Jump to content
Celiac Disease FAQ | This site uses cookies GDPR notice. Read more... ×
  • Sign Up

Rate this topic

Recommended Posts

I was diagnosed with asymptomatic Celiac in the last couple months.  Being that it can be hereditary I had my three kids tested as well.

However, long before I was diagnosed I suspected my daughter might have Celiac b/c of skin issues she'd had her whole life.  Once I was diagnosed I did some reading and came across the symptom of brain fog and that sort of thing.  Immediately I thought of my oldest.  In some instances he has great concentration and other days it's like pulling teeth to have a normal conversation with him, b/c he can't verbilize what he's trying to communicate.  Almost like the words have just escaped his head (he's 13 so it's not like a toddler not knowing the words for things).

I got a call the other day to go in and review the Celiac panel with the dr. For my oldest AKA he's tested positive. (Of course they didn't have the results of the other two kids yet.)

My question is, has anyone experienced the brain fog thing with their children while in school.  I suspect that this has hampered his performance in school for some time. Smart kid, just not stellar report cards.  Which I assumed was lack of effort.  What if the lack of effort was really brain fog making it difficult to get things done, resulting in him giving up.

Has anyone experienced something similar with their kids.  How does one sort things out with school, in terms of support and understanding for at least the time being (until his gut has healed and get the gluten out of his system).

Share this post

Link to post
Share on other sites

Brain fog is real for those with celiac disease or even Non-celiac Gluten Intolerance.  He may also have another condition which can impact his learning.  If negative for celiac disease, consider getting him evaluated by the school psychologist.  The school should (and is required by law) to help develop a plan for him.   In the US, celiacs can file a 504 plan (American Disabilities Act).  Learn more here:


If the celiac tests are negative, make sure the complete celiac panel is given to completely rule out celiac disease.    Not all celiacs (like me) test positive to the standard screening TTG test.  Remember, celiac disease can develop at any time.  I test my kid every few years, even if symptom free.  

Keep researching celiac disease.  Being well informed is a great defense!  Take care and ask as many questions as you like.  We are here to help.  

  • Upvote 1

Share this post

Link to post
Share on other sites

Thanks @cyclinglady ?

They did run a full Celiac panel and I'll get to see the results in a couple weeks.

I think the difficult or complicated part is that he does ok in school.  By no means is he failing.  And does very well in Math and some other subjects.  So it may not be as apparent that this may be affecting him.

What I think may complicate matters is that he has days where things seems fine and other days where things just don't seem to click.

I'll check out that link and see what kind of help that is.  Although we are not in the US so it won't be totally applicable.

Share this post

Link to post
Share on other sites

My brother was very smart.  Did not apply himself at school.  His verbal conversation responses were, "Yeah, Uh Ha, Nah, and Maybe".  It drove my mother nuts.   She thought he would be a bum.  He did not finish college and my Mom evicted him (family rule was to go to University or get out and earn a living).  He got a job and became computer savvy.  He has been married for over 25 years, has kids, and is a VP at Fortune 100 company.

Thirteen is a tough age.  You just never know how they will turn out!  ?

  • Upvote 1

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Top Posters +

  • Upcoming Events

    • February 27, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com