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Went to my Allergist/Immunologist appointment about my overactive histamine levels today. He knew nothing about Histamine Intolerance Testing, or DAO enzyme testing. He thinks my increased food sensitivities are from my leaky gut - he knew what that was! I couldn't get anything more definitive out of him and I had to pry information out of him as he kept trying to walk away - love that in a doctor.

 

He was aware of MCAS. We discussed that and Celiac disease. He didn't think I showed signs of either. It's true the symptoms for MCAS don't match mine, and my blood tests for celiac were negative. He told me blood tests were all that were needed to dx Celiac, and that it didn't matter whether I had stopped eating gluten beforehand. He said a biopsy isn't the preferred test for Celiac at this point. That didn't sound right to me. Hmmmm…

 

I will have to go elsewhere for DAO enzyme testing, not sure if that should be a GI or Naturopath? Can anyone help with that question? I could try DAO enzymes to see if it helps, but I would like to be tested to know if I'm low first. I think it's important to find that out.

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Sorry...DAO testing is not available in the US to the best of my knowledge.  My primary ordered and calls ping-ponged back and forth between UCSD and Mayo for three hours while I waited for the drama to finish.

 

My info is about a year and half old....but as far as I knew we had to send our results to Oz or Europe.  Believe it.

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I thought I saw something written by IrishHeart that she had the test and is taking the enzymes, which by the way are not easy to find so far. Couldn't find the thread and would love to know anything about about this. I don't think my Allergist had ever heard of it.

 

Where's the mighty warrior princess IH???

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I thought I saw something written by IrishHeart that she had the test and is taking the enzymes, which by the way are not easy to find so far. Couldn't find the thread and would love to know anything about about this. I don't think my Allergist had ever heard of it.

 

Where's the mighty warrior princess IH???

 

 

I never said I had "testing for DAO enzymes" because there are no tests available in this country. I said Jebby (aka Jess) had testing for MCAS.

You would have to read her blog to see what is involved in those tests.

 

THE BEST way to know if you have a true histamine intolerance is to go on a low histamine diet for 4 weeks. If your symptoms improve, that's your answer. My GI doc said 6 months or longer to understand my histamine tolerance level. I know what it is now. I never found that taking DAO enzymes helped much anyway. Save your cash, IMHO.

 

For the record, what I actually said was:

 

 

"I am fortunate that my GI doctor was knowledgeable enough about histamine intolerance and why our guts may be lacking the enzyme DAO and he was very encouraging in that it can resolve in time"

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So sorry IrishHeart if I misquoted you. I think that must be my brain fog. Seems I have trouble remembering things correctly sometimes. I'll be more careful about that in the future.

 

Thanks so much for your response! Glad to know about DAO testing and supplements, I won't waste energy thinking about that anymore. It's good to know your GI was encouraging that if our guts are lacking the enzyme DAO, it can resolve in time.

 

You sharing your knowledge and experience here is so greatly appreciated, I can't thank you enough!!!

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