Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

taweavmo3

Our Follow Up Gi Appt.....

Rate this topic

Recommended Posts

Just wanted to share some good news about our follow up appt. It has been 8 months since being dx'd....and my itty bitty girl has gained 11 pounds, and grown 4 inches!!!!! She is still little, at 35" and 34lbs, but now it's a "cute" little, instead of "deathly ill" little. If that makes any sense at all, lol.

I know all you moms and dads on here can appreciate my happiness better than anyone else, so thought I'd share.

He also ran a follow up antibody titer, but I'm still anxiously awaiting those results. I just love this doctor, and I loved him even more when he admitted that the best resource for me is other parents. He asked if I had joined a support group, online support groups, etc. It was a long appt for a follow up, he was very thorough. He also listened to my concerns about my other two kids, and didn't hesitate to suggest a celiac panel on both. It was so nice to have a good doc visit!!

That's it, thanks for listening!

Share this post


Link to post
Share on other sites

Congratulations! I'm happy for you.

My son has been gluten-free since August 18 (almost 3 months) and teeters around the 34/35 lb mark, depends on how big a supper he ate. He is 43 inches tall. At the one month follow-up he had gained 1/2 kg (1 lb) and grown 1 cm (about 1/2 inch). Personally, I think the weight was because he was wearing pants and a sweatshirt and socks and at the day of the biospy he was barefoot, and in shorts and a t-shirt. I have not seen any of the miraculous changes all the other parents talk about.

Share this post


Link to post
Share on other sites

Tamara, congratulations! What fantastic news! Linda, don't worry. You're not alone. My son hasn't gained or grown much either in the four months he's been gluten-free. But I'm hopeful and have faith. Hang in there.

Share this post


Link to post
Share on other sites

That's great news for you guys! To the other posters with kids not gaining... I never paid attention to what my son gained or grew after dx...mainly because the most profound aspect of his version of Celiac was the peptide poisoning/autism behavior. I couldn't tell you specifics about height and weight, but I can tell you that he's small and not heavy even now four years+ later. If I'd focused on the average weight and height charts drz use, I'd have been pulling my hair out. It's a great indicator of absorption, I'm sure, but I was more impressed with cognitive recovery.

Share this post


Link to post
Share on other sites

Tamara,

I was so happy to read your post. I am so glad that little Emmie is doing so well. That has to make you feel so good!! :D

For the others who's kids are not gaining. My dd is also not gaining really fast if at all. She will be 3 in 2 months and is only about 26.5-27lbs and 34" tall. She's a peanut, but is SO much healthier and is absolutely thriving in every way. She is small boned and has tiny features, so I believe that she will always be a little small. I wouldn't worry too much about what the scale says and worry more about how they are feeling/behaving.

Good luck to everyone!

Share this post


Link to post
Share on other sites
Guest nini

Yay! It's so nice to hear good news and a good Dr. report! Sounds like you have a keeper doc. there!

My lil princess is still only 40 pounds at 42 inches tall, and she is very slender, but she looks so much healthier than she did 2 years ago. The most important thing to me is how healthy and happy she is. She feels great and is eating great and really thriving. (very important after being dx with failure to thrive)...

I'm not going to stress on how skinny she is when she is doing really well with everything else.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...