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Thank You Everyone, Esp. Irishheart

C-Girl

By C-Girl
in Coping with Celiac Disease

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C-Girl Contributor
C-Girl
Posted

After a month of miscommunication between the GI's nurse and my insurance company, I finally have the results from my colonoscopy and it's microscopic/lymphocytic colitis that's behind my never ceasing D. I've started the Entocort and am already seeing improvement - I had a gluten-free chocolate cookie to celebrate :D

 

Thank you everyone who helped convince me to keep going, especially IrishHeart in particular who gave me the no-nonsense encouragement to get it figured out.

 

I hope this is the answer - I've heard that the symptoms can just come back after stopping the meds, but I will remain hopeful. I have two months to try it out - I might actually be able to enjoy my upcoming beach vacation.

 

Thank you again - I <3 you all. Fingers crossed!

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cyclinglady Grand Master
cyclinglady
Posted

So glad that you found an answer!  I hope the medication works!  I am so glad that you did not give up!  

 

Enjoy some more chocolate cookies and celebrate!

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IrishHeart Veteran
IrishHeart
Posted

Well, pass me a cookie and give me a big hug! whoohoooo!

 

Since my friend Sherry also suffered from  microscopic/lymphocytic colitis in addition to celiac, I knew it had to be something like this 

because you were being so careful and it's not always "about the gluten". D does not happen without cause.

 

It just made no sense to me.......and I am so, so happy that you got an answer and a resolution!!

 

Hang in there and enjoy your vacation!!! xxoo IH

 

send me a postcard ^_^ 

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FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

Really glad to hear that you're seeing improvement. Hope you keep feeling better and are able to enjoy yourself more!

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icelandgirl Proficient
icelandgirl
Posted

After a month of miscommunication between the GI's nurse and my insurance company, I finally have the results from my colonoscopy and it's microscopic/lymphocytic colitis that's behind my never ceasing D. I've started the Entocort and am already seeing improvement - I had a gluten-free chocolate cookie to celebrate :D

 

Thank you everyone who helped convince me to keep going, especially IrishHeart in particular who gave me the no-nonsense encouragement to get it figured out.

 

I hope this is the answer - I've heard that the symptoms can just come back after stopping the meds, but I will remain hopeful. I have two months to try it out - I might actually be able to enjoy my upcoming beach vacation.

 

Thank you again - I <3 you all. Fingers crossed!

I'm so happy that you have an answer...here's to you continuing to feel better!
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    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
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      Why?

      By trents · Posted

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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