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mirror~pool

loose diagnosis, pls check out my labs

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First post!  I received my “diagnosis” a couple days ago after feeling horrible everyday for the past 20 years.  I don’t really have any digestive issues, so everyone (including drs) have acted like it is all in my head.  I so badly want to list all my symptoms because I think I would have an understanding audience here, but I’m sure you all get that all the time.

I went to a new doctor last week thinking it was probably lupus (I have all the symptoms plus the butterfly rash) or at the worst MS.  I wasn’t going to let them dismiss me this time.  I finally had someone who really listened to me, took the printout I made of the long list symptoms seriously (I did omit the fact that I have anxiety as I have felt like that has led to the dismissal of my concerns in the past).  

Despite the lack of digestive issues she threw in a celiac panel.  She thinks it is “highly suspicious” that I have it but does not think I need the biopsy, just gluten free from now on.  With what many think is the “trendiness” of gluten free now, I would like to be able to counter the eye rolls with being able to honestly say that I have Celiac Disease.   I get a lot of conflicting info online.  Biopsy being the only way to diagnose vs blood tests have come a long way and biopsy may not be necessary.  

I can’t find any info online as to what is considered a near absolute (or super high levels) when it comes to blood work, can you guys take a look at my labs and give me your opinion?  I feel like establishing a relationship with a gastroenterologist before I go off of gluten might be a good idea, but a biopsy will cost me $700 at minimum (potentially thousands more) with my lousy insurance.   

Do I definitely have it or should I get a biopsy? 

 

                                             Value           Std Range

IGA Serum                            397             70-310

 

Anti Gliandin

Ab, IgA                                  77                  0-19

 

Tissue

Transglutaminase

IgA                                         95                  0-19

 

Anti Gliadin

Ab, IgG                                  83                  0-19

 

Tissue 

Transglutaminase

IgG                                        22                   0-19

 

(Also, I see TTG referenced a lot.  Does that refer to any of these tests?)

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Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Welcome to the board. With numbers that high and positive in all tests there really is no doubt you have celiac.

Do read the Newbie thread at the top of the coping section as it will have lots of good info for you. I hope you heal quickly but do know that with nervous system impact (your MS type symptoms) healing can take some time..


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Is your doctor willing to give you an official dx of celiac based on your labs without getting an endoscopy? If so, then by all means, forget the biopsies.

I agree that you are celiac. Geez, any idiot could see that with your blood panel results.


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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Hi,

ttg is just an abbreviation for Tissue Transglutaminase IgG or IgA.


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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I'm from Canada and whenever I see a doctor I'm asked if I had the biopsy. It seems it's not believed a person really has celiac with just blood work. It makes me thankful I had the biopsy- but every situation is different. 

Long term with all the other health problems I've been having and the specialists I've had to see- I'm grateful my diagnose isn't constantly questioned 

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