Jump to content
  • Sign Up
Celiac.com Sponsor:


Celiac.com Sponsor:

Salina

Our son is newly diagnosed with celiac and his severe stomach pain

Rate this topic

Recommended Posts

For two and half years we have been trying to figure out what is wrong with our six year old son.  He started having urinary incontinence and would drop to his knees in pain and then urinate on himself . First the doctors thought he had  epilepsy,  then they thought he could have tethered cord syndrome, then a thick blaster, the list goes  on....  The last doctor we saw was a G.I. doctor, she tested him for celiac disease which he tested positive off the charts for and the biopsy confirmed that he does have celiac disease. We cleaned our house got new utensils, cutting boards , gave away food etc... He has been  gluten-free for a week now.  My husband and I are concerned because he's gluten-free now,  but his symptoms (the severe stomach cramping he calls them twisties in the stomach)  Have gotten worse. He drops to his knees in extreme pain and loses control and urinates.  He may not  urinate every time he has the twisty but most of the time he will have some leakage. He will have these "twisties" up to 10 or more a hour. We are wondering if any parents  with kids who have celiac disease  have experience this as well or if anyone has any suggestions for us.   In addition under his eyes look a very dark and his skin is so pale . As you can imagine we are very nervous and worried for him .  Any feedback would be greatly appreciated. Thank you. 

Edited by Salina

Share this post


Link to post
Share on other sites

So sorry to hear this it must be so hard and upsetting to worry for your son.  I was diagnosed 1.5 years ago and i can tell you that as hard as it may be, try not to worry. It takes a while to overcome the gluten "withdrawal" and the symptoms do not just go away that quick. It will take at least a few weeks maybe longer for things to turn positive, but they WILL turn positive. He will heal fast children heal much faster than adults. He will be ok trust me, he will be ok. Stay the course and take care of him and yourselves as you start this tough journey. It gets better don't worry :)

Share this post


Link to post
Share on other sites

Also make sure you check everything he consumes for gluten. Be more strict than you think you need to be...toothpaste, spices, medications, everything that is processed...check ingredients diligently and look up products on websites to ensure he isn't exposed to any gluten sources anywhere. Takes a hike to become an expert but like all things it comes with time. 

Share this post


Link to post
Share on other sites

Hi Salina,

I am sorry to hear about your son's pain.  It does take some time to heal from celiac damage to the gut.  My gut had spasms for about 5 to 6 weeks after going gf.  The worst of it will probably be over in a week or 2 though.  In the meantime, the cleaner of gluten you can keep his diet the faster he will recover.  Celiac disease is an autoimmune condition and the immune system doesn't give up very quickly.  The immune system is also very sensitive to invaders (gluten) in our case.

It is best to avoid sugar and carbs at first, and also dairy and processed foods.  Carbs, sugar and dairy feed bacteria that can cause gas and pain.  Eating mostly meats, veggies, nuts and eggs will allow his gut to heal faster.  Peppermint tea can be helpful for gas.  I would suggest Pepto Bismol for soothing the gut but there is some concern about aspirin in young children.  Well cooked foods (softer) are easier to digest for anyone.

The Newbie 101 thread has some tips for getting started also.

Welcome to the forum Salina! :)

 

Edited by GFinDC

Share this post


Link to post
Share on other sites

Just wanted to add that all first-degree relatives should be tested for CD even if symptom free.  

I am sorry that your son is so sick.  On a GF diet he should improve.  It just takes time.  Luckily, kids tend to heal much faster!  ?

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...