them to email a list before each visit, but their visits are years apart anyway.  She can't have gluten either. 

 

As for anxiety, I have really bad anxiety and get anxiety attacks.  This is not the same as feeling stressed.  This is feeling like being in the grips of a heart attack. 

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Hi R,

 

I suggest you don't assume that there is only one cause of your symptoms.  If you read the signature lines of some forum members you will see that they may have multiple food intolerances besides gluten.  That isn't real unusual.  Eliminating one problem food can change or improve your symptoms, but if there are other problem foods in your diet, it won't get rid of all your symptoms.

 

Casein sensitive enteropathy is a condition that causes gut damage from casein.  There is no automatic fix to food intolerances, we just have to figure them out and avoid the problem foods.  B-vitamins being low might cause anxiety in some cases.  turns out B vitamins are very important for nerve function.  And guess what your brain is full of?  Nerve cells!

 

It sounds like you went gluten-free and your symptoms got worse?  That doesn't mean you aren't gluten sensitive.  People often report feeling worse on the gluten-free diet for a while after they start it.  It's not an instant fix type of thing, but a slow slog to improvement.  Keeping with the gluten-free diet for 6 months or more is a pretty good start.

 

If you want to research how gluten can affect the brain, try searching on gluten ataxia or gluten and pschizopohrenia.  There is lots of info on the web about it.

 

I suggest you keep with the gluten-free diet since it is not going to hurt you and it may end up helping you a lot.  NCGI does not show up on any standard testing right now, so your doc won't be able to test you for it.

 

You  have a good start, may as well keep it for for a few more months and see if things start to improve IMHO.

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How would it feel when it would make you sick, nausea, cramps,digestive issue?

 

And how fast would you get a reaction?

 

Its awhile ago now

 

How would it feel when it would make you sick, nausea, cramps,digestive issue?

 

And how fast would you get a reaction?

 

It was awhile ago now but i just had that feeling that it wasnt agrreing with my body and then i was like it cant be this but it continued so i stopped, it was a similar feeling i get with all diary which is like a blocked stuffy feeling on my inside like stuff isnt operating properly. It did not cause cramps are that pain we get on our left sides that only comes from direct gluten for me. Not long after i tend to think that mild reactions happen quicker for me anyway, about 30 mins to 3 hours usally is my reaction time. If i have been proper done in though it might be a day or 2 then i know im f#%$£.

 

If you want to take the time to list your daily diet i could have a look and others seem willing to help, i eat the same food every day same time etc but thats largly because of my gym routine/diet. I think this is the best way to be your healthiest find food that works and stick with it.

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So here are my test results

 

Sanguine formula:

White Globules: 3,6 x10^9/L

Red Globules: 5,16 x10^12/L

HB: 164 g/L

HT: 0,486 fl

VGM: 94,2 fl

HGM: 31,9 pg

CHGM: 338 g/L

DVE: 13 fl

VPM: 9,0 fl

Platelet: 120 unit x10^9/L

 

Differential:

Neutrophil: 1,74 x10^9/L

Lymphocyte‎: 1,42 x10^9/L

Monocyte: 0,17 x10^9/L

Eosinophil: 0,10 x10^9/L

Basophil: 0,03 x10^9/L

LUC: 0,09 x10^9/L

 

Routine:

Sodium: 139 umol/L

Potassium: 4,42 umol/L

Chloride: 101umol/L

Fasting glucose: 4,6 umol/L

Creatinine: 88 umol/L

IDMS-traceable creatinine: 73,1

Glomerular Filtration estimation: >=120 unit mL/min/l

ALT: 67 U/L

ALP: 102 U/L

Amylase: 43 U/L

Lipase: 90 U/L

Bilirubin: 13,9 umol/L

Proteins: 71 g/L

Albumin: 45 g/L

Albumin-globulin ratio: 1,73 g/L

 

Cardiovascular tests:

Total Cholesterol: 3,96 mmol/L

HDL-Cholesterol: 1,50 mmol/L

LDL-Cholesterol: 2,19 mmol/L

Cholesterol / HDL Ratio: 2,64 mmol/L

Triglyceride 0,58: mmol/L

 

Urinary Biochemistry:

Appearance: Clear

Color: Citrin

Density: 1,013 < 1,040

pH: 7,0

Protein Traces: Positive

Blood: Negative

Everything else is also negative

 

Microscopic Cell exam (400x):

White globules: 1,2

Red globules: 1-2

Mucus traces

 

Oh here is the interesting part, the lactose intolerance test

 

Administrated dose: 75g

Fasting glucose: 4,6mmol/L

Glucose 30 minutes later: 5,5 mmol/L

Glucose 1 hour later: 4,3 mmol/L

Glucose 2hour later 4,3 mmol/L

 

Vitamins and anemia test:

TSH: 1,38 mU/L

Vitamin B12: 654 pmol/L

Folic Acid: 24,9 nmol/L

Ferritin: 329 ug/L

Iron: 24,3 umol/L

CTFF: 49 umol/L

Saturation coefficient: 0,50

Transferrin‎: 1,96 g/L

 

So that's it if you guys can make anything out of these results and also it seem to me the white blood cells are a bit low.

Oh ya my vitamin B12 are Iron are in the top of the normality, not surprising I been having B12 vitamin from almond milk and supplements as well as iron form beef for a long time.

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So here are my test results

 

Sanguine formula:

White Globules: 3,6 x10^9/L

Red Globules: 5,16 x10^12/L

HB: 164 g/L

HT: 0,486 fl

VGM: 94,2 fl

HGM: 31,9 pg

CHGM: 338 g/L

DVE: 13 fl

VPM: 9,0 fl

Platelet: 120 unit x10^9/L

 

Differential:

Neutrophil: 1,74 x10^9/L

Lymphocyte‎: 1,42 x10^9/L

Monocyte: 0,17 x10^9/L

Eosinophil: 0,10 x10^9/L

Basophil: 0,03 x10^9/L

LUC: 0,09 x10^9/L

 

Routine:

Sodium: 139 umol/L

Potassium: 4,42 umol/L

Chloride: 101umol/L

Fasting glucose: 4,6 umol/L

Creatinine: 88 umol/L

IDMS-traceable creatinine: 73,1

Glomerular Filtration estimation: >=120 unit mL/min/l

ALT: 67 U/L

ALP: 102 U/L

Amylase: 43 U/L

Lipase: 90 U/L

Bilirubin: 13,9 umol/L

Proteins: 71 g/L

Albumin: 45 g/L

Albumin-globulin ratio: 1,73 g/L

 

Cardiovascular tests:

Total Cholesterol: 3,96 mmol/L

HDL-Cholesterol: 1,50 mmol/L

LDL-Cholesterol: 2,19 mmol/L

Cholesterol / HDL Ratio: 2,64 mmol/L

Triglyceride 0,58: mmol/L

 

Urinary Biochemistry:

Appearance: Clear

Color: Citrin

Density: 1,013 < 1,040

pH: 7,0

Protein Traces: Positive

Blood: Negative

Everything else is also negative

 

Microscopic Cell exam (400x):

White globules: 1,2

Red globules: 1-2

Mucus traces

 

Oh here is the interesting part, the lactose intolerance test

 

Administrated dose: 75g

Fasting glucose: 4,6mmol/L

Glucose 30 minutes later: 5,5 mmol/L

Glucose 1 hour later: 4,3 mmol/L

Glucose 2hour later 4,3 mmol/L

 

Vitamins and anemia test:

TSH: 1,38 mU/L

Vitamin B12: 654 pmol/L

Folic Acid: 24,9 nmol/L

Ferritin: 329 ug/L

Iron: 24,3 umol/L

CTFF: 49 umol/L

Saturation coefficient: 0,50

Transferrin‎: 1,96 g/L

 

So that's it if you guys can make anything out of these results and also it seem to me the white blood cells are a bit low.

Oh ya my vitamin B12 are Iron are in the top of the normality, not surprising I been having B12 vitamin from almond milk and supplements as well as iron form beef for a long time.

 

Wow tats alot, il leave it to more qualifed members to answer that, i will just say i had low white blood cells aswell and iron which urs seems fine

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So here are my test results

 

Sanguine formula:

White Globules: 3,6 x10^9/L

Red Globules: 5,16 x10^12/L

HB: 164 g/L

HT: 0,486 fl

VGM: 94,2 fl

HGM: 31,9 pg

CHGM: 338 g/L

DVE: 13 fl

VPM: 9,0 fl

Platelet: 120 unit x10^9/L

 

Differential:

Neutrophil: 1,74 x10^9/L

Lymphocyte‎: 1,42 x10^9/L

Monocyte: 0,17 x10^9/L

Eosinophil: 0,10 x10^9/L

Basophil: 0,03 x10^9/L

LUC: 0,09 x10^9/L

 

Routine:

Sodium: 139 umol/L

Potassium: 4,42 umol/L

Chloride: 101umol/L

Fasting glucose: 4,6 umol/L

Creatinine: 88 umol/L

IDMS-traceable creatinine: 73,1

Glomerular Filtration estimation: >=120 unit mL/min/l

ALT: 67 U/L

ALP: 102 U/L

Amylase: 43 U/L

Lipase: 90 U/L

Bilirubin: 13,9 umol/L

Proteins: 71 g/L

Albumin: 45 g/L

Albumin-globulin ratio: 1,73 g/L

 

Cardiovascular tests:

Total Cholesterol: 3,96 mmol/L

HDL-Cholesterol: 1,50 mmol/L

LDL-Cholesterol: 2,19 mmol/L

Cholesterol / HDL Ratio: 2,64 mmol/L

Triglyceride 0,58: mmol/L

 

Urinary Biochemistry:

Appearance: Clear

Color: Citrin

Density: 1,013 < 1,040

pH: 7,0

Protein Traces: Positive

Blood: Negative

Everything else is also negative

 

Microscopic Cell exam (400x):

White globules: 1,2

Red globules: 1-2

Mucus traces

 

Oh here is the interesting part, the lactose intolerance test

 

Administrated dose: 75g

Fasting glucose: 4,6mmol/L

Glucose 30 minutes later: 5,5 mmol/L

Glucose 1 hour later: 4,3 mmol/L

Glucose 2hour later 4,3 mmol/L

 

Vitamins and anemia test:

TSH: 1,38 mU/L

Vitamin B12: 654 pmol/L

Folic Acid: 24,9 nmol/L

Ferritin: 329 ug/L

Iron: 24,3 umol/L

CTFF: 49 umol/L

Saturation coefficient: 0,50

Transferrin‎: 1,96 g/L

 

So that's it if you guys can make anything out of these results and also it seem to me the white blood cells are a bit low.

Oh ya my vitamin B12 are Iron are in the top of the normality, not surprising I been having B12 vitamin from almond milk and supplements as well as iron form beef for a long time.

Can you edit this to give reference ranges from the lab? Different labs use different ranges Also your lactose test appears to be a glucose tolerance test rather than a lactose test.

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The thing is you guys think It could have been anxiety, as in I was having stress for who knows why, I wasn't having anxiety, I wasn't being in a panic attack, I did get anxiety before and this is how I can tell that how i was feeling in those very moment was NOT anxiety but you guys still suggested that how I was feeling was likely to be anxiety. Meaning that yes it is in my head to feel panicked for whatever reason but there is nothing wrong with my mind, yes i had a crap ton of stress out for so many things but no I wasn't in a state of panicking, i been managing my stress, I am not saying this to protect my ego, I am saying this because I know how I feel and how it feel to be panicked because again, i have been and know how it feels like and ths I can tell when I am not in this state.

 

My doctor has never mentioned the word dairy, she said LACTOSE intolerance and suggested lactose free milk and lactose free products, which I been doing already by having lactose free milk a FEW times since last week before that I had occasion milk at work and been on almond milk for MONTHS.

 

I will definitively go lactose,casein and whey free and see if this does anything, although I am sure it won't as everything I cut so far has done nothing to improve but there is nothing to lose from this at that point.

 

As far as my breathing, no it didn't kill me, doesn't make it any less be imaginating it.

It sounds like you have been posting on this site for a while. I have only read this string, so only  know your situation as posted here. 

I notice that many people with celiac and gluten intolerance also have other sensitivities.Symptoms can be very similar. I apologize if this has already been discussed.  As mentioned in an earlier post, it can still take weeks to months before cutting gluten out will find issue resolving. This is my experience as well. Some struggle with finding the other sensitivities they have. you can imagine if there are multiple sensitivities and an undefined time before they go away, and all the many ingredients in foods - well, its a challenge! Limiting your diet to a smaller number of foods, cutting out sources of common troublesome foods for a period of time to see if anything gets better, then reintroducing one at a time to find out if any cause problems is something that you could try. I understand that soy, corn, milk, eggs can cause problems, just as examples. Finding packaged or even baked foods with out these is a challenge.We went through this with my daughter. At the time we didn't know nearly what we do now and so we did not do it right the first time! I should mention that the sensitivities I am speaking of are not the same as allergies.

Another thing I have noticed is that while healing, it did help to cut down on carbohydrates. I don't know why. This is just another observation from my experience.

While the issues you are experiencing may have nothing to do with food, so many people on this forum can relate to your symptoms. It isn't easy to figure it all out. I hope that someone's thoughts or experiences shared here might help you.

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Yea I'll update with the range tonight, got pretty lazy at the end after writing it for an hour.

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  • Who's Online   8 Members, 1 Anonymous, 1,357 Guests (See full list)

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    Jefferson Adams
    Celiac.com 04/25/2018 - A team of Yale University researchers discovered that bacteria in the small intestine can travel to other organs and trigger an autoimmune response. In this case, they looked at Enterococcus gallinarum, which can travel beyond the gut to the spleen, lymph nodes, and liver. The research could be helpful for treating type 1 diabetes, lupus, and celiac disease.
    In autoimmune diseases, such as type 1 diabetes, lupus, and celiac disease, the body’s immune system mistakenly attacks healthy cells and tissues. Autoimmune disease affects nearly 24 million people in the United States. 
    In their study, a team of Yale University researchers discovered that bacteria in the small intestine can travel to other organs and trigger an autoimmune response. In this case, they looked at Enterococcus gallinarum, which can travel beyond the gut to the spleen, lymph nodes, and liver. They found that E. gallinarum triggered an autoimmune response in the mice when it traveled beyond the gut.
    They also found that the response can be countered by using antibiotics or vaccines to suppress the autoimmune reaction and prevent the bacterium from growing. The researchers were able to duplicate this mechanism using cultured human liver cells, and they also found the bacteria E. gallinarum in the livers of people with autoimmune disease.
    The team found that administering an antibiotic or vaccine to target E. gallinarum suppressed the autoimmune reaction in the mice and prevented the bacterium from growing. "When we blocked the pathway leading to inflammation," says senior study author Martin Kriegel, "we could reverse the effect of this bug on autoimmunity."
    Team research team plans to further investigate the biological mechanisms that are associated with E. gallinarum, along with the potential implications for systemic lupus and autoimmune liver disease.
    This study indicates that gut bacteria may be the key to treating chronic autoimmune conditions such as systemic lupus and autoimmune liver disease. Numerous autoimmune conditions have been linked to gut bacteria.
    Read the full study in Science.

    Tammy Rhodes
    Celiac.com 04/24/2018 - Did you know in 2017 alone, the United States had OVER TENS OF THOUSANDS of people evacuate their homes due to natural disasters such as fires, floods, hurricanes, tornadoes and tsunamis? Most evacuation sites are not equipped to feed your family the safe gluten free foods that are required to stay healthy.  Are you prepared in case of an emergency? Do you have your Gluten Free Emergency Food Bag ready to grab and go?  
    I have already lived through two natural disasters. Neither of which I ever want to experience again, but they taught me a very valuable lesson, which is why I created a Gluten Free Emergency Food Bag (see link below). Here’s my story. If you’ve ever lived in or visited the Los Angeles area, you’re probably familiar with the Santa Ana winds and how bitter sweet they are. Sweet for cleaning the air and leaving the skies a brilliant crystal blue, and bitter for the power outages and potential brush fires that might ensue.  It was one of those bitter nights where the Santa Ana winds were howling, and we had subsequently lost our power. We had to drive over an hour just to find a restaurant so we could eat dinner. I remember vividly seeing the glow of a brush fire on the upper hillside of the San Gabriel Mountains, a good distance from our neighborhood. I really didn’t think much of it, given that it seemed so far from where we lived, and I was hungry! After we ate, we headed back home to a very dark house and called it a night. 
    That’s where the story takes a dangerous turn….about 3:15am. I awoke to the TV blaring loudly, along with the lights shining brightly. Our power was back on! I proceeded to walk throughout the house turning everything off at exactly the same time our neighbor, who was told to evacuate our street, saw me through our window, assuming I knew that our hillside was ablaze with flames. Flames that were shooting 50 feet into the air. I went back to bed and fell fast asleep. The fire department was assured we had left because our house was dark and quiet again. Two hours had passed.  I suddenly awoke to screams coming from a family member yelling, “fire, fire, fire”! Flames were shooting straight up into the sky, just blocks from our house. We lived on a private drive with only one way in and one way out.  The entrance to our street was full of smoke and the fire fighters were doing their best to save our neighbors homes. We literally had enough time to grab our dogs, pile into the car, and speed to safety. As we were coming down our street, fire trucks passed us with sirens blaring, and I wondered if I would ever see my house and our possessions ever again. Where do we go? Who do we turn to? Are shelters a safe option? 
    When our daughter was almost three years old, we left the West Coast and relocated to Northern Illinois. A place where severe weather is a common occurrence. Since the age of two, I noticed that my daughter appeared gaunt, had an incredibly distended belly, along with gas, stomach pain, low weight, slow growth, unusual looking stool, and a dislike for pizza, hotdog buns, crackers, Toast, etc. The phone call from our doctor overwhelmed me.  She was diagnosed with Celiac Disease. I broke down into tears sobbing. What am I going to feed my child? Gluten is everywhere.
    After being scoped at Children's Hospital of Chicago, and my daughters Celiac Disease officially confirmed, I worried about her getting all the nutrients her under nourished body so desperately needed. I already knew she had a peanut allergy from blood tests, but just assumed she would be safe with other nuts. I was so horribly wrong. After feeding her a small bite of a pistachio, which she immediately spit out, nuts would become her enemy. Her anaphylactic reaction came within minutes of taking a bite of that pistachio. She was complaining of horrible stomach cramps when the vomiting set in. She then went limp and starting welting. We called 911.
    Now we never leave home without our Epipens and our gluten free food supplies. We analyze every food label. We are hyper vigilant about cross contamination. We are constantly looking for welts and praying for no stomach pain. We are always prepared and on guard. It's just what we do now. Anything to protect our child, our love...like so many other parents out there have to do every moment of ever day!  
    Then, my second brush with a natural disaster happened, without any notice, leaving us once again scrambling to find a safe place to shelter. It was a warm and muggy summer morning, and my husband was away on a business trip leaving my young daughter and me to enjoy our summer day. Our Severe Weather Alert Radio was going off, again, as I continued getting our daughter ready for gymnastics.  Having gotten used to the (what seemed to be daily) “Severe Thunderstorm warning,” I didn’t pay much attention to it. I continued downstairs with my daughter and our dog, when I caught a glimpse out the window of an incredibly black looking cloud. By the time I got downstairs, I saw the cover to our grill literally shoot straight up into the air. Because we didn’t have a fenced in yard, I quickly ran outside and chased the cover, when subsequently, I saw my neighbor’s lawn furniture blow pass me. I quickly realized I made a big mistake going outside. As I ran back inside, I heard debris hitting the front of our home.  Our dog was the first one to the basement door! As we sat huddled in the dark corner of our basement, I was once again thinking where are we going to go if our house is destroyed. I was not prepared, and I should have been. I should have learned my lesson the first time. Once the storm passed, we quickly realized we were without power and most of our trees were destroyed. We were lucky that our house had minimal damage, but that wasn’t true for most of the area surrounding us.  We were without power for five days. We lost most of our food - our gluten free food.
    That is when I knew we had to be prepared. No more winging it. We couldn’t take a chance like that ever again. We were “lucky” one too many times. We were very fortunate that we did not lose our home to the Los Angeles wildfire, and only had minimal damage from the severe storm which hit our home in Illinois.
      
    In 2017 alone, FEMA (Federal Emergency Management Agency) had 137 natural disasters declared within the United States. According to FEMA, around 50% of the United States population isn’t prepared for a natural disaster. These disasters can happen anywhere, anytime and some without notice. It’s hard enough being a parent, let alone being a parent of a gluten free family member. Now, add a natural disaster on top of that. Are you prepared?
    You can find my Gluten Free Emergency Food Bags and other useful products at www.allergynavigator.com.  

    Jefferson Adams
    Celiac.com 04/23/2018 - A team of researchers recently set out to learn whether celiac disease patients commonly suffer cognitive impairment at the time they are diagnosed, and to compare their cognitive performance with non-celiac subjects with similar chronic symptoms and to a group of healthy control subjects.
    The research team included G Longarini, P Richly, MP Temprano, AF Costa, H Vázquez, ML Moreno, S Niveloni, P López, E Smecuol, R Mazure, A González, E Mauriño, and JC Bai. They are variously associated with the Small Bowel Section, Department of Medicine, Dr. C. Bonorino Udaondo Gastroenterology Hospital; Neurocience Cognitive and Traslational Institute (INECO), Favaloro Fundation, CONICET, Buenos Aires; the Brain Health Center (CESAL), Quilmes, Argentina; the Research Council, MSAL, CABA; and with the Research Institute, School of Medicine, Universidad del Salvador.
    The team enrolled fifty adults with symptoms and indications of celiac disease in a prospective cohort without regard to the final diagnosis.  At baseline, all individuals underwent cognitive functional and psychological evaluation. The team then compared celiac disease patients with subjects without celiac disease, and with healthy controls matched by sex, age, and education.
    Celiac disease patients had similar cognitive performance and anxiety, but no significant differences in depression scores compared with disease controls.
    A total of thirty-three subjects were diagnosed with celiac disease. Compared with the 26 healthy control subjects, the 17 celiac disease subjects, and the 17 disease control subjects, who mostly had irritable bowel syndrome, showed impaired cognitive performance (P=0.02 and P=0.04, respectively), functional impairment (P<0.01), and higher depression (P<0.01). 
    From their data, the team noted that any abnormal cognitive functions they saw in adults with newly diagnosed celiac disease did not seem not to be a result of the disease itself. 
    Their results indicate that cognitive dysfunction in celiac patients could be related to long-term symptoms from chronic disease, in general.
    Source:
    J Clin Gastroenterol. 2018 Mar 1. doi: 10.1097/MCG.0000000000001018.

    Connie Sarros
    Celiac.com 04/21/2018 - Dear Friends and Readers,
    I have been writing articles for Scott Adams since the 2002 Summer Issue of the Scott-Free Press. The Scott-Free Press evolved into the Journal of Gluten Sensitivity. I felt honored when Scott asked me ten years ago to contribute to his quarterly journal and it's been a privilege to write articles for his publication ever since.
    Due to personal health reasons and restrictions, I find that I need to retire. My husband and I can no longer travel the country speaking at conferences and to support groups (which we dearly loved to do) nor can I commit to writing more books, articles, or menus. Consequently, I will no longer be contributing articles to the Journal of Gluten Sensitivity. 
    My following books will still be available at Amazon.com:
    Gluten-free Cooking for Dummies Student's Vegetarian Cookbook for Dummies Wheat-free Gluten-free Dessert Cookbook Wheat-free Gluten-free Reduced Calorie Cookbook Wheat-free Gluten-free Cookbook for Kids and Busy Adults (revised version) My first book was published in 1996. My journey since then has been incredible. I have met so many in the celiac community and I feel blessed to be able to call you friends. Many of you have told me that I helped to change your life – let me assure you that your kind words, your phone calls, your thoughtful notes, and your feedback throughout the years have had a vital impact on my life, too. Thank you for all of your support through these years.

    Jefferson Adams
    Celiac.com 04/20/2018 - A digital media company and a label data company are teaming up to help major manufacturers target, reach and convert their desired shoppers based on dietary needs, such as gluten-free diet. The deal could bring synergy in emerging markets such as the gluten-free and allergen-free markets, which represent major growth sectors in the global food industry. 
    Under the deal, personalized digital media company Catalina will be joining forces with Label Insight. Catalina uses consumer purchases data to target shoppers on a personal base, while Label Insight works with major companies like Kellogg, Betty Crocker, and Pepsi to provide insight on food label data to government, retailers, manufacturers and app developers.
    "Brands with very specific product benefits, gluten-free for example, require precise targeting to efficiently reach and convert their desired shoppers,” says Todd Morris, President of Catalina's Go-to-Market organization, adding that “Catalina offers the only purchase-based targeting solution with this capability.” 
    Label Insight’s clients include food and beverage giants such as Unilever, Ben & Jerry's, Lipton and Hellman’s. Label Insight technology has helped the Food and Drug Administration (FDA) build the sector’s very first scientifically accurate database of food ingredients, health attributes and claims.
    Morris says the joint partnership will allow Catalina to “enhance our dataset and further increase our ability to target shoppers who are currently buying - or have shown intent to buy - in these emerging categories,” including gluten-free, allergen-free, and other free-from foods.
    The deal will likely make for easier, more precise targeting of goods to consumers, and thus provide benefits for manufacturers and retailers looking to better serve their retail food customers, especially in specialty areas like gluten-free and allergen-free foods.
    Source:
    fdfworld.com

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