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Mermaid's Mom

Dairy intolerance? Maybe?

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So I think my daughter is reacting to Dairy?  I only really removed it 100% from her diet for a few weeks and then SLOWLY let her have some because of how difficult it was to find substitutes she liked and she was still reeling with the emotions of being restricted from so many foods.  The smell amts of dairy we allowed had no adverse effect on her (so we thought) and her improvements were still so profound and immense we felt confident that dairy was not an issue.

Cue the Cheerios.  We allowed her "oats" again and Cheerios require milk and within a week BOOM all her symptoms were back - difficulty swallowing, hearing issues, dh rash on her scalp, tired, confused.

Naturally I accused the oats of being the devil!

So that was a week ago that I figured out that oats were evil and have easily eliminated them as Cheerios were the only source.

Well here I am and she is NOT getting better.  In fact...she is now having extreme SPD symptoms again.  Things are too loud.  Smells are too strong. Her clothes feel weird, her bedding feels weird.  This all overlapped with the onset of a pretty bad head cold so I tried to be patient.  But a full week later...I think it's the dairy?

I have an apt with a Naturopath to test for food sensitivities and I am wondering about having the Dr test her scalp rash?

Any thoughts?  Do we assume it's dairy or could a cold on top of an oat cross contamination still be causing problems?

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Could be we generally say get off of dairy for a few months when going gluten free. The part of the intestines that produce the enzymes, and help break down dairy are associated with the tips of the villi, which are the most damaged if not gone in celiacs. THIS is why most of us end up with a lactose intolerance early on. And most can introduce it later after healing.

As to her symptoms with it there was a bunch of research about dairy permeated the gut and causing neurological issues in a autism study I was looking at years ago. And there have been other studies about damaged intestines and how the hormones in milk can easier effect ones body.   Personally I also have a huge grudge against dairy on a personal level as it is not natural to suck on a cows tits and drink the stuff, nor your dogs, nor a rabbits......I mean come on even Human Breast milk you would find odd to drink as an adult right? Back in the past dairy was a great way to get calories and fats when there was famine, etc around I mean it is meant to make a calf grow into a 500+lb cow. But on a genetic and hormonal level it is not really for human consumption and now days the whole corporate BS propaganda push and dairy farms shove that oh its healthy stuff down your throat.

There are plenty of dairy free options for everything feel free to message me if you need help finding anything I have been dairy free for over a decade.

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I believe the talk around this forum is that cheerios are not gluten free enough for people with celiac at this time. I don't know if anything has changed on that and when their lawyer calls me I'll quickly delete this. haha

 

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1 hour ago, Ennis_TX said:

Could be we generally say get off of dairy for a few months when going gluten free. The part of the intestines that produce the enzymes, and help break down dairy are associated with the tips of the villi, which are the most damaged if not gone in celiacs. THIS is why most of us end up with a lactose intolerance early on. And most can introduce it later after healing.

As to her symptoms with it there was a bunch of research about dairy permeated the gut and causing neurological issues in a autism study I was looking at years ago. And there have been other studies about damaged intestines and how the hormones in milk can easier effect ones body.   Personally I also have a huge grudge against dairy on a personal level as it is not natural to suck on a cows tits and drink the stuff, nor your dogs, nor a rabbits......I mean come on even Human Breast milk you would find odd to drink as an adult right? Back in the past dairy was a great way to get calories and fats when there was famine, etc around I mean it is meant to make a calf grow into a 500+lb cow. But on a genetic and hormonal level it is not really for human consumption and now days the whole corporate BS propaganda push and dairy farms shove that oh its healthy stuff down your throat.

There are plenty of dairy free options for everything feel free to message me if you need help finding anything I have been dairy free for over a decade.

Oh I have no issue with being dairy free personally but tell that to a 13 year old.  We both went gluten-free at the same time and it has been mindlessly easy for me.  But I am easy about food and no real food issues.  I am far more adaptable.  She comes to the table with her own unique set of issues that complicate just easily transitioning to dairy free versions of much loved favorites.  To most they are jst that "substitutes" to her they are completely different foods and ones that she has no interest in eating.  They don't satisfy her need for XYZ.  It is like craving an apple and someone handing you a fish.  For her anyway! LOL!

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48 minutes ago, tessa25 said:

I believe the talk around this forum is that cheerios are not gluten free enough for people with celiac at this time. I don't know if anything has changed on that and when their lawyer calls me I'll quickly delete this. haha

 

Yeah we learned that the hard way.  I am inclined to think (as I did initially) that it was JUST the Cheerios but as time is passing and she is not bouncing back I am worried that we need to strip away dairy again for a while.

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Maybe try a rice based milk, I find the coconut flavoured ones really good with cereal. :) 

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5 hours ago, Mermaid's Mom said:

Oh I have no issue with being dairy free personally but tell that to a 13 year old.  We both went gluten-free at the same time and it has been mindlessly easy for me.  But I am easy about food and no real food issues.  I am far more adaptable.  She comes to the table with her own unique set of issues that complicate just easily transitioning to dairy free versions of much loved favorites.  To most they are jst that "substitutes" to her they are completely different foods and ones that she has no interest in eating.  They don't satisfy her need for XYZ.  It is like craving an apple and someone handing you a fish.  For her anyway! LOL!

Silk Cashew milk is pretty creamy and close to dairy milk, I love Macadamia milk, almond milk is a tad thin in most brands but a good sub and normally enriched with calcium, vitamin D and E. Coconut milk is a bit acquired and can range greatly in consistency, rice milk is normally very thin like 2% school carton milk and bland.  Elmhurst Harvest has started making SUPER rich and creamy milks with walnuts, almond, and macadamia nuts, with talk of bringing back the pistachio milk. I personally love the almond and cashew blends from blue diamond or silk.  If you need a nut free version Good Karma makes a decent flax milk. There are a few other brands out there that make some good ones here locally I love the HEB Organics almond milk best almond milk I have ever tasted rich, fulfilling, and just perfect.   NOTE, avoid the shelf stable versions from almond dream, cashew dream, blue diamond, silk, HEB they are normally much thinner and bland. 

Cheese, On block cheeses Dayia makes a good Havarti, smoked Gouda, and cheddar. the shreds from there are pretty bad in taste. Follow your Heart makes a great provolone and decent on everything else. Lisanatti makes godly good shreds for jalapeno jack, cheddar, and mozzarella, they melt better then real cheese as they lack the greasy oil mess.  Their blocks on the other hand are way to soft.   Julian Bakery makes a passable mozzarella but only if your melting it over something or in something the flavor and texture is off but it is the only cheese I found you can order on amazon lol.   Kite Hill makes some really good soft cheeses, I tried a few others like hedei ho and found they are too salty or the flavor way to off to even call cheese.

Ice cream there is Nada Moo, and So delicious for some of the top dairy free ones. I personally can only have one called wink which is a unsweetened one.

Yogurt the So delicious and kite hill take the top in my opinion but they are the only ones that make a good unsweetened so I can not comment on others.

I make my own parmesan and cheese sauces from scratch myself from various ingredients. Even make my own cheddar biscuits and cheesy garlic breads. Hell just made a batch of cheesy cheddar and chive biscuits this morning, OHH the buttery goodness of Nutiva Butter flavored coconut oil I love cooking with, sauteing, and using in savory foods. last week I found it was great with carb free noodles and herb seasoning. I am thinking of using it in my cauliflower Alfredo sauce next time also.

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