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Megan16

reactions to coffee or coffee based drinks??

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Does anyone ever have any kind of reactions from coffee, or coffee flavored drinks? I've found myself having issues with them, I tried a iced caramel mocha from Kwik Trip and threw up after having a little bit and from what I read on their website they should be gluten free. I also have tried Bolthouse Farms Mocha Cappuccino which is also Gluten free/no preservatives added/no artificial colors or flavors. I don't think it has anything to do with dairy as I don't seem to have reactions to anything else dairy. Anyone have any ideas as to what this could be? Open to any idea or any other suggestions.

Thanks!

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5 minutes ago, Megan16 said:

Does anyone ever have any kind of reactions from coffee, or coffee flavored drinks? I've found myself having issues with them, I tried a iced caramel mocha from Kwik Trip and threw up after having a little bit and from what I read on their website they should be gluten free. I also have tried Bolthouse Farms Mocha Cappuccino which is also Gluten free/no preservatives added/no artificial colors or flavors. I don't think it has anything to do with dairy as I don't seem to have reactions to anything else dairy. Anyone have any ideas as to what this could be? Open to any idea or any other suggestions.

Thanks!

The caffeine in the coffee flavored drinks acts as a stimulant which means it sets the body into a "hyper" mode.  This is why it's so effective for staying awake when you are tired.  I know for me if I have too much of it at one time, I start to get really jittery.  I completely cut off any coffee or caffeine when I went off gluten because the caffeine content was a trigger for the episodes.

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9 minutes ago, Peacenik said:

I saw coffee on one of those sites that lists things people are cross reactive too. I've cut out all coffee and started feeling better immediately. 

Sorry.  there is no scientific evidence for cross-reactive to gluten foods.  There may be a real reason you are feeling better off of coffee, but coffee does not cause a Celiac immune response.

 

http://www.cureceliacdisease.org/faq/whats-with-all-the-talk-about-certain-types-of-food-causing-cross-reactivity/

"There is not yet reliable data about cross-reactivity. As for the alleged possibility that many gluten-free foods or drinks (such as coffee, milk, orange juice, etc.) would trigger symptoms in celiac individuals due to hidden antigens mimicking gluten or cross-reacting with anti-gluten antibodies, it must be clearly stated that this is all false information, devoid of any scientific basis, and must be rejected as untrue."

Edited by kareng

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2 hours ago, cstark said:

The caffeine in the coffee flavored drinks acts as a stimulant which means it sets the body into a "hyper" mode.  This is why it's so effective for staying awake when you are tired.  I know for me if I have too much of it at one time, I start to get really jittery.  I completely cut off any coffee or caffeine when I went off gluten because the caffeine content was a trigger for the episodes.

yeah, I use to never have any reactions to caffeine, until I became gluten intolerant about 4 months ago. I never even got jittery or anything from it, ever!  Maybe that's whats happening to me is its just triggering something. Just weird that it would do that, I wonder what it is in coffee/caffeine that would trigger something?

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9 minutes ago, Megan16 said:

yeah, I use to never have any reactions to caffeine, until I became gluten intolerant about 4 months ago. I never even got jittery or anything from it, ever!  Maybe that's whats happening to me is its just triggering something. Just weird that it would do that, I wonder what it is in coffee/caffeine that would trigger something??  

Have you tried plain coffee?  Both of those choices have a lot of extra "stuff".  Maybe it isn't even coffee?

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51 minutes ago, Megan16 said:

yeah, I use to never have any reactions to caffeine, until I became gluten intolerant about 4 months ago. I never even got jittery or anything from it, ever!  Maybe that's whats happening to me is its just triggering something. Just weird that it would do that, I wonder what it is in coffee/caffeine that would trigger something?

It isn't the coffee that is the trigger, it's the caffeine because it is a stimulant.  it's just like when a car reves up, everything in the engine goes faster.  It's the same concept. With a stimulant in the body, the body works faster and thus whatever is causing a reaction in the body, like gluten, comes on faster and symptoms can seem more severe.

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here is an interesting tid-bit:  some coffee bean farms shake their beans in flour to prevent them from sticking.  i had to call every coffee company i used and asked them about the early production stages and learned that this is a common practice.  after they dust the beans and get them through the processing belt they are supposed to be rinsed off before being ground into powder or packaged whole.  the rinsing process does not always remove every trace of gluten.  not every coffee farm uses wheat flour, but it is a good idea to make some calls if some coffee makes you sick but not all coffee.  the rest of the responses are also correct.  it could be the caffeine.  also, if you are newly diagnosed coffee can do a real number on the stomach.  hope you feel better.  matcha tea can be a good replacement for coffee, but i am not sure if they have caffeine free flavors.  i also enjoy heating up a cup of plain green tea and adding a teaspoon of hot chocolate mix.  again, caffeine.  maybe i am not the best for finding a coffee replacement, lol.  sorry about that.

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4 minutes ago, pipermarau said:

here is an interesting tid-bit:  some coffee bean farms shake their beans in flour to prevent them from sticking.  i had to call every coffee company i used and asked them about the early production stages and learned that this is a common practice.  after they dust the beans and get them through the processing belt they are supposed to be rinsed off before being ground into powder or packaged whole.  the rinsing process does not always remove every trace of gluten.  not every coffee farm uses wheat flour, but it is a good idea to make some calls if some coffee makes you sick but not all coffee.  the rest of the responses are also correct.  it could be the caffeine.  also, if you are newly diagnosed coffee can do a real number on the stomach.  hope you feel better.  matcha tea can be a good replacement for coffee, but i am not sure if they have caffeine free flavors.  i also enjoy heating up a cup of plain green tea and adding a teaspoon of hot chocolate mix.  again, caffeine.  maybe i am not the best for finding a coffee replacement, lol.  sorry about that.

That's a new one to me.....  I would think wheat flour, imported into their country,  would be too expensive for this use.

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1 minute ago, kareng said:

That's a new one to me.....  I would think wheat flour, imported into their country,  would be too expensive for this use.

i thought it was very strange, honestly.  ok, i just spent a few minutes trying to find the articles i found back when i went gluten free, but all i'm really getting are the cross reaction articles.  ok, from what i found out, this wheat dusting only happens with certain companies.  i did not keep the list.  for that i am very sorry because it is useful information.  some of the coffee-gluten issues come from a shared facility while others flat out use wheat flour to prevent the beans from clumping on the belt.  they did not give me a reason why and i remember i was using folger's, tried starbucks home blends, and nestle.  i remember nestle DID have cross contamination issues as well as certain starbuck's blends that were harvested in certain regions.  they may have changed their practices, which is why i suggest calling them and asking if wheat is involved at any point of processing.  aside from obviously glutened flavored blends, the results varied.  i remember also having to call wine companies because i was getting sick and of all things one of my favorite companies told me they dust wheat on the corks!!  of course i asked why do that, won't it dry out the cork?  they said it was to prevent mold and that only certain wines from their line get dusted corks and they could not confirm if any of their products were gluten free because of it.  now i'll only drink wine if it comes with a screw on cap.  

 

the information about the coffee and the wine was given to me directly from customer service and i do not believe they had any reason to lie to me, since i was asking a health question.  i was advised to avoid some companies because they were not certain which products were safe and which were CC or fully glutened.  it has been a few years and things might have changed with society becoming more aware of our need for gluten free products and some companies are answering our pleas to swap out the wheat gluten with something safe for a thickening/sticky agent.  

 

wheat on coffee beans...i know.  twilight zoneish.  i'm sorry i can't be more helpful.  i made those calls a little over 4 years ago.

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39 minutes ago, pipermarau said:

i thought it was very strange, honestly.  ok, i just spent a few minutes trying to find the articles i found back when i went gluten free, but all i'm really getting are the cross reaction articles.  ok, from what i found out, this wheat dusting only happens with certain companies.  i did not keep the list.  for that i am very sorry because it is useful information.  some of the coffee-gluten issues come from a shared facility while others flat out use wheat flour to prevent the beans from clumping on the belt.  they did not give me a reason why and i remember i was using folger's, tried starbucks home blends, and nestle.  i remember nestle DID have cross contamination issues as well as certain starbuck's blends that were harvested in certain regions.  they may have changed their practices, which is why i suggest calling them and asking if wheat is involved at any point of processing.  aside from obviously glutened flavored blends, the results varied.  i remember also having to call wine companies because i was getting sick and of all things one of my favorite companies told me they dust wheat on the corks!!  of course i asked why do that, won't it dry out the cork?  they said it was to prevent mold and that only certain wines from their line get dusted corks and they could not confirm if any of their products were gluten free because of it.  now i'll only drink wine if it comes with a screw on cap.  

 

the information about the coffee and the wine was given to me directly from customer service and i do not believe they had any reason to lie to me, since i was asking a health question.  i was advised to avoid some companies because they were not certain which products were safe and which were CC or fully glutened.  it has been a few years and things might have changed with society becoming more aware of our need for gluten free products and some companies are answering our pleas to swap out the wheat gluten with something safe for a thickening/sticky agent.  

 

wheat on coffee beans...i know.  twilight zoneish.  i'm sorry i can't be more helpful.  i made those calls a little over 4 years ago.

I am not sure why they would use wheat flour.  When damp, wheat flour quickly clumps up and gets sticky.  

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4 hours ago, Megan16 said:

yeah, I use to never have any reactions to caffeine, until I became gluten intolerant about 4 months ago. I never even got jittery or anything from it, ever!  Maybe that's whats happening to me is its just triggering something. Just weird that it would do that, I wonder what it is in coffee/caffeine that would trigger something?

maybe your gut is absorbing the caffeine more, now that you're gluten-free and healing.

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4 hours ago, pipermarau said:

i thought it was very strange, honestly.  ok, i just spent a few minutes trying to find the articles i found back when i went gluten free, but all i'm really getting are the cross reaction articles.  ok, from what i found out, this wheat dusting only happens with certain companies.  i did not keep the list.  for that i am very sorry because it is useful information.  some of the coffee-gluten issues come from a shared facility while others flat out use wheat flour to prevent the beans from clumping on the belt.  they did not give me a reason why and i remember i was using folger's, tried starbucks home blends, and nestle.  i remember nestle DID have cross contamination issues as well as certain starbuck's blends that were harvested in certain regions.  they may have changed their practices, which is why i suggest calling them and asking if wheat is involved at any point of processing.  aside from obviously glutened flavored blends, the results varied.  i remember also having to call wine companies because i was getting sick and of all things one of my favorite companies told me they dust wheat on the corks!!  of course i asked why do that, won't it dry out the cork?  they said it was to prevent mold and that only certain wines from their line get dusted corks and they could not confirm if any of their products were gluten free because of it.  now i'll only drink wine if it comes with a screw on cap.  

 

the information about the coffee and the wine was given to me directly from customer service and i do not believe they had any reason to lie to me, since i was asking a health question.  i was advised to avoid some companies because they were not certain which products were safe and which were CC or fully glutened.  it has been a few years and things might have changed with society becoming more aware of our need for gluten free products and some companies are answering our pleas to swap out the wheat gluten with something safe for a thickening/sticky agent.  

 

wheat on coffee beans...i know.  twilight zoneish.  i'm sorry i can't be more helpful.  i made those calls a little over 4 years ago.

 

4 hours ago, pipermarau said:

i thought it was very strange, honestly.  ok, i just spent a few minutes trying to find the articles i found back when i went gluten free, but all i'm really getting are the cross reaction articles.  ok, from what i found out, this wheat dusting only happens with certain companies.  i did not keep the list.  for that i am very sorry because it is useful information.  some of the coffee-gluten issues come from a shared facility while others flat out use wheat flour to prevent the beans from clumping on the belt.  they did not give me a reason why and i remember i was using folger's, tried starbucks home blends, and nestle.  i remember nestle DID have cross contamination issues as well as certain starbuck's blends that were harvested in certain regions.  they may have changed their practices, which is why i suggest calling them and asking if wheat is involved at any point of processing.  aside from obviously glutened flavored blends, the results varied.  i remember also having to call wine companies because i was getting sick and of all things one of my favorite companies told me they dust wheat on the corks!!  of course i asked why do that, won't it dry out the cork?  they said it was to prevent mold and that only certain wines from their line get dusted corks and they could not confirm if any of their products were gluten free because of it.  now i'll only drink wine if it comes with a screw on cap.  

 

the information about the coffee and the wine was given to me directly from customer service and i do not believe they had any reason to lie to me, since i was asking a health question.  i was advised to avoid some companies because they were not certain which products were safe and which were CC or fully glutened.  it has been a few years and things might have changed with society becoming more aware of our need for gluten free products and some companies are answering our pleas to swap out the wheat gluten with something safe for a thickening/sticky agent.  

 

wheat on coffee beans...i know.  twilight zoneish.  i'm sorry i can't be more helpful.  i made those calls a little over 4 years ago.

Both the statement about the wheat flour on the coffee beans and the wine corks being dusted with wheat are ridiculous, absurd & completely false. More likely this all came from the endless internet myths of where gluten lurks. 

Firstly, wheat is one of the top 8 allergens & would, by law, be required to be listed in the ingredients list.

I personally find it impossible to believe that you called companies & they told you these things. Maybe you dreamed you made these calls. Maybe you had extreme brain fog from being glutened. Maybe you got the idea from reading this:

Perhaps all this came about from someone getting their facts wrong because someone told someone who told someone, who told someone else that there was coffee flour and as the truth became a rumor & got passed along it morphed into something totally different then the original statement. You see, there is such a thing as coffee flour but it has noting to do with wheat and everything to do with coffee fruits. Read about it here:

http://www.coffeeflour.com

 

So that puts that gluten myth to rest. 

Now for the wine cork myth.....

It's quite possible the gluten in wine myth came from here:

Now let's go a little further smashing that myth. 

http://gfreefoodie.com/2011/05/29/is-wine-gluten-free-the-answer-from-a-gluten-free-wine-drinking-foodie/

 

@Megan16 

As was mentioned in the "wheat on coffee beans" thread, it's possible your problem with coffee is the acid content. 

 

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I have to agree.  It does all seem a bit unlikely.  Wheat flour would be very expensive to waste in these countries.  And it really wouldn't keep them from sticking or growing mold as it gets sticky with moisture.  

 

I would think that that some of the Celiac organizations would warn us.  I think it's likely these companiy service reps didn't understand the question.

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6 hours ago, squirmingitch said:

 

Both the statement about the wheat flour on the coffee beans and the wine corks being dusted with wheat are ridiculous, absurd & completely false. More likely this all came from the endless internet myths of where gluten lurks. 

Firstly, wheat is one of the top 8 allergens & would, by law, be required to be listed in the ingredients list.

I personally find it impossible to believe that you called companies & they told you these things. Maybe you dreamed you made these calls. Maybe you had extreme brain fog from being glutened. Maybe you got the idea from reading this:

Perhaps all this came about from someone getting their facts wrong because someone told someone who told someone, who told someone else that there was coffee flour and as the truth became a rumor & got passed along it morphed into something totally different then the original statement. You see, there is such a thing as coffee flour but it has noting to do with wheat and everything to do with coffee fruits. Read about it here:

http://www.coffeeflour.com

 

So that puts that gluten myth to rest. 

Now for the wine cork myth.....

It's quite possible the gluten in wine myth came from here:

Now let's go a little further smashing that myth. 

http://gfreefoodie.com/2011/05/29/is-wine-gluten-free-the-answer-from-a-gluten-free-wine-drinking-foodie/

 

@Megan16 

As was mentioned in the "wheat on coffee beans" thread, it's possible your problem with coffee is the acid content. 

 

all of that was plain rude.  if the representatives i spoke to had no idea what was going on then that would be the only reason they would say something like that.  as far as i knew i was getting accurate information.  why would i even share something that i didn't think was true or had been told?  this isn't the first time i've been met with "smug" on this site.  GOODBYE.  i'm deleting my profile.  

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I use Cameron's Coffee. They are a Gluten Free company. Make sure to look for that on companies products and websites. (Which you did) If you're reacting to a product that says Gluten Free then it was probably cross contaminated, dairy affects you, or the caffeine. I am actually limiting my caffeine now because of a caffeine overdose. I also do not have dairy. Good luck! :)

Edited by dustinhxc

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