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nvsmom

Time To Lose

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I'm making myself a weight loss thread.  I need to keep myself accountable and doing it in public may help.  LOL ;)

 

When I first went gluten-free in June of 2012, I lost some weight.  I was mildly overweight but I carried it pretty well on my 5'8" frame. I think I was around 175-180lbs when I was diagnosed. In the first few months lost a good 15 lbs without even trying, and was a happy size 10-12.  I was eating junk too because I felt a bit deprived - my way of showing myself that I wasn't hard done by.

 

My weight went up and down by a few pounds over the next year but then I started on some mild steroids and my weight shifted up a tiny bit.  Then at almost 2 years gluten-free my steroid dose increased for a bit and then my doctor stopped one med cold turkey.  My weight went quickly right back up to close to 180. Yuck.

 

I am also guessing that this weight gain may partially due to my healing.  I think after 2 years gluten-free, my intestines are absorbing more food than before because I really have not increased my food intake that much... I think. LOL

 

I am weaning off the last steroid and wanting to lose a good 30 lbs.

 

This week I am getting rid of junk food that I would eat, taking measurements and making my plan.  I think Halloween will be a good day to cut sugar and gluten-free treats from my life. I will  make some changes!

 

I'll check back in here and record my progress periodically.  Any comments are always welcomed.

 

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good luck! 

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Yay Nicole....A new adventure begins.  

 

Let me tell you something.  I'm 5'5" and during a two year period I went up to 190 lbs.  I kept telling my Doc that the med he started me on was making me gain weight.  This was before Celiac dx.  I was also taking steroids to try and control AI symptoms and so call fibro symptoms and that just added to the weight gain.  I was getting pretty miserable at that weight.  I found a new Doc and went off the one med and started a different one.  Around the same time the other Doc started talking about Celiac because steroids were of no help with anything.  When I went off the first med I started losing the weight, then off the steroids and more weight.  In eight months I went from 190 lbs. to 135 lbs and have been this since.  It is also what I weighed during my younger years.  So stopping two meds and Celiac diet shed all that weight and I'm much healthier :)  My weight does'nt fluctuate at all now.  

 

Good Luck Nic :D

 

Colleen

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Right there with you! I am awaiting my lab results this week but have already decided I will cut out gluten and WILL watch what my choices are. I have 30 to 40 lbs to lose to get in my healthy range :/ 

 

Best luck to you! It can be so hard. 

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I can't discuss my weight on here (mainly because I don't weigh myself, lol!) I go by my pant size and how my pants fit. I have very large breasts, and my weight has never been accurate.

 

Before the celiac disease really started to hit me (skin issues, fatigue, weight gain, more intense GI symptoms, etc) I was a happy size 8. I am 5'5", by the way. Then all of a sudden a bunch of things started exploding. I had terrible skin issues. I was exhausted all the time. And the weight was just piling on. I went up to either a size 14 or 16, I'm not sure...I stopped wearing jeans. I think I always wore sweat pants. I was embarrassed. I tried going to the gym, but despite going 5 nights a week, I wasn't losing anything. When I started dating my bf, (before celiac diagnosis)  he wanted to see me in jeans, so I worked up the nerve to go buy a pair. Size 14. Okay, whatever. I was diagnosed literally 2 days after that. (July 5 2013) By mid August of that year, I went down a pant size to a size 12. And then my weight loss completely plateaued, despite giving up more processed gluten free foods. This month I started the SCD diet, and now I can pull up and button my old size 10 jeans! They are still a little snug, but it counts! I couldn't even get them up over my thighs before! If I had the energy, I would combine this strict diet with going to the gym again. I want to get back down to a size 8 before 2015. That is my goal. :) My ultimate goal pant size would probably be a 6. I need to maintain a smaller size to keep my hernia in check. I developed a recurring hiatal hernia from all of the stress of that weight gain (and major bloating) in such a short period of time.

 

We can do this!

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LOL  Thanks ladies.  :) It's always helpful to hear of others in the same boat!

 

I'm not sure what weight I'm starting at.  My scale's battery died a couple of months ago and I keep "conveniently forgetting" to replace it.  ;)  I'll take some measurements tomorrow... It's Halloween and I need a good scare.  I'll weigh myself.... eventually.

 

I'm starting from a size 14-16.  Not good on 5'8".  I've been this heavy before but this time it is more fat; I have less muscle and more jiggle.  I don't know if that is because of the steroids or turning 40 or what, but my muscle tone has dropped off hugely this year.  Yuck. All this jiggle takes up more space than compact muscle. I want muscle back and to fit into size 10 again... That's my high school athletic size. Between 135 and 155 is a happy place for me.  145 would be just right most likely. It would be into size 12's still, but that size is fine for my larger than average frame.

 

I'm having my last junk food today - a Dr Pepper.  Pop is my vice and will be hard to give up.  I have a stash of teas to try and replace it.  That will take a few weeks to get used to.

 

Otherwise, today I ate 4 eggs, spinach, mushrooms, 3 slices of bacon (I made a big breakfast and ate it for lunch too) and a grilled cheese sandwich. Tomorrow will look similar to today just minus the pop and the bread - a sandwich is at least 50% of my total bread allotment for a typical week.  I was a lucky celiac, I didn't eat much bread to begin with. LOL

 

I'll update with how my crankiness progresses as my body tries to forget sugar... Oh beautiful sugar...

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I'm about to give up sugar too. I've been off nightshades for weeks now and the arthritis pain is not getting any better. It came on rather suddenly so I think it's food related. I have about a week and a half's worth of ice cream in the freezer (it was on sale so I stocked up), but when it's gone I won't be buying any more.

 

And it sounds like we are both about the same size. I don't know my exact weight either but I would guess it's around 165? And I would like to get back down to 140 or 145. I too go more by the way my clothes fit. Right now I am wearing men's size 36Waist/32Inseam. I want to get back into my 32/32's. (I wear men's jeans and always have. They are better made and cost less. And I hate jeans that come up to my bellybutton. Men's jeans ride lower and are more comfortable to me.)

 

Anyway, keep reporting and I'll do the same. Maybe we can lose weight together.

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Sounds good to me!  I may do better with company.   :D

 

Or not... I ate some candy.   :P  Darn it. I think I had 10 of those candies in the last 24 hours. Ugh.  I do feel gross, and hubby has hidden it for me... somewhere, so hopefully I can get back on track.  LOL Man!  I didn't even make 24 hours!! LOL

 

Tomorrow I will begin sugar withdrawal.  Can't wait.   ;)

 

I hope your pains get better soon, Bartfull.  My arthritis tends to do that too - comes on strong for no visible reason and often goes along with feeling flu-like.  I don't know if mine is food related though because I don't vary my diet much.  I'm pretty dull.  Anyway, I hope less sugar does it for you!

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I've been good today... and I'm starting to get the headache.  LOL  Well, I wasn't perfect, I had maple syrup on some coconut pancakes this morning, but otherwise this was a good day.  Lunch was rushed and could have been better too.

 

I plan on eating 3 meals per day and possibly 2 to 3 snacks. That worked well for me a few years back and I'm curious to see if it still will now that I am gluten-free.

 

Meal 1 - bacon, coconut flour pancakes (eggs, coconut oil, protein powder, flax meal, chia meal, hemp, vanilla, coconut milk, baking powder) w/syrup, coffee w/coconut cream and stevia

m2 - coffee w/ coconut cream and stevia

m3 - pistachios

m4 - tea and a handful of pumpkin seeds

m5 - leftover pork roast, gravy, cooked carrots, snap peas

m6 - I haven't had a snack yet but I plan on tea and some nuts.

 

Snacking in the evening is the worst for me.  That's when I have junk.  It will take a few weeks to get out of the night time snack habit.

 

I plan on going lower carb over the next week or two to change my body's craving for sugar and carbs.

 

Zero exercise... I enjoyed my book though.  ;)

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Giving up sugar isn't too bad. The first two weeks were the worst. After that, my taste buds sort of adjusted and lots of things seem too sweet to me now.

 

I do use some sweeteners now, but very, very sparingly. Changing my sugar intake literally changed my life. Before I made the change, I was sick most of the time with horrendous environmental allergies and got bronchitis a lot. I had two bouts of it back to back, before I finally decided that something had to change. After changing my diet, my sinus problems got so much better and I stopped being chronically sick from allergies. I also stopped catching colds and bronchitis so much.

 

 

Good luck to you! 

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Good job Nicole! Quitting sugar is hard...it does give you that headache. Ugh.

I'm curious about the coconut cream you use in your coffee. I went to Whole Foods looking for some for a recipe and they didn't have any. Can you share what you use? I'd like to get some for my coffee too. Thanks!

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My Height is 5'7" and while at the peak of my illness, my scale screamed  190 lbs!  I then lost 30 lbs after beginning an aggressive supplement program.  After going gluten free, my weight stabilized at 159 and stayed there a couple of years.  Recently, I cut all foods I knew I didn't tolerate.  Finally, I eliminated the last sweetener (honey) that I had been using.   It seemed to be the last thing I did, before I started losing weight like crazy.  I believe I have an allergy to honey, I am not giving a general weight loss clue necessarily.   I can't really say it caused my weight loss.    I am weighing myself every day two times lately.   The weight I begin the day at, is less than the day before, almost every day.  After about a week, my highest weight equals last week's lowest weight.   I currently weigh what I weighed when I got married 28 years back.  I think I should stop losing weight now, and so does my hubby. 

 

nvs mom, I liked that you referenced scaring yourself on Halloween!

 

  I hope all interested in this thread will have success with their efforts and hope you still will enjoy the food that you eat and gain in health as you do! 

 

Dee

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Giving up sugar isn't too bad. The first two weeks were the worst. After that, my taste buds sort of adjusted and lots of things seem too sweet to me now.

 

I do use some sweeteners now, but very, very sparingly. Changing my sugar intake literally changed my life. Before I made the change, I was sick most of the time with horrendous environmental allergies and got bronchitis a lot. I had two bouts of it back to back, before I finally decided that something had to change. After changing my diet, my sinus problems got so much better and I stopped being chronically sick from allergies. I also stopped catching colds and bronchitis so much.

 

 

Good luck to you! 

 

Giving up sugar is tough for me.  I can give up other stuff but sugar.  Ugh.  I've cut back on sugar before but as soon as I have one muffin or cookie as a treat, it's all down hill from there.  

 

I may be able to say that giving up sugar isn't too bad in a few months after the cravings are gone.  LOL  ;)  And this darn headache! Yep, grumpiness is setting in.

 

Good job Nicole! Quitting sugar is hard...it does give you that headache. Ugh.

I'm curious about the coconut cream you use in your coffee. I went to Whole Foods looking for some for a recipe and they didn't have any. Can you share what you use? I'd like to get some for my coffee too. Thanks!

 

I just use canned coconut milk. I try to find it without anything added in.  If you refrigerate the can, the cream condenses together and the cocnut water is on the bottom.  I use the water in my boys' baking but I use the cream for me... It's like whipping cream in coffee. Mmmmmm

 

My Height is 5'7" and while at the peak of my illness, my scale screamed  190 lbs!  I then lost 30 lbs after beginning an aggressive supplement program.  After going gluten free, my weight stabilized at 159 and stayed there a couple of years.  Recently, I cut all foods I knew I didn't tolerate.  Finally, I eliminated the last sweetener (honey) that I had been using.   It seemed to be the last thing I did, before I started losing weight like crazy.  I believe I have an allergy to honey, I am not giving a general weight loss clue necessarily.   I can't really say it caused my weight loss.    I am weighing myself every day two times lately.   The weight I begin the day at, is less than the day before, almost every day.  After about a week, my highest weight equals last week's lowest weight.   I currently weigh what I weighed when I got married 28 years back.  I think I should stop losing weight now, and so does my hubby. 

 

nvs mom, I liked that you referenced scaring yourself on Halloween!

 

  I hope all interested in this thread will have success with their efforts and hope you still will enjoy the food that you eat and gain in health as you do! 

 

Dee

 

I've done well in the past when I gave up sugar.  About 5 years ago I ate very clean and gave up all sugar and processed food - if I couldn't tell what it came from I wouldn't eat it.  After a couple of months I was exercising a fair bit too.  After 4 months I had lost 30 lbs.  I actually went below my wedding weight but after 3 kids and with a less intense exercise routine (no more marathons training), my body was a still a bit bigger than it was in my early 20's... Darn it.  ;)

 

And then I ate that muffin....  :rolleyes:

 

I still haven't measured myself.  I honestly keep forgetting about it.  I'll have to get that done soon.

 

Thanks for the support everybody.  :D

 

Today was not as good.  I skipped breakfast because of a busy schedule and by time I got around to eating I was hungry.

 

M1 - coffee w/ coco cream and stevia drops

M2  - frittata (about 1 1/2 eggs, spinach, mushrooms, salsa), chocolate muffin (similar recipe as the pancakes but had some sugar)

M3  -  slice cheddar, pumpkin seeds, coffee w/ coco cream

 

For the rest of the day I planned:

M4  -  spaghetti squash, tomato sauce with elk 

M5  - Popcorn with butter  ... I know, I know. Popcorn is less than ideal but with this headache, I plan to splurge with this

 

I'm coaching basketball tonight.  Its not a lot of exercise but it will get me sweating.

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I won't be starting until the ice cream is gone next week. Not looking forward to the headache, but it's better than the joint pain. The only thing is, I made (or am making - it takes a few days) sauerbratten. It has ginger snaps in it. But it won't be anywhere near the amount of sugar that is in the ice cream. And even though I made a huge batch, most of it will go into the freezer so I'll only eat it a couple of times a week.

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I won't be starting until the ice cream is gone next week. Not looking forward to the headache, but it's better than the joint pain. The only thing is, I made (or am making - it takes a few days) sauerbratten. It has ginger snaps in it. But it won't be anywhere near the amount of sugar that is in the ice cream. And even though I made a huge batch, most of it will go into the freezer so I'll only eat it a couple of times a week.

 

I haven't had saurbraten for a decade or two.  My grandmother would make it with raisens. I wasn't a huge meat eater as a child but I loved that roast.

 

Mmmmm, saurbraten....

 

I haven't tried making gluten-free spaztle yet.  I should look into that - its been too long.

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I've lost about 15 lbs since my diagnosis this past summer.  My dr said a pound a week should be my goal. Any more than that and it's not sustainable loss.  It's hard to go so slowly but it's working.  They put me on a 1200/day calorie diet (I'm short, 5' 3") and the first couple weeks were hard but now it's about all I can eat without feeling stuffed.  I haven't really cut anything out of my diet other than gluten.  I just eat in moderation.  I use the Sparkpeople website/app to track what I eat.  It's been very helpful, and eye opening at times :D.  They also said that eating 3 meals a day is better than eating 5 smaller meals for weight loss (Mayo endocrinologist specializing in weight control).  They do metabolism studies as well to determine how many calories you should be eating.  The Sparkpeople app was pretty close to what they said if I wanted to maintain my weight, but about 200 calories/day high for losing weight.  It's been a slow process but I've gone down 2 clothing sizes (well, 1.75 since the next size down is still a bit snug).

 

A couple good tips I've found is to use smaller plates.  When dishing up your plate, fill half of the plate with a vegetable first, then add your meat/protein and your starch/grain.  If I'm hungry, I eat a vegetable.  I keep zucchini on hand more now.  I will slice one in half, put a little olive oil on it to keep it from drying out, seasoning and bake in the oven.  One zucchini fills me up for a LONG time.  I love zucchini though.  Also, if you think you are hungry but do not know what you want to eat, you are probably really thirsty so drink a glass of water and wait 20 minutes before eating anything.

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Congrats SMRI.  You've done well.  :)

 

I actually lost about 15-20lbs when I went gluten-free without doing anything.  That was lovely.... It didn't last on me though.  Darn it. ;)

 

I'm looking into the "Virgin Diet".  She encourages people to get rid of the major food sensitivities and that includes sugar.  So, I though I'd go all out for 21 days and see how I feel.  After that I'll reintroduce some of those foods back, although I think I'll plan to keep sugar out - I just can't handle it well.

 

Anyway, I'll be cutting dairy, gluten ( ;) ), soy, corn, eggs, peanuts, sugar and sweeteners out of my diet.  I am very dairy light so that one will be easy. I eat almost no soy except in the occasional prepackaged food, and the same goes (somewhat) for corn, so that shouldn't be too tough.  I prefer tree nuts to peanuts so that is easy too.  Oh no, but how will I give up gluten?! Yep.  The tough ones for me will be eggs, but I'm already switching to egg free breakfasts, and sugar... Sugar.  I've been cutting it slowly out but every evening I get the headache and I usually cave in and have a little something, even a Larabar evens me out.  Sigh.

 

Well tomorrow is the day I eat veggies, fats and meats. That's it. My fridge is stocked, and quick snacks and sugars are gone so there will be no temptation.

 

Oh. I stepped on a doctor's scale and it said 181.... I'll edit my response to that.  I knew it was about that but I can't try to fool myself anymore.  If I'm lucky I'll be down a good 10lbs by my birthday in late January. I'll be happier to be out of the 170's again and hopefully the first 10 lbs will slide off quickly since I have so much to lose... I need to lose a preschooler.   :rolleyes:  That's just sad, but doable by summer time! LOL

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I stopped the ice cream about a week ago. That was the only sugar in my diet and I expected headaches too but so far nothing! I'm still eating white rice so maybe that carb thing is keeping the headaches away. It may be my imagination but I think my wrist feels a little better too. I haven't lost any weight but I didn't really expect to yet. It seems like it takes a few weeks and then a bunch comes off at once.

 

I just bought a bunch of new jeans a couple of months ago. If I do lose weight I'm going to have to go shopping again. :angry: I hate shopping! But if my wrist gets better it'll be worth it.

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Shopping is no fun. I'm in "fat clothes" right now, and I had to shop for more because I got rid of them a couple of years ago. I couldn't bring myself to spend money on fat clothes so I went to the thrift stores... it was almost fun shopping because I didn't need to spend much.  LOL

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You can do it Nicole! Excited to see how this plan goes for you. I'm thinking you will lose weight fairly quickly. Before I was diagnosed I needed to lose 15-20 pounds. I lost 15 pounds fairly quickly after going gluten free. Then in July when I was still having GI issues I cut out things that seemed to cause other people issues (dairy, soy, legumes...eggs for a bit, but I added them back without issues). Anyway, since then I've lost another 17 pounds. I'm not trying to lose anymore...and I finally leveled off once I realized that I wasn't getting enough calories. According to MyFitnessPal I need about 1800 a day to maintain and was only getting 1500. I've found that meat, veggies and fruits are so filling. I haven't completely given up sugar...that sounds too hard. I have some Enjoy Life dark chocolate chips around at all times. The funny thing is that I used to use MFP to try to lose weight. 1500 calories or less a day and I worked out. I think a lot of it was just inflammation. Crazy.

Good luck and keep us posted!

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I'm hoping some of this is inflammation too and it goes fairly quickly. The rest, well,  it will take some work.

 

Its just this starting out and getting into a groove thing.  Once I'm into it I'll be okay. Its that first few weeks which are tricky.  I think I'll get there though... I have too - I can't stand feeling my back jiggle when I run!  YUck!  LOL

 

Thanks for the support!  :)

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this is a great thread. I lost some weight over the past few years, when I went gluten-free, df and soy free the rest of what I had been trying to lose came off. but now I am battling with bloat. I have mentioned it here a few times. I don't eat any gluten-free packaged foods, I make all my own food fresh and whole.  a few days ago I gave up the few grains I was eating, like quinoa. I am in a size 6 now, down from a really tight 14. I am happy with my weight and my size, but can't deal with the belly bloat which is recent. can't figure it out. I'm hoping giving up grains will do it. 

 

I think the thing that really baffles me is that I teach yoga and pilates

 

anyway, happy to join in here

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this is a great thread. I lost some weight over the past few years, when I went gluten-free, df and soy free the rest of what I had been trying to lose came off. but now I am battling with bloat. I have mentioned it here a few times. I don't eat any gluten-free packaged foods, I make all my own food fresh and whole.  a few days ago I gave up the few grains I was eating, like quinoa. I am in a size 6 now, down from a really tight 14. I am happy with my weight and my size, but can't deal with the belly bloat which is recent. can't figure it out. I'm hoping giving up grains will do it. 

 

I think the thing that really baffles me is that I teach yoga and pilates

 

anyway, happy to join in here

Hi Julissa...do you consume any almond or coconut milk? I ask because after I had given up pretty much everything. ..lol...I was still terribly bloated. One day I was reading an article about additives that cause bloating. The first one was carrageenan. It turns out that it was an ingredient in the almond and coconut milk that I was using to make my smoothie. Cutting that out helped a ton. Another additive was inulin...Also called chicory root fiber. It was in my probiotic! Getting both of those out of my life cut down my bloating 80-90%...seriously.

Hope this helps someone!

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Don't you wish a food reaction was immediate and obvious?  The guess work and detective work gets old fast.  LOL

 

I've come down with a cold or flu so that is helping disguise my withdrawal, plus the lack of appetite keeps me out of the food. There's a bright side to feeling crappy, I know there is.  LOL

 

No dairy, soy, sugar, peanuts, corn or eggs today. So far I've had mushrooms and bok choy; coffee with coconut cream; and a can of tuna.  I have no idea what I'll cobble together for dinner - something that requires very little effort, no doubt.

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    With the advent of the Internet a whole new field of anecdotal information was emerging, connecting a variety of neurological symptoms to celiac disease. While many medical practitioners and researchers were casting aspersions on these assertions, a select few chose to explore such claims using scientific research designs and methods. While connections between stuttering and gluten consumption seem to have been overlooked by the medical research community, there is a rich literature on the Internet that cries out for more structured investigation of this connection. Conversely, perhaps a publication bias of the peer review process excludes work that explores this connection.
    Whatever the reason that stuttering has not been reported in the medical literature in association with gluten ingestion, a number of personal disclosures and comments suggesting a connection between gluten and stuttering can be found on the Internet. Abid Hussain, in an article about food allergy and stuttering said: “The most common food allergy prevalent in stutterers is that of gluten which has been found to aggravate the stutter” (10). Similarly, Craig Forsythe posted an article that includes five cases of self-reporting individuals who believe that their stuttering is or was connected to gluten, one of whom also experiences stuttering from foods containing yeast (11). The same site contains one report of a stutterer who has had no relief despite following a gluten free diet for 20 years (11). Another stutterer, Jay88, reports the complete disappearance of her/his stammer on a gluten free diet (12). Doubtless there are many more such anecdotes to be found on the Internet* but we have to question them, exercising more skepticism than we might when reading similar claims in a peer reviewed scientific or medical journal.
    There are many reports in such journals connecting brain and neurological ailments with gluten, so it is not much of a stretch, on that basis alone, to suspect that stuttering may be a symptom of the gluten syndrome. Rodney Ford has even characterized celiac disease as an ailment that may begin through gluten-induced neurological damage (13) and Marios Hadjivassiliou and his group of neurologists and neurological investigators have devoted considerable time and effort to research that reveals gluten as an important factor in a majority of neurological diseases of unknown origin (14) which, as I have pointed out previously, includes most neurological ailments.
    My own experience with stuttering is limited. I stuttered as a child when I became nervous, upset, or self-conscious. Although I have been gluten free for many years, I haven’t noticed any impact on my inclination to stutter when upset. I don’t know if they are related, but I have also had challenges with speaking when distressed and I have noticed a substantial improvement in this area since removing gluten from my diet. Nonetheless, I have long wondered if there is a connection between gluten consumption and stuttering. Having done the research for this article, I would now encourage stutterers to try a gluten free diet for six months to see if it will reduce or eliminate their stutter. Meanwhile, I hope that some investigator out there will research this matter, publish her findings, and start the ball rolling toward getting some definitive answers to this question.
    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
    Celiac.com 06/14/2018 - Refractory celiac disease type II (RCDII) is a rare complication of celiac disease that has high death rates. To diagnose RCDII, doctors identify a clonal population of phenotypically aberrant intraepithelial lymphocytes (IELs). 
    However, researchers really don’t have much data regarding the frequency and significance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. Such data could provide useful comparison information for patients with RCDII, among other things.
    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
    They are variously affiliated with the Department of Pathology and Cell Biology, and the Department of Medicine at the Celiac Disease Center, New York Presbyterian Hospital/Columbia University Medical Center, New York, USA. Their team analyzed results of TCR-GR analyses performed on SB biopsies at our institution over a 3-year period, which were obtained from eight active celiac disease, 172 celiac disease on gluten-free diet, 33 RCDI, and three RCDII patients and 14 patients without celiac disease. 
    Clonal TCR-GRs are not infrequent in cases lacking features of RCDII, while PCPs are frequent in all disease phases. TCR-GR results should be assessed in conjunction with immunophenotypic, histological and clinical findings for appropriate diagnosis and classification of RCD.
    The team divided the TCR-GR patterns into clonal, polyclonal and prominent clonal peaks (PCPs), and correlated these patterns with clinical and pathological features. In all, they detected clonal TCR-GR products in biopsies from 67% of patients with RCDII, 17% of patients with RCDI and 6% of patients with gluten-free diet. They found PCPs in all disease phases, but saw no significant difference in the TCR-GR patterns between the non-RCDII disease categories (p=0.39). 
    They also noted a higher frequency of surface CD3(−) IELs in cases with clonal TCR-GR, but the PCP pattern showed no associations with any clinical or pathological feature. 
    Repeat biopsy showed that the clonal or PCP pattern persisted for up to 2 years with no evidence of RCDII. The study indicates that better understanding of clonal T cell receptor gene rearrangements may help researchers improve refractory celiac diagnosis. 
    Source:
    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023

    Jefferson Adams
    Celiac.com 06/13/2018 - There have been numerous reports that olmesartan, aka Benicar, seems to trigger sprue‐like enteropathy in many patients, but so far, studies have produced mixed results, and there really hasn’t been a rigorous study of the issue. A team of researchers recently set out to assess whether olmesartan is associated with a higher rate of enteropathy compared with other angiotensin II receptor blockers (ARBs).
    The research team included Y.‐H. Dong; Y. Jin; TN Tsacogianis; M He; PH Hsieh; and JJ Gagne. They are variously affiliated with the Division of Pharmacoepidemiology and Pharmacoeconomics, Department of Medicine, Brigham and Women's Hospital and Harvard Medical School in Boston, MA, USA; the Faculty of Pharmacy, School of Pharmaceutical Science at National Yang‐Ming University in Taipei, Taiwan; and the Department of Hepato‐Gastroenterology, Chi Mei Medical Center in Tainan, Taiwan.
    To get solid data on the issue, the team conducted a cohort study among ARB initiators in 5 US claims databases covering numerous health insurers. They used Cox regression models to estimate hazard ratios (HRs) and 95% confidence intervals (CIs) for enteropathy‐related outcomes, including celiac disease, malabsorption, concomitant diagnoses of diarrhea and weight loss, and non‐infectious enteropathy. In all, they found nearly two million eligible patients. 
    They then assessed those patients and compared the results for olmesartan initiators to initiators of other ARBs after propensity score (PS) matching. They found unadjusted incidence rates of 0.82, 1.41, 1.66 and 29.20 per 1,000 person‐years for celiac disease, malabsorption, concomitant diagnoses of diarrhea and weight loss, and non‐infectious enteropathy respectively. 
    After PS matching comparing olmesartan to other ARBs, hazard ratios were 1.21 (95% CI, 1.05‐1.40), 1.00 (95% CI, 0.88‐1.13), 1.22 (95% CI, 1.10‐1.36) and 1.04 (95% CI, 1.01‐1.07) for each outcome. Patients aged 65 years and older showed greater hazard ratios for celiac disease, as did patients receiving treatment for more than 1 year, and patients receiving higher cumulative olmesartan doses.
    This is the first comprehensive multi‐database study to document a higher rate of enteropathy in olmesartan initiators as compared to initiators of other ARBs, though absolute rates were low for both groups.
    Source:
    Alimentary Pharmacology & Therapeutics

    Jefferson Adams
    Celiac.com 06/12/2018 - A life-long gluten-free diet is the only proven treatment for celiac disease. However, current methods for assessing gluten-free diet compliance are lack the sensitivity to detect occasional dietary transgressions that may cause gut mucosal damage. So, basically, there’s currently no good way to tell if celiac patients are suffering gut damage from low-level gluten contamination.
    A team of researchers recently set out to develop a method to determine gluten intake and monitor gluten-free dietary compliance in patients with celiac disease, and to determine its correlation with mucosal damage. The research team included ML Moreno, Á Cebolla, A Muñoz-Suano, C Carrillo-Carrion, I Comino, Á Pizarro, F León, A Rodríguez-Herrera, and C Sousa. They are variously affiliated with Facultad de Farmacia, Departamento de Microbiología y Parasitología, Universidad de Sevilla, Sevilla, Spain; Biomedal S.L., Sevilla, Spain; Unidad Clínica de Aparato Digestivo, Hospital Universitario Virgen del Rocío, Sevilla, Spain; Celimmune, Bethesda, Maryland, USA; and the Unidad de Gastroenterología y Nutrición, Instituto Hispalense de Pediatría, Sevilla, Spain.
    For their study, the team collected urine samples from 76 healthy subjects and 58 patients with celiac disease subjected to different gluten dietary conditions. To quantify gluten immunogenic peptides in solid-phase extracted urines, the team used a lateral flow test (LFT) with the highly sensitive and specific G12 monoclonal antibody for the most dominant GIPs and an LFT reader. 
    They detected GIPs in concentrated urines from healthy individuals previously subjected to gluten-free diet as early as 4-6 h after single gluten intake, and for 1-2 days afterward. The urine test showed gluten ingestion in about 50% of patients. Biopsy analysis showed that nearly 9 out of 10 celiac patients with no villous atrophy had no detectable GIP in urine, while all patients with quantifiable GIP in urine showed signs of gut damage.
    The ability to use GIP in urine to reveal gluten consumption will likely help lead to new and non-invasive methods for monitoring gluten-free diet compliance. The test is sensitive, specific and simple enough for clinical monitoring of celiac patients, as well as for basic and clinical research applications including drug development.
    Source:
    Gut. 2017 Feb;66(2):250-257.  doi: 10.1136/gutjnl-2015-310148.