Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Precise?

murphy203

By murphy203
in Gluten-Free Restaurants

Recommended Posts

murphy203 Rookie
murphy203
Posted

I was dxd with celiac disease. But how precise do I need to be? I am almost asymptomatic,, dxd from anemia (I do have all of those symptoms). Can I have pizza made at a local pizza place that predominately serves regular pizzas? Can I have a potato salad from Whole Food deli area doesn't contain gluten (the guy serving me didnt know what gluten is)?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bartfull Rising Star
bartfull
Posted

Even if you have no symptoms, every exposure to gluten is doing damage to your body. No pizza from a pizza joint unless they make their pizzas in different pans and a different room, and even the toppings can't come out of the same bins as the regular pizza toppings. Flour dust gets in the air and settles on everything. There is a pizza place near me owned by people with celiac family members. I can eat their pizza safely but even so, I eat outside at the picnic tables or get it to go so I don't have to breathe the dust.

 

I would never eat anything from a deli either. One wrong spoon dipped into whatever you're getting and it's contaminated. And if any server of any type doesn't know what gluten is, it's best to pass.

 

Go to the Newbie 101 thread in the coping section and even if you've read it before, it's a good idea to brush up on it.

cyclinglady Grand Master
cyclinglady
Posted

We RARELY eat out! It is just too risky. When we do, it is at a totally gluten-free restaurant or we find one that has been reviewed by a celiac. Even then, I drill the manager and chef. Very nice restaurants seem to do a great job.

If I get weird vibes, I resort to my emergency food and just order a drink.

Our fast food is typically a Costco chicken! Yum, we had that for lunch!

cyclinglady Grand Master
cyclinglady
Posted

Oh, I was anemic too. That resolved within six months after going gluten-free. But two months in, I fractured a few vertabrae DOING NOTHING!

Get your bones checked.

murphy203 Rookie
murphy203
Posted
  • Author

I just heaved a huge sigh of dismay, which I know you can't hear, but it happened. :-P Its hard to gage how to procede knowing I have celiac disease but not having huge and immediate symptoms like some. I have been as perfectly clean as I know how to be so far. One niight, after having an Udi's gluten-free bun, I had some acid reflux. For the most part, I avoid gluten-free substitutes.

CL, I had a bone scan because of decades of synthoid about a decade ago and my bones were better than average -- lets hope that advantage then works in my favor now.

vickiguerra Rookie
vickiguerra
Posted

Did you have an endoscopy to verify damage?

cyclinglady Grand Master
cyclinglady
Posted

I just heaved a huge sigh of dismay, which I know you can't hear, but it happened. :-P Its hard to gage how to procede knowing I have celiac disease but not having huge and immediate symptoms like some. I have been as perfectly clean as I know how to be so far. One niight, after having an Udi's gluten-free bun, I had some acid reflux. For the most part, I avoid gluten-free substitutes.

CL, I had a bone scan because of decades of synthoid about a decade ago and my bones were better than average -- lets hope that advantage then works in my favor now.

For the first year, I had issues with Xanthan Gum which is added to many gluten-free products. i switched to guar gum instead when baking. In defense of Xanthan Gum, it never bothers my gluten-free hubby. He is my canary!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RMJ Mentor
RMJ
Posted

I am also almost asymptomatic. For two years I've done "no gluten ingredients". Some of my antibodies are back into the normal range, but not all. So that level of gluten free isn't enough for me (I'm now trying the Fasano gluten contamination elimination diet).

murphy203 Rookie
murphy203
Posted
  • Author

RMJ, I am starting to think that it may actually be worse for us without immediate physical symptoms to clue us in when we consume accidental gluten, in terms of maintaining commitment and strict adherence.

Vicki, i do have villi damage, and my GI is going to recheck in another month or so to see how I am responding gluten-free because I need another endoscopy to check on a bile duct.

CL, interesting comment about Xatham Gum. No doubt I have had it before -- not that I knew it. I will have tomrecheck my reaction next week.

RMJ Mentor
RMJ
Posted

Oh, I agree. I'm okay with the commitment, but it would be easier to find the source of gluten contamination if I had symptoms. But on the other hand, I'm lucky that I don't have to suffer through symptoms.

vickiguerra Rookie
vickiguerra
Posted

Villi damage is what I have too along with inflammation.  My brain is tired from thinking about all of this. More research tomorrow.

 

Have a good night :)

Gemini Experienced
Gemini
Posted

I was dxd with celiac disease. But how precise do I need to be? I am almost asymptomatic,, dxd from anemia (I do have all of those symptoms). Can I have pizza made at a local pizza place that predominately serves regular pizzas? Can I have a potato salad from Whole Food deli area doesn't contain gluten (the guy serving me didnt know what gluten is)?

Whole Foods in my area does a fabulous job with their deli stuff so don't be scared off because not all deli's are alike. I have eaten their potato salad numerous times with no issues and I am a very sensitive celiac who WILL become sick from minuscule amounts.

The one I go to does not keep their potato salad or cole slaw next to gluteny stuff. I ask them to change their gloves and use a clean spoon to dish it into a container. If the displayed food is near to gluten dishes, they will go out back to the fresh container of potato salad and take it out of there. If you are not getting the help from a certain employee that you should, ask to speak to someone who has more experience with allergy related problems.

Don't despair........you can eat successfully out once you learn the ropes and know what to ask for. I find the Whole Foods in my area really do a great job and I have never gotten sick from their prepared food area. However, some weeks they do more gluten containing stuff so I pass getting anything there if it looks dodgy!

Gemini Experienced
Gemini
Posted

I forgot to add that recently I had my blood work done for a re-check and it was all really good.......all numbers close to zero. That would not happen if I were ingesting gluten on a regular basis. Their potato salad and cole sale are gluten free but they do not test so cannot mark it as such.

  • 2 weeks later...
Nikki2777 Community Regular
Nikki2777
Posted

I eat out a lot, but I won't go to a pizzeria that has regular pizza unless I can see clearly that the areas are kept very separate, gloves are changed, etc.  There's just too much flour floating around.

 

I usually just have a canned soda when I'm with people in these places, and eat at home.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. sc'Que?
      - sc'Que? commented on Celiac.com Sponsor: Review's article in Product Reviews
      1

      Bold Taste, No Alcohol & Crafted to Remove Gluten: Daura Non-Alc Beer Takes Alcohol-Free Beer to the Next Level

      @Daura Damm: Can we get a gluten-free Imperial Oatmeal Stout, please? Please?!?
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    4. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    5. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,545
    • Most Online (within 30 mins)
      7,748
    PatientOne
    Newest Member
    PatientOne
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.