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egs1707

How quickly can you feel "glutened" \ all in the mind?

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Here's an interesting question for you all, is it actually physically possible to feel "glutened" within 30 seconds of eating a contaminated \ gluten containing food or beverage?

Since I've had to go on this irritatingly paranoid diet I seem to get really anxious if there's any doubt on the product, which pretty much means anything that doesn't scan on the Celiac apps with a nice happy face saying it's certified gluten-free. For example a jacket potato that came with its own separate wrapped butter or a cheese that doesn't appear in any of the lists but still only has milk listed as the only possible allergen. 

I almost seem to convince myself it's bad as I take the first bite and immediately start feeling really sensitive for any body changes that could be a sign. So my muscles start to feel that bit more sore, my head feels that bit tighter and so on. Now I've read some people saying they can feel symptoms within 20 minutes but not read any saying 20 seconds... is it anxiety instead and there's nothing physical happening aside from what I'm imagining and thus making happen?

Right now everything seems a threat and it's driving me nuts, thoughts? :huh:

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My bet as a non-medical person, is that you are suffering from anxiety.  Bet your antibodies are still elevated.  You might be one of the many celiacs who takes a year or more for antibodies to come down.  Do you have a six month check-up scheduled with your GI to be tested for antibodies and deficiencies?  This helps to determine of you are adhering to the gluten-free diet.  

As a Newbie, i would stick to foods you make yourself.  Buy a potato and bake it yourself.  Reduces the risk tremendously.  Learn to use your noodle (brain) and rely less on an App.  Geez, what if some hacker is into harming celiacs?  ?

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I'm having running battles with my hopeless NHS doctors as I can't pay for all the tests privately, they don't want to run any further tests or do basically anything apart from fob me off (formal complaint heading their way soon). As for the potato it was a social event and only came about because despite pre-planning a certified gluten-free meal the place sold it to someone else before I got there (!) 

Private check up is 3 months time, right now I can't quite tell if I'm on the right track or not. Being told I am but then an unpredictable situation crops up (that's life) and it gets a lot harder to stay in 100% control so it's either withdraw or take a calculated risk and that's where the 30 second thing comes in.

Edit: forgot to mention I've had a bit of a cold bug in the last week or so, one of those that doesn't fully come out but feel it in the sinuses, throat etc. Any chance the heightened antibodies make a similar reaction fighting the bug and it wasn't the food at all?

I bet you could make the safest gluten-free meal going but if I didn't know that I'd be able to set off these physical sensations. So many unknowns, plus the fact the effects aren't necessarily immediate do get to me. Basically every movement outside the bubble feels like it's going to "get" me. Even my private doctor said to be less paranoid about things but then I read threads on here and it seems there's a whole other level of strictness I can't even imagine adhering to as it involves almost withdrawing from society to be "safe"

I can't go a year not ever eating anything that doesn't come from home. Would have to end up a hermit to do that which is no kind of life at all. 

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If I eat something with gluten I will feel it in a few minutes, not seconds. I have also reacted to foods labeled gluten-free, like Cheerios, for example. Anxiety is a pain in the neck, and it can make you paranoid about everything. My advice is 'if in doubt, don't'. It isn't worth the resulting affects. I don't eat out as much anymore and have learned to rely on my own cooking. When I was first diagnosed I printed the celiac.com safe and unsafe ingredients lists and used it at the grocery store. I also have learned which brands are good and which are not. Makes life a bit easier.

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15 minutes ago, Cheayala said:

" the glutenIf I eat something with gluten I will feel it in a few minutes, not seconds. I have also reacted to foods labeled gluten-free, like Cheerios, for example. Anxiety is a pain in the neck, and it can make you paranoid about everything. My advice is 'if in doubt, don't'. It isn't worth the resulting affects. I don't eat out as much anymore and have learned to rely on my own cooking. When I was first diagnosed I printed the celiac.com safe and unsafe ingredients lists and used it at the grocery store. I also have learned which brands are good and which are not. Makes life a bit easier.

Cheerios might be because they have had some issues with "removing" the gluten

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51 minutes ago, egs1707 said:

Here's an interesting question for you all, is it actually physically possible to feel "glutened" within 30 seconds of eating a contaminated \ gluten containing food or beverage?

Since I've had to go on this irritatingly paranoid diet I seem to get really anxious if there's any doubt on the product, which pretty much means anything that doesn't scan on the Celiac apps with a nice happy face saying it's certified gluten-free. For example a jacket potato that came with its own separate wrapped butter or a cheese that doesn't appear in any of the lists but still only has milk listed as the only possible allergen. 

I almost seem to convince myself it's bad as I take the first bite and immediately start feeling really sensitive for any body changes that could be a sign. So my muscles start to feel that bit more sore, my head feels that bit tighter and so on. Now I've read some people saying they can feel symptoms within 20 minutes but not read any saying 20 seconds... is it anxiety instead and there's nothing physical happening aside from what I'm imagining and thus making happen?

Right now everything seems a threat and it's driving me nuts, thoughts? :huh:

I would say "no".  It has to get to your small intestines, be recognized as an invader, an immune response has to start damaging your small intestine.  It takes a while to get out of your stomach.

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Depending on form in which the gluten is in and how it is processed I can feel it within a few mins sometimes with a initial tightening under my neck/throat area. The real gut pain hits a bit later normally along with the fog, this can range from 10-60mins later before I hit the floor. I hate when you get poisoned by something random, and you have to track down which ingredient it was -_- . Heck last two times I got a minor poisoning where from a cigar, and some odd reason a batch of fresh romaine lettuce (I assume this was due to it being in the bulk bins 15' from the bakery at the store I got it from).

As to cheerios....last tried it I think last February....got sicker then a dog and tossed it. If you want "O" shaped cereal I have gotten a box of Vans for a friend spending a week and tried a few without any ill effects.

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1 hour ago, Cheayala said:

I don't eat out as much anymore and have learned to rely on my own cooking. 

To maintain some form of social life eating out has to be on the menu at various points (excuse the pun) especially with a fair few offering gluten-free menus.

Granted if there's any way to avoid food I'll definitely do it to avoid having to "out" myself (personally I find the celiac label a mark of shame but that's another thread in itself) but there will be times there's no way around it.

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7 minutes ago, egs1707 said:

To maintain some form of social life eating out has to be on the menu at various points (excuse the pun) especially with a fair few offering gluten-free menus.

Granted if there's any way to avoid food I'll definitely do it to avoid having to "out" myself (personally I find the celiac label a mark of shame but that's another thread in itself) but there will be times there's no way around it.

I make my own food pack it in disposable take out containers (have bought these in bulk) and go out to eat with family and friends sometimes, I explain to the restaurant before hand and bring it with me, and normally order a drink and sometimes a side. This is a sad and odd thing to do but it allows me to go out and feel like a normal person and interact with people at times. Just explain it to the manager before hand and give a decent tip if they allow it and treat you good.

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Hi I bloat in 35-45 minutes physically from consumption in the area of the upper small intestine. I have been told that an item was gluten-free chewed a few bites and tasted wheat flour too late clock starts ticking. I then know I'm in for it.  Wheat is the worst. Barley I can sometimes  detect palate wise and still bloat but not as pronounced. Rye in between. To me this logically makes sense because prior to being gluten-free my gluten foods would have been in descending order wheat, rye, barley. Wheat in everything, my family as a kid regularly had rye bread in home, don't recall my mom using barley in much but soup/stew. The difference is looking 5 months pregnant vs. Just showing 3 months. Any bloat caused 4 plus years of embarrassment and congratulations on non existent pregnancy until I cut gluten out. 

I don't notice earlier symptoms my body has to start stomach/duodenum portion of digestion for my bloat. I don't immediately know unless  I taste the wheat. I do get shortness of breath and knot in throat but being I was formerly told that was another issue prior to knowing I had gluten issues it's one I dismiss as not relating to gluten exposure. Now that my entire home is completely gluten-free in 2016 and I am currently damaged with multiple intolerance s, airborne gluten can cause shortness of breath without consumption. 

 

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I start showing symptoms within the hour of ingesting gluten.  Usually it is in the form of brain fog or every system in my body slows down to a crawl.  It is only then a matter of time if I don't get to the Frankincense in time.  I do agree with the other posts that it could very well be anxiety related that you start to "react" within 30 secs. It's a very real thing, I understand.  It's kind of like a placebo effect.  If I concentrate or worry about getting sick, I sometimes "trick" my body into getting or feeling sick.

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7 hours ago, deb_rn said:

Explain the Frankincense please!

 

Debbie

 

4 hours ago, MissyBB said:

Yes, please explain! What does that mean?

It's one of those " essential oils" with mythical properties.  Lol

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