Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Calming Intestines?

BeckyW

By BeckyW
in Coping with Celiac Disease

Recommended Posts

BeckyW Contributor
BeckyW
Posted

I have Celiac disease and 2 other auto immune diseases.  I never eat gluten but my intestines still have absorption issues.  I have trouble sometimes where my body absorbs meds too much and other times it doesn't absorb enough.  Making my TSH level and calcium levels fluctuate.  Does anyone else have issues with this?

 

Also, has anyone found anything to take to keep the intestines "calm".  Something to keep it healthy feeling and not feeling like you always have a stomach ache?

 

Thank you for any help you can provide.  This is a constant battle.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Waitingindreams Enthusiast
Waitingindreams
Posted

Do you possibly have issues with other foods? I was avoiding gluten and lactose, but every now and then I would still get stomach cramps, bloating, gas, diarrhea, etc. It didn't make sense! I started doing elimination diets and found I had an issue with yeast, and all legumes (soy, lentils, chickpeas - etc) maybe you are eating something else that is causing you these issues?

Link to comment
Share on other sites
BeckyW Contributor
BeckyW
  • Author
Posted

I do have alot of other food issues. Soy is the biggest offender and then dairy.  I just can't always avoid them all but try my best to.  Sure isn't easy, is it?

Link to comment
Share on other sites
Waitingindreams Enthusiast
Waitingindreams
Posted

Avoiding soy is definitely tricky. I'm lactose intolerant, so although I knew I'd miss dairy, it was time I gave it a rest. I eat lactose free dairy sometimes and I have no issues. (At least none that I can tell)  if soy is an offender, you might possibly be sensitive to other legumes as well..such as peanuts. Do you eat a lot of peanut butter,or hummus? What are you eating that contains soy? Soybean oil is in a lot of canned soups, and I found out there was soy lecithin in my minute brown/wild rice. Ugh! I ate that all the time! I switched to buying steamfresh frozen brown rice, the only ingredients are rice and water. I've been avoiding all canned soup - I can't find any that are gluten, yeast, dairy AND soy free. UGH!

Link to comment
Share on other sites
cyclinglady Grand Master
cyclinglady
Posted

I have Hashimoto's Thyroiditis (dx 20 years). It really went crazy the two years prior to menopause and my celiac disease diagnosis. I would swing from hypo to hyper within days. Trying to figure out my Armour thyroid replacement was probably driving my doctor crazy. I worried more when I hit the hyper stage as it affected my eyes and my mom (Graves) has permanent damage from all the years she ran hyper. It did not help my osteopenia either!

I think the gluten-free diet, going through menopause with the help of HRT and avoiding foods that triggered symptoms helped calm down my system. I take my Armour sublingually even though it probably does not absorb (can not find enough studies to support) but at least it is well dissolved and can be absorbed easier.

My dosage, though high, is stable for the past six months, but going gluten-free has not improved my thyroid. Antibodies have come down and I am no longer swinging, so I can not complain.

Link to comment
Share on other sites
1desperateladysaved Proficient
1desperateladysaved
Posted

When I have cramping, a warm water bottle on my belly can help sooth it.  I also use helichrysum essential oil a couple of drops rubbed in over the area.

 

Dee

Link to comment
Share on other sites
BeckyW Contributor
BeckyW
  • Author
Posted

I do use a warm rice bag on my tummy when it is upset. I wish I could find something to just soothe it quickly rid of discomfort.  What is the helichrysum essential oil?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

It is used in natural medicine.  It is an oil derived from a helichrysum plant.  My essential oil book says that a couple of drops  can be rubbed on the skin above the cramps to help ease them.  I use this with a hot water bottle.  I purchase these at local health food stores and even my local grocery store sells some common oils.

 

Dee

Link to comment
Share on other sites
CathyO Rookie
CathyO
Posted

I started drinking Aloe Vera about 2 months ago.  It has made a huge difference for me.  We went on a camping trip and I forgot to take any with me, and I sure could tell the difference after 2 days without.

 

This is what I drink: 

 

http://images.iherb.com/l/GAV-10064-1.webp

Link to comment
Share on other sites
BeckyW Contributor
BeckyW
  • Author
Posted

Thank you for the suggestions on the oils.  I will make a trip to the health food store this week and see what is available.

Link to comment
Share on other sites
GF Lover Rising Star
GF Lover
Posted

I started drinking Aloe Vera about 2 months ago.  It has made a huge difference for me.  We went on a camping trip and I forgot to take any with me, and I sure could tell the difference after 2 days without.

 

This is what I drink: 

 

http://images.iherb.com/l/GAV-10064-1.webp

 

Hi Cathy,.

 

I remember watching a TV show, I think it was Anthony Bourdain or that other guy.  Anyway, I can't remember what city it was (Aisa) and the populus swore that by drinking Aloe Vera everyday it would manage all types of ailments.  This stuff was fresh and very thick and it tasted awful.  Otherwise I don't know anything else about it.  

 

I hope it continues to help you even tho I don't know how you can get it down...lol

 

Colleen

Link to comment
Share on other sites
CathyO Rookie
CathyO
Posted

Hi Cathy,.

 

I remember watching a TV show, I think it was Anthony Bourdain or that other guy.  Anyway, I can't remember what city it was (Aisa) and the populus swore that by drinking Aloe Vera everyday it would manage all types of ailments.  This stuff was fresh and very thick and it tasted awful.  Otherwise I don't know anything else about it.  

 

I hope it continues to help you even tho I don't know how you can get it down...lol

 

Colleen

What I use is like drinking water. Clear, odorless, colorless and tasteless.

I wouldn't be able to drink the other stuff.

Link to comment
Share on other sites
GF Lover Rising Star
GF Lover
Posted

What I use is like drinking water. Clear, odorless, colorless and tasteless.

I wouldn't be able to drink the other stuff.

 

Ah....cool.  Much more palatable.  The fresh stuff was like goo....and stringy.  

 

Colleen

Link to comment
Share on other sites
cyclinglady Grand Master
cyclinglady
Posted

I was looking at my previous posting today and thought I must addressed a different topic! But I did not. Though it is clear now that I was rambling!

Becky, is your doc trying to address your fluctuating TSH levels? Going into a hyper stage can wreak having on your intestinal system by speeding thing up. Going hypo can slow things.

Link to comment
Share on other sites
BeckyW Contributor
BeckyW
  • Author
Posted

Cyclinglady - I have an appt with a new Endocrinologist on June 9th.  For now my family doctor is treating my thyroid.  No one really knows how to treat it. When it is hyper they lower the synthryoid, when it is hypo they raise it.  I can't seem to find a dose that maintains.  My body is like swinging all over the place.  I am moody, shedding hair, weight loss then gain, and the symptoms just go on and on.  I just don't know how to regulate it and neither do the doctors.  It is really making life difficult.

Link to comment
Share on other sites
cyclinglady Grand Master
cyclinglady
Posted

Becky, I can relate. I had been having swings the two years prior to my celiac disease dx and almost a year after. It was crazy. I really worried about the hyper times as my mom has Graves and has permanent eye damage. Luckily, I have not changed my thyroid dosage in months! Yeah!

I think it was really related to hormonal changes. I blame it on perimenopause. Now that I am on the other side (menopause), and maintaining a gluten-free diet, I think my thyroid has been able to calm down. It helps that my body is probably absorbing my Armour Thyroid now. Just a few years ago, it was formulated so that you could take it sublingually if you wanted. Now, I keep it under tongue after chewing it and then swallowing it with water. I have no evidence that this works, but it makes my brain happy and that is always your first line in defense when healing!

I have no solutions for you. Sorry! Good luck on your doctor's appt.!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. plumbago
      - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed...
    2. trents
      - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    3. Suzi374
      - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it.
    4. Suzi374
      - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be be...
    5. Peace lily
      - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,226
    • Most Online (within 30 mins)
      7,748
    NYKaren
    Newest Member
    NYKaren
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • plumbago
      Lots of tests

      By plumbago · Posted

      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Lots of tests

      By trents · Posted

      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Lots of tests

      By Suzi374 · Posted

      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Would like to gain weight

      By Peace lily · Posted

      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...