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cristiana

Pure Oats - A Question For Those Who React

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Hello All

 

I realise that most celiacs can tolerate pure oats but I wondered for those of you that can't (apparently 10% of us?) what your symptoms are.  I am trying to figure out if that is what is wrong with me at the moment. Having consciously avoided oats since my diagnosis I ate about 100g in two days last weekend and initially I had terrible abdominal distension and belching and since that has died down, from about midday everyday, I feel very uncomfortable, like my stomach is really sore.  Also mild C.  I'm just wondering how long this will last, if it is down to the oats.  I had a similar thing happen in the summer and I think it took about a month to shift, but at the time I put it down to NSAIDs, now I'm not so sure some oats didn't sneak in somewhere and cause the same reaction.

 

Thanks

 


Diagnosed by blood test and endoscopy Spring 2013

Adopted a gluten-free diet in May 2013

 

BRITISH

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I seem to get the same reaction I get to gluten with oats (headache, body ache, fatigue) although more mild. It took me a while to figure it out (as it does with every glutening!). Your symptoms sound like you could be reacting to the increase in fiber. But, if your hunch is its the oats then it doesn't hurt to give them up. They're much easier to avoid than corn and rice, that's for sure. I hope you're feeling better soon.

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By 'pure' oats you do mean oats that are certified as gluten free right? If they are not the are likely contaminated.

I also react about the same as I do with gluten. Been a real long time since I tried them. Reaction was bad enough for me to decide to just live without them.

If you are not sure it is the oats you could drop them for now and try again when you are feeling better. If it happens again you will know that oats are a no for you.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Hello - thanks so much, both.  Yes ravenwoodglass - certified gluten-free oats.    I might try to stay away from them until at least February, after my next blood test.  As you say, heatman, at least they are easy to avoid than other stuff.  I have been really shaken by this reaction, if indeed that is what it is - worse than the last time I had gluten by mistake.  It is a bit hard to tell at this time of year what is really going wrong because there are so many gastric bugs doing the rounds, too.  I saw a post on another site where someone was complaining when they ate oats three days later they got severe burning in the duodenum area, that sounds just like me - it didn't take immediate effect.  Oh well - time will tell.  Thanks so much again.


Diagnosed by blood test and endoscopy Spring 2013

Adopted a gluten-free diet in May 2013

 

BRITISH

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Hello, i read that oats are still being studied for the reactions they cause in some celiacs. Here in argentina oats are not safe for celiacs, the foods are labelled SIN TACC, that means in spanish without wheat, oats, barley or rye, anyway i think thats because of CC..

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Hello, i read that oats are still being studied for the reactions they cause in some celiacs. Here in argentina oats are not safe for celiacs, the foods are labelled SIN TACC, that means in spanish without wheat, oats, barley or rye, anyway i think thats because of CC..

I have also read that same thing, although I don't remember where so can't quote the source but it was just a month or so ago.  Also they can be difficult to digest.

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