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GlutenFreeKitty

Severe Chills

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Hey everyone - 

I went gluten free in 2012 and oh what a journey it has been! I went gluten free for six months prior to my gluten sensitivity diagnosis. Because I was off gluten my doctor said that the diagnosis for celiac disease would not be accurate. All I know is that I am good if I "stick with the program". 

I have never been real beer drinker but my roommate enjoys beer often. I have "cheated" by drinking an occasional Black and Tan. Yesterday I had half of a kraft beer he was drinking, "Lagunitas" which he bought at Kroger's. I had a major, full-blown gluten reaction which hit me like a freight train. I was sitting on the couch and one minute I was good, the next seriously ill. Does anyone else get extreme chills? This happened to me once before when I had eaten wings (which the waitress told me were gluten free but contained flour and soy). I thought I was going to have to call 9-1-1! The chills were so bad I wound up in bed with three blankets. I lost a whole night of my life last night. Add to the chills, vomiting and a fever. It was all quite unpleasant.

Two answer goals for this post:

1). Do Kraft beers cause a stronger gluten reaction? I am NEVER drinking beer again but, I am curious. My roommate thought they did because they contain more barley and rye.

2). Does anyone else get the chills as a gluten reaction? I am scheduling a doctor's appointment soon and will probably need a referral to a practice specializing in diet particularly gluten-free. 

I was pretty scared and sick last night. I am sticking with the program now, no more cheating.

~ GFK

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29 minutes ago, GlutenFreeKitty said:

1). Do Kraft beers cause a stronger gluten reaction? I am NEVER drinking beer again but, I am curious. My roommate thought they did because they contain more barley and rye.

Hi, welcome, and Bad Kitty for drinking that beer :P

Some beers have a higher gluten content than others. I've seen some say that they could drink a corona for instance which is lower than some. There's no way I'd do this however. There's plenty of gluten-free options available if you want a beer, or go for cider instead which is a better bet imo. 

33 minutes ago, GlutenFreeKitty said:

2). Does anyone else get the chills as a gluten reaction? I am scheduling a doctor's appointment soon and will probably need a referral to a practice specializing in diet particularly gluten-free. 

Not as an immediate reaction, at least not yet. However gluten did mess around with my heat sensitivity. I used to feel very cold, for years I'd wear 2 pairs of socks, ridiculous amounts of layers of clothing etc. That's one of the odd things which had become a part of me and which went when the diet changed. 

Hope you're feeling better soon :)

 

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Hello Kitty

Well I had chills in my first year post diagnosis, I remember two specific instances. On one occasion I was walking home along a path eating licorice allsorts - a type of English sweet - because I had read licorice had iron in it and it was good for anemia.  Good excuse!  I remember feeling chills and my shins itched.   Got home and checked the ingredients and they contained gluten.  Another time I had chills after eating out at a hotel. Those are the two occasions I specifically recall but I do remember looking it up on this website once or twice. 

I have just typed in 'chills' and 'celiac' in google and I would say there is quite a bit of anecdotal evidence to show this can happen.

Pre-diagnosis I also had extreme chills, diarrhea and stomach pain within an hour of eating broccoli of all things. It happened on three separate occasions.  The chills would not stop until a few hours after it had passed through my system.  So perhaps that was another intolerance kicking in?  I still haven't gone back to eating broccoli, I can't face it.

Perhaps you could let us know if this becomes a feature of future glutenings (hopefully you won't have too many more episodes!) as I think it would be helpful for others to know.

 

 

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This had reminded me of this site: http://gluteninbeer.blogspot.co.uk/ where someone is actually testing different beers to find out their gluten content. You can see from the list about halfway down the page how different beers vary. Not many craft beers amongst them though. 

If the chills persist meanwhile consider a leather jacket...

 

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Beer is the worst thing anyone with celiacs can drink. Thats what led me to the gluten free diet. One drink of beer and i'll be in the bathroom for 12 hours puking with the hot and cold sweats. I get so cold i have to sit in the shower and warm up every time i throw up.

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On 9/4/2016 at 10:55 AM, GlutenFreeKitty said:

Hey everyone - 

I went gluten free in 2012 and oh what a journey it has been! I went gluten free for six months prior to my gluten sensitivity diagnosis. Because I was off gluten my doctor said that the diagnosis for celiac disease would not be accurate. All I know is that I am good if I "stick with the program". 

I have never been real beer drinker but my roommate enjoys beer often. I have "cheated" by drinking an occasional Black and Tan. Yesterday I had half of a kraft beer he was drinking, "Lagunitas" which he bought at Kroger's. I had a major, full-blown gluten reaction which hit me like a freight train. I was sitting on the couch and one minute I was good, the next seriously ill. Does anyone else get extreme chills? This happened to me once before when I had eaten wings (which the waitress told me were gluten free but contained flour and soy). I thought I was going to have to call 9-1-1! The chills were so bad I wound up in bed with three blankets. I lost a whole night of my life last night. Add to the chills, vomiting and a fever. It was all quite unpleasant.

Two answer goals for this post:

1). Do Kraft beers cause a stronger gluten reaction? I am NEVER drinking beer again but, I am curious. My roommate thought they did because they contain more barley and rye.

2). Does anyone else get the chills as a gluten reaction? I am scheduling a doctor's appointment soon and will probably need a referral to a practice specializing in diet particularly gluten-free. 

I was pretty scared and sick last night. I am sticking with the program now, no more cheating.

~ GFK

I too had severe chills that went on for Three hours with vomiting. I did go to the ER where they monitored my blood pressure and heart rate. Also gave me an IV to keep me hydrated and a medication to stop vomiting. My reactions are getting worse every time. I am extremely diligent and had dinner at a restaurant where the general manager is a celiac too. I’m feeling like they is no safe place outside of my home. 

Chills where extreme...uncontrolllable and I was wrapped in warming blankets. Chills are a new addition to the horror?

 

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6 hours ago, Patty harrigan said:

I too had severe chills that went on for Three hours with vomiting. I did go to the ER where they monitored my blood pressure and heart rate. Also gave me an IV to keep me hydrated and a medication to stop vomiting. My reactions are getting worse every time. I am extremely diligent and had dinner at a restaurant where the general manager is a celiac too. I’m feeling like they is no safe place outside of my home. 

Chills where extreme...uncontrolllable and I was wrapped in warming blankets. Chills are a new addition to the horror?

 

Older post, please check dates, but to address your question the symptoms many of use have with a gluten exposure seem to always evolve especially if we have a good amount of time between them. It leads to the complexity of this disease and knowing when you were truly glutened or if it was a intolerance issue, or something else.
Chills, back before my diagnosis I always was feeling cold in the house, but I also always was sweating and had very oily skin back then. I have not noticed it any more pronounced during gutening since going gluten free, but I find I tolerate the cold much better and hate the heat now.  Last confirmed major gluten exposure I had caused me to lose motor control and collapse in my doorway vomiting violently unable to move on the floor for hours. This was over a year ago, and I no longer eat out aside from the 2 places I trust, and I always bring my nima sensor and test anything I do not trust now days.

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On ‎10‎/‎29‎/‎2017 at 6:34 PM, Ennis_TX said:

Older post, please check dates, but to address your question the symptoms many of use have with a gluten exposure seem to always evolve especially if we have a good amount of time between them. It leads to the complexity of this disease and knowing when you were truly glutened or if it was a intolerance issue, or something else.
Chills, back before my diagnosis I always was feeling cold in the house, but I also always was sweating and had very oily skin back then. I have not noticed it any more pronounced during gutening since going gluten free, but I find I tolerate the cold much better and hate the heat now.  Last confirmed major gluten exposure I had caused me to lose motor control and collapse in my doorway vomiting violently unable to move on the floor for hours. This was over a year ago, and I no longer eat out aside from the 2 places I trust, and I always bring my nima sensor and test anything I do not trust now days.

 

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This is an old Post of mine. I have actually found out exactly why I got so severely I'll. Not only do I have Celiac's, I also have colitis, leaky gut, and a hiatial hernia. The holes in my intestines were leaking in to my body and causing the severe illness and chills. Now 2 years later, my intestines have healed and I no longer get the extreme illness I was getting 2 years ago. But my diet consists of grass fed meats and veggies grown by the Amish. I do not go to grocery stores.

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I had extreme chills with vomiting last time I was  glutened. It was horrible. I thought my bones would break.

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I've been cold intolerant all of my life and it has improved since becoming gluten free. I have to take hot showers to raise my core temperature to stop shivering. I was following Ratso Rizzo's ("Midnight Cowboy") advice when I moved to Florida.

2 hours ago, Kurasz said:

I also have colitis, leaky gut, and a hiatial hernia. The holes in my intestines were leaking in to my body and causing the severe illness and chills.

All, I believe are complications from eating wheat and gluten. My son was diagnosed Celiac in 1976. My father and brother died after intestinal surgery; failure to heal due to leaky gut. They said dad's intestine was like lace, sutures wouldn't heal. Both cause of deaths were officially listed as heart failure. I have an umbilical hernia that I got one night watching TV in bed while bloated and I coughed. A small balloon popped out of my belly button! That is when I stopped being in denial. 

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    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
    2. Tani T, Sakai Y. Stuttering after right cerebellar infarction: a case study. J Fluency Disord. 2010 Jun;35(2):141-5. Epub 2010 Mar 15.
    3. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
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    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
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      Other thoughts, are you consuming a lot of fruits, juices, taking vitamin C. Frequent bowl movements could also be your getting your upward threshold of vitamin C. You could be getting more fiber then your used to.

      Or you could be getting a light gluten exposure from a condiment jar/butter tub with crumbs, or a pan with scratches you did not throw out. Ate outside your own house? Do check the newbie 101 thread to see if you missed anything.

      Any other information you can tell us? Like what you eat, Do you see pieces of undigested food? This could be a enzyme issue or a gut biome issue.
       
    • Sure.  That could be normal for you.  2 months isn't that long to heal and get everything regulated.   It may be different 2 months from now.
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