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all of my life I have suffered from migraines. Even as far back as a toddler.

At age 15 I was falling alseep in class due to how tired I was and Bc my headaches were hurting me so bad. I recall every evening coming home, excited to lay in a dark room Bc there was never a day my head wasn't absolutely busting. 
At age 18 they began lasting 5 days and felt like my brain was on fire. 
At age 20 I began complaining of feeling like I was running a fever constantly, as well as still suffering from the migraines. 
 
At 21 my doctor prescribed a seizure medication that supposedly helps migraines. I was hesitant Bc I don't have seizures... So I waited months to try it, but finally caved out of desperation.It didn't help, it just made me stupid Bc I was unable to think clearly.
 
 
At age 22 I was missing months of my life, laying in the dark, sweating, tossing and turning all with an ice pack on my head, since the headaches still felt like my brain was on fire. 
 
I would tell my doctor about this and I was told it was depression. I would say "I would not be depressed if my life wasn't like this." He still insisted it was my thoughts doing this to me. 
He later prescribed anti depressants. Nothing changed. 
 
I missed that entire year of my life. Totally debilitated by these headaches.. Except now they consisted of the room spinning. A nauseous feeling that felt like the worst food poisoning as well as cold sweats. 
 
I remember the night I prayed "God just show me what it is. I'm tired of praying to be healed just show me what it is." 
 
as fate would have it, I went gluten free on accident that next month. I remember unloading my groceries and realizing everything I had bought was gluten free and laughing about it. I had no idea what gluten even was ! Lol. So that was definitely an answered prayer ! 
3 weeks of being unintentionally gluten-free I recall discussing w my mom that my headaches had pretty much subsided, and telling that I wondered if it had anything to do w the fact that I had quit drinking pop. 
 
Shortly after that, I ate something that contained gluten. I couldn't even finish it. I felt odd. My heart was beating fast and I felt that inner fever begin to simmer again. And the old headache I had once lived so long with, came back with a vengeance.
I some how fell asleep,
Still clueless that this was caused by gluten. the when I woke up, i was greeted with a feeling that felt like the worlds worst stomach virus along with food poisoning. 
 
When I say I puked... It feels like an understatement lol. 
I puked until I puked a bile/infection-like looking substance which smelled like infection too!! (Gross I know but, I have to be truthful)
This attack lasted for around 25 hours or more. After wards it was like I had fought a war. then as I was laying there...it was like a light bulb hit me... "Gluten ! I ate gluten! what even is gluten ? " so I googled gluten allergy. And I was amazed !!
 
I went gluten free immediately and sense,the Terrible migraine/puking episodes have disappeared ! Unfortunately I didn't know you had to be tested for celiac while you we're eating gluten, so I've never been able to be tested for it. Therefore I only claim to have the allergy.
However I suspect it's celiac Bc so much more happens to me than just fatigue and brain fog. 
I nearly die. I am not exaggerating. I'm someone with a high pain tolerance. I've broke my back and walked home ! lol. But these attacks literally have me begging for mercy!!! 
 
I have been gluten-free for 5 months now. This week I was glutened twice ! so as you can imagine I'm a mess.  
The first time was from a little bit of gluten containing alcohol (Smirnoff was falsely advertised as gluten-free. Don't ever make that mistake of believing their website!!) you guys, I literally couldn't take care of myself. And This was 15 hours after drinking so it wasn't due to being drunk. Once again, I puked till I had nothing else to puke except for green/yellow infection. I puked almost half a small bucket full of that stuff alone! :/ My mom had to come take care of me and I am 23. I couldn't even go get myself a cold rag due to how dizzy I was. It truly feels like the room is spinning! 
The second time i was glutened, was two days after that. I assumed that all Soda was gluten free, by mistake .(I rarely drink soda, so I shouldn't have assumed that, but needless to say, I paid for it.) I took maybe 3 sips of mr. Pibb and felt that fire headache spread across my head. I immediately googled and found out its one of the sodas that aren't gluten-free. Just my luck lol. 
 
I didn't puke bile that time Bc I'm assuming I didnt consume enough for it to be that bad, thank God. But now my stomach doesn't want to hold food. I feel sooo worn out and every time I eat I nearly fall asleep. I did a liquid diet for a few days to let my gut heal but it's still thrown off. I feel so out of wack and emotional !! 
 
I've only been glutened 4 times in 5 months but the last two was this passed week. I've never been contaminated so close together but I'm telling you guys, I don't know what I'm going to do. I so badly want to be diagnosed with celiac so then Atleast I'm taken seriously by my doctor . But as of right now I just sound like a hypochondriac :/ thankfully my family finally believes me. But it still bothers me not to know for sure.
 
I'm sorry if I bored you guys but I guess I just needed to vent lol. I was also wondering, do u all think I have Celiac or am I just gluten sensitive?? 
can gluten sensitivity be that intense? 
 
Thank you for taking the time to read about my story.  I wish you all health and many blessings 
❤️❤️❤️Kayla 

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Celiac.com Sponsor (A8):

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Kayla,

Welcome.

I too am a glad you have found the answer to your migraines.

Have you told your doctor this? If you truly believe you have celiac disease, I urge you to call your doctor and ask for a referral to a GI. It is true that you have to be eating gluten to for the blood and endoscopy tests, but you need to bring all you have shared here to the the GI.

Good luck.

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I have never gotten an official diagnosis either..and I don't care..my Dr is 99% sure it is Celiac..I will NEVER go back to eating gluten just to confirm..I also had severe headaches all my life..but recently had an attack like u mentioned and found out my gallbladder wasn't functioning well..Maybe have that tested also!

 

 

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On February 29, 2016 at 7:10 AM, lisas11lisa said:

I have never gotten an official diagnosis either..and I don't care..my Dr is 99% sure it is Celiac..I will NEVER go back to eating gluten just to confirm..I also had severe headaches all my life..but recently had an attack like u mentioned and found out my gallbladder wasn't functioning well..Maybe have that tested also!

 

 

I had my gallbladder removed 6 years ago without any complication. But I'm right with you! I will never purposely eat gluten again. It destroys my body and my life . People have no idea how serious it is. I'm pretty sure I have celiac as well but there's no way I could ever eat it for as long as required to get a diagonsis. Thanks for your response . Wish you all the best !

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On February 29, 2016 at 10:27 PM, Irene Joanne said:

If I was in your shoes and knew gluten made me so sick- there's no way I'd eat gluten for a few months for an accurate diagnose. 

you're right . There's no way I could even consider it. I just wished I had a diagnosis for people in my family that think I'm being a Hypocondriac . But they'll just have to think what they want Bc I am physically unable to go through that. Thanks for your response . Wish you the best !

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Kayla,

Welcome to the forum!  I am glad you have found a solution to your horrible migranes!  The learning curve for going gluten free is steep though  You might want to read the Newbie 101 thread pinned under the "Coping" section.  It contains valuable tips.  Also the main page of celiac.com has great article too.  

I hope you feel better soon!  

 


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test and Endoscopy: March 2013

Hashimoto's Thyroiditis -- Stable 2014

Anemia -- Resolved

Fractures (vertebrae): June 2013

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Diabetes -- January 2014

Celiac.com - Celiac Disease Board Moderator

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