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Guest CD_Surviver

Research Question

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Just wanted to throw another idea your way. I'm fascinated with the "Opioid Excess Theory" and the neurological impairments it incurs. This may be related to brain fog as well, not completely sure. I believe the opiate effect is why my little girl is so developmentally delayed, and also why her speech regresses when glutened.

My dd's pedi GI told me he has a teenage patient that reverts back to stuttering when he gets glutened. He hasn't stuttered in eight years, but it comes back w/gluten. I find that mind boggling. Good luck with your paper!

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Wow, 4 yrs gluten free and I never heard anyone before describe how I used to feel and I never connected it to gluten. I used to feel I was floating around a room--this is the perfect description: I can see and hear everything going on around me but I cannot connect or respond to any of it. Another description is like having my head wrapped in an airtight box--exactly Ianm, exactly. Wow, all that time it was gluten and I thought it was panic--well, my panic was caused by my celiacs--I am amazed at this. Learn something everyday! Deb

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Honest, you guys brought tears to my eyes--I was told it was all in my head--that was back when I had panic attacks and I felt just the way you are describing. It is such a relief to know it wasnt me--I believed it was in my head like they told me for so long. I feel like a weight has been lifted from my shoulders. Thank you so much! Deb

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Wow Deb! I'm glad you're feeling better about knowing after all this time. I'm very shocked you never heard of the brainfog/gluten link. I think its a very common symptom. Well...better late than never right!! :)

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I feel the same way! I never knew what the heck it was, either. It was such a relief to know that thats what it was and that I'm not alone and not going crazy. Its easy to look back and say "ok, I understand it now" but when you're actually going through it, its scary. Head wrapped in an airtight box--exactly.

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Brain fog to me feels very much the way Ian M described it. I feel as if I'm in a different zone, or in a bubble. People talk to me and I don't hear them. I also can't concentrate when I have brain fog.

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How about malabsorbtion as a topic? I was severely anemic, my platelet count was way off and My body was not retaining Vitamin K. As a result of that, I had bruises all over my body for no known reason. I developed a nose bleed that lasted for 4 hour and ended up in the hospital overnight to get blood and plasma. :(

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Without making it sound like fun, brain fog can feel quite similar to being drunk, or at least under sedation. Imagine being drunk but trying to do something complicated, and how frustrating it is that your brain and body won't cooperate with each other! :D And how you don't feel like you're really there - like if someone snapped their fingers they could wake you up and tell you you had been dreaming. I also find my speech can slur a little with brain fog, or my words will come out wrong. I also find it too much like hard work to have a conversation - I don't have the mental focus to put any feeling or volume into my voice. I also hear a ringing in my ears sometimes, like I can hear the silence. :ph34r: And I find that normal noises sound too loud normal lights seem too bright. :unsure: It sucks!! The worst part about getting glutened (or caseined) for me is the knowledge that I have a week's worth of living in a bubble ahead of me. :( This usually goes hand in hand with chronic fatigue, but the times that I overcome that the brain fog still remains.

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I have always known there was brain fog--I have always heard about it--I just never realized it effected me. Ianm said the exact words I used to describe the feeling I had, exactly. I remember feeling like I was floating around the room and could hear everything that was said, but could not talk. I was in a room with the school principal, a social worker, 3 teachers, and my son Mike--it was an IEPC meeting for my son. Later I described the experience exactly as Ianm did. All these years I thought I was crazy--the mental health clinic told me I was. Put me on Xanax and Paxil--grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr. That experience was the first of many and it was 17 yrs ago--I have thought there was something wrong with my head since then. I was worried that one day I would lose it totally. It was such a relief to hear someone say exactly how I felt. Then Cornbread mentioned that she gets the fog with a casein accident--so I wonder now if I get it with soy/corn probs. I get the ringing in my ears--this last weekend it was terrible and I do have times where I feel I just cant put my thoughts together. This has been one of the most informative threads ever for me--thank you so much--all of you! ?Deb

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You know I never thoguht about it much till jsut now, often when I would drive places... I would arrive there and not know how I got there. litterly I would sit in my car at my house/work/etc, then all of a sudden I was at where I was going, and the proper amount of time elapse...Never was able to figure that out... wonder if its connected to this fog stuff?

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Guest Viola
:lol: I'll bet it is connected to brain fog. I would leave Slocan Park and the next thing I know I'm in Winlaw ... and what happened to Passmore and Vallican? :o I'm just afraid that someday I won't react quickly enough to a deer crossing the road, or worse yet a child on a bike. I really try not to drive at all if I have the symptoms before I leave home. Hard to do though if I get contaminated in town.

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Guest CD_Surviver

Thank you all for the information and i have your permission and if i do end up doing this topic. i would like to use all of you for my paper in some any way possible.

Lauren

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Thank you all for the information and i have your permission and if i do end up doing this topic. i would like to use all of you for my paper in some any way possible.

Lauren

<{POST_SNAPBACK}>

Don think I offer much, but use it at will :)

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Guest CD_Surviver
Don think I offer much, but use it at will :)

<{POST_SNAPBACK}>

Thanks for the permission! :D

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Use away! Deb

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You can't use anything I've written!!

Naw....just kidding! :lol::lol:

I dont know if I wrote anything useful but feel free to use whatever you want. :D

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Guest CD_Surviver
You can't use anything I've written!!

Naw....just kidding!  :lol:  :lol:

I dont know if I wrote anything useful but feel free to use whatever you want.  :D

<{POST_SNAPBACK}>

Thanks bunches! :D

Lauren

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Guest CD_Surviver
Help yourself.  I hope I have been helpful to you.

Cindy

<{POST_SNAPBACK}>

thank you!

Lauren

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Guest CD_Surviver

well the ? was due today but she did not get to me today to tell me if the ? was good or not and if she thought it was good so i will know in the few days and on friday i am going on the genetics confrece with alot of the biology students that should be pretty helpful i hope.

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Guest Viola

:o I just got home from dog training :D

You can certainly use anything I've written as well, and if you have any questions from any of us ... ask away :lol:

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Guest CD_Surviver

thnks guy for all your imput it is definately helpful. she still hasnt looked at so i dont know what she is going to say about it but i will let you know as soon as i can.

Lauren

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