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kkgirl

Canker sores

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So before going gluten free, I would get canker sores all the time as a kid.. I then became sick by vomiting and diahrrea and stomach bloating. So I went to the doctor and they told me 2 try a gluten free diet for 3 months. I got better and sores went away and all. They told me to stay on the diet. So I did and a yr and a half later they decided to blood test me for celiac but it was negative... well this yr iv been having problems with dairy and fructose but the intolerant test for fructose was negative but i was super sick during that 25mg fructose test.. anyway the doctors did a endoscopy on me and colonoscopy to see what's going on..the endoscopy showed I had decreased folds but the biopsy showed my vili were fine. But then again iv been gluten free for 6 yrs now....

 

 

I actually went out to a reastront for the first time last Friday and in the middle of my dinner I had to rush to the bathroom because I was sick.. well the next day I woke up with sores all over in my mouth.(some of the sores in pic)  anyways I'm curious to know if gluten intolerance or celiac causes these sores. 

 

My gi doctor said she thinks I have celiac but with my vili being fine she's not sure... my dietition said if she had to bet she would that if I was tested right off the beginning It all would have been positive 

 

Anyways That was a story about me my question is do any of you get these from gluten 

 

 

I took these pictures to show my gi doctor when I go in the 5th to talk to be and touch bases since all my exams.and tests iv had have been negative of why Dairy and fructose are issues and some other things we can't figure out what... 

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Edited by kkgirl
More info of why I took the pics in first place

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Get another doctor?  After 6 years gluten-free, your villi should be fine!  If they don't understand that basic piece of info about Celiac, they shouldn't be treating patients .  

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kkgirl,

This is a two part answer I say you had asked in another thread about decreased folds.

cycyclinglady commented that duodenal folds where a sign of possible "silent" celiac (my term) before villious atrophy showed up.

don't trust dr. google for a dignosis but it can be helpful to guide you in the right direction. 

So i was curious what did medical journals say about decreased folding and there it was in two or three journals and it wasn't recent research either.

This research is 15 or 20 years old and we still wait on villious atrophy for a "biopsy proven" diagnosis.

I sight this source because it mentions different things that does not cause reduced villi height or or affect folds.  Lactose does not cause it nor do parasites.  It seem to be closely related to gluten.

https://www.researchgate.net/publication/21586339_The_endoscopic_appearance_of_duodenal_folds_is_predictive_of_untreated_adult_celiac_disease

there is a an even earlier citation from the New England Journal of Medicine.

With decreased folds the villi is being affected.  But now that you have a positive antibody test you know now that . . .. but gluten just hasn't destroyed the villi yet.

I wouldn't wait till it does.  You say you responded well to a gluten free diet why chance it.

as for the mouth uclers I've had this happen several times and almost none since I went 100% gluten free if you will take the amino acid lysine in a about a week of less of taking lysine your sores will go into remission.

It is known as oral thrush.

If you can stand it.  using salt water (though it will sting horribly for a few minutes) it can help healing of the sores. swill it around your mouth.  Don't drink it and spit it out can help the healing process.

I used to have them so bad my mouth would drool with salivia trying to soothe my aching mouth and eating can be horrible especially if it (sore) is in a sensitive point on the tongue.

But lysine always got rid of it 1000mg two or three times daily and 3or 4 days they went away.

I hope this is helpful.

posterboy,

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Posterboy, canker sores and oral thrush are NOT the same thing.

Kkgirl, good luck with your doctor's appointment, those look painful.

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3 hours ago, Posterboy said:

kkgirl,

This is a two part answer I say you had asked in another thread about decreased folds.

cycyclinglady commented that duodenal folds where a sign of possible "silent" celiac (my term) before villious atrophy showed up.

don't trust dr. google for a dignosis but it can be helpful to guide you in the right direction. 

So i was curious what did medical journals say about decreased folding and there it was in two or three journals and it wasn't recent research either.

This research is 15 or 20 years old and we still wait on villious atrophy for a "biopsy proven" diagnosis.

I sight this source because it mentions different things that does not cause reduced villi height or or affect folds.  Lactose does not cause it nor do parasites.  It seem to be closely related to gluten.

https://www.researchgate.net/publication/21586339_The_endoscopic_appearance_of_duodenal_folds_is_predictive_of_untreated_adult_celiac_disease

there is a an even earlier citation from the New England Journal of Medicine.

With decreased folds the villi is being affected.  But now that you have a positive antibody test you know now that . . .. but gluten just hasn't destroyed the villi yet.

I wouldn't wait till it does.  You say you responded well to a gluten free diet why chance it.

as for the mouth uclers I've had this happen several times and almost none since I went 100% gluten free if you will take the amino acid lysine in a about a week of less of taking lysine your sores will go into remission.

It is known as oral thrush.

If you can stand it.  using salt water (though it will sting horribly for a few minutes) it can help healing of the sores. swill it around your mouth.  Don't drink it and spit it out can help the healing process.

I used to have them so bad my mouth would drool with salivia trying to soothe my aching mouth and eating can be horrible especially if it (sore) is in a sensitive point on the tongue.

But lysine always got rid of it 1000mg two or three times daily and 3or 4 days they went away.

I hope this is helpful.

posterboy,

Yeah the decreased folds are in the 2nd part of duodenum mostly. Who knows about that. It is what it is...  and as far as these sores go I'll try lysine. This is just some of the sores in have them all over in my mouth.. it's from yeast? 

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25 minutes ago, RMJ said:

Posterboy, canker sores and oral thrush are NOT the same thing.

Kkgirl, good luck with your doctor's appointment, those look painful.

And thanks so much. I'm hoping to get to bottom of everything.. and they are painful. This is just some of them. 

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Another thought.

I had two similar episodes of terrible canker sores a few years apart.  They came on really quickly and both times I discovered I had them because when I was eating it felt like there was glass in my marmalade!

Both episodes occurred before my celiac diagnosis and I just have a feeling it was also to do with anemia.  My B12 was very low at diagnosis and I had iron anemia too.  

There are quite a lot of articles on the web about it - here's just one of them.

https://www.theguardian.com/theobserver/2001/jun/17/life1.lifemagazine5

I hope that you find your answers but might be worth getting your levels of B12 and iron checked and if required, supplement.

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