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purdue1014

Gluten free diet, positive celiac screen...what should I eat now?

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On 2/8/2016 at 3:01 PM, frieze said:

your cousin needs to be worked up for celiac, ASAP.  i know he is not 1' degree, but he is not all that far removed.

not to be rude or nosy, were you an only d/t miscarriage?  that tends to be more common in celiac women

 

Interesting thought!  Older sibling lived about 24 hours before passing.  Mom had a tough pregnancy (as she did with me).  Medical family members have speculated it was because mom had ITP in her 20s, but that's just a guess.  Never officially dx as a celiac. 

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Finally got my lab results today.  Positive for DPG IgG (12.0 EU/ml), and DPG IgA (9.9 EU/ml).  TTG IgA was negative at 0.5 U/ml, and EMA IgA was negative.  Total serum IgA by Nephelometry was 173 mg/dl.  

 

Thoughts?  

Now that I have the report, I'll contact the GI MD as we discussed above.  

Thanks guys!

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7 hours ago, purdue1014 said:

Finally got my lab results today.  Positive for DPG IgG (12.0 EU/ml), and DPG IgA (9.9 EU/ml).  TTG IgA was negative at 0.5 U/ml, and EMA IgA was negative.  Total serum IgA by Nephelometry was 173 mg/dl.  

 

Thoughts?  

Now that I have the report, I'll contact the GI MD as we discussed above.  

Thanks guys!

Two positives?  Looks like an endoscopy is in order.  When I tested, I only had one positive on the DGP IgA and the rest were negative, yet I had a Marsh Stage IIIB which translates to moderate to severe damage.

Good luck and keep us posted! 

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Make sure to continue eating gluten until the endoscopy is done. Push very hard for 6 biopsies! 

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