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Celiacgirl1

Who's Allergic To Brown Rice?

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Who's Allergic to Rice??!!

I'm 63 female. 5'3" 86 lbs

I've been sick with allergy type illnesses all of my life, now I know they are all connected to celiac disease. I have been vegetarian since I was 16.

I've known I'm allergic to dairy all of my life. I have been strictly gluten-free since 2008, but wasn't eating wheat for years before that. GMO's and all that...

2/13/08 I was diagnosed with celiac disease I have both genetic markers.

I was misdiagnosed twice, once 20 or more years ago by an internist/gastroenterologist who told me I was anorexic!

I was probably 100 lbs then.

I can't imagine what he'd say now!!

And then, misdiagnosed again by one of the "Top" gastroenterologists in Denver who assured me I did not have celiac it was IBS.

Now I have migraines ( not as bad as they were before menopause), Epstein Barr virus, osteoporosis, brain fog, multiple food allergies, and fibromyalgia with chronic fatigue for fun. My body is "Inflammation Ground ZERO!" My adrenal glands are shot. I have leaky gut. I think I have been sick longer than I have been well. Every thing hurts nothing seems to be working the way it should. I am a vegan, pescitarian, I eat fish, no other animal products except for Ghee, clarified butter with mucosal healing properties.

Do yourselves a favor before more damage is done to your guts and get the GENETIC blood test done.

Then DO NOT BELIEVE a GLUTEN FREE DIET is going TO CURE YOU!

gluten-free is just a first step. I thought I was doing every thing right! Then I found out:

Allergic:

Cows Milk

Casein (alpha & beta)

Whey Protein

Chocolate (Milk)

Yeast

Sorghum

Amaranth

Tapioca

Teff

Egg

Corn

Rice

CELIAC:

Gluten, wheat, barley, rye, spelt

No carrageenan, no guar gum or other additives...

http://www.cyrexlabs.com/CyrexTestsArrays

The above is a place to start if you want to know what food allergies may be keeping you from healing.

You may also be sensitive to Night Shade Vegetables: Potatoes, Tomatoes all Peppers, Eggplant. Read the link below for more info:

http://www.whfoods.com/genpage.php?tname=george&dbid=62

You also want to know if you may have a GI infection: SIBO, Parasites, H Pylori, Candida

Do you have mercury fillings in your teeth? Heavy Metal toxicity?

Do you take NSAIDs? They can also cause leaky gut.

Yes, I've asked: WHAT CAN I EAT?

Right now, it's starting over with pea protein powder, almond milk, blue berries, apples cooked with raisins and cinnamon, Maruka Honey, coconut oil, homemade coconut yoghurt, occasionally I try to reintroduce fish, and a vegetable. I've been doing this for 3 months...I've started acupuncture treatments again, and have always taken supplements...probably not absorbing much from them.

L-glutamine 5 grams 2x daily, probiotics, Methyl B-12, at least 5,000 mcg, daily, D an absolute must for celiacs. I take a lot more.

I just had more blood work to see what I am deficient in and may be getting supplemental injections as the next step.

Also did a test (again) for a multitude of other diseases, including Lyme Disease.

So I though I was home free eating gluten-free, organic clean foods.

Just because it says gluten-free does not mean:

1. You aren't allergic or sensitive to something else in the product.

2. It is healthy.

Who's allergic to organic brown rice??!!

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Vegans don't eat ANY animal products.  

 

These tests don't have any peer reviewed, scientific backing form anywhere.  IgG testing is pointless. Even traditional IgE allergy testing isn't all that accurate. This is even less so.

 

Allergies are tested for with IgE testing. Those are the ones that can cause anaphylactic reactions.  Those are allergies. 

 

Having a positive genetic test does NOT mean you have Celiac disease.  It mans you may develop it but it isn't 100% I forget the percentages but it's actually a small amount of people who have the gene that actually develop Celiac disease.

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Vegans don't eat ANY animal products.  

 

These tests don't have any peer reviewed, scientific backing form anywhere.  IgG testing is pointless. Even traditional IgE allergy testing isn't all that accurate. This is even less so.

 

Allergies are tested for with IgE testing. Those are the ones that can cause anaphylactic reactions.  Those are allergies. 

 

Having a positive genetic test does NOT mean you have Celiac disease.  It mans you may develop it but it isn't 100% I forget the percentages but it's actually a small amount of people who have the gene that actually develop Celiac disease.

Here's what you were looking for on the genes:

http://www.cureceliacdisease.org/archives/faq/if-i-have-a-gene-for-celiac-disease-does-that-i-mean-i-have-it

"If I have a gene for celiac disease, does that I mean I have it?

Genetics don’t diagnose celiac disease. They do, however, clarify whether an individual is “at-risk” for it. If this is the case, you should closely monitor your symptoms and submit to blood tests every 2-3 years or immediately upon the sight of symptoms. When the genetic predisposition for celiac disease was detected (on Chromosome 6) researchers noted that the genes were a necessary but not sufficient condition for the disease to develop. In fact, up to 1/3 of the U.S. population has the genes for celiac disease. Meaning, those who have the DQ2 or DQ8 gene can develop celiac disease at any time, but only about 5% of those people actually will."

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You have been gluten-free for over 10 years but gotten worse. Obviously, gluten either isn't an issue or there are other problems you are having. It doesn't sound like you are eating much, so, of course you will be to skinny. Rather than eliminate foods based on questionable testing, perhaps an elimination diet or even just a food journal would help? But, even with all the eliminated foods on your list, there are many more foods to eat than you seem to be eating.

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As to the actually question: I'm not allergic to brown rice (I have no actual allergies as far as I know), but I know my gut doesn't like it very much. Not quite intolerant, but hard to digest. gluten-free grains like sorghum and amaranth and such can also be hard to digest. Maybe digestive enzymes might help, if you aren't taking any already.

 

Are you sure you are allergic to these foods, or are they just intolerances? I also agree with the elimination diet idea (with any foods you don't already know you definitely can't eat). Get down to basics and figure out what you actually can/can't eat safely. One common intolerance I don't see on your list is soy, so that's a possibility. I know it causes me a lot of joint pain, brain fog, etc.

 

And yeah, last time I checked you can't be vegan/vegetarian AND pescetarian. You can say you mostly eat vegan and occasionally eat fish (sorry, my man goes off on rants about that when people do the "but you eat fish, right" when he says he's vegetarian.)

Anyway, that's just semantics. However, if you don't eat fish or other animal proteins very often, then it's quite possible that your body just doesn't have the enzymes to deal with it, hence the problems.

 

Food journal. try some things you don't normally eat, things with good protein/fibre. Nuts. Avocadoes. Sweet Potatoes, etc, whatever you can think of, really.

Also, it's never a bad idea to do a survey of your kitchen and double check that gluten isn't sneaking in somewhere. We all need a refresher course sometimes.

 

Anyway, good luck! Hope we can be of some help here. It's a great place for information, support, or just venting.

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