Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

aikiducky

I Could Just Cry...

Rate this topic

Recommended Posts

I'm not often frustrated with my diet... but today I had such a disappointment! I found (I thought) a gluten free dairy free marzipan bar today. I have been wanting marzipan, it's in all the shops here. :P

It said gluten free on the package and all! I was optimistic enough to buy two. Since the ingredients listed glucose syrup though, without giving the source, I didn't eat it before checking the manufacturer's website. Getting my hopes even higher by all the hype about their high standards and all on the website...

The glucose syrup is made from wheat. :(

:angry::angry::angry::angry::angry::angry::angry::angry:

At least I DIDN'T eat it. I'm going to have some raisins instead. :)

Why on EARTH couldn't they use a naturally gluten free syrup instead?

Pauliina

Share this post


Link to post
Share on other sites
Guest nini

If it said Gluten Free on the package, but the website said otherwise, I would most DEFINITELY contact the company and ask them to please remove the Gluten Free label from the package if that is not the case. They really need to be made aware of what gluten is, and if this particular product is in fact gluten free or not, they need to clarify it. What is the company so we can all bombard them with e-mail or phone calls or letters???!!!

Share this post


Link to post
Share on other sites

Thank goodness you checked the website before you ate it!! When I think of the times I see gluten free on a label and just assume that its fine--that company needs to get their act together :angry:

Share this post


Link to post
Share on other sites

Thing is I'm in Europe, so if the glucose syrup has gluten under the Codex Alimentarius norm amount, they are allowed to call it gluten free. I just think that in that case they should at least mention that there still can be traces of gluten for us extra sensitive people to avoid. :(

I hate the Codex norm with a passion, it makes my food shopping such a PITA. Even lists of gluten free foods are suspect, I always have to check how they define "gluten free".

Oh well, I'm almost over it. :rolleyes: Raisins are good...

Pauliina

Share this post


Link to post
Share on other sites
Guest nini

can't you make a homemade marzipan? I don't know how difficult this would be, I'm just asking.

Share this post


Link to post
Share on other sites
I'm not often frustrated with my diet... but today I had such a disappointment! I found (I thought) a gluten free dairy free marzipan bar today. I have been wanting marzipan, it's in all the shops here.  :P

It said gluten free on the package and all! I was optimistic enough to buy two. Since the ingredients listed glucose syrup though, without giving the source, I didn't eat it before checking the manufacturer's website. Getting my hopes even higher by all the hype about their high standards and all on the website...

The glucose syrup is made from wheat.  :(

:angry:  :angry:  :angry:  :angry:  :angry:  :angry:  :angry:  :angry:

At least I DIDN'T eat it. I'm going to have some raisins instead.  :)

Why on EARTH couldn't they use a naturally gluten free syrup instead?

Pauliina

<{POST_SNAPBACK}>

Hi Aikiducky

My information is that glucose syrup has no detectable gluten even if derived from a gluten containing grain. I beleive this information, supplied by The Coeliac Society of Australia, to be correct. I've certainly never had a problem with it.

Share this post


Link to post
Share on other sites

Nini, I have no idea. :D But I don't think I want it badly enough to figure out how to make some myself. Just like I do like cakes but I never bake - laziness wins over gluttony...

I could chew on some almonds and sugar, it all gets mixed up in the tummy anyway, doesn't it? ;)

That sounds like I'm really five years old, lol.

Pauliina

Share this post


Link to post
Share on other sites
Guest nini

LOL! No... I understand!

I really really want a gluten-free Krispy Kreme type donut, but I'm too lazy to try to figure out how to make one.

Share this post


Link to post
Share on other sites

at least try looking up a recipe. from what I remember, marzipan is not hard to make at all.

Share this post


Link to post
Share on other sites
Hi Aikiducky

                 My information is that glucose syrup has no detectable gluten even if derived from a gluten containing grain. I beleive this information, supplied by The Coeliac Society of Australia, to be correct. I've certainly never had a problem with it.

<{POST_SNAPBACK}>

Hi KenS,

I don't know anything about glucose syrup, so is this something that is distilled from a grain? I don't want to bring up that debate again (I kind of got upset with some in the forum, including Tarnalberry....feel bad :( ) Anyway, if it is distilled or just 'grain-derived' at some point, maybe there is an inherent contamination risk involved. I know I have had a rxn to distilled grains (without gluten additives), and I think others have too, regardless of whether the distillation is supposed to remove all gluten.

I am not trying to be argumentative, just curious about glucose syrup specifically (not asking about general grain distillation). Thanks.

Share this post


Link to post
Share on other sites

I googled it for you because I love marzipan, but I have not had any since going gluten-free. That codex is such a pain. It is hard enough shopping here knowing that gluten-free means gluten-free and every time I see a European product sold here that looks good, I wonder if it is really safe.

2 cups of confectioners’ sugar

½ pound of finely ground blanched almonds (or prepared almond paste as directed on box)

2 egg whites

½ teaspoon of salt

½ teaspoon of almond extract

Blend all of the ingredients together until smooth and completely blended together.

Wrap or cover tightly and chill until firm.

Share this post


Link to post
Share on other sites
LOL! No... I understand!

I really really want a gluten-free Krispy Kreme type donut, but I'm too lazy to try to figure out how to make one.

<{POST_SNAPBACK}>

Don't waste your time. KK doughnuts can't be replicated without gluten.

richard

Share this post


Link to post
Share on other sites
Hi KenS,

I don't know anything about glucose syrup, so is this something that is distilled from a grain?  I don't want to bring up that debate again (I kind of got upset with some in the forum, including Tarnalberry....feel bad  :( )  Anyway, if it is distilled or just 'grain-derived' at some point, maybe there is an inherent contamination risk involved.  I know I have had a rxn to distilled grains (without gluten additives), and I think others have too, regardless of whether the distillation is supposed to remove all gluten. 

I am not trying to be argumentative, just curious about glucose syrup specifically (not asking about general grain distillation).  Thanks.

<{POST_SNAPBACK}>

Hello Bluelotus,

I'm sorry, I don't know how glucose syrup is manufactured. I depend completely on the ingredient list provided by "The Coeliac Society of Australia", and I haven't been let down yet. (Over six months now).

I may be quite wrong here, but I feel that if you have problems with distilled products, there may be something else going on besides or in addition to celiac disease.

Sorry I can't be more helpful, I can only speak from my own experiences.

Ken.

Share this post


Link to post
Share on other sites

Thanks anyways. Like I said, I am not trying to get into a debate about distilled products. I got sick off it, it may be b.c it was distilled, it may be because of crappy contamination control in a plant that obviously uses wheat. I have celiac disease. Never seen glucose syrup in the states, so its not a big deal.

Thanks anyways for your concern.

Share this post


Link to post
Share on other sites
Hi Aikiducky

                My information is that glucose syrup has no detectable gluten even if derived from a gluten containing grain. I beleive this information, supplied by The Coeliac Society of Australia, to be correct. I've certainly never had a problem with it.

<{POST_SNAPBACK}>

Hi Ken,

your information is correct - up to a point. Theoretically, glucose syrup should be safe - unfortunately, no one told my gut that, and it still reacts... for me gluten-free really has to be 100% naturally gluten free. I know other people with the same problem, too, it's a constant topic on local gluten-free mailing lists. The new European food labelling laws might help, we'll see.

Thank you for the recipe Felidae! Maybe I can get my mom to make some... :D

Pauliina

Share this post


Link to post
Share on other sites
:( It is sad that MD means more drugs!!!A word of warning: A recent New York Times editorial reported on new research of the enzyme tryptophan. This is being touted as a "new" promising treatment for those with, among other things, auto-immune disease. It's already being used in trials in Britain. It has a bad track record and I hope that the medical profession, researchers and pharaceutical companies do not begin to push this on an unsuspecting public! It's been around for quite some time possible adverse outcomes are extremely serious.

Share this post


Link to post
Share on other sites

So, is glucose syrup similiar to corn syrup here? By the way--Krispy Kremes! I used to sell them, I never have had one, by the time I was selling them at work, I was already gluten free. We had a company before KK called The Sweet Shop--a mom and pop place---they made the best donuts I ever had. When Speedway (where I worked) switched to Krispy Kremes, people threw a fit, they wanted the Sweet Shop back. I am happy I dont crave donuts--I never was one who needed donuts or cakes---now a good choc chip cookie--yummmmmm! :P

As for listing gluten--companies get away with that disclaimer--"We dont feel the level of gluten is detectable" I feel any level is too much and if it isnt a high enough level to be detectable, then it doesnt need to be in the product to begin with. I found vitamins a few weeks ago--Puritan Pride--and they stated they are gluten free, but there is barley grasses on the label---of course, they have that nice little disclaimer at the bottom of their site--I wont use the vitamin.

We have to watch out for us and we have to make them all pay attention to us. Deb

Share this post


Link to post
Share on other sites
So, is glucose syrup similiar to corn syrup here?  Deb

<{POST_SNAPBACK}>

I guess so, only it can be made of wheat as well, and until now, it wasn't necessary to list on the ingredients whether or not it was made from corm or wheat. I'm not sure if that is going to change, I'm not completely up to speed about that yet.

BTW, I got a reply from the company. They were sorry that I couldn't use their product, but the glucose syrup was necessary for the something or other, consistency or something. Oh well. They did reply promptly ay least.

Pauliina

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...