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Chibiehotaru

One Year Gluten Free Tomorrow.

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Hello everyone,

I have been much better since my last post. I have been getting much more family support which makes me feel much less alone. I wont lie, I still have my days I feel like crying and asking myself "why me?!" Some days are still difficult to be around others eating foods I would love to eat. I do get jealous. :,(

My question to others with celiac disease that have dairy issues is:

I have been gluten free a full year tomorrow. I gave up dairy shortly after as I realized I had almost the same reaction to dairy as I did with the gluten. (Uncontrollable diaherria, severe ststomach burning, bloating, etc...) is there anyway to possibly eat dairy again? Has anyone been successful in adding dairy back into their diet? If so, when? Any feedback would be helpful and give me confidence to go down that path or put to rest the idea of having a gluten free pizza with yummy cheese. Also, I apologize if there's any thread going on thia topic. My phone isn't letting me search for anything. Thank you.

~Nora. Survivor of celiac disease of one full year.

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Hi Nora  CONGRATULATIONS  :D .  1 year is a biggie.

 

Many, many people get dairy back.  Once the villi heal is when it happens, assuming you were not lactose intolerant before.  Add back one dairy item at a time and see how you do.  

 

Good Luck, Colleen


HAVE A SUPER SHINY DAY

 

LTES gem 2014


*Multiple AI Diseases

*General Insanity


"We cautiously travel through life to arrive safely at our death" - J. R. C. , my Son.

 

Are We There Yet? and Dad says...All you have to do it ride it out.

 

Comments/views/opinions expressed on the site are my own and are not representative of Forum Admin/Owner

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I am one of the ones that was able to add dairy back. It is suggested that you first add back low lactose items like hard cheeses, cheddar for example, and yogurt. If all goes well you can try small amounts of other dairy like milk, ice cream and soft cheeses like mozzarella.  I was so happy to get dairy back and hope the same happens for you.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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  :D Woo Woo!  :)  One year!  Congratulations!  B)

 

Dairy was an issue for me too - lactose is not a good thing for me. ;)  I started trying to add parts of it back after about a year, and at that point it wasn't frequent.  At first, I always took a lactaid (with lactase) when I ate dairy, or tried to buy lactose free products.  That helped.  

 

I never went back to drinking milk or eating yogurt - too much lactose - and I don't like to drink milk much anyways.  The dairy products I missed were cheese and ice cream.  I still can not have much ice cream or it gets me; lactase tablets still help with that.  Happily I can eat hard cheeses now, and have been able to for at least a year.  That being said, if I can substitute some non-dairy in (like Daiya "cheese",  or plain coconut yogurt for sour cream, or coconut cream for half and half) I will still do it.  Dairy is not an essential part of a humans diet, it just tastes good.  ;)


Nicole 

"Acceptance is the key to happiness."

ITP - 1993

Celiac - June, 2012

Hypothyroid - August, 2012

CANADIAN

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I had trouble with dairy too. I was off of it for over a year - I'll say around a year & 3 months. There were 2 reasons for me being off dairy. 1 was the gut issues & 2 was the iodine in it which makes the dh rash flare so I was off dairy longer than perhaps my gut issues needed to be. But I am happy to say when I went back to it I had no problems at all. My gut said uuuum, ummmmm, good!

 

HAPPY ANNIVERSARY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Thank you. I have not read deeply into any of the topics on why some people with Celiac end up having issues with dairy or what exactly in the dairy triggers people. I always thought it was lactose but I heard from someone recently it was the cassiene? (Not sure if that's spelled correctly) but iodine as well, huh? So, it could be any one of those ingredients or a combo that kill me? Lol.

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No. no. no ~~~ the iodine is not for you to worry about. Only those of us with the celiac rash b/c the iodine content makes our rash flare. 


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Kraft shredded mozzarella and cheddar have 0 lactose per serving. I use them on my pizza, but still have to be careful on the amount I use and still take Lactaid and a anti-gas when I eat it.  I'm a little over a year gluten free and too much dairy still bothers me.  Ice cream I make myself with Almond milk or the Lactaid milk.  I know nothing of casein allergies, someone else will have to chime in about that.


Diagnosed April 7th 2014

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Congratulations on your one year anniversary! That is a milestone to be celebrated. As stated, you can add a tad of dairy and see if you tolerate it ok. I am at five years and can handle it if I don't eat too much. We all heal at such different levels!

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I don't have the dairy issues but have some exciting news about my food allergies.    I've been allergic to shrimp and fish and nuts for years (23 to be exact) and diagnosed with Celiac almost 5 yrs ago.   I have been gluten free since that day and now my doctor sent me to an allergist for my sneezing etc.. and it turns out that I have nonallergic rhinitis in regard to that but in the process he tested me for the food allergies 20 of them.. both blood tests and skin tests and they all came back negative!!!   So in a month I'm doing a food challenge with shrimp in his office and if I pass I can eat it again!    The last time I ate shrimp I had anaphylactic shock and ended up in the ER via rescue squad.      He said allergy testing has come a long way in 23 yrs but he thinks that I either out grew it or more likely my undiagnosed Celiac disease manifested in a strange way and it 'appeared' that I was allergic to all this stuff...but now that it's healed they are gone..    He said at most I have an intolerance and not a true allergy so it's not life threatening. He did some blood tests yesterday to see if I'm missing an enzyme which could be causing the nut allergy symptoms (numbness in the mouth) when I eat nuts and flax...     I'm very excited about all this!   

 

Wish me luck, I just may have a tuna sandwich for lunch  (on gluten free bread of course  lol) 


*Judy
Food allergies to fish, seafood, tree nuts, aspartame(Equal),flax seed, and many drugs RE-TESTED ALL FOOD ALLERGIES IN JUNE 2015 AND THEY ARE ALL NEGATIVE NOW!  TIME TO RE-INTRODUCE FISH AND NUTS!!! 
Stomach issues since childhood
Hypoglycemia (low blood sugar) age 6-44
Diabetes age 44 to present now going back to Hypoglycemia since gluten free.
Diagnosed with Fibromyalgia in 2005 and it's gone now that I'm aspartame and gluten free. c
Celiac disease- negative test in 2009, positive tests in Nov. 2010
Gluten free started 11/08/2010
Genetic tests positive- DQ2, positive -DQ6 (?) negative- DQ8 11/15/2010 

Hyperthyroid 2013 - benign tumors and entire thyroid removed

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I don't have the dairy issues but have some exciting news about my food allergies.    I've been allergic to shrimp and fish and nuts for years (23 to be exact) and diagnosed with Celiac almost 5 yrs ago.   I have been gluten free since that day and now my doctor sent me to an allergist for my sneezing etc.. and it turns out that I have nonallergic rhinitis in regard to that but in the process he tested me for the food allergies 20 of them.. both blood tests and skin tests and they all came back negative!!!   So in a month I'm doing a food challenge with shrimp in his office and if I pass I can eat it again!    The last time I ate shrimp I had anaphylactic shock and ended up in the ER via rescue squad.      He said allergy testing has come a long way in 23 yrs but he thinks that I either out grew it or more likely my undiagnosed Celiac disease manifested in a strange way and it 'appeared' that I was allergic to all this stuff...but now that it's healed they are gone..    He said at most I have an intolerance and not a true allergy so it's not life threatening. He did some blood tests yesterday to see if I'm missing an enzyme which could be causing the nut allergy symptoms (numbness in the mouth) when I eat nuts and flax...     I'm very excited about all this!   

 

Wish me luck, I just may have a tuna sandwich for lunch  (on gluten free bread of course  lol)

Congratulations! That is thrilling news!


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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