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I'm trying to find a hidden source of gluten that my son has been ingesting for at least a month how.  I have been driving myself nuts trying to figure out where we are going wrong but can't for the life of me figure it out.  I have been accusing daycare of silently glutening him but I've watched them make his food and watched them eat and nothing stood out. Then last night I came across a post about paper plates containing gluten.  I microwave food for him all the time on paper plates, so could this be the hidden source? 

 

Our house is almost 100% gluten-free other than my husband having his own bread and buns (also butter, mayo etc) so I can't see where he would get it from home and I'm pretty sensitive and I haven't had any problems lately.

 

Are there any other hidden sources of gluten that I could be missing?  Our soaps and shampoos are all okay.


Allison

Undiagnosed with DQ8 gene and have had symptoms for 20+ years. Gluten free since March 2015

Son - DX celiac via blood 3/2015 and biopsy 5/2015 (age 3) - gluten free May 2015

 

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Paper plates are fine. Trust me.

 

How long has he been gluten-free? It could just be that he hasn't healed yet. Or it could be that he IS somehow getting CC at daycare. Perhaps it's as simple as touching the gluteny hands of a playmate, then putting his hand in his mouth. Or he could be getting it from a gluteny toy.

 

How about his meds? Supplements? Do you have a cat or dog who eats gluten food? (Most pet food has gluten) Does he kiss his Dad after Dad has eaten gluten?


gluten-free since June, 2011

It took 3 !/2 years but my intolerances to corn, soy, and everything else (except gluten) are gone!

Life is good!

 

 

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Good to know about paper plates.  I really felt bad when I figured it was me microwaving his food on paper plates that was glutening him.

 

He has only been gluten free since May and we noticed a difference in his behavior almost immediately.  He was happier, had more energy and was more playful than before. But since about mid-July he has been getting aggressive at daycare and having more tantrums over little things. Plus (sorry TMI) but his bowel movements have lightened up in color again.  They went from a cream color before going gluten free to brown about six weeks in to gluten-free then now they are going back to a really light color again.  These two things combined plus the ulcers on the roof of his mouth appear to point to gluten exposure.

 

He's not on any meds and his vitamins are marked gluten free

 

We have two cats and a dog which all eat regular dog and cat food that can be found in the grocery store (Purina I think). I never thought about him getting cc from our pets

 

I mentioned to my husband last night that he needs to wash his face before bedtime because it's possible he could have remnants of bread or beer in his mustache or beard. He looked at me like I had 9 heads when I even brought it up.

 

As far as daycare goes, I'm not sure how to completely prevent cross contamination from toys.  They have the children wash their hands frequently throughout the day and and constantly wiping down tables.  They are supposed to disinfect toys that are "mouthed" every time they see one go into a child's mouth but who knows how many times they actually see it happen.  


Allison

Undiagnosed with DQ8 gene and have had symptoms for 20+ years. Gluten free since March 2015

Son - DX celiac via blood 3/2015 and biopsy 5/2015 (age 3) - gluten free May 2015

 

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do they use hand sanitizer?  whoever is handling his food (including him) need to wash their hands with soap and water, especially if they are preparing gluteny food for others.  hand sanitizer will only make the gluten germ free.  you have to rinse it off.  i would switch your pet food, too.  and anything that could run into his mouth at bath time, like shampoo or body wash.  we had to replace a bunch of kitchen items (scratched plastic containers, cutting boards, wooden spoons, colanders, etc anything porous where gluten could be stuck)  


arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator

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I'm not too sure if you mentioned  this already, but dairy may be an issue for him until some healing can happen, in most cases.  I still can't enjoy milk after over ten years gluten free.  Perhaps you can switch to almond milk or a non-lactose milk and see how it goes.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Personally, I have found that I have to ask the people I live with to leave the house when eating wheat.  The problem is so complex that it's just too impossible otherwise.  The kid could be sneaking dad's food.  Dad, who is clearly not very worried about the whole thing, can be leaving crumbs on tables, chairs, his clothes that get transfered to the boy upon getting a hug.  It can end up in any fabric, any carpet.  Your dishwasher doesn't actually run continuous clean water through itself, it runs a couple cycles and splashes the dirty water around a bunch, and can leave wheat behind, sponges can harbor it.  Toasters, skillet scratches, spatulas and many other things can harbor it.  The dog's food may well have it, and they could be spreading it through the house.  It's also in all sorts of other weird things.  Chapsticks are sometimes contaminated.

 

I get the rash, so I can figure out when I was exposed every time, even at low doses, and I have found so many sources it's hard to even quantify them all.  I had to get my husband to find a gluten free cereal, because the amount left on his dishes in the sink was spreading it in the kitchen and the dishwasher, and I was being glutened.  There really is no safe amount in the house for some of us.  Fridges blow air around inside them and can spread crumbs.  Microwaves can have things pop and spread wheat inside them that then falls back into the next dish warmed in there.  If he's REALLY sensitive to it, like I am, you will be chasing your tail forever with someone eating gluten and drinking beer in the house. 

 

There is one brand of paper plates that are made of wheat straw, but as sources go, that's pretty unlikely.  It's more likely he's getting it from the environment he's in lots of the time.  At this point, the people in my house need to go to a bar for a gluten beer, and McDonalds or at least the back yard for wheat snacks they aren't allowed to store in the house.  It feels ridiculous to need to do that, but when you eliminate enough sources by eating paleo from your garden, you start looking at where on earth it could be coming from, and the answer is that people don't practice clean room behavior about food they eat, and it isn't realistic to believe they will, so they need to not have it in my environment. 

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Wow.  There are so many scenarios I didn't even think of.

 

So it's still narrowed down to my husband, dog, cats or somewhere at daycare.  I guess I start at the beginning and eliminate the risks one by one and see where we are. My husbands beer and bread are easy. I just stop buying them.  He can drink my Strongbow or finish off the 23 beers in the case of Omission I attempted (I'm 5 days into paying for that mistake).

 

Any suggestions for gluten free pet food?  Are there any available at a regular grocery store or will I have to go to a vet or online to get it? 


Allison

Undiagnosed with DQ8 gene and have had symptoms for 20+ years. Gluten free since March 2015

Son - DX celiac via blood 3/2015 and biopsy 5/2015 (age 3) - gluten free May 2015

 

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Wow.  There are so many scenarios I didn't even think of.

 

 

Any suggestions for gluten free pet food?  Are there any available at a regular grocery store or will I have to go to a vet or online to get it?

Places like Petsmart have gluten-free pet food. I buy mine at Costco.


Non-functioning Gall bladder Removal Surgery 2005

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Hashimoto's Thyroiditis -- Stable 2014

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Allergies and Food Intolerances

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Celiac.com - Celiac Disease Board Moderator

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Has anyone used Taste of the Wild pet food?  It's pretty popular on Amazon and gets pretty good ratings everywhere I have seen. We live in a rural area and our options are pretty limited for places to purchase any specialty items.  We only have Walmart, Tractor Supply and local grocery stores. 


Allison

Undiagnosed with DQ8 gene and have had symptoms for 20+ years. Gluten free since March 2015

Son - DX celiac via blood 3/2015 and biopsy 5/2015 (age 3) - gluten free May 2015

 

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Before you buy Taste of the Wild please do a search for reviews and recalls on the products. When you change your pets over to a gluten free food do be sure to do it gradually over a period of a week or two. They can get upset tummys if you switch too suddenly.

I switched my dog to the Taste of the Wild a couple months ago but soon after my little dog starting having blood in her urine and having accidents. I read of this issue with some folks and cat food so I switched her to a Wegmans grain free and within a couple days the issue cleared up. There has also been a recent recall on the Taste of the Wild dog food for salmonella so do be sure to check if the bag you purchase is involved in that recall.

My kitties eat Goodlife which is not grain free but is gluten free. There are quite a few pet foods now that don't contain gluten and use rice instead. You may need to go with that option if your choices are limited.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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As others have said, grain free pet food is a pretty good bet. 

 

Oh, and in terms of weird exposures, I have been glutened at least twice by ground growing produce.  That one drove me bananas trying to figure it out.  Turns out some people grow food in wheat straw mulch.  And I am sensitive enough that if I don't wash my produce in a couple changes of water before I eat it, sometimes there will be enough wheat dust left from that to manage to make the rash appear on a finger or two. 

 

But the more common weird ones crome from something I am doing with my hands.  Your hands are your interface with the world, and if it ends up on your hands, it is likely to end up inhaled or in your mouth, sooner or later.  Extra hand washing helps.  But I have had to go through my life with a find tooth comb looking at every surface my hands come in contact with, asking if I am reasonably sure that is free of wheat dust, and not being re-exposed.  It is frustrating as hell, but at this point I feel so much better that it's worth it. 

 

I also have done a lot of gut healing things like fermented and probiotic foods, aloe in smoothies, gelatin foods, smoothies made of my weeds based on the "Eat Your Weeds" book because they are more nutrient dense, etc.and that seems to have reduced my sensitivity a bit, and also made me feel a ton better overall. 

 

But if you really spend a couple days watching your kid like a hawk, and all the things he's touching with his hands, you will probably find some risk factors.  And then really think about the foods he's eating.  I eliminated most grains and most baked goods, because it was just too easy for those to be the source of accidental cross contamination, and my body seemed happier without, anyway.  Once in a while I use quinoa (really a berry) or almond flour to make a treat, but very rarely.  And at this point there are exactly two places I can eat out within 20 miles of here.  One is a place that only serves gluten free food, and the other is a sushi place where all wheat is handled in the kitchen, separate from the sushi bar, and in which the manager makes my food because he knows me and is able to be that obsessively careful. 

 

It's been a long journey, but at this point, I don't get the reaction very often anymore.  It can be maddening while you're looking for the source, though.  Good luck on the quest. 

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I would think day care might be the obvious place.  Of course they will be extremely careful while you are watching.  Maybe keep him home for a few weeks and see if he gets better?

 

And really, how do you know its gluten?  Maybe he is having some other issue?  Maybe another food allergy or intolerance?  Maybe  a persistent virus, etc etc


 

 

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I think daycare is probably the obvious source of contamination but I want to eliminate everything else before I cross that bridge.  I have already eluded to the fact that I think he is being contaminated with gluten somewhere and I asked the director to observe more at mealtimes to see if she can see a pattern.  If I were to guess, they are touching each others plates or not adequately washing hands.  The other option is putting toys in their mouths.  And I just thought of another scenario, they have toothbrushes all in a line on a hanging shelf.  If his touches anyone else's that could be the source. I just emailed the director about that one.

 

He is not physically sick with vomiting and diarrhea nor his he complaining about a tummy ache.  His appetite is normal other than using "it's not gluten free" when he doesn't want to eat something but he's 3 and picky eating is to be expected.  I guess I just know something is amiss but maybe it is dairy or corn or something else.  I suppose I will go things one at a time and see what helps.


Allison

Undiagnosed with DQ8 gene and have had symptoms for 20+ years. Gluten free since March 2015

Son - DX celiac via blood 3/2015 and biopsy 5/2015 (age 3) - gluten free May 2015

 

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Personally, I have found that I have to ask the people I live with to leave the house when eating wheat.  The problem is so complex that it's just too impossible otherwise.  The kid could be sneaking dad's food.  Dad, who is clearly not very worried about the whole thing, can be leaving crumbs on tables, chairs, his clothes that get transfered to the boy upon getting a hug.  It can end up in any fabric, any carpet.  Your dishwasher doesn't actually run continuous clean water through itself, it runs a couple cycles and splashes the dirty water around a bunch, and can leave wheat behind, sponges can harbor it.  Toasters, skillet scratches, spatulas and many other things can harbor it.  The dog's food may well have it, and they could be spreading it through the house.  It's also in all sorts of other weird things.  Chapsticks are sometimes contaminated.

 

I get the rash, so I can figure out when I was exposed every time, even at low doses, and I have found so many sources it's hard to even quantify them all.  I had to get my husband to find a gluten free cereal, because the amount left on his dishes in the sink was spreading it in the kitchen and the dishwasher, and I was being glutened.  There really is no safe amount in the house for some of us.  Fridges blow air around inside them and can spread crumbs.  Microwaves can have things pop and spread wheat inside them that then falls back into the next dish warmed in there.  If he's REALLY sensitive to it, like I am, you will be chasing your tail forever with someone eating gluten and drinking beer in the house. 

 

There is one brand of paper plates that are made of wheat straw, but as sources go, that's pretty unlikely.  It's more likely he's getting it from the environment he's in lots of the time.  At this point, the people in my house need to go to a bar for a gluten beer, and McDonalds or at least the back yard for wheat snacks they aren't allowed to store in the house.  It feels ridiculous to need to do that, but when you eliminate enough sources by eating paleo from your garden, you start looking at where on earth it could be coming from, and the answer is that people don't practice clean room behavior about food they eat, and it isn't realistic to believe they will, so they need to not have it in my environment. 

There is so much misinformation in this post, I felt the need to answer.  I am also very sensitive to gluten and as a diagnosed Celiac, do not need to live in a bubble to live well and healthy.  I am beginning to think there needs to be an information thread about cross contamination, because there are many people who clearly do not understand the basics.

 

You cannot be glutened unless it gets into your GI tract, which begins at the mouth.  Dishwashers are safe to use, unless you do not rinse your dishes beforehand and really, who does that anyway?  You would have to leave spaghetti on your plate before any worries about it would be realistic.  I don't know what brand of dishwasher you have, but mine does not splash dirty water all around during the cleaning process.  Clean water definitely is being issued from the jets inside.  I won't even remark on the fridge scenario.  :rolleyes:

 

If you need to take a class, do so. Otherwise, your life will be spent living in fear of food and that is no way to live.

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Is putting the animals on a gluten free diet (especially the dog) overreacting?  She has tendency to try to sneak in kisses.  The cats not so much.  I don't want to drive myself nuts looking for hidden sources of gluten but I want to make sure I am doing what I can to keep him safe.  

 

As far as the dishwasher goes, with the exception of a crumb of bread from my husband here or there, all other foods in our house are gluten free and most of the time when he eats a sandwich it's on a paper plate anyhow so dishwasher shouldn't be an issue.  


Allison

Undiagnosed with DQ8 gene and have had symptoms for 20+ years. Gluten free since March 2015

Son - DX celiac via blood 3/2015 and biopsy 5/2015 (age 3) - gluten free May 2015

 

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Is putting the animals on a gluten free diet (especially the dog) overreacting?  She has tendency to try to sneak in kisses.  The cats not so much.  I don't want to drive myself nuts looking for hidden sources of gluten but I want to make sure I am doing what I can to keep him safe.  

 

As far as the dishwasher goes, with the exception of a crumb of bread from my husband here or there, all other foods in our house are gluten free and most of the time when he eats a sandwich it's on a paper plate anyhow so dishwasher shouldn't be an issue.  

 

Probably.   Unless she eats the food - I know a few little ones that share with the dog.  Lol   I put my dog on grain free and it has really helped him. Better skin and fur are the most obvious things I can see. I did the same for the cat and she has better poops and no more barfing except for hairballs.


 

 

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Gemini, you don't have to agree with me.  But in each case, because I am on ADD meds and have to see my doctor regularly anyway for appointments in which we have nothing to discuss related to stable ADD meds (government required controlled substance recheck appointments), I have asked her about whether I was just being paranoid, and she's said that it was entirely possible that was a problem and encouraged me to avoid the scenario. 

 

As for the dishwasher, we have two kids with ADHD in the house who wash dishes as one of their chores.  They are not very careful, not very thorough, and tend to do dumb things like essentially make oily soup out of sink dish water, coating everything in slime, and call that having rinsed the dishes well.  Also, while this apparently is impossible in your world, the spouse forgets to wash his glasses out before putting them in the dishwasher when the residue doesn't involve pulp of some sort.  And in a heavy beer week, that's several tablespoons of beer that ends up in the dishwasher as well as a few cereal bowls worth of exposure, and some sandwhich plates that no one thought dirty enough to rinse.  Is it possible that I could make all of our lives a living hell by taking on every chore myself until I turn into an angry shrew, or by riding them constantly about every detail of their doing chores, every time they attempt a sloppy shortcut which is about every 10 seconds?  Sure.  But who wants to live that way? 

 

And you're welcome to pull up your dishwasher manual and read it.  Perhaps yours doesn't behave the way mine does, but even the manual on mine admits that it is recirculating the water in its couple of cycles to heat it enough to sanitize things and reduce water waste.  When that water then isn't flushed out, because it accumulated in a jar the kids left right side up, and gets poured all over things, when they dump it in the dishwasher, it is plenty for me.  Could I spend several hundred dollars on a new dishwasher and attempt to find one not designed to minimize water waste?  Sure.  Or we could stop eating wheat inside the house, and not have to pay several hundred we don't have right now for something I may not even be able to find a good alternative for. 

 

Yes, it is true that a lot of people aren't as sensitive as I am, and probably don't need to worry about every appliance.  And it is great if that is the case for them.  I envy them.  But my dermatitis herpeteformis and my doctor disagree that I am over-reacting.  I am finally on a couple months of no skin outbreaks, having genuinely eliminated the remaining sources in the house, and made kids and spouse go out for wheat, or use disposable dishes in the back yard.  You're lucky that your life is easier on the subject. 

 

But only the original poster and her son can figure out how sensitive they are.  Could it be milk or a food allergy, or other things?  Sure.  But I also spent a long time on those, thinking I had nailed the genuine wheat thing, only to find out that I was chasing my tail for about a year, and I was still being glutened.  It doesn't stop me from living a happy life.  I take some tools and dishes with me on trips, and pack foods I know are safe if there isn't a Whole Foods, Vitamin Cottage or similar that I can find locally to wherever we are going.  I hike a do a lot of intersting things out doors.  I am hardly living in a bubble.  Most of the time it isn't a problem. 

 

But, for example, I went early in the growing season, to buy some alfalfa cover mulch for my garden from a place that was busy using a fork lift on some wheat straw bails nearby, and that was seriously stirring up the particulate in the air.  I took the alfalfa home, piled it out of the way, showered and washed my hands with my mouth closed, and left the alfalfa in a pile for about two weeks, distracted with other things.  Just from breathing in that barn space while I was there, I had both an allergic reaction from it, and a day and a half later, I broke out in the dermatitis herpitaformis rash.  Eventually two weeks later, I wore an allergy mask and spread the alfalfa, and washed afterward, and had no reaction to it, nor have I reacted to alfalfa by itself at any point in the past, allergically or otherwise.  But I have been allergic to every grass all my life, and previous exposure to wheat straw dust has made me react allergically before.  Nothing in my diet was different over that 4 week period,  There were no new beauty products or other sources.  I asked my doctor, and she pointed out that your nose drains down your throat, and given my sensitivity levels, I probably needed to avoid heavy airborn particulate like that or wear an allergy mask if I had to be there for some reason, because that was plenty to expose my digestive tract to gluten. 

 

Consider yourself lucky if these kinds of things aren't problems for you.  I wish they weren't for me. 

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i just spit on my dishes and hope for the best :D  because my dog died  :lol:

 

KIDDING !!  but i do hate the dishwasher discussion.  let's get back to the subject

 

i think the hardest thing would be to keep the kid's hands out of his mouth (and toys, etc)  i, myself, had a hard time stopping licking my fingers.  you don't realize how many times you do that a day until you try to stop!


arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator

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Gemini, you don't have to agree with me.  But in each case, because I am on ADD meds and have to see my doctor regularly anyway for appointments in which we have nothing to discuss related to stable ADD meds (government required controlled substance recheck appointments), I have asked her about whether I was just being paranoid, and she's said that it was entirely possible that was a problem and encouraged me to avoid the scenario. 

 

I am not disagreeing with you just for the fun of disagreeing with you, I am correcting your incorrect information that the rest of the gluten free medical world is based upon...from a scientific and research point of view. This is not new science and doctors know how people are cross contaminated and can be at risk for ingesting gluten. You can find all of this correct information in good medical reference books on Celiac Disease.

 

As for the dishwasher, we have two kids with ADHD in the house who wash dishes as one of their chores.  They are not very careful, not very thorough, and tend to do dumb things like essentially make oily soup out of sink dish water, coating everything in slime, and call that having rinsed the dishes well.  Also, while this apparently is impossible in your world, the spouse forgets to wash his glasses out before putting them in the dishwasher when the residue doesn't involve pulp of some sort.  And in a heavy beer week, that's several tablespoons of beer that ends up in the dishwasher as well as a few cereal bowls worth of exposure, and some sandwhich plates that no one thought dirty enough to rinse.  Is it possible that I could make all of our lives a living hell by taking on every chore myself until I turn into an angry shrew, or by riding them constantly about every detail of their doing chores, every time they attempt a sloppy shortcut which is about every 10 seconds?  Sure.  But who wants to live that way? 

 

Why would your life be a living hell by teaching your kids the proper way to wash dishes?  Kids are not stupid and learn very fast.  If they make that much of a mess trying to wash dishes in a house where Celiac Disease lives, then you have an obligation to teach them correctly or do it yourself. I don't know why it seems so difficult in today's world to teach kids the right way to do something when my generation seemed to be able to manage being taught things correctly.  My mother raised 4 kids and taught us well in everything we did so I know it is not impossible.

There is no excuse for the husband...he's an adult and should do what it takes to keep the Celiac safe.

 

 

And you're welcome to pull up your dishwasher manual and read it.  Perhaps yours doesn't behave the way mine does, but even the manual on mine admits that it is recirculating the water in its couple of cycles to heat it enough to sanitize things and reduce water waste.  When that water then isn't flushed out, because it accumulated in a jar the kids left right side up, and gets poured all over things, when they dump it in the dishwasher, it is plenty for me.  Could I spend several hundred dollars on a new dishwasher and attempt to find one not designed to minimize water waste?  Sure.  Or we could stop eating wheat inside the house, and not have to pay several hundred we don't have right now for something I may not even be able to find a good alternative for. 

 

I don't have to read the manual...I am an electronics technician who builds hardware for a living and I know mechanical and electronic things pretty well.  Dishwashers do not wash dishes with dirty water as that kind of defeats the purpose of the whole thing.

 

Yes, it is true that a lot of people aren't as sensitive as I am, and probably don't need to worry about every appliance.  And it is great if that is the case for them.  I envy them.  But my dermatitis herpeteformis and my doctor disagree that I am over-reacting.  I am finally on a couple months of no skin outbreaks, having genuinely eliminated the remaining sources in the house, and made kids and spouse go out for wheat, or use disposable dishes in the back yard.  You're lucky that your life is easier on the subject. 

 

Are you aware that a DH outbreak can take a very long time to subside?  You could have taken a hit weeks ago or have something else going on entirely as those with skin reactions tend to have more than one skin issue, as far as reactions go. But I will agree with you that, yes, my life is easier on this subject because I learned about this disease the right way and with that education, comes much less mistakes and misinformation.  Anyone can get this right if they learn the correct information and stop spreading internet myths about what causes a reaction.

 

But only the original poster and her son can figure out how sensitive they are.  Could it be milk or a food allergy, or other things?  Sure.  But I also spent a long time on those, thinking I had nailed the genuine wheat thing, only to find out that I was chasing my tail for about a year, and I was still being glutened.  It doesn't stop me from living a happy life.  I take some tools and dishes with me on trips, and pack foods I know are safe if there isn't a Whole Foods, Vitamin Cottage or similar that I can find locally to wherever we are going.  I hike a do a lot of intersting things out doors.  I am hardly living in a bubble.  Most of the time it isn't a problem. 

 

But, for example, I went early in the growing season, to buy some alfalfa cover mulch for my garden from a place that was busy using a fork lift on some wheat straw bails nearby, and that was seriously stirring up the particulate in the air.  I took the alfalfa home, piled it out of the way, showered and washed my hands with my mouth closed, and left the alfalfa in a pile for about two weeks, distracted with other things.  Just from breathing in that barn space while I was there, I had both an allergic reaction from it, and a day and a half later, I broke out in the dermatitis herpitaformis rash.  Eventually two weeks later, I wore an allergy mask and spread the alfalfa, and washed afterward, and had no reaction to it, nor have I reacted to alfalfa by itself at any point in the past, allergically or otherwise.  But I have been allergic to every grass all my life, and previous exposure to wheat straw dust has made me react allergically before.  Nothing in my diet was different over that 4 week period,  There were no new beauty products or other sources.  I asked my doctor, and she pointed out that your nose drains down your throat, and given my sensitivity levels, I probably needed to avoid heavy airborn particulate like that or wear an allergy mask if I had to be there for some reason, because that was plenty to expose my digestive tract to gluten. 

 

Airborn wheat products are a problem for all Celiac's, including myself. There is also the issue of a wheat allergy, which is not the same as Celiac Disease. I know some folks like to think they are the most sensitive Celiac's on the planet but most Celiac's will become more sensitive, over time, after they have cleaned out their system and healed.

 

Consider yourself lucky if these kinds of things aren't problems for you.  I wish they weren't for me. 

 

I think if you learn more about cross contamination and what will really be a risk and what won't, you will have an easier time.  That is the way it works for everyone, regardless of sensitivity levels.  There may be subtle differences as in those who cannot eat products from shared lines but your descriptions on previous posts of how you think you were glutened are not based on medical fact and knowledge, even for a sensitive Celiac, of which I am one. I just cannot be that lucky that I manage to go for a very long time without sustaining a hit.  But, I have been doing this for over 10 years and have the diet down as well as a person can.  It serves no purpose to scare other people new to this disease into thinking they may not be able to use a dishwasher or thinking that they can be glutened by produce grown in a garden. 

 

BTW....ADD and ADHD are symptoms of an underlying problem and not necessarily a diagnosis.  You may be interested to know that many people with these issues have reported fantastic results on the gluten-free diet and no longer need meds for it. For them, it was just another symptom of undiagnosed Celiac.

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Um, could I make a suggestion? If your husband is the only one in your home who consumes gluten, why not segregate his dishes and YOU wash them by hand? That way the kids can continue using the dishwasher for the gluten-free dishes, and you will be assured there is no contmination. :)


gluten-free since June, 2011

It took 3 !/2 years but my intolerances to corn, soy, and everything else (except gluten) are gone!

Life is good!

 

 

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Um, could I make a suggestion? If your husband is the only one in your home who consumes gluten, why not segregate his dishes and YOU wash them by hand? That way the kids can continue using the dishwasher for the gluten-free dishes, and you will be assured there is no contmination. :)

C'mon Barty........that makes too much sense.  There are just some people who love making thier lives harder than they need to. ;)

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One of my doctors told me she wished even half her patients were as well informed as I am.  I have been known to walk into their office with medical studies to discuss them, for example.  Also, whatever you have been reading, you clearly believe that you're completely healed, but medical science says that if that is true, you are in the minority.  Most people do not truly heal all the damage from celiac disease, even on their gluten free diet.  And one major factor that is attributed to, is ongoing low level exposures people aren't aware of, because it drops them below the threshold of gi tract discomfort.  Here is just one study pointing out that most of us aren't healed.

Again, here is just a small example of why your posts are so loaded with error and misinformation. If you want to believe you are well informed, have fun with that.  We had other people on this board in the past who seemed to think they were always right and did nothing but spread erroneous info, make wild claims about being glutened from garden produce and that they reacted to 1 ppm of gluten, among other things. How sad that some people choose to ignore all the real medical advice about Celiac and persist in dispensing nonsense.

 

The vast majority of people with Celiac, who know their subject matter and what to do, heal well on the gluten-free diet.  Otherwise we would all be miserable, sick and life would not be worth living.  You can do whatever you want as it won't impact me. I just hope the OP and others who are looking for real answers to their Celiac issues know enough to ignore those who persist in spreading myths and incorrect information. That is the real challenge today.

 

 

As for the husband, he also has ADHD.  I can nag, yell, cry and scream until I am blue in the face, but my medical conditions don't make his magically stop existing.  He is always extremely apologetic, and tries really hard after a problem, but he's not good at being consistent with his own needs, either, so expecting greater success with mine would be silly.  Perhaps critiquing people's parenting skills of challenging children and ADHD husbanding skills you don't have and have no genuine context for, is not the best way to impress upon me that you are an expert of some kind functioning from facts.

 There are ADHD husbanding skills?  I must have missed that class...who knew?  I am also very upset that I don't possess any genuine context either.  ^_^

 

Does anyone want to let Mrs. Condescension know the address of that other forum where Celiac myths and misinformation abound?  She would be quite at home there.  :lol:

 

 

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