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Crunches

Do I Have Celiac ? And Gluten Intolerance

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I'm so frustrated. Three months ago, I had an allergy test via blood and was told I'm allergic to almost everything: ie- beef, pork, shell fish, salmon, chicken, eggs, wheat, corn, banana, potatoes, yucca, beets, maple tree, hazel, peanuts, mold, dairy, soy, grass (types I can't remember) mixed feathers, ( I figured, b'cuz I can't breath around down products), dog, cat, melons, tomatoes - and the list goes on. I always complained since I was young about my body (painful, stomach pains), feels like I'm doing extreme exercise or have been beaten; and some times have seizures, just awful. I tried staying away from everything for two weeks, my blood pressure when normal and I lost 20 pounds. But I can't keep up with the meals because my family don't believe this is actually a problem, and how have I been living for the past 50+ years with such a problem. So I still have to shop for the household. But I have been struggling with the pain for years. I need help, because I cannot live without bread!!!! I keep falling off by eating bread (even gluten free - I have pain and rash). At least, bread is filling.

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The only way to truly know if you are celiac is to ask your doctor for a blood panel and if it's positive then a biopsy. I suggest you ask for the blood panel to help you determine celiac or not.  

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Welcome to the board. I agree you should be tested for celiac. Make sure you don't stop eating gluten until all celiac related testing is finished. I also seemed to be allergic to everything before I was diagnosed. I had skin prick testing for 99 substances and the only thing I didn't react to was beech trees!  My very savvy allergist said after I was diagnosed that was a big indication to him that I was likely celiac. He then referred me back to my GI doctor who confirmed his suspicions.

Family can be a bit hesitant to believe our diagnosis. I know my family was sceptical but as I recovered they became more suportive and even ended up getting the advised testing for first degree relatives.

I hope you can get some clear answers soon and can begin recovering.

One last thought you mentioned a rash. Celiac can produce a rash called dermatitis herpeformis (DH). A diagnosis of DH is a diagnosis of celiac. You may want to see a celiac savvy dermatologist. Do check out the DH section of the board for more info on that condition.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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You have to keep eating gluten to be tested, but only a half a slice of bread or a cracker a day. I do suggest going to you doctor and requesting a FULL celiac panel and getting the blood test done. They will follow up with a endoscope and biopsy.

On a side note Celiac is a autoimmune disease, it can lead to other issues with your body, including other immune diseases, thyroid issues, food intolerance. Now due to the damaged intestines most of us with it are prone to random food allergies and intolerance that can go away with time as we heal. We normally have to stay on a strict gluten-free diet once diagnosed and each of use being different have to find a diet that works for us. in my case it is Allergies:Corn, Olives ,Sesame, Peanuts, Whey Sensitivities/Intolerances: Dairy, Soy, Yeast ,Enzyme issues with digesting Meats, and Egg Yolks, Low Tolerance for sugars and carbs (Bloating issues) So I built a diet around nuts, seeds, veggies, small amounts of meats and egg whites, along with vegan protein powders.   I did have a few other issues that have one away over the years, like my allergy to beets and in the fact I can eat salmon, crab, swai, and lean meats cooked til they fall apart in small amounts.   

I suggest talking to a dietician about you diet and setting something up once you get your testing done. I do regardless suggest dropping all processed, foods, condiments, etc. and going to a WHOLE foods only diet of fresh veggies, meats, fruit, sweet potatoes and perhaps rice to go easy on your system for a bit. You might find your reacting something odd in your diet you did not know about that is in processed foods. Try a simple thick and hearty stews of just fresh meats and veggies for a awhile and see how you feel. A elimination diet t for a few weeks might help narrow down your issues also.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Learn more about celiac disease testing:

http://www.cureceliacdisease.org/screening/

 


Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

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wow thats a lot of allergies!  do you actually have an allergic reaction to all those things?

was it an IgE allergy test? i believe the blood test more commonly has false positives than the skin scratch test. did your allergist offer you any kind of allergen immunotherapy .

if you had the IgA/IgG food intolerance testing, its not scientifically accurate, the positive results just indicate food you have been exposed too which are wrongly interpreted as meaning allergies. so i wouldn't make any significant diet chances based those results.

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I'll like to thank everyone for each advise. At first, I felt like I probably had something else going on. Because I thought that you can't have celiac if you're allergic to food other than gluten. I do have an appointment with my doctor next week and we'll go from there with other test.  And Emma6, unfortunately, yes. And I didn't mention everything. I guess that's why my family is in awe. It seem unreal.Thank you for making me feel real!

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