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Gerald

Please Help ... night sweats, diet, sore throat,coffee enemas, gallbladder and liver problems, GERD etc

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Hello guys this is my first post forgive the long post but my situation is complicated.

I just got out of bed as I had to cause of Night Sweats, I hate them, I did go with my wife and kids to the centre of town (London) to see a chinese TCM doc and so we went to China town to a restaurant, its been cold also and the stress of the kids having tantrums I think sent me overboard. I must say though for 3 nights have had terrible night sweats BUT the previous 3 days I ate wheat and dairy which I usually avoid, I had ricotta cheese and Italian wheat bread, gluten free lasagna but has cheese/ and my wife made chinese food with soy sauce, chinese restaurant food. My symptoms are sneezing, roof of the mouth hurts and when I sneeze its as if Ive just torn a layer of skin or something from the roof of the mouth, night sweats, mucus in the mornings.

I suppose the stress I have in my life doesnt help, Im lowering my medication (Paxil) and hope to reduce and stop Prilosec also as I believe it maybe the reason I have a damaged intestine or leaky gut seeing as chronic low stomach acid could allow bad bacteria to migrate from the stomach to the duodenum etc, low stomach acid food arriving in the duodenum doesnt have the acid trigger that you need to send a message to the pancreas to digest the food and so partially digested food feeds the bad bacteria, right?

I also did coffee enemas for 9yrs daily an this may have damaged my duodenum/small intestine cause bile is released each time and bile is slightly corrosive? I stopped doing them now but not sure which diet to follow, Ive heard of FODMAPs diet, SCD (Specific Carbohydrate Diet), Mcdoughall high starch low fat/oil diet, Keto, low carb, Mediterranean.

Im confused which diet to follow cause I have a few issues, fatty liver, gallbladder polyps, GERD/Hiatal Hernia, depression/Anxiety all diagnosed but the leaky gut, or Gluten intolerance hasn't been diagnosed, maybe I should get an allaergy test, I think I'll test positive even for water at least it seems this way, that my body is becoming intolerant to many foods and the list seems like its growing.

I wasn't gluten intolerant from birth, this is what the Chinese doc said to me yesterday, she said I doubt if your Gluten problem started 4 yrs ago, usually people have it from birth, i thought what is she talking about, I', Italian and I ate mamas lasagna, spaghetti, bolognese, minestrone etc as Italians we ate a paste based meal everyday and this was for decades I ate wheat, I ate bread as well and processed foods, surely I would have known sooner and reacted sooner? I started reacting 4 yrs ago and intially was going nuts cause I thought I had dust allergy and thought |I was allergic to my home, to mold, insects, the air, I just didnt make the food connection, until I read about Gluten, then i started to avoid Gluten and started to eat Gluten free bread (took some getting used to), finally after 3 to 4 yrs some relief, now I cannot eat Gluten and even Dairy, sometimes I find sugar/stress and potato skins gives me auto immune problem symptoms like red hot ear (Relapsing polychondritis?)

This is just my intro I have written a longer letter to give to a doc, but not sure which doc could help me, I will send it in a few minutes once Ive finished it, the chinese doc I saw says we cannot shrink the polyp and is too expensive with her herbs but will try for a few weeks to see if I feel better, the reason why I like the chinese approach is that they treat you whole-istically cause I have too many things going on for a one size fits all approach, one remedy or diet may harm or worsen another problem that I have.

Thankyou guys for reading any help or advice will be much appreciated, thanks.

Gerald

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Here's a history of my problems

20yrs ago started taking Paxil and Prilosec for depression and
GERD/Hiatus Hernia

Round about the same time doc told me I have a benign condition 
called Gilberts Syndrome which means bilirubin levels are higher
than normal in liver function tests (sluggish phase two detox I 
think)

About 9 years ago started doing coffee enemas because I wanted to keep my liver 
clean cause of the years of taking the two medications and also
to speed up a sluggish liver (Gilberts)

About 4 years ago started become intolerant to Gluten/Dairy and 
sometimes Soy

Last year started having auto immune type symptoms when eating
potatoes with skin, sugar and stress - these gave me red ear burning
symptoms that burnt only the cartilage area and not the lobe which
resemble the autoimmune disease Relapsing PolyChondritis, I did read 
about a lady who reversed RP by adopting the Mcdougall diet (Vegan,
high starches diet and no fat/oil)

2 years ago was diagnosed with Cholesterolosis (gallbladder polyps)
after having pain in my liver area and righ shoulder blade, I was 
eating junk foods like potato chips (Crisps) chocolates but also 
healthy foods like salads, carbs, meat etc. Not exercising and having
lots of stress with my wife and the kids and my father with dementia,
having to deal and look after all of them, my wife seems to think
a man should be a man and just get on with his responsibilities, she
doesnt understand that I'm not response - able, or able to respond and this
creates even more stress for me and frustration/anger, I have felt
many times I want to walk away and never come back, my health is 
suffering and people seem only to care about their needs and not mine.

After the diagnosis I changed my diet and stopped eggs and used 
cholesterol reducing yoghurts (Benecol) and lecithin and tried to eat 
slightly healthier, I also stopped doing coffee enemas which I 
got addicted to doing longterm. 

8 months later I had another ultrasound (cause the polyps in the 
gallbladder can become malignant if they get to bigger than 1cm) 
I was then diagnosed with fatty liver, I thought what happened 
here??

Initially I thought that the enemas may have a negative affect on 
sludge/bile in the liver/gallbladder, but I always thought coffee enemas get rid of 
toxins directly into the colon, anyway this is why I stopped the 
enemas, but after 8months I get fatty liver disease, what the 
hell!!

So then I thought maybe my liver got so used to daily exporting of
bile by coffee enemas that when I stopped doing them then my liver
not only went back to being sluggish but slowed down even more, 
like what happens when you stop acid reflux meds and then you get
rebound acid, which is worse than the problem you initially took 
the meds for.

I did do some research and found that coffee does stimulate the 
liver AND gallbladder to get rid of bile and Italian scientists 
have found that fatty liver can be reversed in rats by using the 
equivalent of 4 cups of coffee per day. But coffee also irritates 
the intestines and that may not be good for the gallbladder RE:
damaged gut affects CKK messages to Gallbladder. (also coffee, 
chocolate etc weaken the L.E.S. so that doesnt help me fix my 
GERD problem)


I was thinking that the decades of taking Prilosec reduces stomach
acid and created a 'leaky gut' by first of all allowing bad 
bacteria to thrive and migrate to my duodenum/small intestine, 
also food arriving there won't have enough acid in order to 
trigger release of pancreatic enzymes to breakdown foodmatter 
(my point is the acid triggers the pancreas to release 
digestive enzymes to further breakdown food and so food in my small
intestine arrives undigested, ALSO the fact that I did all those 
enemas I thought that the barrier between the colon and small 
intestine there is a valve and this valve may have weakened due 
to the vacuum type action after thousands of evacuations 
(like having diaorreah for 9 years I suppose), thus bad bacteria 
could migrate into my small intestine? And the enemas releasing bile
into my intestine, this may have damaged the intestine as well.

I think my problems stem from GERD/Hiatus Hernia AND depression/Anxiety
and the medicine that Ive taken for these diseases, and so have to 
reduce these meds and fix the original problems and here is the 
problem, each disease can be fixed via low carb or high carb diet (many say online), 
it seems this way - depending on which website you read, or Guru, 'functional 
medicine' doc you happen to come across.

I tried tapering off the meds, what a mistake, I reduced both 
paxil and prilosec. Within a week I was nervous, angry, shouting, 
crying, and depressed and had constant duodenal ulcer like pains, 
after 3 weeks of hell went back on to normal dose for both meds 
and wait until I stabilised on those doses, i.e. let my ulcer 
and brain heal from the last taper attempt.

In the meantime I cleaned my diet and decided to reverse my fatty 
liver by doing the things that science has shown work, losing 
weight, exercising. Also adopting a mainly low carb diet using 
some Cocconut oil and other good fats like olive, avocado, flax. Some say
go vegan, high carb low fat some say do the Ketogenic diet, Ive 
done both, with the Keto I always have palpitations as I need 
some carbs (maybe electrolyte imbalance seeing as bananas seem to stop 
the palpitations), the high carb low fat I put on weight and after doing 
my own research feel that high carb will convert to fat in the 
liver, the liver seems to be great at doing this, The liver has the 
highest density of glycogen storage in the body, but once these 
stores are full, further excess dietary glucose leads to 
progressive hepatocyte triglyceride accumulation (fatty liver) 
via “ de novo lipogenesis”.

I want to via diet and supplements (and other) to fix my two main problems which 
Im taking meds for (anxiety/depression and GERD/Hiatal Hernia) but
now I have to deal with fatty liver and gallbladder polyps, its as
if my body warned me and then said okay I'll give you something 
else to think about now :/

By adopting a low carb diet I can get enough Tryptophan during the
day and in the evening have a carb meal like potato to release 
insulin so that Tryptohan which can't compete with other amino 
acids, will then be released and get into my brain thus effecting 
serotonin :)

Also I will make sure I get the nutrients that my liver needs in 
its phase I and II detox (my phase II is sluggish – Gilberts 
syndrome) also use choleretic and cholagogue foods which will aid 
in keeping liver and gallbladder functioning well and bile flowing,  
have stopped doing the enemas and use herbs and foods to do the things
that the enema did, coffee I can drink in small amounts maybe?, I 
use milk thistle/dandelion/artichoke and other herbs to keep those
organs healthy.
For my small intestine/duodenum 'leaky gut', obviously avoid gluten
/dairy/soy and sugar, take L-Glutamine to tighten the junctions in
my small intestines, (Quercetin also does the same), increase good
bacteria by taking 100 billion pro biotic supplement daily, 
sauerkraut and kefir?. I'm not sure if I may have S.I.B.O.
(Small Intestine Bacterial Overgrowth)

For my GERD/hiatal Hernia problem, I need to lose weight and get 
to my ideal weight so I started exercising daily by jogging for 25 minutes a day
and create a calorie controlled diet of about 800cal if its not 
too low, Dr Micheal Mosley showed how a man on 800cal reversed his
fatty liver in 2 months by slashing his weight.

Do you have any ideas on my plan on healing? Forgive the long 
letter.

I currently do IF (Intermitent Fasting) by reducing my feeding 
window to 6 hrs in the evening and then fasting for 18hrs, my plan
is to deplete Glycogen stores in the liver - liver fat gets used or burnt
up as fuel at approximately 15hrs in fasting state and then body goes into a 
state of autophagy, which may help 'munch' or shrink the polyps. I was thinking
in order to spped up Glycogen deletion I could jog in the morning and then use apple pectin
to absorb some the cholesterol released by fat burning, I have read beets are very good for this
and Fibre such as Psylium and vegetables of course.

I was wondering whether Serrapeptase or Selenium can help shrink the 
polyps?

Hiatus Hernia/GERD - I have done some research on healing GERD, 
from massaging the LES or pit of the stomach area downwards with 
my hands, drinking water early in the morning and jump up and down to bring
the hernia down, losing weight, squatting when going to toilet,
eating fibre to avoid constipation and avoiding any straining at stool
, abdominal breathing to bring down the diaphragm, not wearing tights 
belts, sleeping on an incline, I did also see a Brazilian study that showed
that Melatonin can tighten the LES sphincter muscle.

Depression/Anxiety - Stress reduction techniques like relaxation sessions, prayers,
Massage, meditation, self hypnosis, hot baths.

For both diseases vegans and low carbers have their various success stories
and studies to back up their claims, so diet wise is where Im stuck,
do I do a low carb diet with good fats or high carb - low fat diet?

Online you'll find stories where vegans will say they healed the very diseases
that I'm trying to heal, at the same time you'll also find paleo or low carbers
saying the same thing, one conclusion that Ive come up with without
rejecting the experience of any one camp, is that the danger is the combo
I mean the combination of FAT and CARB, if you avoid this combination
then the body can be healthy and heal ... Maybe? I suppose we are all different
and there is no size fits all diet, all the time.

Dr Mcdougal I like his work but annoyed when he refers to Gluten 
intolerance as a RARE problem cause he wants to push grains I assume, its just not true, 
I know many people who have problems with wheat and Gluten, I have lived in China 
on and off since 2000 and I hardly ever heard of allergies, they eat rice not so much wheat, 
Rye, possibly some barley, corn yes, but wheat is not that popular, Rice is of course. 
The methods of making more money by wheat growers may be a reason why wheat is worse
for us now (roundup) I don't know. His no oil/fat and high starchy veggies like potatoes, 
yam, breads, corn seems do'able but I found it gets boring after a while with no fat I 
suppose its a question of willpower, I found that with low carb diets and keto that my 
brain didnt like it, I would get palpitations in the evenings (maybe interferance with Paxil) 
maybe GABA is effected by carb intake or lack (maybe potassium issues), definately you need or I need carbs 
or I'll feel down, carbs raise insulin and allow Tryptophan to pass into the brain without 
competing with other amino acids hence it can effect serotonin production, 'without carbs 
people with depression/anxiety don't do well' (Neurologist Dr Amen) I have 
to agree from my own experience. So I thought I'll do high carb low fat, problem is that the liver has its 
2 phase detox system or pathway and certain amino acids (Taurine, Glycine etc), 
B vitamins are required for this to work, eggs for example contain cysteine, choline, B vitamins
and other ingredients that are crucial for liver health and yet has also cholesterol, and then
we move to other arguements, is cholesterol good or bad, is LDL necessarily bad for me in my situation?
I just don't know, seeing as I have a Cholesterol problem I have avoided eggs,but eggs are good for the liver
and yet I dont want to overload my body with more dietary Cholesterol.

For my disease I looked at fatty liver, Mcdougal shows one person (a doctor) that followed his plan 
and healed his fatty liver, on another video you'll see another doctor funnily enough, both doctors who
recovered from fatty liver disease, one healed via a hige starch low fat diet and the other with a 
low carb diet with eggs, lean meats good fats etc.

There is another problem (The main one that I want to deal with), my gallbladder problem which is a 
build up of sludge/bile/cholesterol in my GB, well low carb diet would help by introducing 
good fats like olive oil, flax, cocconut etc, when fat is ingested the GB squirts out old 
bile/sludge to emulsify the fat and this allows old bile to be ejected hence keeping the old
bile moving and avoiding bile stasis in the GB along with eating liver healing veggies such 
as cruciferous, sulphur, the onion family, artichoke, Milk thistle, dandelion etc that help 
detoxify the liver and gallbladder and help with phase I and II detox.

The fatty liver problem actually I know how to solve, lose weight, by reducing 10% of weight you reverse fatty liver.

But I want to fix my GB problem also, if I do the Mcdougal diet then I worry about Bile stasis, although by eating no fat/oil my body would compensate and adapt to 
create less bile/sludge/cholesterol, but Im not sure about this, the body controls cholesterol production either way to stay in homeostasis so possibly if you reduce 
all cholesterol your body picks up its own production and if you up your dietary cholesterol then the body makes less, I don't know for sure.

Coffee (many bitter substances are good for detoxing the liver, radicchio, chichory etc) in some studies showed that it can reverse fatty liver in mice, Italian study.

When I stopped doing the coffee enemas - 8 months later I was diagnosed with fatty liver!! I realised that possibly my Liver was so used to this 
flush, coffee helps release bile from the liver and speed up phase I and II detox?, (actually this could be a reason I got GB polyps in the first place if each time 
I was doing the flush I was exporting bile to the GB then this excessive exporting if bile created an unnatural build up?, And so when I stopped then the system 
slowed down and fat built up in my liver seeing as the process of detox slowed down (eggs help the detox process of the liver and I stopped eggs too) I also used 
plant sterols added to 'Benecol' spread to reduce my cholesterol (I was tested last year at the GB polyps diagnosis and it was slightly high but nothing remarkable 
and has always been this way.


If I do the Mcdougal plan then adding too many carbs will convert to fat, again we are all different and because I have a sluggish liver and a fatty one it could be 
that MY liver will convert excess carbs to fat real quick, just to give an example I switched the Mcdougal for a week or even less I gained 3.5kg and immediately 
switched to a low carb and lost that weight in a few days, I was 115kg 2 years ago at the GB polyp diagnosis, fatty liver diagnosis 8 months later was 108kg 
(ideal weight should be 73kg), now am 104.5kg, but need to slim down to 80kg at least to stop this fatty liver problem, it should help my hiatus hernia problem 
too and then hopefully can come off the Prilosec, cause a fat belly causes intra abdominal pressure upwards and puts pressure on the whole hiatal hernia/LES area 
by reducing weight I could stop this from happening, even reducing my Prilosec meds to 10mg from my normal 20mg dose would be a success for me, I tried this recently 
and after a week my throat was burning and in pain and so I know Im not ready yet, need to reduce my weight and try again when Im about 80kg.

So as you can see my problems are GERD/Hiatal Hernia for which I take 20mg Prilosec, Depression/Anxiety been taking Seroxat 20yrs only take 6mg daily, Fatty liver 
and cholesterolosis, EDS hyperlax joints due to collagen problems, oh I also have scoliosis and the relapsing chondritis I seem to have under control (red ear pain) 
if I don't indulge sugar, coffee, stress.

In the last one and a half years I have also experienced arthrits pains in my left knee and hip and left hand finger next to pinky, I searched and found a book by Giraud 
Campbell its a bit old (1970's), he shows with xrays how he reversed patients arthritis in the hips and other joints in 8 months, some took 3 months - he used mainly 
raw foods diet, a kind of raw paleo, no flour products or bread or grains some starchy veg allowed like potato but meats were mainly organ meats and raw or scalded 
some with veggies, first day he would fast his victims, I mean patients :) And so reading all these books has confused me SO much, again you look up arthritis and 
Mcdougal and the other vegan guys say that meat causes inflammation and this is the problem and yet the other side says that carbs are the problem and YES you will 
have success stories from both camps, and so a person who has researched will come to the conclusion of WHAT THE HELL IS GOING ON??

Meat consumption immediately INCREASES inflammation (Dr Greiger) and yet look online for leaky gut diets and you'll find low carb, bone broths are good, eggs, 
I did make bone broth soups using only organic bones and had the red ear symptoms, I later found that Bone broths have Lead (Pb) in them (Greiger) and so for me for 
whatever reason either inflmmatory response or Lead or some other reason it created an auto immune response.

The only way to see if one diet may work is to do ONE and have tests done, blood tests, Stool tests, Ultra sound, and other tests regularly and tweak a particular 
diet to suit MY own body and situation, Dr Ornish for example is mainly on the vegan side but allows fish oils and some fish. 

Back to my deadly duo or combo idea. If you look at foods that may create disease if you ingested them longterm - they have that carb/fat mix, chocolates 
(bad carb+bad fat), all the foods I loved growing up like Tiramisu, Lasagna, pastries (sweet and fattening), it seems you can't have one without the other, 
take a bowl of cream and a bowl of sugar taste each one and they are too overpowering but add them together you get icecream and BINGO you have the deadly combo 
cause that icecream you can eat it without you feeling overwhelmed its been tricked in a way, your brain I mean, to indulge.

So the Mcdougal works by not ingesting fat so you feel full eating bland carbs, the other camps like keto you ingest fat and so your body gets the 
message Im full the COMBO is the problem, because it is delicious, I tried make lasagna without fat, I tried making Tiramisu without sugar, bland as hell and 
your brain gets the message Im not eating any more of this stuff and tells you to stop hence both diets help you to lose weight this way, and weight is a 
contributory factor in many diseases.?

It's true we are all affected differently, with my situation I don't know how to get rid of gallbladder polyps (cholesterolosis) I figured that cholesterol has 
accumulated on the GB wall and so I should avoid cholesterol (eggs, meat etc) I ate Benecol which is a cholesterol lowering butter/spread but didnt completely cut 
out junk, fast forward 8months to my next ultra sound BANG! diagnosed with fatty liver, and the polyps stayed the same?

My sluggish phase II detox was speeded up possibly with enemas but when I stopped I didnt go back to normal speed but back to sluggish or even super sluggish speed 
and this caused me to get fatty liver (being fat also doesn't help but Ive been overweight for 2 decades) The only thing that changed that I can think of is stopping 
coffee enemas and eggs.

So after this fatty liver diagnosis I spoke to a natural doc and she said that eggs are good for liver and certain veggies and supplements and so I listened to the advice 
and started eating low carb type of diet using good fats, cause good fats trigger the gallbladder to release its stored bile to emulsify the fat, certain veggies also
help promote Glutathione production (I say this cause some do enemas for those two reasons)

In 9 yrs Ive landed in hospital maybe 4 or 5 times and mostly cause of severe palpitations possibly adrenal related but was ok, but scary whilst I had the episodes 
all after an enema, once I was tapering off paxil and did my usual enema and had niacin and this sent me overboard actually this happened 3 times, once my blood 
pressure was 200 and mine is never that high, I was trembling but my sitution as you say is a particular one, when you tapering off paxil you can get super jittery, 
the niacin flush stresses you AND the coffee in an enema than BANG, the combo sent me overboard!

Im not sure which diet to go on for gallbladder polyps and so far have not found anybody who has healed their polyps and so I figured Selenium could do it, but diet 
is the thing that is numbing my brain, some say vegan, some say paleo/low carb, I can understand how low carb could help by eating good fats to stimulate the expulsion
of old bile and keep things moving, BUT how about cholesterol? If one eats more cholesterol foods like eggs and meats then aren't you adding to the problem? That is - 
Cholesterolosis!!

And so I thought possibly Vegans have it right, by eating less cholesterol the body adapts, but I wonder if by reducing cholesterol from the diet would the 
body UP its own production to stay in homeostasis?? I have no idea.

At mealtimes NOW I take supplements for my liver/Gallbladder -:

Vitamin C (Ester C) 1000mg, D3, B complex 100mg, Vitamin E, Selenomethionine (Selenium), NAC, Digestive Enzymes, Zinc+Carnosine capsules,
Pro Biotic of 60 Billion.

In the daytime I have 5gm L-Glutamine powder also Taurine capsule, in the afternoon a Quercetin capsule, during the day lots of water (I try to drink but actually 1/2 litre)
in order to keep bile fluid and not concentrated, Turmeric tea, also Ginger, mint, milk thistle, chamomile teas during the day to keep bile moving in my Gallbladder.

I realise that you can't go wrong with veggies and water, but now I don't know which side do I choose, the low carb (LCHF) or the Vegan type (HCLF) like the McDougall diet
or similar, its truly a maze for me and confusing.

A last point. In order to get rid of the Cholesterol polyps I am doing IF Intermitent Fasting where I fat 18hrs and eat 6hrs, my reasoning is that after 15hrs Glycogen
stores are depleted in the Liver and the body starts to use fat as fuel and at this oint goes into a phase called autophagy were the body start to 'munch' tissue
that isnt needed, so possibly my body could target the useless polyps and 'munch' or shrink them. During the daytime I fast and was worried about bile stasis in the GB
- I thought about this and drink lots of warm teas during the day, the water will make the sludge/bile etc more fluid and I make the teas out of either Turmeric, Nettle,
Milk thistle, Mint etc, which I hope can stimulate the GB to keep bile moving and NOT stagnate.

Recently heard that Serrapeptase can shrink growths and so, tried some but after two days my stomach hurt, I did read the label and it said if you suffer from ulcers 
you shouldnt take it.

Im not sure if Im doing the right things, and if there is something else I can do or possibly what Im doing is wrong, Im fed up of being sick and want to be healthy again
and will do anything to achieve this goal.

Thankyou for reading my long letter, I need to find someone who can help guide me in the right direction. Forgive if I repeated somethings.

Gerald

(Thankyou moderator for allowing me to fully explain my problems in such a long post)

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I'm sorry.... it doesn't look like an actual doctor gave you most of these diagnosis?   You are self treating and diagnosing.  Maybe stop all that and give your body a chance to heal from those self treatments?  Then see what is left?

 

and .... if you are eating gluten free, you can't be tested for Celiac.  celiac clears up gluten free so, if you are gluten free and have problems, it may not be because of Celiac.

Edited by kareng

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Gerald it's exhausting enough to read that, so I can only imagine how you feel. I sincerely hope that you can get some relief from all of this.  As I finished reading Kareng's reply above appeared and I have to agree with her.

You've seemingly had a combination of western and alternative medicine and have also been exposed to so many different and conflicting ideas on what may be going on. I think this, in itself, is harmful. I know I came to a point when I had to stop researching, stop going on paleo blogs and even this site and just focus on myself and some very simple and achievable goals. Your body is ultimately one system so even though there are things going wrong with specific parts it can't hurt to take a step back and focus on overall health and good practice? 

Couple of minor suggestions that may help. It's good to get everything down on paper, but if you're planning on seeing a new doctor the level of explanation above is too much and they will likely 'switch off' long before the end. It may be useful to you to condense this into some very short bullet points. Try to keep it very matter of fact, include dates where you can and don't prejudge any diagnosis. Just focus on symptoms and any reactions you've noticed. If you have a go and post it here we can maybe help you get it into the best shape?

If you can find a supportive physician you can then work together to pursue any further diagnosis. If you wanted to explore gluten as a potential cause (and it can cause an awful lot) then there's an faq stickied above and lots of useful info here via the search.

Secondly, eggs are your friend :)  There's little to no evidence that cholesterol in eggs has any impact on blood cholesterol. They're packed with protein and amino acids, I think 7 out of the 8 essential ones from memory. Unless you have a specific intolerance to them I wouldn't keep them out of your diet. 

Myself and many people here have been in comparable places and have experienced both physical and mental affects. You have found a good site. Welcome!

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Hi Gerald,

Welcome to the forum! :)

I have some theories for you that might help.  Did you know that many doctors are rubbish at diagnosing celiac disease?  It is not unusual for people to be given multiple wrong diagnoses over a period of years before finally being diagnosed with celiac disease.  At one time the average period to be correctly diagnosed with celiac disease in the USA was around 9 years.  And most people with celiac disease are still not diagnosed today.  They say doctors are getting better at it but the y are long way for good at it.

Celiac disease can affect any part of your body, not just the gut.  People can get rashes (dermatitis herpetiformis), thyroid problems (Hashimoto's Thyroiditis), joint pain, hair loss, fertility problems etc etc.  Celiac disease can cause elevated liver enzymes also.  Also the damage to the gut lining leads to malabsorption of nutrients.  So people with celiac can become deficient in vitamins and minerals that the whole body needs to function correctly.

To get tested for celiac disease is a 2 phase process.  First they take blood samples for testing of antibodies to gliaden, a protein in wheat.  That's called a celiac panel.  Then if those antibodies are positive they do an endoscopy to get biopsy sample of the small intestine lining.  They check those biopsy samples under a microscope for evidence of celiac type damage to the villi.

Before being tested for celiac  disease you have to be eating gluten for 12 weeks for the blood antibodies testing, and 2 weeks for the endoscopy testing.  That's called a gluten challenge  Gluten is a protein in any grain, but the grains that cause celiacs to react are in wheat, rye, and barley.  Some 10% of us or so also have the same reaction to oats protein.

There is also a gene test they can do that indicates if it is possible for you to develop celiac disease.  But it doesn't prove you have celiac disease as many people have the genes but don't actually get celiac disease.

I think it's very possible you have undiagnosed celiac disease.   To know for sure you would need to get tested.  If you decide to get tested, take the time to research with a local celiac group who they think is a good doctor.

If you can't do the gluten challenge due to symptoms you can go gf anyway.  If you go gf the best way to start the gf diet IMHO is to eat meats, veggies, nuts, and eggs.  No processed foods and no restaurants for 6 months.  Recovery from celiac damage to the gut can take up to a year or more.

There is a thread called Newbie 101 stickied to the top of the "Coping With" forum section that has helpful info and tips.

I agree with you that PPI's are generally a bad idea, and cause more problems than solutions.  But they should not be stopped cold turkey but tapered off.  You can always cut the pills in half or quarters?  I hope you feel better soon Gerald.  It's no fun being sick and it can kind of wear you down after a while.  But if you have celiac disease and go gf, then you will be on the road to recovery and many things can start improving in your health.  GF's not an instant cure, though, but a slow improvement.  But even slow improvement is worthwhile and  helpful! :)

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Hello Kareng, the Gluten and dairy problems are elf diagnosed but Im sure I have a problem in this area, maybe leaky gut or SIBO etc, cause when I eat Gluten (Wheat, Rye, Barley etc) I sneeze my brains out, the roof of the mouth hurts, runny nose, itchy red eyes and sometimes night sweats. I do have actual diagnoses for GERD/Hiatus Hernia, Gallbadder polyps, Mild Fatty liver, Depression/Anxiety.

It could be that what the Chinese doc was right? That its not Gluten intolerance and yet the allergic reactions stop when I stop Gluten and dairy, the reason I feel that I could have a leaky gut or damage to that area is cause, I have reactions or have started to get reactions to other foods such as dairy which started about a year ago, or maybe im getting better at realising what not to eat and what to eat, dairy gives me wheezing and mucus, I stop and the mucus and wheezing stops, but you are right I should go now to my GP (doc) and demand some tests, what kind of tests I don't know, maybe a stool test, allergy tests?

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Hello JMG,

Thanks for your reply, you are right about the long letter, when I showed the Chinese doc she was overwhelmed and I'd emailed her the morning of my afternoon appointment :)

The reason I stopped eggs (I love eggs and one natural health doc told me eggs are very good for the liver - i.e. Choline, Glycine, B Vitamins etc., but could be problematic for gallbladder) The problem is not with Cholesterol itself but how my body deals with it, the gallbladder has become saturated with bile (Cholesterol/bile salts/sludge) possibly due to bile stasis, i know already that I have Gilberts syndrome and so a sluggish phase 2 liver detox which may have predisposed me to liver/gallbladder problems.

I did check my patient access(online blood tests results medical history etc) which shocked me, the markers that I'm concerned about are Blood sugar, Cholesterol, Full blood count.


1) Glucose I think Im prediabetic HbA1c levl - IFCC standardised 39 mmol/mol, i think this is 5.7in old measurements
2) Serum cholesterol 6.19 mmol/L (0 - 5mmol/L), Non HDL cholesterol level 4.84 mmol/L (0 - 4mmol/L), Serum LDL cholesterol level 3.91 mmol/L( 0 - 3mmol/L), Serum HDL cholesterol level 1.35 mmol/L( > 1mmol/L), Serum triglycerides 2.04 mmol/L (0 -.7mmol/L) in brackets are within normal range I believe.
This is the comment.
Comment: (CHF) raised chol and trigly, JBS Guidelines treatment targets: HEART 2005:91 Sup.V, High CVD risk goal Minimum goal, Total Cholesterol <4.0 <5.0, Non-HDL Cholesterol <3.0 <4.0, *LDL (Calculated) <2.0 <3.0, See CVD risk prediction charts in BNF for primary prevention.
3) Full blood Count all okay apart from one marker, Eosinophil count 1.1 10*9/L (0 - .510*9/L)
From what I gather the eosinophil count has something to do with white blood cells in the bone marrow? One reason they could be raised is Allergy/Gluten intolerance/leaky gut? There lots of other reasons, some genetic. Have to look into these.

I'll put the long letter into shortened version of the most important points, I suppose it would be good for one of those 'functional medicine' docs, just don't know who to go to apart from my own GP.

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Hello GFinDC,

May I ask you (and others) I did coffee enemas for 9years DAILY (I know, thats over the top) but was thinking that bile is released and flows into the duodenum/small intestine, bile is slightly corrosive right? And so

 the enemas may have damaged my duodenum/small intestine?,

as well as bad bacteria possibly migrating from a chronic low acid stomach environment into the gut to further damage it.

Lol, I think Im starting to realise they are 'rubbish' at diagnosing this thing (by the way are you a Brit?, cause we say rubbish, I'd thought you'd say garbage, maybe Im wrong) 12 WEEKS? No way, seriously if I ate Gluten for a week I'd be in real trouble, I'd be exhausting from night-sweats, and sneezing my brains out all day, nose would be irritated and red cause of having to wipe a runny nose all day, I think even 2 weeks would be torture for me, seriously. Even Gluten Free foods (processed ones) give me problems such as GF Lasagna (has milk and so the protein casein must get through my suspected 'leaky gut'), GF chicken nuggets and salad I can eat - no problem, eggs never gave me a problem allergy wise, the only thing that did give me problems was bone broth particularly lamb, fish, chicken mix - this gave me the red burning ear symptoms and I noted that stress/sugar and potato peals gave me this symptom, months later I took Collagen (the sales lady at wholefoods swears by it) As soon as I took it I got the burning ear symptom, I figured that collagen is taken from a similar source, carcasses, bones, tendons etc (Non organic) and the broth I made with organic ingredients still gave me this problem, according to Dr Grieger LEAD (and other heavy metals I think accumulate in bone) has been found in bone broth, so my sensitive gut rightly reacts to this heavy metal.

Oh, I also used to love Art, painting and drawing :)

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How did you get that coffee all the way up into the small intestines?  Did you use a power washer?  Lol  

coffee itself is acidic and perhaps a bit "corrosive".  

Celiac is not an allergy - so being allergic to wheat does not mean you have Celiac.

i still go back to my original recommendation - that you just treat your medically diagnosed conditions with actual medical prescribed things.  Let your body heal from all these self-prescribed & non- medical practioners' " treatments".  Give your poor body a rest!  

 

Adding- I realize that isn't  what you want to hear.  I hope that one day you will be able to consider it - before you do damage that can't be fixed ( if you haven't already).

Edited by kareng

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41 minutes ago, Gerald said:

if I ate Gluten for a week I'd be in real trouble, I'd be exhausting from night-sweats, and sneezing my brains out all day, nose would be irritated and red cause of having to wipe a runny nose all day, I think even 2 weeks would be torture for me, seriously

Sadly the gluten challenge is the only way to establish or exclude coeliac. It's often not pleasant, I didn't enjoy mine, for some people the reaction is too severe. 

Your reaction to gluten is maybe more suggestive of a wheat or gluten allergy - sneezing etc is an IGE histamine reaction, the classic coeliac response takes longer to manifest.  

It's a shame you can't tolerate bone broth, that's my 'go to' heal your gut food :(

 

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Kareng,

You make fair points when it comes to taking all those supplements and various diets, I should go to a qualified nutritionist but I have a sneaky feeling I know as much as they do (Will still go and see one), for example the reason I take L-Glutamine is because it helps to heal the gut and Quercetin is supposed to tighten the junctions in the intestines, hence healing leaky gut.

I spoke to a Liver doc (natural one) who has 30 yrs experience in treating patients with liver problems and advised the Vitamin C, NAC, Selenium, slippery elm, DGL, B complex etc for Liver/Gallbladder health.

I would agree with you that coffee enemas may have damaged my intestine by releasing bile in an unnatural way, kind of like having diarrhoea for 9yrs, coffee sits in the colon and via the portal vein reaches the liver and stimulates bile to be expelled, the enemas create a kind of vacuum when expelled and this may suck out bacteria from the small intestine, coffee also passes through the colon into the body I heard via small capillary or veins, increase Glutathione as well, Im not sure if bile is sent into the colon via portal vein or hepatic vein OR the normal route and into the small intestine, either way the small intestine is being affected, many times after an enemas I'd need a warm milk because my duodenum area was aching.

I hear what you are saying that some don't have true Celiac disease but have a problem to Gluten, Its interesting - could be that people have damaged intestines for whatever reason - round up used in wheat production etc, either way I could not do the 12 weeks of eating Gluten, just think about it makes me feel ill.

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6 minutes ago, Gerald said:

Kareng,

You make fair points when it comes to taking all those supplements and various diets, I should go to a qualified nutritionist but I have a sneaky feeling I know as much as they do (Will still go and see one), for example the reason I take L-Glutamine is because it helps to heal the gut and Quercetin is supposed to tighten the junctions in the intestines, hence healing leaky gut.

I spoke to a Liver doc (natural one) who has 30 yrs experience in treating patients with liver problems and advised the Vitamin C, NAC, Selenium, slippery elm, DGL, B complex etc for Liver/Gallbladder health.

I would agree with you that coffee enemas may have damaged my intestine by releasing bile in an unnatural way, kind of like having diarrhoea for 9yrs, coffee sits in the colon and via the portal vein reaches the liver and stimulates bile to be expelled, the enemas create a kind of vacuum when expelled and this may suck out bacteria from the small intestine, coffee also passes through the colon into the body I heard via small capillary or veins, increase Glutathione as well, Im not sure if bile is sent into the colon via portal vein or hepatic vein OR the normal route and into the small intestine, either way the small intestine is being affected, many times after an enemas I'd need a warm milk because my duodenum area was aching.

I hear what you are saying that some don't have true Celiac disease but have a problem to Gluten, Its interesting - could be that people have damaged intestines for whatever reason - round up used in wheat production etc, either way I could not do the 12 weeks of eating Gluten, just think about it makes me feel ill.

Self diagnosing off of internet and non-medical practitioners.....  it wouldn't really matter if I explained the anatomy and the problems with a lot of this self-treatment/diagnosis,  as well as the other reasons for doing an enema every day.... and the damage it does to a GI system, healthy or damaged.... I wish you luck and hope you get the help you need.

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Jmg,

I can drink organic chicken bone broth, my wife is Chinese and she told me to boil the whole chicken, what I waa doing was making a meal for the family, i.e. roast chicken and then keeping the bones and making a soup only out of the bones and added organic chicken egg shells and use apple cider vinegar to break down the bone and shell but when I made the chicken soup meat and skin it was unbelievably tasty (the skin is not too good for me, way too much of the wrong fat, but nice taste).

How do you make your bone broth and what do you use? I also put ginger, garlic and a little seasalt to taste. Oh, what I was going to say Chicken didn't give me the kind of auto-immune reaction, it was the combo of chicken/Lamb/fish/(And I think)pork (Bones).

Wow so if I don't have true Celiac, then for some reason I react badly to Gluten or the Gliadin protein and the casein, man I only made one mistake ate chinese, I sneezed all day, sore roof of mouth and had night sweats and generally ill feeling.

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Hi Gerald,

JMG is right, the sneezing and runny nose and mouth irritation are more like IgE symptoms, which is allergies.  Allergies are not something to play around with though, as the reactions can suddenly worsen and cause anaphylaxis and death.  So it would be wise to get tested for allergies IMHO.  It is possible to become allergic to meats also.  Some people have become allergic to red meats after being bitten by certain kinds of ticks.

I understand about not wanting to do the gluten challenge.  If your symptoms are bad then it doesn't really make sense to me to make them worse.  Some people want the "official" diagnosis and some don't.  It's an individuals choice and what's right for the individual is what's right.

My advice about the coffee enemas is just stop, which you already have.  Constipation is usually caused by some condition and it is better to treat the condition causing it rather than the symptom.  Whatever damage it did or didn't do is not important at this point.  What's important is getting on a healthy (for you) diet and sticking to it.   Alternative medicine sure has a place, but you have to watch out for quack diagnosis from people who are just in it to make money.  There are lot of people that are willing to spread BS in exchange for money.

There is a condition called eosinophillic esophagitis that might fit some of your symptoms.   So if the allergy testing doesn't find anything, it might be another avenue to explore.   I think allergies are more likely though.

http://www.mayoclinic.org/diseases-conditions/eosinophilic-esophagitis/basics/symptoms/con-20035681

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Kareng,

Thanks Karen for your concern, I'm willing and open to listening to the reasons why coffee enemas may have affected my small intestine and whole digestive system, and how VitC, B complex and various supplements could be detrimental to my health, is this what you are suggesting? I agree, even with the supplements seeing as the liver has to clear whatever you put into your mouth, but because I listened to medical doctors i was put on two drugs that I was supposed to be put on for a month and never did they help me in 2 decades to come off, they never told me that increased Gastrin can cause stomach cancer, i.e. long term PPI use, every few years they say have an endoscopy, if there is something wrong then what? Operate, noway I'm not gonna wait until something goes wrong, actually I waited too long.

What do you think of my theory that chronic low stomach acid cause of what docs prescribed for 20yrs, is there anything wrong in the theory that bad bacteria migrates into the gut and can damage the gut, is fed by undigested food cause less pancreatic enzymes are released cause there isn't the same trigger (normal acid level), and doesnt a damaged or leaky gut affect or may affect the gallbladder and cause bile stasis cause CKK messages are interfered with (if the gut is damaged)?

Seroxat(Paxil) can and does cause LES relaxation and so I have to come off Paxil before coming off Prilosec so this is my plan, withdrawal and the crying/anger and mental stress I assume will raise cortisol/Adrenalin and raise inflamation in the gut. So maybe I will have to do something to relax, doctors can only do so much, i.e. drugs, operations and hardly advise on vitamins cause they aren't trained in this area, they do prescribe Vitamin D a lot but thats about it.

I had arthritic type pains in my left knee and hip for a year and a half, I started taking the vitamins and ate low carb kind of Mediterranean diet, every morning I woke with pain and the pain got better with movement, also in my joints in my left hand (two fingers) ... I have no pain now in my joints, the doc always wanted to give me painkiller tablets and creams, I took them to no avail, so I suppose this is one of the few positives I can take from the supplements Ive been taking, maybe! I only started taking the supplements after the gallbladder/liver diagnoses.

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GFinDC,

Oh definately I agree with what you and Kareng are saying, no more coffee or any type of enema, after 8000plus in 8 to 9yrs, I'm finished with them, they became an addiction and I didnt do them cause of constipation but because I wanted to help detoxify cause I was taking Paxil and Prilosec long term, as well as speeding up a sluggish liver, but no more.

I checked that link on eosinophils and various disease connected, bloody hell when you Google this stuff it gets scary indeed, apparently can be connected with many disease from allergies and infections to leukaemia and cancers, there is the one you mentioned Eosinophilic Esophagitis and Eosinophilic gastroenteritis (EGE), I think and hope that the cause is Allergic, cause I have allergic symptoms, I wonder if chronically damaging my gut via coffee enemas could have caused this, as you say forget the past and work on getting healthy now and for the future. You're right about certain quacks and finding a good naturopath, etc.

As to diet yeah this is a tough one, had chinese hotpot with lettuce, mushrooms, lamb (homemade), y wife says that lamb is YANG and makes a person feel warm or hot and infact feeling very warm this evening after eating the lamb, I just wonder if this just is inFLAMation.

 Greiger suggests meat and animal foods cause inflammation, obviously in people with intact gut its okay but those with leaky guts it could e a problem.

In my opinion you can't go wrong with low starch vegetables unless you have certain diseases like kidney disease (Potassium, Calcium, salt etc have to limit) so I'll go with 'safe' foods for my own body and health situation, I seem to do well with chamomile tea and slippery elm, almond milk, lettuce, brocolli, cabbage, artichokes, I just have to work out whether ingesting lower or higher % of fats is good for me, and still not sure about starchy carbs as per Mcdougals diet.

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Ok, most important, neither I nor anyone else here can tell you if you have true celiac or not:

4 hours ago, Gerald said:

Wow so if I don't have true Celiac, then for some reason I react badly to Gluten or the Gliadin protein and the casein, man I only made one mistake ate chinese, I sneezed all day, sore roof of mouth and had night sweats and generally ill feeling.

and whether its IGE histameine celiac whatever doesn't negate that its unpleasant for you and worrying etc. For what its worth I tested negative for celiac, that doesn't mean I don't react badly to gluten. Only a doctor can diagnose you and that would require a gluten challenge as above. 

 

4 hours ago, Gerald said:

I can drink organic chicken bone broth, my wife is Chinese and she told me to boil the whole chicken, 

This is also the jewish way of making chicken soup, I've been eating it all this week. Great comfort food :) You can skim the foam whilst cooking to reduce the fat etc as I'm sure you know. 

I also make beef bone broth. Loads of recipes online. I do use cider vinegar and add plenty of veggies. I use the broth as stock in casseroles or just drink it straight. 

12 minutes ago, Gerald said:

As to diet yeah this is a tough one, had chinese hotpot with lettuce, mushrooms, lamb (homemade), y wife says that lamb is YANG and makes a person feel warm or hot and infact feeling very warm this evening after eating the lamb, I just wonder if this just is inFLAMation.

Easy for me to say but I think you're worrying too much, frankly that sounds delicious! Natural unprocessed ingredients, home cooked, enjoy it and don't worry about inflammation. 

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Hi Gerald,

I don't think you'll get anywhere on your health issues unless you find out for sure if you have allergies.  Allergies are a simple thing to test for and it should not be hard to find a doctor to test you for them.

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2 hours ago, Gerald said:

GFinDC,

Oh definately I agree with what you and Kareng are saying, no more coffee or any type of enema, after 8000plus in 8 to 9yrs, I'm finished with them, they became an addiction and I didnt do them cause of constipation but because I wanted to help detoxify cause I was taking Paxil and Prilosec long term, as well as speeding up a sluggish liver, but no more.

 

 G

I wasn't going to answer but...... I have to ask, 8000 enemas in 8 years? That's 3 a day.... Did you even have time for a job?  A family?  I can't believe you have a lower GI tract left after that!   

Edited by kareng

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Gerald when you tried to get off the Paxil did you do it under a doctor's care?  An MD would be quite helpful with that if they really know what they are doing and if not find another doctor. You would need scripts for decreasing dosage over time and then guidance when you get to the point of actually stopping.

Have you told your MD or a GI doctor about your over the top use of coffee enemas?  Your doctor may want you to have a colonoscopy to check how much damage may have been done and an endo would be a good idea at the same time to see why you feel you need to take an over the counter drug like Prilosec. Your doctor may need to help you taper off this drug also. If the reason you take it is stomach pain that really needs to be evaluated by an MD.  I was told to take that at my celiac diagnosis. I refused and used Pepto Bismal liquid when I had pain. It would work with one dose and not mess with my stomach acid and isn't addictive.

I am sorry you have had so much trouble but you have to stop treating yourself and find a GOOD team of doctors to help you. You say you need to find a naturopath so make sure you find one who is responsible and will work with your MDs to help you.  While you are getting off the Paxil it might be helpful to see an acupuncturist to help you deal with the process and perhaps even be helpful with some of your symptoms without the use of drugs or things like coffee enemas etc.

Do be sure when you see your MD to bring a complete list of all supplements, meds OTC and scripts and dietary restrictions you are self imposing.

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Jmg,

Are you Jewish?  I was thinking of learning Hebrew at some point anyway, there is a fungus called Jews Ear which is probably called black fungus in the west, I think the reason was that Judas hung himself from that species of tree that the fungus grows on and it looks just like an ear, anyway I like that and put in the hotpot, I think it supposed to bring cholesterol down, I used to love this in China, I think its like Marmite, Bovril, Coriander etc ... you either love it or hate it.

I hear what you're saying mate, I doubt if I could go though 12 weeks, just one mistake and I have night sweats, sneeze my brains out and other goodies, the Chinese doc who told me that she doubt if I can have gluten intolerance may be right, but I have Gluten allergy and definately a reaction, my daughter who doesn't lived with me (and had a different diet to me) who is 19 now has Gluten intolerance or allergy, she can't eat any Gluten or she'll sneeze, have a runny nose and feel ill, she has to take piriton when she makes a mistake but she never had these problems growing up, could it be the roundup that they use on wheat now? I don't know, but I think people can definately become allergic to wheat even though they have eaten wheat all their lives.

If you want to try I'll tell you what I ate, we have one of those portable gas hobs/burner, they are very cheap, I got mine for £15 and the gas canisters maybe a few £'s each, and you put this on the table and make a soup base (in the kitchen hob), Gluten Free chicken stock, garlic, s$#&ake/button mushrooms, spring onions cook this and then take the pot to the dinning table on the portable gas cooker, and then add veggies etc in the pot, we used Lotus root (sliced), lettuce, spinach, potato (sliced), chinese yam (sliced), pork or lamb (you buy them ready sliced in rolls in asian shops for hotpot), Tofu (frozen overnight then thawed and cut into thick slices - this changes the structure of the Tofu and makes it rigid, the chinese Tofu not the silken one if Im not mistaken), some people put Chinese Date or wolfberry, you can experiment with any veggies, let me know how it goes if you try :)

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I kinda think that between the fungus in a hotpot and the enemas I think that you need to just stop all the self diagnosing and self treatments  and see a doctor. You might be doing much more damage on your own than what ever the problem might have started out as. I'd think that 8000 enemas in a lifetime would cause damage. I couldn't even begin to imagine what coffee would do.

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WOW... you've been busy!

I would think you would benefit from an elimination diet.  Google AIP (Auto Inflammatory Protocol).  Eat basic food for 30 days, then start adding to see what agrees and what doesn't.  Once I quit the carbs, my anxiety & depression lessoned.  High cholesterol is caused by carbs, NOT eating fat.  You can look that up to see how it's formed.  Carbs also cause fatty liver.  It's amazing how screwed up our Doctors have gotten about all this!  They didn't put it all together and instead just keep pushing pills.  You would do well to have Vit D3, Omega 3 Fish Oil and some Magnesium for a mood stabilizer.  You can't take EVERYTHING for every disease.  Just take the simple things that support cellular needs for now.  The good fats will help restore your battered gut!  Coconut oil, butter, olive oil and avacado are all good and healing.  First you need to stop further damage from those coffee enemas and let your intestinal inflammation settle down. Calm your system with whole, clean foods.  There is no need for gluten testing if you know it didn't agree with you.  It doesn't agree with anyone... some people just don't notice the damage it does.  All grains are inflammatory.  We have gone KETO and have had amazing results and improved health.  The good fats are soooo healing!  No need to worry about gluten when you aren't eating packaged foods either.

Debbie

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Debbie - Thanks, I agree with you when it comes to an elimination diet, Ive had to eliminate All dairy and Gluten, I have noticed in the past Corn chips, sugar, chocolate give me problems as well, I tend to do well on veggies (Cruciferous and other veggies).

Oh yeah GP's (docs) haven't helped me come off, the last doc said that I'm on such a low dose that I can just come off, but they have no personal experience in actually taking this drug for the duration that I have taken it, infact there probably isnt much data on patients taking this drug for 21yrs plus, when I came off this drug in 2000 I found it easy to come off,I was only 4yrs into taking this drug, now its 21yrs in and it is harder, every 0.5ml drop is a major gear change in the brain I found, I don't understand how high carb could make depression worse, I thought carbs give an insulin spike this clears other amino acids that would otherwise compete with Tryptophan which makes its way into the brain to increase serotonin.

How is high cholesterol increased by eating carbs? I know that carbs get converted to fat in the liver, i.e. lipogenesis de novo. Thanks for the supplements ideas,I do take VitD3, magnesium Glycinate, and cod liver oil. Yes I know, all processed foods are bad, even those gluten free products in supermarkets.

pdm1981 - Yes I stopped the enemas, the fungus is ok, its eaten a s a food in China, very popular there, its stir fried or boiled, I cook it well anyway. I see your point though, some say that mushrooms and fungus aren't good for certain conditions.

Ravenwoodglass - The only thing my doc has done is refer me for psychotherapy, :/ I'm still waiting for that letter to arrive, I know more than the doc knows when it comes to withdrawal, Ive been on the drug longer than he;s been alive, hehe, not exactly he's about 25'ish, I've been on it 21yrs. Prilosec isn't OTC in the UK, so my docs have prescribed these drugs for two decades, one ida my doc had was to go onto another drug Prozac which is easier to come off (has a longer half life than the Paxil which I think has a 16hr half life) but I tried that once and it made me aggressive and I said I would never take that again, recently had my colon scoped (horrible and painful) and its in tip top condition :) Probably the cleanest colon on the planet. Oh, the reason I took Prilosec is cause of GERD/Hiatus Hernia - chronic acid reflux. Thanks for your ideas, Im on a low carb medium fat low carb type diet at the moment, a Mediterranean type diet.

Kareng - No haven't worked cause of depression/anxiety, my colon is in tip top condition, the things is the enemas ARE addictive, I realised this years ago and its happened to others as well, I read online a lady who had been doing coffee enemas for almost 5 yrs, charlotte Gerson (Gerson Therapy) has been doing them daily for I think 30yrs, but anyway Ive stopped doing them now thank God.

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    To the OP, once in a while this stuff happens.  Please feel free to start a new topic if that would make it easier.  I am afraid this is just part of forums on the internet. I hope this didn’t chase you off.  
    @anasss Nobody in this thread has called anyone "ignorant," so please don't say that if it did not happen. Also, the use of all capitals is, in forums and other places on the Internet, generally considered yelling and impolite, and there ...
    Bshake, Look up the "baking soda test" ...it is a nice home test to see if your daughter could have low stomach that is triggering the ulcers or creating the perfect conditions for ulcers to develop....mastic gum as has been mentioned...
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