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Excessive Sweating ... Can Hypo Thyroid Change To Hyper?

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Hi everyone,

It has been awhile since I have been on the forum ... it seemed I lived on here when I was first diagnosed.   :D  You were all such a great help.  Thank you!!!

 

I will be 7 years gluten free in March 2015.  I have been feeling great, lost 40 pounds, more active than I had ever been.  Life was good!

 

BUT now ... I have been having spells of excessive sweating on the head area ... forehead gets covered in sweat and hair gets very damp.  I had been diagnosed with Hypothyroidism in December 2008, a year after I heard about Celiac.  I am also on Estrogel so don't think it is menopause.  But a doctor told me I should not be on Estrogen and I cut it in half for a couple weeks and couldn't take it so went back up to full dose.  It is since that time that I am having the excessive sweating.  When I was having menopausal symptoms they were not like this.

 

Also I have been having diarrhea quite often which is unusual.

 

My question is .... is it possible to be Hypothyroid and also Hyperthyroid?  Or, is it possible that because of being gluten free I no longer need the Synthroid so my thryoid is elevated?   It would be nice.   :D   I am due for blood tests and I do have a doctor appointment on Monday for my B12 shot so I will ask him but was wondering if anyone else has had this problem.

 

Thanks in advance for you help.

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How old are you? Do you have a uterus? If yes, you should be on progestrone to protect your uterus.

The sweating sounds like perimenpause or post-menopause symptoms.

Is is possible to be swing from hypo to hyper when you have autoimmune thyroiditis (Graves or Hashimoto's). I had crazy swings during the last two years of perimenopause and undiagnosed celiac disease. It drove my doctors crazy (me too).

Your need to get another thyroid panel to determine. Usually if you are running hyper, you are warm all the time. Stick out your arms and look for shaking hands. Muscle fatigue is another symptom and eye muscle issues. Pop-up sweating is a hot flash and related to estrogen and other hormonal deficiencies. Breakthrough hot flashes and other menopausal symptoms can occur on HRT treatment. Your HRT meds may need adjusting.

I am slowly weaning off HRT and am getting hot flashes. I am on HRT to help build bone.

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I agree with cyclinglady. If you have Hashis you can definitely swing from hypo to hyper. A full thyroid panel including antibodies would be great right now to see what is up with your thyroid. Make sure they get TSH, free T3, free T4, Reverse T3, TPOAb and TgAb. I've been hypothyroid for 14 years but was just recently diagnosed with Hashis. I've had some swings in the past few months and it's pretty annoying.

It's great to hear that you are doing so well gluten free!

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Thanks for responding Icelandgirl and Cyclinglady.

 

I am 62 and had a complete hysterectomy at 38 ... have been on HRT since then.  Before starting HRT I had awful sweats and this does seem to be like that but mostly in the head\face area.  It comes and goes fast, one minute sweat is falling off my forehead and the next I am cool.  When I decreased the HRT 1.5 months ago for only 2 weeks I started with these flashes.  They are unlike the flashes I used to get before going on treatment and seem to be happening more often .  It has been almost a month since going back on full HRT so it should be under control by now but seems to be getting worse.  Hopefully my doctor will take me serious because it is not very nice.

 

I do walk 5 km 5 days a week and I do sweat all over but it is not the same at all.

 

It sure does feel great having the Celiac under control after suffering for so long .... I am enjoying life now (except for the sweating problem).  :D

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Well, if you are backing off on the hormones, it is like going through another menopause. Per the ladies at the YMCA, menopausal symptoms tend to wax and wane into your 80's! Ugh! I never knew that! I have had every perimenopausal symptom there is over the course of 12 years. As I am backing off on HRT, hot flashes are appearing. Hopefully they will go away soon. Some ladies, like my Mom, have had no symptoms. How lucky is that?

I recommend plenty of fans around your house!

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I was never on HRT. Just didn't want it. But my hot flashes were ALWAYS in my head and face. Menopause came early for me (at 43) and I am now 60. And yes, I STILL get hot flashes occasionally. It's not like it was at first when I would get them dozens of times a day or anything. Just once every week or two and only for a few minutes.

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I'm hypothyroid, 40 years old, and I am starting to get flashes of heat.I'll wake up in the morning with a greasy head and a moist t-shirt in the front.  I also get sweatier than I should when I do other activities or I'm late and flustered.  Its just enough to be slightly annoying and make me wonder if I'm hitting perimenopause.

 

I thought about it being caused by hyperthyroidism too, but I've been hyper once (med induced) and it didn't feel this way.

 

Ugh, why can't men have it instead?  They enjoy our bodies, so they should have to carry some of the burden too!  ;)

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Cylinglady .... I have been back on HRT for a month so I should be back to normal I would think, especially since I had only cut my meds in half for 2 weeks.

 

Will see what the doctor says tomorrow and let you know the results of the tests when I get them.  I was just hoping that after being gluten free for over 6 years that my thyroid had been corrected and I could go off the meds .... wishful thinking.  I hate taking meds ... after going gluten-free and losing the weight I was taken off blood pressure meds which I had been on for 2 years.  A girl can dream.  :D

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The thyroid is such a tough thing...having it be off by just a little can wreak havoc on your body. My endo says it's the master hormone...I never realized how much it controlled until recently. Best of luck at your appointment and please let us know how it goes.

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I realized that there have been other things that have changed in the last month also ... frequent diarrhea, shortness of breath, increased appetite. Saw my doctor this morning and he thinks it is possible that being gluten-free has caused changes to my thyroid, may need changes in the dose of my Synthroid ... I am hoping to stop it all together.  :D  

 

He is sending me for tests.  Not sure when I will be having them but I will keep you posted ... probably won't get the result until next month when I go back for my B12, if I have my tests before then. He said that it is possible that cutting my HRT for that short period of time might have started the whole thing even though it has been 4 weeks since I have gone back to full dose.

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That thyroid! Mine has been up and down in the past few months and I hate it! Hopefully you can get the blood work done quickly and get your medication changed so that if it's thyroid you start feeling better quickly!

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Tests on November 18 and doctor appointment on the 24th so hopefully will then know what is going on.

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I got the results of my tests and they are inconclusive.  The doctor has sent me for a chest x-ray and a stress test.  I know there is something not right and my TSH level was higher than the normal limit.  Maybe I am wrong about it being the thyroid but I am not giving up, I know something is wrong.  

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Thanks for the update. But...what was your TSH? If it is high (hypo) you might need more thyroid replacement (it is not a drug....)

It is worrisome to be out of breath. My anemias (iron-deficiency and Thals) have done that. You are taking b12 injections. Is your b12 serum blood level increasing? I assume your hemoglobin is okay and you do not have anemia.

Here is an off-the wall thought. Maybe when you got off the HRT briefly and went back on, your body is trying to tell you to get off the HRT. Perhaps it is time to biologically go off the HRT and go through menopause. Is there a reason to still be on it? I loved using HRT, and used it off and on to alleviate perimenopausal symptoms for 12 years. After going through menopause and then getting diagnosed with Osteoporosis (fractures) I opted to try HRT to help heal and build bone. Now, after a year, I am off. Just a few hot flashes. Not so bad. Anyway, just something to consider. It may be just one contributing factor to your symptoms.

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I got the results of my tests and they are inconclusive.  The doctor has sent me for a chest x-ray and a stress test.  I know there is something not right and my TSH level was higher than the normal limit.  Maybe I am wrong about it being the thyroid but I am not giving up, I know something is wrong.  

In your first post you mentioned that you take Synthroid.  The manufacturer of Synthroid does not guarantee that their product is gluten-free.  I take a gluten-free generic brand.  Maybe a switch to generic would help?

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Monomae ... thanks I am going to check in to the Synthroid, maybe you are right.  The pharmacy does have a note that my meds are supposed to be gluten free but you never know.

 

Cyclinglade ... sorry I didn't get a copy of the results of my tests.  I am due for another set of tests in April or so and will ask for a copy of the results.  I am just so fed up right now.

 

The shortness of breath seems to be gone.  The chest x-ray and stress test were good. Still getting the occasional sweating spell which I can live with.  

 

But I am still getting frequent diarrhea.  I am at a loss as to why.  I have not consumed any gluten that I know off.  The other day I was searching on Google for a substitute flour and came across an article saying that xanthum gum is now being made with wheat but in the process the gluten is supposed to be eliminated.  Has any one heard of this?  If that is the case maybe that is why I am getting the diarrhea.  I hope that is not the case.  In the article she said that we didn't really need the xanthum gum.

 

This is a statement they said is from Bob's Red Mill ... Regarding corn in xanthan gum: The microorganism that produces xanthan gum is actually fed a glucose solution that is derived from wheat starch. Gluten is found in the protein part of the wheat kernel and no gluten is contained in the solution of glucose. Additionally, after the bacteria eats the glucose, there is no wheat to be found in the outer coating that it produces, which is what makes up xanthan gum. The short answer here is, there is no corn used at all in the making of xanthan gum.

 

This is the link to the article ... http://www.glutenfreegigi.com/facts-about-gums-in-gluten-free-baking/

 

Now I am going to do some research on synthroid and xanthum gum.  :D

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to answer your original question ,, yes you can go from hypo to hyper . I have hashmotos and I bounce around . My endo thinks I may be going into graves ,, always something :unsure:

 

I would question the xamthum gum

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I too have bounced from hyper to hyper. The year just before menopause and my celiac disease dx was the worst. Was stable for a year, now it is acting up again. Hard to medicate.

I have some kind of intolerance to Xanthan gum. It does not bother my hubby -- just me. I bake with guar gum. I continue to serve crackers and bread to my hubby containing xanthan Gum.

Not sure about Sythroid as I have taken Armour Thyroid for almost 20 years.

Always get copies of your lab results or hospital records. It is just a good thing to keep your own history.

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    Celiac.com 06/19/2018 - Could baking soda help reduce the inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease? Scientists at the Medical College of Georgia at Augusta University say that a daily dose of baking soda may in fact help reduce inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease.
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    Whatever the reason that stuttering has not been reported in the medical literature in association with gluten ingestion, a number of personal disclosures and comments suggesting a connection between gluten and stuttering can be found on the Internet. Abid Hussain, in an article about food allergy and stuttering said: “The most common food allergy prevalent in stutterers is that of gluten which has been found to aggravate the stutter” (10). Similarly, Craig Forsythe posted an article that includes five cases of self-reporting individuals who believe that their stuttering is or was connected to gluten, one of whom also experiences stuttering from foods containing yeast (11). The same site contains one report of a stutterer who has had no relief despite following a gluten free diet for 20 years (11). Another stutterer, Jay88, reports the complete disappearance of her/his stammer on a gluten free diet (12). Doubtless there are many more such anecdotes to be found on the Internet* but we have to question them, exercising more skepticism than we might when reading similar claims in a peer reviewed scientific or medical journal.
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    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
    Celiac.com 06/14/2018 - Refractory celiac disease type II (RCDII) is a rare complication of celiac disease that has high death rates. To diagnose RCDII, doctors identify a clonal population of phenotypically aberrant intraepithelial lymphocytes (IELs). 
    However, researchers really don’t have much data regarding the frequency and significance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. Such data could provide useful comparison information for patients with RCDII, among other things.
    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
    They are variously affiliated with the Department of Pathology and Cell Biology, and the Department of Medicine at the Celiac Disease Center, New York Presbyterian Hospital/Columbia University Medical Center, New York, USA. Their team analyzed results of TCR-GR analyses performed on SB biopsies at our institution over a 3-year period, which were obtained from eight active celiac disease, 172 celiac disease on gluten-free diet, 33 RCDI, and three RCDII patients and 14 patients without celiac disease. 
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    Source:
    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023

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    • I think what is going on for a lot of people experiencing being glutened by vapours is that they are perhaps mis-attributing the experience to the vapour, when in fact they were glutened by other means (swallowing airborne flour particles, splatter, touching contaminated surfaces). Proteins (eg. gluten) are heavy, and cannot evaporate or be suspended in water droplets that have evaporated.  I have worked for many years in different lab settings working with dangerous chemicals and biohazardous materials (human/animal tissue and bodily fluids). You should see what I am legally required to wear when handling materials that are merely hazardous by ingestion or particulate/droplet inhalation! I have to wear gloves, a mask and two layers of protective clothing. I am not allowed to bring food or water into the same room at all, and must remove all clothing/protective equipment before leaving the experiment room. Why all this? Because humans are really, really bad at touching contaminated surfaces and then touching their faces. This is how you get most of the colds, flus, and stomach viruses you've had in your life. You touched something bad, and touched your face! We wipe stuff on our clothes. Droplets or powders fly up into our faces when we handle stuff, cut, and mix stuff, and we don't notice unless it's "a lot." But we can get sick from much less than "a lot," whether that's gluten or some noxious chemical/pathogen.  I live in a shared kitchen, and I do not go in there when my roommate is cooking. If I'm thirsty, that's too bad, I'll wait. I do no leave anything (food, clean dishes) out unless I am physically present in the kitchen or home alone. I do not prepare food until I have wiped down all surfaces (handles, taps, counter) that I will interact with while preparing my food. I do not allow flour in my kitchen, and do not go into bakeries etc. Before I adopted these policies, I used to get sick a fair bit on a random basis. Now, I am confident that food I prepare in my own shared kitchen is fine, regardless of what my roommates might cook.
    • Nice!  Thanks so much for sharing.  😊
    • "I've been there and still might have celiac disease." If you really DID have celiac disease? You still have it, and always will. There is no evidence that the underlying problems (autoimmune failure, leaky gut, etc.) ever can heal themselves, or be healed, beyond the random miracle cure at Lourdes.  There is, as best I've been able to find, absolutely no one out there who can say why sometimes an infant will be diagnosed with celiac, which then "goes away" for thirty or forty years, and then comes back with a vengeance. Indicating the underlying problems were there all along--and may have been causing all sorts of damage for all the years.  Think carefully about that. Celiac is like radiation poisoning: Every exposure adds up, over your whole lifetime, and pushes your autoimmune system further out of control. Even if it seems fine at the time.
    • Wow. My older daughter, who is eating gluten-free these days, came to celebrate Father's Day last Sunday. We cooked our traditional pancake breakfast and she brought with her Walmart's Great Value Gluten-free Pancake and Waffle Mix. It was delicious! So happy to see (and taste) so much flavor improvement over the last 10 years for the gluten-free crowd! Here is a link to this mix:
      http://bit.ly/2tnQrzB   Cheers,
      Travis Hiland  
    • Thanks for looking and responding. Hopefully can get in to see a gastroenterologist soon. Will have to wait for regular dr to come back first. Thanks again! 
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