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mommida

Rapid Test Stick 4 Cd

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RE: The Retest.

I tested once, and got a negative result, but I was mostly gluten-free at the time, and all that jaz. After getting the neg result, I add some gluen in my diet agian (occasional pizza, roll, etc) and each time got sick, tested for food alergies all neg etc blah blah blah, so doing a glutnen challenge all and all that blah blah blah.

:D

But my doc on maternity leave till the 21st, and I figure this way when she comes back I will either have eliminated or confirmed celiac disease.

<{POST_SNAPBACK}>

Ah...I see...I hope that you'll get the results you are hoping for...

It's great that there is a BLOOD test we can do at home, though!

I may use it myself, in-between doc appts...

Best wishes,

Gina


"Get busy living

or get busy dying."

From: The Shawshank Redemption

--------------------------------------------------------------

gluten-free since Jan 1 '05

Positive response to diet within days, felt 'alive again' within 2 weeks

Feb 22 '05:

Diagnosed "Celiac Sprue, and IBS" by a GI doc, Dr. David Lin of Danville, CA

via blood testing 53 days after I began the gluten-free diet on my own:

Test results at 53 days POST going gluten-free were:

Gliadin AB IgA = 29.9

Since 30+ = positive for Celiac Disease when ingesting gluten, my doc

diagnosed me with Celiac Sprue then and there.

Gliadin AB IgG was 5.6 at that point

-------------------------------------------

Endoscopy with biopsies, AND colonoscopy with biopsies were done,

only to rule out other possible GI problems (especially intestinal

lymphoma) - My doctor told me the results indicated "no current damage

found" - and that as long as I stay gluten-free, I don't need another

biopsy for ten years.

Follow-up blood testing was done about one year later, by the same

Gastro doc, in Nov '05:

Gliadin AB IgA =26, Gliadin AB IgG <1

Blood testing done again by him, 5 months later (March '06)

He then told me my tests results were back to normal, and "Keep up the

good work! You can't argue with success!" :-)

I now see him one time per year for routine testing to make sure I am

staying gluten-free.

------------------------------------------------------------------------------------------

ADDTIONALLY:

I was also diagnosed as positive for antibodies and autoimmune

response to gliadin by Enterolab, via stool specimen taken 56 days

gluten-free

and I have one of the two genes that 'cause' Celiac Disease:

"HLA-DQ8," via Enterolabs cheek cell test kit

---------------------------------------------------------------------

I began a COMPLETE 'Gluten-free Casein-free' diet in Nov '05, due to:

"positive" for casein antibodies from Enterolab (in Feb '05)

and

"positive" for casein IgG (Elisa) via York Labs' finger-prick blood

test, Sept '05

and continued 'stomach pains,' although nothing compared to before

going gluten-free....

UPDATE: ALL remaining symptoms disappeared within weeks of going gluten-free&CF!

**********************

My PAST illnesses I believe are attributable to Untreated Celiac Disease:

Recurrent ear and throat infections in childhood

Frequent childhood stomach aches, underweight, picky eater

Tooth enamel problems/excessive cavities in childhood

Diagnosed in 20's with non-allergic rhinitis

Two spontaneous abortions (childless)

IBS diagnosis at age 28 (all better post going gluten-free and casein-free)

["Horrible" digestive problems from ages 32-47 - excess gas,

diarrhea gone post gluten-free!]

Reflux diagnosis at age 35 ('reflux' gone post gluten-free)

ADHD diagnosis at age 38 and at age 48 (not as bad with Gluten-free Casein-free diet)

Broke elbow in 2 places, age 39

Osteopenia diagnosed at age 44 (bone scan revealed thinning of spine -

taking Calcium and Vit D now)

Fibromyalgia diagnosis at age 40 (fatigue and pain all gone post gluten-free!)

Minor depression with anxiety diagnosed at age 42 (taking Paxil)

Skin cancer - squamous at age 43 and pre-melanoma at age 45

Adult acne (this, too, went away, but only after going dairy-free)

Topical dermatitis (so bad I needed steroid shots) diagnosed at age 46

(That's gone now, too!)

Excessive bruising of skin began at age 45:

I was told by derm doc AND family physician "That's just thin, aging

skin, nothing you can do about that" (GUESS WHAT?! ...NO unusual

bruising POST going gluten-free! I can now wear skirts and shorts

again!)

SO many years of being sick...

Hopefully, others will benefit from Science, and the increasing media

attention being given to Celiac Disease and gluten-based illnesses,

and will not have to go through what I, and others on here, have had

to go through.

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How exciting! You have to let us know how it turned out for you. I would love to have my DH tested. He has so many celiac symptoms and is still eating gluten. My dd tested pos. through enterolab although she has gluten sensitive genes, not celiac.

I am eager to hear if you like this method and what the results were!

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Do you ahve epxerence with them?

<{POST_SNAPBACK}>

I used York Labs for their 96 Food IgG ELISA Panel recently. After getting my results, I had some questions about their testing and have sent them two emails and have yet to get a reply. Their website states that the testing includes one year of phone or EMAIL support - maybe it takes a year to get an answer. Also after placing my order and having my credit card charged I never got any kind of order confirmation and it took about a month just to receive the collection kit, then another month to get results. During these delays I emailed asking the status of my order and never got a reply. I'm not a phone person (I like to see my answers in writing), so if they actually don't do email they should not give an email address and list email as an option. Not very professional in my book.

In constrast, I have also used Enterolab and have gotten answers my questions via email within 48 hrs.

To all who have ordered the York test, please post your experience with York. I might be interested in additional testing but would like to hear of some good experiences first.

George

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Hrrrrrmmm I might order this test later today. If its postive then I dont have to wait till the 21st to go gluten-free. :)

<{POST_SNAPBACK}>

Did they say if this test is done like strips like diabetics use? I would think it would be similar to a home pregnancy test.


Rusla

Asthma-1969

wheat/ dairy allergies, lactose/casein intolerance-1980

Multiple food, environmental allergies

allergic to all antibiotics except sulpha

Rheumitoid arthritis,Migraine headaches,TMJ- 1975

fibromyalgia-1995

egg allergy-1997

msg allergy,gall bladder surgery-1972

Skin Biopsy positive DH-Dec.1 2005, confirmed celiac disease

gluten-free totally since Nov. 28, 2005

Hashimoto's Hypothyroidism- 2005

Pernicious Anemia 1999 (still anemic on and off.)

Osteoporosis Aug. 2006

Creative people need maids.

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Did they say if this test is done like strips like diabetics use?  I would think it would be similar to a home pregnancy test.

<{POST_SNAPBACK}>

I did not ask, but soon I will know! :) I'll post a full review once I get and take.


- Vincent -

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Hmm Did not get my test yet, called htem up and they are back ordered. They siad they had only been selling 10 or 12 a week of the old test, but the new test blew out thier entire stock of 300 tests in the first week, and I was appeartnly order number #305.

Their suplpier (in spain) told them "early next week" sooooo if you plan to order you should know that. :(

Another week of this for me I guess! :o


- Vincent -

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I have not received my test kit either -- Nor have I received an answer from YORK Lab on two different e-mail inquiry;s of mine - - getting scary - - I do notice however that my credit card was already charged. They need to learn that cards should NOT be charged until product is shipped!!! That is how other internet sales work.

JKJ

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As I have mentioned in other posts here, my experience with York was very disappointing. My ELISA kit was delayed over two weeks because it was backordered - sound familiar? They also charged my credit card the day I placed the order even though they did not ship the kit for over two weeks. Also I've tried emailing them three times with questions about my test results and have yet to get a reply.

I wish it were different, but ....

Caveat emptor!

George

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York took over a month to get my results to me. Now I've got them, the jury is still out on whether I think they are accurate... Cut out the food they said I reacted to and am waiting to see if I feel any different.

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I am not concerned. They already offered to refund my money, I told them I would wait. Call them you self if your concerned, I have called on 2 occasions and got a live person both times. John is the fellow I talked with this time. I only use Credit Cards for these kinds of things, because my bank will refund my money with one call and bounce the charge back on the merchant. they have done it from me in the past. There is no risk to me to place this order. If it takes to long evuntaully my doc will be back from maternity leave and I will get the test through her.

Its a no lose propostion for me, and if the test is for real, y'all will get the beinifit of my order. :D


- Vincent -

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York took over a month to get my results to me.  Now I've got them, the jury is still out on whether I think they are accurate...  Cut out the food they said I reacted to and am waiting to see if I feel any different.

<{POST_SNAPBACK}>

Sounds like we are in the same boat. I've cut out the additional food items (beyond gluten & casein) that showed up on my York ELISA test but so far have not been able to detect any symptom related to these. At least the test did flag the gluten and casein related foods for which I do have symptoms.

Please post again after you've tried eliminating your items, even if you don't find any related symptoms. Maybe if enough people post their test results and findings, positive and negative, we'll all better understand the meaning of these tests.

George

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I was also charged on the day I ordered. I have not yet received the kit.

I wrote an email, but I never received a response from it. I called, and I got a "live person" who was very well informed about the product and testing. I think the bottom line, is this company is very poor at answering emails.

I am still waiting for my test kit.

Diane

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My husband did testing thru Entrolabs and it went very smoothly. We rec'd the test kit by regular mail in about 4 days from placing the order. Returned it overnight mail with the DHL currier service that picks it up at your door. The instruction sheet said it would take about 3 weeks to get the results back and at 1 week and 5 days I sent an email to them checking on the status and rec'd a reply the next morning (friday) from Phylis who said Dr. Fine had the results and was working on the interpration and we should have the results on Sunday. Sure enough Sunday morning before 9:00 am we had the results by email. They also sent us an email that they had rec'd our order and it was shipped out on a certain date. We were very happy with the service we rec'd. It wasn't as quick as what York Labs is offering but the service was great.

Jennifer

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Please post again after you've tried eliminating your items, even if you don't find any related symptoms.  Maybe if enough people post their test results and findings, positive and negative,  we'll all better understand the meaning of these tests.

George

<{POST_SNAPBACK}>

Certainly will George. One full week so far so a little early to tell, but I did have a persistant rash on my back which started clearing up this week. Not sure yet whether to attribute that to being egg-free or just a coincidence. I'm going to stay egg-free for a full month and then eat them again for a week and see if anything happens.

Also another coincidence? I made chicken two days ago in the pan that I used to cook my breakfast eggs in, and about 45 mins later I was violently ill. Diarrhea, sweating all over (my t-shirt was soaked), shaking, incredibly pale and dizzy... After that 'attack' was over, I was completely fine. I'm having a problem attributing this to the egg pan though because less than a week previously I had eaten 2 or 3 every day and had no problem at all. Surely cutting them out for 5 days then reintroducing via a little cross-contamination wouldn't have such a dramatic effect? :unsure:

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As I have mentioned in other posts here, my experience with York was very disappointing.  My ELISA kit was delayed over two weeks because it was backordered - sound familiar?  They also charged my credit card the day I placed the order even though they did not ship the kit for over two weeks.  Also I've tried emailing them three times with questions about my test results and have yet to get a reply.

I wish it were different, but ....

Caveat emptor!

George

<{POST_SNAPBACK}>

After no answers by e-mails - I tried calling York Lab today to cancel my order for the finger stick gliandin test . But went thru the "menu" - - and then was told to leave my phone number and they would call me back. Well I can't wait for a phone call. I am rather annoyed. My first e-mail to them was to ask if I had to be glutened to take the finger stick test. I've been gluten-free since September 23rd - - and it stopped my intestinal problem of 6 weeks duration. Do I really need to know more than that anyway? :)

Oh - and I want to add my thanks for this message board. I have learned so much through it!

JKJ

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I think the problem is poor organization on thier part. When I called it took them 5 or 7 mins to pull my order up. And a while long to figure out what happened to it. That fits with some of the descriptions others here give. JMO :)


- Vincent -

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After no answers by e-mails - I tried calling York Lab today to cancel my order for the finger stick gliandin test . But went thru the "menu" - - and then was told to leave my phone number and they would call me back. Well I can't wait for a phone call. I am rather annoyed. My first e-mail to them was to ask if I had to be glutened to take the finger stick test. I've been gluten-free since September 23rd - - and it stopped my intestinal problem of 6 weeks duration. Do I really need to know more than that anyway?  :)

Oh - and I want to add my thanks for this message board. I have learned so much through it!

JKJ

<{POST_SNAPBACK}>

Gluten free for roughly six weeks is likely to reduce the chances of an accurate test. You probably still have antibodies but the number would already be considerably reduced. Claire

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Welp... tommorow I finaly see my doc, unless for some reason they wont do the test I will be canceling my York Labs order tommorow night. I only ordered the York test to save me a week or 2 of gluten... Tommorow I get blood test, then I go gluten-free and wait on the results, though I am already fairly convinced.

Ah well... was good thought at least....


- Vincent -

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Guest barbara3675

Copied off the background notes as they do explain, in a nutshell, what celiac disease is all about if you are trying to explain it to anyone.

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