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I have felt bad enough lately, and just lost another 1.5 lbs., that I had to get the dr. involved.  One of the things my gp did was have a dietician call me.  This was the same dietician that I had a meeting with when I was first diagnosed in Aug.  She is putting me on a diet plan called the fodmap.  The info and diet plan should be in the mail tomorrow, but I spent a few minutes looking it up online.  It seems very restrictive, but I'm willing to do anything at this point.  Does anyone have any experience with this diet?  

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I did it for a short time when GI thought I wasn't improving due to possible SIBO.  It didn't work for me...but by that time I already had a severely restricted diet so I am not a good comparison.

 

There has been some research that Non-Celiac Gluten Intolerance can be greatly improved with fodmaps...would have to search for links to this as I don't have them handy.

 

It can't hurt, so if it has been recommended I would give it a good trial.

 

I'm sure others will be along with their experience.

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I have felt bad enough lately, and just lost another 1.5 lbs., that I had to get the dr. involved.  One of the things my gp did was have a dietician call me.  This was the same dietician that I had a meeting with when I was first diagnosed in Aug.  She is putting me on a diet plan called the fodmap.  The info and diet plan should be in the mail tomorrow, but I spent a few minutes looking it up online.  It seems very restrictive, but I'm willing to do anything at this point.  Does anyone have any experience with this diet?  

I spent a few months on the diet - it temporarily resolved my symptoms, but then I got glutened while trying to add foods back in, so I kind of got screwed up in trying to figure out which ones are bad still.

 

It does seem restrictive, and I had to finally balance the perfectionist desire to heal so well that I had perfect bowel movements every day (not achievable) to the need to get adequate vitamins and minerals in my diet. One thing to be wary of is that the diet makes it really hard to get enough fiber. But it did point out I had a problem with quinoa, chocolate, all legumes in addition to my known issues with bananas, dates, figs and avocados. So, I now know what things will cause a big reaction that aren't gluten-containing, so when I wake up with the big D I don't immediately suspect I've been contaminated.

 

If you are really hurting from the symptoms, it's definitely worth a try to get your guts to calm down. I subsisted mainly on eggs, rice, chicken, white potatoes and steamed spinach. I was also eating green beans, then only later found out they have fodmaps :(.

 

The other bad thing about Fodmaps, is the internet is full of lists that aren't accurate. Your dietician should be able to provide you with the most up-to-date list. Which, unfortunately, tragically, includes chocolate.

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