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Do You Eat gluten-free Oatmeal?

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I would love to try out oatmeal, but I am nervous because I've been told that even the gluten-free kind can cause problems for celiacs. My diet is severely restricted due to problems with acid reflux/gastritis, and fructose/lactose intolerances, and I need to find more gentle, nourishing food. I would eat it, even with a few "side-effects," as long as I was certain that it would NOT cause intestinal damage.


Celiac Disease, diagnosed April 1, 2015

Migraines, Esophagitis/Gastritis, Lower Digestive Issues, Osteoporosis, Anxiety, Arthritis, etc--some improving.

DQ2.2 and DQ2.5 trans

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If you have negative effects from consuming anything you shouldn't eat it. It is not just intestinal upset we need to worry about as celiac is an autoimmune disease. 

You could try it when you have fully healed but if you have any negative reaction drop it. When someone does try adding in any new food my doctor advised eating it at least once a day for up to a week as the antibody reaction can be delayed. 

Hope you are one of us that can add it back in. I miss oatmeal but found that Cream of Buckwheat is a good sub for me. 


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I love oatmeal and never had any problems from certified gluten-free oats.  I was extremely sick at diagnosis also, yet trialed oatmeal within months of starting the gluten-free diet.  Tolerated it extremely well so go figure, huh?  ;)

 

I think it is a very independent thing and people react very differently depending on a number of things.  I do not believe that everyone needs to wait a year to try them, either.  That is just the medical profession instilling fear where it doesn't need to be.  One should never be nervous when adding back foods into their diet. I am not really sure if oatmeal would aggravate acid reflux but if you do well with other high fiber foods, it might be OK for you to try.  You will not know if you are one of a very few who cannot tolerate gluten-free oats until you actually try them.  But it will not set you back to square one if you do have a reaction.

 

I wish you luck....I love oatmeal too!

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I chickened out and never tried it again after going gluten-free.  Part of the reason for that is that I don't always have severe reactions to gluten and my symptoms' severity sneaks up on me.  I slowly feel worse and worse until it takes quite a while to recover.  It's not worth the risk in my mind, but that's just me.  Many celiacs do just fine with oatmeal... I'll stick to bacon and eggs.  ;)


Nicole 

"Acceptance is the key to happiness."

ITP - 1993

Celiac - June, 2012

Hypothyroid - August, 2012

CANADIAN

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Chex makes great gluten free oatmeal that I love more than regular oatmeal - have a couple different flavors.  I'd suggest giving it a try!


"Dark and difficult times lie ahead ahead - soon we must all face the choice, to do what is right, or what is easy..." - Albus Dumbledore (Harry Potter)

Diagnosed Celiac in May 2012 by TTG level and endoscopy

Acid reflux/GERD (stopped since eating gluten-free)

Syncope

Raynaud's Syndrome

Iron Deficient

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Sorry, but I am too chicken to even try gluten-free oatmeal.. LOL! :D  And I've been gluten-free for almost 6 years now. But I have substituted it with Quinoa for my cereal in the mornings. Just add any berries, walnuts and silk almond milk. It is really so good that I don't even miss oatmeal.  ;)


Lisa

Infertility since 1995/Endometriosis

Hasimoto Thyroid disease 1998

Enlarged Abdominal Lymph nodes since 2003 - Stable

Thyroid Hurtle Cell Cancer 2008 Stage 1- Total Thyriodectomy 2008

Anxiety/Depression/Insomnia/Fatigue - Gone with gluten free diet

Acid reflux -LPR 7-2009 - Gone with a Strict gluten free diet

Celiac disease - positive upper endoscopy & Blood Test 9-2009

Undiagnosed celiac for 20 years - Gluten free since 9-13-09

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I eat Bob's Red Mill gluten-free every morning.  And yes, I mean every morning.  I don't think it is giving me any problems and I don't know what I would do if I couldn't eat it for breakfast bc what other options would I have,  :(  I'm a very picky eater.  I do on occasion have stomach cramps but can't tell if it's from the eggs or oatmeal, or if something else is causing it.  It only last for 5 to 10 minutes and then goes away.  It also only happens a couple of times a month so if it was the oatmeal I would think it would be a daily thing issue.  

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We eat Bob's Red Mill oatmeal regularly (not every day), and have no problems with it. I find it to be a good source of dietary fiber--something the gluten-free diet is often short of.


Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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I had a reaction to gluten free oatmeal after I was first diagnosed. I tried it again periodically, and after about two and a half years was able to eat it again without feeling bad.

During the healing process, you may react to many things that do not contain gluten, but are still a challenge for the gut. Most experts suggest waiting at least six months before trying pure oatmeal. It was several years after my diagnosis that pure oatmeal was available in Canada.

Peter

Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000. I was retested five years later and the biopsy was normal. You can beat this disease!

Type 1 (autoimmune) diabetes diagnosed in March 1986

Markham, Ontario (borders on Toronto)

Celiac.com - Celiac Disease Board Moderator since 2007

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OP here. Well, I had a big bowl of oatmeal this morning, 3 months post-diagnosis and gluten free (as far as I know), and so far everything is fine. In my former life, pre-gluten-free, oatmeal would always make me feel a little bit queasy for awhile, but nothing now. And it was a big bowl. Breakfast is starting to look up! I've also recently tried gluten free pancake mix, which I was avoiding because acid reflux/fried, etc, and it did not make me feel sick either, for the first time in my life.

Hoping no silent destruction is going on, but if I continue with no symptoms I'll probably continue with the oatmeal, as it is highly recommended for my still healing gastritis/esophagitis.


Celiac Disease, diagnosed April 1, 2015

Migraines, Esophagitis/Gastritis, Lower Digestive Issues, Osteoporosis, Anxiety, Arthritis, etc--some improving.

DQ2.2 and DQ2.5 trans

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Glad things are looking up :)

 

Colleen


HAVE A SUPER SHINY DAY

 

LTES gem 2014


*Multiple AI Diseases

*General Insanity


"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

Celiac.com - Celiac Disease Board Moderator

 

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