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Zachm

Horrible stabbing pains at night

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I was diagnosed with celiac disease late July and started going gluten free then, so I thought, but I started realizing all the stuff gluten was hidden in. Now I am completely dairy and gluten free for about a month(literally going off of gluten free bread, chicken, corndogs, chips, tacos, and meatballs) and about three weeks ago I had problems waking up during the middle of the night about every other night by HORRIBLY painful diarrhea, like right above my belly button it literally feels like someone is stabbing and its almost like I'm constipated for a moment, then I am not and for the next hour I am on the toilet until I can get off and take immodium. I thought that was going away, but guess what came back last night? It literally has me anxious about going to sleep because of it ALWAYS has happened while I sleep and it never happened before going gluten free. Do you think I may have been misdiagnosed? I go to meet with a GI for the first time on the 5th, but I need this to stop I have 17 college credit hours going on and other responsibilities. Thanks

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It sounds like you did not get confirmed for celiac disease with an endoscopy which is the normal protocol.  Be sure to tell your GI that you have been gluten-free for a month or longer.  He can check for SIBO, colitis, H Pylori, etc if he orders an endoscopy.  In the meantime, eliminate all dairy.  Celiacs are often temporarily lactose intolerant.  

Hang in there! 


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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Your description describes my gluten reaction perfectly except I am usually toilet bound for 3 to 5 hours. Is there any chance you could be getting gluten CC anywhere? Have you read the Newbie 101 thread at the top of the Coping section? It could clue you in on ways you may be getting CC. It doesn't sound like you have been gluten free for very long and it can take some time to heal and get used to all the little things we have to do to keep us safe.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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