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I was wondering if anyone else out there has been diagnosed with ITP..low blood platelets and has there been a confirmed correlation between Celiac and ITP. I have a doctor who believes there is and I read an article that briefly suggested it on the PDSA newsletter.  

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Thrombocytosis (too many platelets) is more common in celiac patients (according to the Pub med articles I have read) but thrombocytopenia  is also connected.

 

Many hematological conditions are associated with celiac disease.

 

Take a look at Pub med...many articles on there.  Here are just two.

 

http://www.ncbi.nlm.nih.gov/pubmed/22861356

 

http://www.ncbi.nlm.nih.gov/pubmed/21894756

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Thrombocytosis (too many platelets) is more common in celiac patients (according to the Pub med articles I have read) but thrombocytopenia  is also connected.

 

Many hematological conditions are associated with celiac disease.

 

Take a look at Pub med...many articles on there.  Here are just two.

 

http://www.ncbi.nlm.nih.gov/pubmed/22861356

 

http://www.ncbi.nlm.nih.gov/pubmed/21894756

 

What great information you provided. You are really on top of this stuff!!! Thanks. 

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What great information you provided. You are really on top of this stuff!!! Thanks. 

 

My dad had severe anemia and a blood disorder that required periodic blood transfusions for 9 years. My best friend has hemochromatosis and another has thromobocytosis. 2 of those 3 were/are celiacs. Isn't that interesting? yeah, I thought so too. ^_^ Many in my family have anemia. (I had B-12, folate and iron deficency--all resolved now off gluten and supplemented)

 

Honestly, unless that had happened, I would never have known anything about blood disorders. But I like to read the science and I am always

fascinated by what celiac does to the body. (well, fascinated may not be the right word....more like astounded?.)

 

A really cool book that discusses how celiac affects all the body organs and systems is

Recognizing Celiac Disease by Cleo J. Libonati, if you feel like reading something like that. 

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I was wondering if anyone else out there has been diagnosed with ITP..low blood platelets and has there been a confirmed correlation between Celiac and ITP. I have a doctor who believes there is and I read an article that briefly suggested it on the PDSA newsletter.  

 

I have ITP and celiac disease. I am pretty sure I have had celiac disease since infancy although it was diagnosed in my late 30's.  I developed a pretty severe case of ITP when I was 18.  The doctors were unable to control it with meds and steroids so I had my spleen removed a few months later. Luckily, that seemed to do the trick and my counts are always over 150K rather than my lows of 2K.  LOL

 

I have read in a few places that ITP is linked to celiac disease. I did a quick google search and found some papers pretty easily:

http://www.ncbi.nlm.nih.gov/pubmed/18365906

http://cat.sagepub.com/content/17/6/E13.abstract

http://journals.lww.com/jpgn/Fulltext/2006/05000/Celiac_Disease_and_Risk_of_Itp__A_Population.65.aspx

 

ITP is rare, but slightly less rare among celiacs... I wish my doctors would have mentioned the link to celiac disease and thyroid problems 20 years agao - it could have saved me some grief.  ; LOL

 

Best wishes.

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Irishheart is right about the blood disorders being connnected with celiac.  I too had a blood related issue that is connected with celiac disease.  Prior to my celiac diagnosis, I had a blood clot in my ovarian vein.  Very unusual spot to have a blood clot and typically only occurs in post-partum women, post-hysterectomy or in those with a clotting disorder.  I had none of the above.  Ended up going to Mayo clinic for it since it was so rare.  They told me there is only 1 other documented case of someone having this blood clot for no appparent reason and I was number 2.  Took another 1.5 years before I was diagnosed with celiac.  Looking back and looking a the clinical literature, there is some evidence that says this type of blood clot can be a presenting symptom of celiac disease. 

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Thrombocytosis (too many platelets) is more common in celiac patients (according to the Pub med articles I have read) but thrombocytopenia  is also connected.

 

Many hematological conditions are associated with celiac disease.

 

Take a look at Pub med...many articles on there.  Here are just two.

 

http://www.ncbi.nlm.nih.gov/pubmed/22861356

 

http://www.ncbi.nlm.nih.gov/pubmed/21894756

 

Thank you Irish Heart...is never ceases to amaze me at how much we can learn when we read literature from other countries. They are so far advanced perhaps because they do not have the amount of government inclusion. I have, over the years, had the need to research many medical things. This has always been the case, in my experience. Thanks for these..was not familiar with them..and as I said in previous posts...Celiac/ G sensitivity..is all new to me. Have had ITP for 2 1/2 years.   

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Irishheart is right about the blood disorders being connnected with celiac.  I too had a blood related issue that is connected with celiac disease.  Prior to my celiac diagnosis, I had a blood clot in my ovarian vein.  Very unusual spot to have a blood clot and typically only occurs in post-partum women, post-hysterectomy or in those with a clotting disorder.  I had none of the above.  Ended up going to Mayo clinic for it since it was so rare.  They told me there is only 1 other documented case of someone having this blood clot for no appparent reason and I was number 2.  Took another 1.5 years before I was diagnosed with celiac.  Looking back and looking a the clinical literature, there is some evidence that says this type of blood clot can be a presenting symptom of celiac disease. 

Wow ..you could be in one of the medical journals. :) There is so much info coming out almost on a daily basis, I hate to get irritated with docs not keeping up, I believe, if you want a job..you need to do the job. Keeping in mind also, just because a study is performed, does not make it true/valid. It must be redone over and over..this is why it takes us years.  Wonder if you anyone would be able to get in touch with  #1 and see if that person was Celiac also. would be interesting. Patti

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I have ITP and celiac disease. I am pretty sure I have had celiac disease since infancy although it was diagnosed in my late 30's.  I developed a pretty severe case of ITP when I was 18.  The doctors were unable to control it with meds and steroids so I had my spleen removed a few months later. Luckily, that seemed to do the trick and my counts are always over 150K rather than my lows of 2K.  LOL

 

I have read in a few places that ITP is linked to celiac disease. I did a quick google search and found some papers pretty easily:

http://www.ncbi.nlm.nih.gov/pubmed/18365906

http://cat.sagepub.com/content/17/6/E13.abstract

http://journals.lww.com/jpgn/Fulltext/2006/05000/Celiac_Disease_and_Risk_of_Itp__A_Population.65.aspx

 

ITP is rare, but slightly less rare among celiacs... I wish my doctors would have mentioned the link to celiac disease and thyroid problems 20 years agao - it could have saved me some grief.  ; LOL

 

Best wishes.

You have had a time with this. I am glad the spleen thing worked for you. I have been reading that it did not have as high a % of success as they had hoped. Can't remember where I read that..have read so much over the last 2 1/2 years..I am glad you are keeping those numbers up. Thank you for the articles...Shared with my doctor yesterday.  

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My dad had severe anemia and a blood disorder that required periodic blood transfusions for 9 years. My best friend has hemochromatosis and another has thromobocytosis. 2 of those 3 were/are celiacs. Isn't that interesting? yeah, I thought so too. ^_^ Many in my family have anemia. (I had B-12, folate and iron deficency--all resolved now off gluten and supplemented)

 

Honestly, unless that had happened, I would never have known anything about blood disorders. But I like to read the science and I am always

fascinated by what celiac does to the body. (well, fascinated may not be the right word....more like astounded?.)

 

A really cool book that discusses how celiac affects all the body organs and systems is

Recognizing Celiac Disease by Cleo J. Libonati, if you feel like reading something like that. 

Thank you for the info on the book. I have it on my order list! I, too, have always had an interest, in research, medicine and thinking outside the box of the natural when possible..if the 2 forces would join, we could really get a lot accomplished in the cures. From my childhood background...medicine and sense were taught to me. Thanks again. P

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Thank you for the info on the book. I have it on my order list! I, too, have always had an interest, in research, medicine and thinking outside the box of the natural when possible..if the 2 forces would join, we could really get a lot accomplished in the cures. From my childhood background...medicine and sense were taught to me. Thanks again. P

 

 

You bet, Patti. Whatever I have saved/bookmarked in my arsenal of research....it's yours. GottaSki lisa has a ton of stuff saved too...Take care, IH 

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You have had a time with this. I am glad the spleen thing worked for you. I have been reading that it did not have as high a % of success as they had hoped. Can't remember where I read that..have read so much over the last 2 1/2 years..I am glad you are keeping those numbers up. Thank you for the articles...Shared with my doctor yesterday.  

Yeah, splenectomies don't work for everyone. I have read some people have multiple spleens and that keeps killing off the platelets. I assume the splenectomy would not work for those whose ITP is not caused by an autoimmune attack directly on the platelets - for those whose platelet numbers plummet for other reasons.  I was pretty lucky. One of the lucky 65% (or so - can't remember the exact number). I would have been in trouble if it hadn't worked - I probably wouldn't be here actually.

 

That's great that your doctor is looking into it.  I hope you are well soon.

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