dAPSONE

[razzle5150 0]

iS THERE anybody on here that has taken dapsone and really got better with no side effects...please let me know as my dr wants to raise dosage and I am allergic to sulfa

[susan french 0]

I tried Dapsone when first diagnosed with DH, but I broke out in a rash.  I also can't take sulfa and since this is like artificial sulfa, I couldn't use it.  When I was completely gluten free, the blisters went away, but the skin itching and small bumps continue, and have for 7 years.  I'm a diabetic so prednisone is no good.  I take hydroxyzine, doxepin, and a 5 mg of Xanax, all at bedtime to alleviate the itching.  Also use Clobetesol cream on troubling areas.  Clobetesol is expensive so sometimes I just use benedryl spray and cream.  I don't think the itching will ever completely go away.  But I am gluten free.