Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Documentary Show


JenM

Recommended Posts

JenM Apprentice

There will be an episode of Mystery Diagnosis on The Learning Channel dealing with Celiac this week. (I think it's Thursday, but I'm not sure.)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kevsmom Contributor

Mystery Diagnosis - Like Mother, Like Son will air on Discovery Health Channel on October 28 at 8:00 p.m. and October 30 at 5:00 p.m. It is about a child discovered to have Celiac Disease.

Link to comment
Share on other sites
celiac3270 Collaborator

Discovery health channel--is that different from the regular Discovery Channel?

Link to comment
Share on other sites
nettiebeads Apprentice
Discovery health channel--is that different from the regular Discovery Channel?

<{POST_SNAPBACK}>

Yep, unfortunately. Sometimes they will put things on the regular Discovery or TLC from the health channel to promote the health channel, but not on a regular basis. It costs way too much for me to extend my cable to include the health channel, darn it. But a friend at work saw that program already and told me about it (and this was after I had a fiasco at a seminar where the meal was provided, banquet style). He said that the mother had celiac disease, didn't realize that her boy had it too, as he was asymptomatic. But he did have learning/memory problems. It was because of that that he was dx with celiac disease. My friend said that she was feeding him healthy foods, but starving him at the same time because of the malabsorption issues. At least ONE person in my office has a better understanding of what I can experience if glutened.

Link to comment
Share on other sites
elonwy Enthusiast

My boss saw it, told me all about it. It was cool, I think she understands it alot more now. She's been cool about it but has been hinting that I've been kinda hypochodriacing a little. I flipped out at someone cause they were eating a sandwich and just walked up and put thier hand in the bag of Cheetos I was munching on, I just gave him the cheetos. She thought I was overreacting, and now she's like "wow, its really hardcore and they think lots of people have it" So its getting out there, slowly.

Link to comment
Share on other sites
jrom987 Apprentice

Thank you! I just set my TiVo to record that. :D

Link to comment
Share on other sites
celiac3270 Collaborator
Yep, unfortunately.  Sometimes they will put things on the regular Discovery or TLC from the health channel to promote the health channel, but not on a regular basis.  It costs way too much for me to extend my cable to include the health channel, darn it.  But a friend at work saw that program already and told me about it (and this was after I had a fiasco at a seminar where the meal was provided, banquet style).  He said that the mother had celiac disease, didn't realize that her boy had it too, as he was asymptomatic.  But he did have learning/memory problems.  It was because of that that he was dx with celiac disease.  My friend said that she was feeding him healthy foods, but starving him at the same time because of the malabsorption issues.  At least ONE person in my office has a better understanding of what I can experience if glutened.

<{POST_SNAPBACK}>

Aww...darn.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

I just watched that! I should've recorded it! Those catatonic seizure like episodes the kid had are like the ones I had as a child... they tested me for epilepsy and dx it as "non specific seizure disorder" Wild...

Link to comment
Share on other sites
stef-the-kicking-cuty Enthusiast
Those catatonic seizure like episodes the kid had are like the ones I had as a child... they tested me for epilepsy and dx it as "non specific seizure disorder" Wild...

I couldn't watch it unfortunately. But I'm starting to get interested. What's that? Catatonic seizure like episodes...? testing for epilepsy...? I didn't know, that was possible. Waaay long ago in germany I once had a blood test and my doctor told me, that I have to be careful not to get an epileptic attack??? (not sure what you call this in english???) What's this? And how could he find out with a normal blood test??? Weird...

Link to comment
Share on other sites
Guest nini

it's hard to describe... in my case I had periods where I would "zone out" where I was aware of everything going on around me but I couldn't respond at all, and outward appearances looked like I was daydreaming or just not paying attention... but I also had episodes where I would involuntarily jerk all over for a few seconds and forget everything I was saying right before it happened.

Neurological disorders are now being recognized as being connected to celiac and gluten intolerance, the boy on the show didn't have any digestive symptoms, only neurological ones.

Link to comment
Share on other sites
stef-the-kicking-cuty Enthusiast
and outward appearances looked like I was daydreaming or just not paying attention...

Sounds like me, but I never actually "zoned" out!

Link to comment
Share on other sites
cornbread Explorer
Neurological disorders are now being recognized as being connected to celiac and gluten intolerance, the boy on the show didn't have any digestive symptoms, only neurological ones.

<{POST_SNAPBACK}>

This is great that they chose to showcase smoeone with neurological symptoms. I find it hard for people to comprehend (believe) how much gluten effects my brain. I think you say food intolerance and people just figure if you eat too much of that food you'll have to run to the bathroom. FOr me it's nothing like that. It's good that they are shattereing the celiac myth of it just being a GI problem.

Link to comment
Share on other sites
ianm Apprentice

I had few gut issues, it was all weight, mental and fatigue issues. The brain fog would get so bad I was like a zombie sometimes.

Link to comment
Share on other sites
  • 4 months later...
ms-sillyak-screwed Enthusiast

Did this show ever air again?

Link to comment
Share on other sites
debmidge Rising Star

If you go to the Discovery Health Channel website, offshoot of Discovery Channel, they offer you a chance to find out when a show will re aired; and enter in the title of it and they'll email you when it's on next time.

D.

Link to comment
Share on other sites
Guhlia Rising Star

It's going to run again April 9th.

Link to comment
Share on other sites
ms-sillyak-screwed Enthusiast

Guhlia -- Thank you. I'm going to tune in...

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...