Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac specialist in middle PA area


stef-the-kicking-cuty

Recommended Posts

stef-the-kicking-cuty Enthusiast

And how would I word that, when I call? "Can I schedule a consultation over the phone?" "Why do you need that?" "Cause I can't come to the actual appointment?" "Well, that's not our problem?"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stef-the-kicking-cuty Enthusiast

He can run a blood test. The kid would just be stung and go through the agony for nothing, cause he's not making enough antibodies. He hasn't done so the last two tests and neither did any of the other members of his family. It would just be the same old result to confirm the same result everyone else did before her. When does it stop and when is this child believed, that he does indeed have pain? It's not an attack, just my two cents.

stef-the-kicking-cuty Enthusiast

I mean, how do you proof, that there is pain with no or less than the limit antibodies?

kareng Grand Master
3 minutes ago, stef_the_kicking_cuty said:

And how would I word that, when I call? "Can I schedule a consultation over the phone?" "Why do you need that?" "Cause I can't come to the actual appointment?" "Well, that's not our problem?"

You don't know if you don't try.  This what I would do in if I were in your situation -  you could mail, or fax might be better, a list of symptoms .  Put on it that you want it in the record of son, date of birth, date of appointment, dr he is seeing.  Call the office and see what works the best. Explain nicely that you can't get off work because of driver shortages.  Kids still need to get to school!  You know his dad will forget something important ( grit your teeth and say that nicely - like its a bit of a joke).   If you have an acting skills, this might be a good time to use them.  Be polite and nice, in this case, it may get you more of what you want.  

kareng Grand Master

Are you willing to find out what is wrong with him if it's not Celiac?  There are other reasons that a gluten-free diet can make a non- Celiac feel better.  

He can have pain but not be Celiac.  My toe can hurt but not be broken.  It's not all or nothing.  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,944
    • Most Online (within 30 mins)
      7,748

    Visionaerie
    Newest Member
    Visionaerie
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Visionaerie
      I get these but where we are, they are called chicken potstickers. I would obviously suggest that it is the ginger in the product that is causing a stimulative digestive effect! So you might want to do what I do, just cook one of them with the rest of your meal so you don't have the same effect. I love the Feel Good products but they are on the expensive side. (I also drink Reed's ginger brew so in general, ginger is a friend of mine..when delivered at the right dose). Hope this helps and have a warm healthy week!
    • ognam
      Has anyone had Steatorrhea (oily/fatty poop) as a temporary glutening symptom or should I be concerned I've introduced chronic gluten somewhere (like in meds)? I haven't gotten Steatorrhea since before I went gluten free. However, I moved in the past few weeks and haven't been as careful - I've eaten at restauraunts with cross contamination but only experienced minor symptoms like headache. The past week, I ate only gluten free food at home except I went to Red Robin and got fries (told them gluten-free; allergy). The next day I had Steatorrhea and the day after that.   I know it's a symptom of malabsorption so I was wondering if it was the kind of thing that could be caused by one event or if it was due to a more chronic issue. Of course I will speak to a GI but I recently moved and need to find one.   Thank you for any info
    • plumbago
      A relative has opened another door for me on this issue -- the possibility of menopause raising HDL. Most studies suggest that menopause decreases HDL-C, however, one study found that often it's increased. "Surprisingly, HDL cholesterol was higher (p < 0.001) in postmenopausal women by 11%. Further, the number of women who had low HDL cholesterol was higher in pre vs. postmenopausal women. The range of ages were 26–49 years for pre-menopausal and 51–74 years for postmenopausal women. "This interesting finding has also been observed by other investigators. It is possible that the observed increase in HDL-C in postmenopausal women could be due to a protective mechanism to counterbalance the deleterious effects of biomarkers associated with menopause. However, further studies are needed to confirm this theory. And to the point raised earlier about functionality: "...some patients with elevated HDL-C concentrations could remain at risk for coronary events if HDL is not functional and some authors have suggested that this could be the case for menopausal women." Postmenopausal Women Have Higher HDL and Decreased Incidence of Low HDL than Premenopausal Women with Metabolic Syndrome. By no means to I think this is definitive, rather food for thought.
    • ognam
      Yes, lots of delicious things have barley malt. It also doesn't include rye. And there are a number of grains commonly cross contaminated such as oats.   Additionally, wheat allergies are different from gluten allergies as wheat allergies are a reaction to a wheat protein. So something *could* contain wheat gluten without causing a wheat allergic response (though realistically,  I don't know how likely that is to occur)
    • trents
      Although it is true that FDA regulations don't require gluten to be included in allergy info, it does require wheat and ingredients made from wheat to be listed. Of course, that doesn't preclude gluten from barley being found in a product.
×
×
  • Create New...