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My daughter has just tested positive to the gene DQ8 (negative to DQ2).  We are waiting for an appointment with a specialists (her symptoms are episodes of blurred vision, low iron, stomach pain and unusual acid wear on her teeth) but on another forum I had someone tell me his doctor said DQ8 by itself was incompatible with celiac disease.  So was just wondering does any here have DQ8 only and have diagnosed celiac disease?

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http://www.cureceliacdisease.org/archives/faq/how-does-a-genetic-test-rule-out-celiac-disease

 

it is a Celiac gene.  Having the gene alone, does not make a Celiac diagnosis. About 30 % of people have one of the genes for Celiac.  But only 1% have Celiac.


 

 

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I now having the gene does not necessarily mean you have celiac but this person had been told having DQ8 only means you can never get celiac disease.  My understanding was this gene is rarer but you can still become celiac with it.

 

I would go with the Celiac experts on this one.

From my link- 

 

"Two genes are responsible for celiac disease (HLA-DQ2 & HLA-DQ8). If you have either of them, then you have the potential for the disease to activate at any age. "


 

 

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The person whose post you read online was incorrect in their understanding.  It is the rarer of the two genes, as you said. Check out the info Karen linked above.

 

That is why we really like to link to reputable sources on here, because when you read something online you have to be weary about there that information came from.  On here we will correct bad info given by others, but people are human and who knows, that original guy on the other forum could have just made a typo.  Hopefully... if not, give him that link Karen gave you, haha.


I am my husband's "Silly Yak Girl" :)

I was diagnosed with Celiac Disease in January 2013. I also have Lupus and Common Variable Immunodeficiency(CVID) for which I am on IVIG.

Celiac.com - Celiac Disease Board Moderator

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Hi, I have the DQ8 gene and was diagnosed with celiac disease 2 years ago. In fact blurred vision and anemia has been my worse symptoms along with achey arms, bloating and dh.

Edit: Oh and brainfog...I forgot that one☺


Celiac.com - Celiac Disease Board Moderator

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