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Hi I'm new to the boards but I have been browsing them unregistered for about 4 years now. Let me give some background before I get to my point.

I diagnosed myself with celiac about 4 years ago after googling the strange symptoms I was having at the time. And further confirmed it by accidentally having large meals filled with gluten, and the resulting horrible, tear-inducing D. Jump forward a couple years and I start to have chronic pain and tension in my shoulder muscles and neck. Sometimes resulting in crippling pain, migraine, light and sound sensitivity, and nausea.

Skip forward a year or so and I randomly decided to stop eating rice. Within 1 to 2 days my muscle pain was greatly reduced. (I had been living with it non-stop for a couple years by then.) After a month or so I grew used to the new level of pain and wanted it to go away even more. So I stopped eating potatoes to see how that would go. The pain became a bit less. But it's still here. -I should also note that I went on and off of dairy (because I love cheese) and everytime i was eating it, i would slowly get more and more painful.-

 

Skip forward to about 3 weeks previous to current time, I found this autoimmune protocol diet cook book online and have started to try to live off of it. It bans many many foods including dairy, soy, potatoes, sugar, large amounts of fruit, all grains (rice, corn, etc) and more. My current problem, for the last week or so I have been incredibly weak. Shoulder and neck pain is at a steady medium, and some days I feel like I do today- My body goes through a great deal of stress and then i feel like i need to poo, i try to go and there's nothing. not even the urge to poo. I may feel a bit better, less weak for 30 min or so its random, and then more stress and phantom urges to poo. Eating is very difficult and walking nearly makes me collapse or faint. Cooking these special meals from scratch is out of the question when im like this. 

 

I also suffer from very very bad memory. This shoulder tension and pain led me to believe i probably have fibromayalgia, potentially caused by or a result of celiac disease. maybe a result of my body mistaking rice and other food for gluten. 

 

My life has become incredibly hard and I am constantly battling to stay positive and look to the future. I can't see a doctor unless I believe it's absolutely urgent (colon cancer or something) because I have no money.

 

My question for you (unless you've spotted something you can advise me about from my above background) is if you know of a high calorie liquid product i can drink that is celiac safe, dairy free, and low on sugar. those are the main issues. I've looked at ensures and they all seem to have dairy, claims to be lactose free but i react to it anyway.

 

Thank you for your time and (hopefully) your help. :) I wish you all the best.

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Hi.  Have you looked into Juice Plus?  I haven't looked at their blender mix label in a very long time, but it might work for you.  I'm also responding to bump up your post.  I hope someone responds who knows more than I do!  There was discussion in another post about people reacting to some brands of rice but not others.  There was a general concensus that Lundberg organic brand is well tolerated.

 

That said, I do have fibromyalgia, and have found improvement with being gluten free. 

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Have you looked into the Nutribullet?  My mother has been going through some extensive dental issues and has been on pretty much a liquid diet for about a year and has great results with it.  You can put pretty much anything in there.  Also, take a look at Designer Whey.  It is whey protein, which is a dairy derivative but from what I've read it seems many people with dairy issues can tolerate the whey protein.  I *think* because it does not have lactose in it - but you'll want to double check that.  I use their French Vanilla flavor as it is lower in sugar and higher in protein than their other varieties.  I've also found that it doesn't have the nasty chemical-like aftertaste that many protein powders have.

 

As for Juice Plus, I used to take the capsules (fruit and veggie ones) but they have oat bran in them.  I can't tolerate oats and I know many Celiacs have this problem, so you may want to be careful with those.  Not sure about the cross-contamination possibilities with it either.

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At times I've had to live off liquid diets as my digestive system flares and will not tolerate even my safe foods in whole form.

 

Over the years we have tried many meal replacement drinks including very expensive medical grade drinks and never found one I could tolerate due to the chemicals they use to produce them.

 

If you are having some luck with the AI diet you found...I highly suggest you make your own soups based on the whole food items you are tolerating.  My freezer always has homemade broth and at least one batch of pureed soup, like carrot, chicken, garlic or brocolli, beef.  These soups aren't much to look at but taste fine and get real nutrients into me without added stress to my inflammed system.

 

Cook when you can and use the frozen soups and broths when you cannot.

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