Jump to content
Celiac Disease FAQ | This site uses cookies GDPR notice. Read more... ×
  • Sign Up
0
ShannonA

Muscle aches & pain

Rate this topic

Recommended Posts

 

Hi,  I am trying to locate an article that was written giving the physiological breakdown of what gluten does to the muscle in some people.  It goes into the exact effect that gluten has on some peoples muscles rather than gut, leading to muscle pain/weakness. Thank you so much....I went through this now my 11 year old is going through it. The article is in such detail & im trying to explain it to my son.

 

 

Share this post


Link to post
Share on other sites

I asked a similar question years ago when I was first diagnosed with coeliac disease. I was unable to find anything though. All I do know is I was very ill, my symptoms had been diagnosed many years ago as IBS. It was decades later when I was walking with a stick because I was so weak I could barely walk. My muscles were weak even when sitting or lying down I felt shakey on the inside. (Like a bag of jello).  I had blood work which found extremely low ferritin levels and general malnutrition. It was then that I underwent biopsies etc. It was a long drawn out process as I had already suspected coeliacs and had given up gluten (not realising that you need to be eating it to get a diagnosis - I'm older and wiser now. 

I hope someone else on here can give you the information you need.

Share this post


Link to post
Share on other sites

Thank you! I went gluten free for a year only tolerating soup & came back to life so to speak.  Burning in my head persisted until occupital neuralgia was diagnosed. I had an implant in my right head but burning continued, so I ate pizza all summer while sulking. I'm getting the other side of my head implanted with a stimulator & now am having all the muscle aches/pain due to eating wheat all summer. I've learned not to eat wheat when down & out bc it's not worth this. Yes I feel the jello feeling especially in the afternoon.  I'll look into more supplements!

Blessings

Shannon

Share this post


Link to post
Share on other sites

Most definitely keep off the wheat/gluten, it's so not worth it. Good luck with the other implant. It will take a few months before the supplements start to work, so don't feel despondent if it doesn't help right away.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Top Posters +

  • Upcoming Events

    • February 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×