0
SofiEmiMom

Deducting Food From Taxes

Rate this topic

Recommended Posts

Has anyone here made deductions on your taxes for the extra cost of gluten free food? Considering what it has been costing us to keep our family on a gluten free diet we looked into income tax deduction possibilities to help deter the cost. Apparently, the Internal Revenue Service does allow income tax deductions for people with dietary restrictions. We asked an accountant if we qualified and he said that we do but to insure ourselves in the event of an audit we need a letter from our doctor stating that we have celiac disease and must adhere to a gluten free diet for life. We got all of that, but, I didn't know if we would be flagging ourselves for an audit if we made the deductions. Anyone here have experience with this?

Thanks so much.

Kimberly

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Guest jhmom

Kimberly,

I received this from another support group, I hope this helps you and answers your questions... I plan on printing this out and taking to my tax lady and deducting the cost this year.

TAX DEDUCTION FOR GLUTEN-FREE FOODS AS MEDICAL EXPENSE

1. You may deduct the cost of Gluten-Free (gluten-free) products that are in EXCESS of the cost of the gluten containing product that you are replacing.

2. The full cost of special items needed for a gluten-free diet may be deducted. An example is the cost of XANTHAN GUM (methyl cellulose) used in gluten-free home-baked items, which is completely different than anything used in an ordinary recipe.

3. If you make a special trip to a specialty store to purchase gluten-free foods, the actual cost of your transportation to and from the store is deductible. If you are using your vehicle for the trip, you may deduct $.10 per mile each way.

4. The full cost of postage or other delivery expenses on gluten-free purchases made by mail order are deductible.

If you are audited, you will need a letter from your doctor indicating that you have Celiac Disease and must adhere to a Gluten-free diet for life. You will also need substantiation in the form of receipts, cast register tapes or canceled checks for your gluten-free purchases and a schedule showing how you computed your deductions for the gluten-free foods.

The total amount of your deduction for gluten-free foods should be added to your other medical expenses that are reported on line 1 of Schedule A of your form 1040. Do not include your doctors letter, your receipts or your schedule showing how you computed your deduction for gluten-free foods. Save these documents which should be submitted only in the event you are audited by IRS or your state's taxing authority.

If you are audited and the auditor tells you that these items are not deductible, refer the auditor to:

Share this post


Link to post
Share on other sites

Maybe someone can clarify this for me, but I think that if the gluten-free food goes into the medical deductions, you can only deduct gluten-free food if your medical deductions are high enough. (I forget the exact percentage of your income, but it's something like 10%?)

Share this post


Link to post
Share on other sites

Tarnalberry, You are correct. To deduct medical expenses, they must be a certain percentage of your total income. I am not sure exactly how much but an accountant would know.

Share this post


Link to post
Share on other sites

Thanks for posting this. I am trying to keep track of all of my expenses for taxes and this is the very helpful.

Share this post


Link to post
Share on other sites
Ads by Google:


Guest PastorDave

There is a way to purchase gluten free food with before tax dollars, but your workplace must offer a "cafeteria plan." This is where some of your paychecks are taken with before tax dollars and then when you make purchases that are tax-deductable (such as filling prescription medications, buying eyeglasses, paying co-pays for health insurance, and yes, buying gluten free foods) you are then reimbursed the amount from the account that has been deducted from your pay. This lowers your taxable income and therefore cases a tax deduction even if you don't spend enough to consider itemizing your tax deductions. You do need that letter from your doctor, and it is wise to keep all of your reciepts as well (so just give your workplace copies when it comes time to be reimbursed.) - Pastor Dave's financial genious wife. :P

Share this post


Link to post
Share on other sites

In the U.S., medical expenses that exceed 7% of your income are deductible. If you count meds, insurance, doctor's fees and lab fees along with your gluten-free food expenses, it is feasible that you could exceed 7%. In 2003, I paid over $8000 in medical NOT counting gluten-free food or all the OTC products I have to use for Sjogren's (eyedrops, special toothpaste, mouthwash, humidifier filters, etc.)

Thanks for the documentation...I probably won't be able to use it since I voluntarily went gluten-free and thus have no official diagnosis, but it is VERY good info to have. We pay far too much for these specialty foods, and not all of us can easily afford them.

You are a very helpful bunch, and I appreciate it.

:D

Share this post


Link to post
Share on other sites

PastorDave is referring to the healthcare flexible spending account. You allot a certain amount of pre-tax dollars to be taken out of your paycheck, for every paycheck during the year. Then, you submit receipts to be reimbursed from your own pre-tax dollars for the difference between the cost of gluten and gluten-free foods. For example, if I buy a gluten-free cake mix at $6 and a normal cake mix is $.99, then I get reimbursed $5.01.

The important thing with this type of account is that they are "use it or lost it" accounts. So, by the end of year, if you haven't spent all of the money that you alloted, then you lose the money.

I routinely use my flex spending account to use pre-tax dollars to help defray the cost of my gluten-free foods.

The benefits personnel in your company's HR department should be able to help you with this.

Share this post


Link to post
Share on other sites

Good explanation, Kim. I would only add that not all Flexible Spending Accounts (FSA's) permit the reimbursement of these costs. It is actually up to the employer to decide which medical expenses (including gluten free foods) are reimburseable. I have communicated with some Celiac patients who are not able to get reimbursement.

In my own case, I called my HR department and was told "I doubt it". Me being the persistent type, I then called the FSA administrator for our cafeteria plan and fortunately had a very helpful customer service rep who dug and dug and dug and finally came back with the good news that my plan would cover this. The lesson learned here is do not take no for an answer - keep digging to be sure. Benefit plans can be very complex and too many people in the benefits department do not want to take the time to dig, it's alot easier to just say "no that's not covered".

The FSA route is a much better route to take because you do not have to reach the 7% IRS threshold. Also, keep in mind that only those expenses OVER the 7% threshold are deductible. (If my understanding of those simple tax laws is correct!) So if you're income is 40,000 per year, only the amount of medical expenses (including gluten-free food cost difference) over 2,800 are deductible. Then, you must still have other deductions to reach the level of itemization that even warrants filing the Schedule A in the first place!

With the FSA, there is no threshold, ALL of your price difference is in effect deductible. It just works differently, because instead of subtracting the amount you are spending from your taxable income on your tax return, you just do it upfront when you enroll in your FSA at the beginning of the year. It is at that time that you specify how much you want to put into your FSA for the year and that amount of income is not taxable. It is treated like income that goes into your 401k. Kim is also right in her caveat of "use it or lose it". However, what I do is, if by the end of the year I am still carrying a balance in my FSA, I just buy a bunch of gluten-free food to use it up!

The last item worth mentioning (like this post isn't long enough!), is that not all employers offer a FSA. In fact, I would be willing to bet most don't! In this case, your only option is the deductiblity route on Schedule A.

Best wishes,

Dewey

Marion, IA

Share this post


Link to post
Share on other sites

I was wondering if the diagnosis from Enterolab would satisfy the government as a diagnosis of the disease? Has anyone tried this? I would hate to pay an accountant and then be told it wouldn't count. Just because my own doctor doesn't accept the test results does not make them invalid. And I assume that they are a deductable medical expense as well.

God bless,

Mariann

Share this post


Link to post
Share on other sites


Ads by Google:


Hi Dewey. You are correct that FSAs will vary from employer to employer, but the gluten free food is a prescription and should be included (certainly in all that I've worked with)... So, your recommendation to be persistent is very well taken.

Share this post


Link to post
Share on other sites

Actually, the medical expenses threshhold is 7.5 percent, not 7 percent.

Personally, I would hire a tax expert before trying this. This specific deduction has NEVER been approved by the IRS and the IRS HAS specifically ruled against letting overweight people deduct diet food. The reality is that we don't need special expensive gluten-free food to be gluten-free any more than overweight people need special diet food to lose weight. If you do try, be sure to cover all your bases.

Share this post


Link to post
Share on other sites

Well, we took our info to our accountant and he told us to not even bother with the gluten-free deductions. He said it's a bit of a red flag for an audit and you have to have impecable record keeping for the year in the instance there were an audit...just a little tidbit of info.

Share this post


Link to post
Share on other sites
Guest jhmom
The total amount of your deduction for gluten-free foods should be added to your other medical expenses that are reported on line 1 of Schedule A of your form 1040. Do not include your doctors letter, your receipts or your schedule showing how you computed your deduction for gluten-free foods. Save these documents which should be submitted only in the event you are audited by IRS or your state's taxing authority.

Just curious, did your tax guy add it to the medical expenses or did you have any to deduct?

Share this post


Link to post
Share on other sites

Even when adding gluten-free expenses to other medical expenses I don't come close. I don't have that many gluten-free expenses because I rarely buy the stuff, but even if I did I'd have to buy thousands of dollars worth.

richard

Share this post


Link to post
Share on other sites

That's my boat too. I don't skimp on getting gluten-free breads, but still don't spend nearly enough to get to 7.5% of my budget in medical expenses. (Maybe it's having good insurance, maybe I'm just too healthy? :-) Or too cheap? ;-) )

Share this post


Link to post
Share on other sites

I'm not as healthy as I need to be but my insurance, while sometimes a pain in the rear, covers a lot. When I got sick and was hospitalized for 11 days with what was finally discovered to be celiac, my total bills came to nearly $40,000. I paid about $300 out of pocket. I have to wonder whether a person without insurance would have just died.

Share this post


Link to post
Share on other sites
Guest aramgard

Try being a person on a retirement income and medicare with an HMO. My Celiac was discovered 50 years after my first symptoms. Now I have a really lowered immune system and need antibiotics and allergy medications a lot. The new medications are out of the question. Last year for one episode of sinus imfections complicated with ear infections it took nearly $700 just for the medications. Now I have another sinus infection complicated with ear infections. My doctor is trying to work with me on generic medications. So I guess I am now a second class citizen, only allowed the old medications because the new ones are not covered by my HMO. Our country's medical system really needs revamping. I can just imagine how someone just on medicare must feel with no medication reimbursement. Yipes do we need a revamp of our entire health care system. Shirley

Share this post


Link to post
Share on other sites

Hi Mariann,

I have the same question. My diagnosis came from Enterolab and too boot, my gene test revealed that I do not have the exact genes for celiac. However, I still must adhere to a gluten-free/CF lifestyle.

Share this post


Link to post
Share on other sites

Tammy,

This is fascinating! You had the (very expensive) genetic testing done and you do NOT have the gene? Yet the Enterolab test said you have Celiac?

I have often questioned the validity of the Enterolab test. If my understanding of your post is correct, then the only conclusion I can draw is the Enterolab test is totally unreliable! All current medical research in Celiac says that if you do not have the gene, you CANNOT have Celiac Disease! Period!

As to the validity of the Enterolab diagnosis for tax purposes, even discounting the above, I would not want to have to try to make THAT case to an auditor! I'm no tax specialist, but I would bet that the diagnosis has to come from a gastroenterologist in order to be deductible.

Share this post


Link to post
Share on other sites


Ads by Google:


Guest jhmom

From my understanding you do not have to specify what your deductions are for, you add it to your health deductions and of course keep all receipts proving the extra cost (that's what I did).

Do not include your doctors letter, your receipts or your schedule showing how you computed your deduction for gluten-free foods. Save these documents which should be submitted only in the event you are audited by IRS or your state's taxing authority.

I used Enterolab and was diagnosed with gluten sensitivity and trust them COMPLETELY!! I think a lot of people including myself use the term "Celiac" because you don't get that dumb founded look from people when explaining what is wrong with you. But BOTH are treated the same way, a strict adherence to a gluten-free diet for life. I am not sure Tammy but did Dr. Fine say you have the actual disease or just gluten sensitivty???

Share this post


Link to post
Share on other sites

You can be gluten intolerant/sensitive without being Celiac. It is possible to have an intolerance to gluten and not have either of the main genes they know causes it. There is still a lot of research to be done and there may be more genetic factors involved than they have found. If you are developing antibodies against gluten, then you can't eat it. Period.

As for the tax deduction. I didn't come close to the 7.5% threshhold, so it wouldn't matter anyhow. I have good insurance, and although they won't always authorize an expensive test if there is a cheaper one they can do, they have paid close to $100,000 over the past three years for all of my families medical expenses. My husband takes medication for an illness (that he will have for the rest of his life) that costs $1000 a month. If he goes off the medication he has to have a blood test done monthly (right now it is every 2-4 months depending on the doctor and the medication) that has to be sent to UC Davis (in CA) and is also very expensive. Even with that and all the tests the rest of us have done we just don't have enough expenses. That includes all medical copays for doctors and ER visits, dental bills, medication copays, eye exams, glasses & contacts, and the Enterolab tests (if I want to take the chance) and I only made one online order of gluten-free foods, and didn't keep track of other gluten-free foods I bought at the store or what the cost difference was, but it wasn't much. I imagine a whole years worth wouldn't even come close next year either, even for the whole family.

I live in California, and this year we were hit with a users tax. Anything we buy from out of state via mail, phone or internet, and weren't charged sales tax for (and is legally taxable, so this excludes food, thank God!) we have to pay our local sales tax on those items, and the amount is deducted from our state tax return or added to what we owe! Is that just insane. But because we are "using" the product in California we have to pay "users" tax. Is it like this in other states or are we just lucky? :huh: It took me a while to find all my receipts for those things I bought. But since most of them were from the internet I had all my e-mail receipts saved. It cost me $46.00, I could have bought a lot of gluten-free food for $46.00...

God bless,

Mariann

Share this post


Link to post
Share on other sites

Oh and on the Federal Tax form it says under medical expenses "lab tests ordered by your doctor". The Enterolab tests were NOT ordered by my doctor and I am still not sure if they would be legal to deduct, so I am not even going to try next year with my kids tests that I just ordered last month. (I am really paranoid about breaking ANY laws. I don't even go over the speed limit when I drive. It makes my husband nuts, since he generally drives at least 10 miles over the limit.)

Mariann

Share this post


Link to post
Share on other sites

Is the FSA an option if I am self-employed? I am guessing if this is an arrangement with an employer that it is not. Although I do have a very nice employer now. ;)

Share this post


Link to post
Share on other sites

Sorry, Suzn, I'm almost positive it is not. I had my local IRS office send me all the information relative to cafeteria plans (FSA is a cafeteria plan) and the medical deductions rules about 6 months ago. After reading through all this, I seem to remember it specifically said that cafeteria plans are only available to employees. I guess you could always incorporate and hire yourself! I suspect the paperwork involved in administering an FSA would outweigh the tax benefits.

Mariann, great point about the sensitivity/intolerance. I guess Tammy never specified she was diagnosed with Celiac.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Who's Online   16 Members, 0 Anonymous, 417 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
    It seems a Phoenix realtor Mike D’Elena is hoping that his trendy claim will catch the eye of a buyer hungry to avoid gluten, or, at least one with a sense of humor. D’Elena said he crafted the ads as a way to “be funny and to draw attention.” The idea, D’Elena said, is to “make it memorable.” 
    Though D’Elena’s marketing seeks to capitalizes on the gluten-free trend, he knows Celiac disease is a serious health issue for some people. “[W]e’re not here to offend anybody….this is just something we're just trying to do to draw attention and do what's best for our clients," he said. 
    Still, the signs seem to be working. D'elena had fielded six offers within a few days of listing the west Phoenix home.
    "Buying can sometimes be the most stressful thing you do in your entire life so why not have some fun with it," he said. 
    What do you think? Clever? Funny?
    Read more at Arizonafamily.com.

    Advertising Banner-Ads
    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
    We are available during normal business hours at: 1-888-533-8118 EST.
    To learn more about us at: visit our site.

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au

    Jefferson Adams
    Celiac.com 06/19/2018 - Could baking soda help reduce the inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease? Scientists at the Medical College of Georgia at Augusta University say that a daily dose of baking soda may in fact help reduce inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease.
    Those scientists recently gathered some of the first evidence to show that cheap, over-the-counter antacids can prompt the spleen to promote an anti-inflammatory environment that could be helpful in combating inflammatory disease.
    A type of cell called mesothelial cells line our body cavities, like the digestive tract. They have little fingers, called microvilli, that sense the environment, and warn the organs they cover that there is an invader and an immune response is needed.
    The team’s data shows that when rats or healthy people drink a solution of baking soda, the stomach makes more acid, which causes mesothelial cells on the outside of the spleen to tell the spleen to go easy on the immune response.  "It's most likely a hamburger not a bacterial infection," is basically the message, says Dr. Paul O'Connor, renal physiologist in the MCG Department of Physiology at Augusta University and the study's corresponding author.
    That message, which is transmitted with help from a chemical messenger called acetylcholine, seems to encourage the gut to shift against inflammation, say the scientists.
    In patients who drank water with baking soda for two weeks, immune cells called macrophages, shifted from primarily those that promote inflammation, called M1, to those that reduce it, called M2. "The shift from inflammatory to an anti-inflammatory profile is happening everywhere," O'Connor says. "We saw it in the kidneys, we saw it in the spleen, now we see it in the peripheral blood."
    O'Connor hopes drinking baking soda can one day produce similar results for people with autoimmune disease. "You are not really turning anything off or on, you are just pushing it toward one side by giving an anti-inflammatory stimulus," he says, in this case, away from harmful inflammation. "It's potentially a really safe way to treat inflammatory disease."
    The research was funded by the National Institutes of Health.
    Read more at: Sciencedaily.com

    Jefferson Adams
    Celiac.com 06/18/2018 - Celiac disease has been mainly associated with Caucasian populations in Northern Europe, and their descendants in other countries, but new scientific evidence is beginning to challenge that view. Still, the exact global prevalence of celiac disease remains unknown.  To get better data on that issue, a team of researchers recently conducted a comprehensive review and meta-analysis to get a reasonably accurate estimate the global prevalence of celiac disease. 
    The research team included P Singh, A Arora, TA Strand, DA Leffler, C Catassi, PH Green, CP Kelly, V Ahuja, and GK Makharia. They are variously affiliated with the Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Lady Hardinge Medical College, New Delhi, India; Innlandet Hospital Trust, Lillehammer, Norway; Centre for International Health, University of Bergen, Bergen, Norway; Division of Gastroenterology and Hepatology, Beth Israel Deaconess Medical Center, Boston, Massachusetts; Gastroenterology Research and Development, Takeda Pharmaceuticals Inc, Cambridge, MA; Department of Pediatrics, Università Politecnica delle Marche, Ancona, Italy; Department of Medicine, Columbia University Medical Center, New York, New York; USA Celiac Disease Center, Columbia University Medical Center, New York, New York; and the Department of Gastroenterology and Human Nutrition, All India Institute of Medical Sciences, New Delhi, India.
    For their review, the team searched Medline, PubMed, and EMBASE for the keywords ‘celiac disease,’ ‘celiac,’ ‘tissue transglutaminase antibody,’ ‘anti-endomysium antibody,’ ‘endomysial antibody,’ and ‘prevalence’ for studies published from January 1991 through March 2016. 
    The team cross-referenced each article with the words ‘Asia,’ ‘Europe,’ ‘Africa,’ ‘South America,’ ‘North America,’ and ‘Australia.’ They defined celiac diagnosis based on European Society of Pediatric Gastroenterology, Hepatology, and Nutrition guidelines. The team used 96 articles of 3,843 articles in their final analysis.
    Overall global prevalence of celiac disease was 1.4% in 275,818 individuals, based on positive blood tests for anti-tissue transglutaminase and/or anti-endomysial antibodies. The pooled global prevalence of biopsy-confirmed celiac disease was 0.7% in 138,792 individuals. That means that numerous people with celiac disease potentially remain undiagnosed.
    Rates of celiac disease were 0.4% in South America, 0.5% in Africa and North America, 0.6% in Asia, and 0.8% in Europe and Oceania; the prevalence was 0.6% in female vs 0.4% males. Celiac disease was significantly more common in children than adults.
    This systematic review and meta-analysis showed celiac disease to be reported worldwide. Blood test data shows celiac disease rate of 1.4%, while biopsy data shows 0.7%. The prevalence of celiac disease varies with sex, age, and location. 
    This review demonstrates a need for more comprehensive population-based studies of celiac disease in numerous countries.  The 1.4% rate indicates that there are 91.2 million people worldwide with celiac disease, and 3.9 million are in the U.S.A.
    Source:
    Clin Gastroenterol Hepatol. 2018 Jun;16(6):823-836.e2. doi: 10.1016/j.cgh.2017.06.037.

  • Forum Statistics

    • Total Topics
      110,263
    • Total Posts
      949,793
  • Member Statistics

    • Total Members
      77,671
    • Most Online
      3,093

    Newest Member
    Tjn89
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you - I had my endoscopy today and the doctor said he didn't see the telltale signs of celiac but he did biopsy. There were a number of other things he noted, like a polyp found in the fundus, and my stomach was very inflamed.       He said to start a gluten free diet right away anyway.  It is hard not to get ahead of myself and wonder about the results and if they come back negative.   
    • Congratulations!!🎆🎇🎊🥂  
    • Becca4130, Being gluten free for a while would cause your blood serology to test negative but many people choose not to finish a gluten challenge because of how bad they feel on gluten. NCGS is a real thing even though most doctors don't recognize it today. See this care2 article that explains what might be  happening in your case. https://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html The rate of positive blood serology is 2x higher than biopsy confirmed Celiac disease. see this new research about the rate of NCGS (serology postive Celiac)  in the general public without positive biopsy.  . . though for this research they considered both serology (blood tests) and biopsy confirmed celiac diagnosis as the real rate of Celiac disease in the general public. quoting Overall global prevalence of celiac disease was 1.4% in 275,818 individuals, based on positive blood tests for anti-tissue transglutaminase and/or anti-endomysial antibodies. The pooled global prevalence of biopsy-confirmed celiac disease was 0.7% in 138,792 individuals." Which they say  quoting again "means that numerous people with celiac disease potentially remain undiagnosed" or I think in many causes NCGS is not being declared because they consider a blood positive test inconclusive in the absence of a confirmed biopsy. and it sounds like what is happening in your Case especially since you have been gluten free long enough to not test positive on your blood work. See the Care2 article which is typically 6 months and your antibodies goes down naturally when you are gluten free that long. quoting "Though the cause of the two conditions seems to be very different, the study confirmed that the best treatment is the same for both conditions. After six months of only consuming gluten-free grains, the NCGS group reported a significant improvement in their digestive and non-digestive symptoms, and the immune system markers identified earlier in the study had normalized." ****this is not medical advice but what makes sense to me after having been serology (blood) positive for antibodies that went down on a gluten free diet. You might also see this thread that talks about some of these same issues. I hope this is helpful and good luck on your continued journey. I also meant to add this link http://www.mdmag.com/medical-news/not-everyone-predisposed-to-celiac-disease-develops-it Or It could be you have not developed celiac yet because your gut biome has protected you so far from developing it. quoting "The study authors determined that while about 40 percent of the population have a genetic disposition to celiac disease, just about 1 percent develop the condition upon exposure to gluten. Mice who housed Pseudomonas aeruginosa bacteria (Psa) in their guts – transplanted from celiac patients – metabolized gluten different than mice treated with the probiotic Lactobacillus.

      The researchers further observed that Psa produced gluten sequences that initiated inflammation in celiac patients. Lactobacillus was used to detoxify the gluten.

      "So the type of bacteria that we have in our gut contributes to the digestion of gluten, and the way this digestion is performed could increase or decrease the chances of developing celiac disease in a person with genetic risk,” senior study author Dr. Elena Verdu explain(s)" Again I hope this is helpful. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the Grace of God,
    • Fun fact, google your doctors name, 2-4 review sites will have them and their info. You can submit a public review of your doctor.......inform people of this story on the review sites and this doctors "incompetence" in relation to your disease.
    • After I posted this, he called me because I replied to the note questioning if I was reading the test results correctly because they didn't look negative to me. He told me that A. diarrhea is not really a symptom of celiac (huh, wonder why all the poop jokes about it then...) B. if I had both genes plus a positive antibody test, that would mean that there was about a 95% chance that I do have celiac right now, not a potential to develop it and C. if I stay on a gluten free diet (which I don't have to because he says I don't have celiac) then he won't retest the antibodies because of course they will go down and there is no need to test. I'm pretty much speechless. It is abundantly clear why he was the first available when others had a wait.
  • Blog Entries

  • Upcoming Events