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tarab87

just got my daughter's biopsy results :(

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my 7 years old daughter's results are in from her biopsy and this what they say...

she 100% has celiac disease 

significant damage to the small intestine and villi all so inflammation 

So from now she's on a stricked diet I have seen the dietician so I no roughly what I am doing.

any one with inflammation of the small intestine... is the inflammation because of the celiac? or could it be something else. I tend not to Google things I like to know from people who are going through this am just wanting to be prepared for wen we go see the consultant to discuss the results. 

I am going to be using this forum a lot now as the help and advise on here is great 

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Yes celiac causes damage and inflammation to the small bowel.  Once she goes gluten free her body will heal and she will feel loads better.

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It's good to start with soups and stews for a few weeks to help some of the damage start to heal.

Easiest way to deal with school is for her to always bring a bag lunch to school with her. If you make up some chocolate cupcakes and freeze them in that small chest freezer I recommended in the other post then if the school is one where people bring in cake for a child's birthday, have her bring a cupcake with her on that day if you know what day someone has a birthday.

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Hi, it may be difficult for your daughter, but try avoiding even gluten-free processed food as much as possible. It will help her recover faster. While it does not have gluten, it has a lot of other substances/additives, which may not sit well with your daughter while she is recovering. Pay attention how she reacts to dairy products, eggs, nightshades, corn, oats,etc. At first, due to inflammation and damage, she might not be able to eat them. However, once healed, you can start reintroducing one at the time and see how she reacts. No one likes learning that they have celiac disease but try to look at the bright side... it was discovered fairly fast so she has an excellent chance of recovering and not having any further issues on gluten-free diet. Some people go undiagnosed for a very very long time, which just makes their recovery that much more difficult. Make sure she is 100% gluten-free and you both will do great! Good luck!

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31 minutes ago, tessa25 said:

It's good to start with soups and stews for a few weeks to help some of the damage start to heal.

Easiest way to deal with school is for her to always bring a bag lunch to school with her. If you make up some chocolate cupcakes and freeze them in that small chest freezer I recommended in the other post then if the school is one where people bring in cake for a child's birthday, have her bring a cupcake with her on that day if you know what day someone has a birthday.

The teacher might be able to store a small gluten-free cupcake, clearly labeled and well wrapped (I have individual cupcake special containers), in the staff lunch room too.  

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9 minutes ago, cyclinglady said:

The teacher might be able to store a small gluten-free cupcake, clearly labeled and well wrapped (I have individual cupcake special containers), in the staff lunch room too.  

Oh, Skittles or other gluten-free candy, are good alternatives too for class parties.  

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2 hours ago, LookingforAnswers15 said:

Hi, it may be difficult for your daughter, but try avoiding even gluten-free processed food as much as possible. It will help her recover faster. While it does not have gluten, it has a lot of other substances/additives, which may not sit well with your daughter while she is recovering. Pay attention how she reacts to dairy products, eggs, nightshades, corn, oats,etc. At first, due to inflammation and damage, she might not be able to eat them. However, once healed, you can start reintroducing one at the time and see how she reacts. No one likes learning that they have celiac disease but try to look at the bright side... it was discovered fairly fast so she has an excellent chance of recovering and not having any further issues on gluten-free diet. Some people go undiagnosed for a very very long time, which just makes their recovery that much more difficult. Make sure she is 100% gluten-free and you both will do great! Good luck!

Avoiding processed food is not necessary for everyone. Many people can tolerate small amounts like bread in the beginning.  There is no proof that total avoidance of these products leads to faster healing.  I was in my mid-40's when diagnosed and did not abstain from all processed foods.  I needed to gain weight badly so ate gluten-free bread (toast) in the beginning and did just fine. It is really difficult for kids to eat whole foods only, unless they have to. It will become obvious fairly quickly if they are having trouble with them. Many will also resent the diet if they are forced to eat no mainstream carbs. I am not saying to eat chocolate cupcakes on the second day but gluten-free bread and some cereals should be just fine.  Kids are kids...they will heal faster than we adults do anyway so parents should not feel guilty about giving their kids some gluten-free toast in the morning or making them a sandwich for lunch.

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thank you all for your advise and input I do really appreciate it.

it's hard to take in these results but am sure once we in a routine all will be fine 

I will be having a meeting with the school she will be going on packed lunches and I will ask about gluten free snacks or cakes wen it's another childs birthday.

 

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I just wanted to chime in and say I hope your daughter gets to feeling better soon.  I know how overwhelming it can be as a parent to navigate the celiac world for our little ones.  My daughter was diagnosed at 4 (almost 7 now) and was very sick with a lot of damage.  It takes a while, but you will soon get used to bringing her food where ever you go.  I keep frozen cupcakes (chocolate is the best) on hand for any time she has an occasion that others are having treats.  I found nutella makes an easy, quick icing too (without needing to open an entire can of frosting).  

Good luck!

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