Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Dayle

I just turned 65

Rate this topic

Recommended Posts

I am scared, when I was in 3rd grade I was pencil thin, and the school got involved, my mother took me into Boston, to Childrens Hospital.

I have no memory of this...I only know because my mom died in  arms 2004, I found a card with my name on it and it said Celiac.

We were told then  I would outgrow  it. In 1999 we were involved in a MVA, I have no memory of the accident.My skull was fractured  in 3 places, I was in surgery for 4 hours, and in ICU for 10 days. I had a traumatic brain injury.

 with Systemic Lupus,Fibro and all those little auto immune diseases.

This is my 2nd marriage , but I had horrible stomach problems, and I just thought I had IBS ,well, I found that card, and I was in a size 0.

I managed to put weight on, and the stomach problems had improved, so thought I was ok.....UNTIL 1 month ago.

I now have decided to live gluten free. My husband is a wonderful guy, he is buying gluten free, but for 65 years, what have I done to my body.

I am sorry for venting.....I have seen enough Doctors had a million blood tests, So, I do not really want to tell my new primary Dr.

I am literally sick of being sick.

Blessings to all,

Dayle

Share this post


Link to post
Share on other sites

Hi Dayle,

We can't change our past, but we can change our future. You have taken the right step in going gluten free, it may take quite a while for your gut (and the rest of your body) to heal because you have had coeliac disease for so long, but any positive step is the right one!

When I was in my early 20's I was diagnosed with IBS,  but in more recent years, (I'm in my late 50's) diagnosed with coeliac disease. It did a lot of damage to my body and was extremely ill. Finding out I had coeliac disease though, helped me to change my whole diet and slowly I'm starting to feel better.  When you've had something for so long, you do not get better over-night and you may find other challenges along the way (I have multiple food intolerances, all lot of them due to eating gluten free foods, which have ingredients in them you don't always find in gluten foods), but to continue eating gluten is not an option.

Don't give up hope, every day is a new beginning.

Share this post


Link to post
Share on other sites

Dayle, 

My friend is from Ireland and was recently diagnosed with celiac disease.  Her older sister was diagnosed with celiac disease as a child in the 1950's.    She too, was told that she would out grow it.  She kind of did.  She went off the gluten free diet.  Celiac disease is like a chameleon, always evolving and changing.  She married, had kids but by midlife, she became very ill.  Her celiac disease never really went away.  Armed with current information, she insisted that her siblings get tested.  One sister, my friend, tested positive.  All those aches and pains she attributed to getting older.  Now, she is feeling much better!  

I am sorry that you have been ill.  I hope you will recover quickly!  

 

Share this post


Link to post
Share on other sites

I was diagnosed when I was 59, I am now 66.  I suspect there were problems all my life as I have always had constipation, tummy issues etc.  That said, yes, given our age, we have messed up our body.  However !!!   Good things can and do happen!  Our body can heal.  And it will.  It may take longer for those of us that are a little older but it will happen.

Not to sugar coat anything, but for me, it took about 4 years before I felt really well.  Before I felt like my system was "working" properly again.    Somethings never heal completely, like I will always probably suffer with low iron/energy,  but stick to the g.f. plan and you will heal, you will feel better. 

Just a side note, if you can, try to stick with good old-fashioned plain foods as much as you can.  Stay away from processed foods.   You will heal faster.  Processed foods have so many ingredients in them that just aren't healthy. 

Your husband sounds like a supportive guy! 

Share this post


Link to post
Share on other sites
On 5/9/2017 at 0:53 AM, LorriNielsen said:

Dayle,

Thanks for sharing.   Just remember, it is never too late to make a positive change!  Good for you!  

I have a lot to deal with. Systemic Lupus and Fibro.But I do so much want to feel better. I know that I have to be patient. 

Share this post


Link to post
Share on other sites

I have fibro too, along with quite a few other conditions, including an under active thyroid. I'm saying this, not to point score, but to give you hope, as my thyroid improved quite a bit after going gluten free! Again, it wasn't over-night, but a gradual thing, and now take a lot less thyroxine because of it. I mentioned this to my doctor recently and she said it was because my body was absorbing the medication better because my gut lining etc was healing. (I suffered badly with malnutrition and anaemia before I was diagnosed with coeliac disease. So don't give up hope. 

Share this post


Link to post
Share on other sites
4 hours ago, flowerqueen said:

I have fibro too, along with quite a few other conditions, including an under active thyroid. I'm saying this, not to point score, but to give you hope, as my thyroid improved quite a bit after going gluten free! Again, it wasn't over-night, but a gradual thing, and now take a lot less thyroxine because of it. I mentioned this to my doctor recently and she said it was because my body was absorbing the medication better because my gut lining etc was healing. (I suffered badly with malnutrition and anaemia before I was diagnosed with coeliac disease. So don't give up hope. 

I do have HOPE now, thanks to all of you...I just need to hope that I will heal ....

Share this post


Link to post
Share on other sites
33 minutes ago, flowerqueen said:

Best wishes winging their way to you from the U.K. 

Right back at you, my friend 

Share this post


Link to post
Share on other sites

I can well understand your anxiety & agony.

My tale is somewhat similiar-i'm 72 now, and discovered i was a Celiac only ten years or so ago. But, i've had stomach related issues all my life,except that nobody diagnosed it correctly. The usual theories-IBS, Tropical Sprue, etc.etc.. followed by invasive tests led nowhere. My weight dropped to 35kg, and i was passing loose watery stools a dozen times a day.

I developed Tetany (spasms) and ended up carrying my intravenous Calcium shots with me, always looking for an emergency clinic to give me a life saving injection, but whose effect wore off within the day, & i was back to my miserable state.

Finally, i was diagnosed by a young Gastro Dr. in a Govt hospital who put me on a 100% gluten free home cooked diet. Within a few months, my symptoms reversed and i'm now 66kg!!

My experience has been that "Celiac disease is the hardest to diagnose but the easiest to treat".

My advise is to strictly follow the list of gluten free foods, but try to restrict yourself to home cooked food made from fresh ingredients (nothing out of a can & nothing with a preservative). Eating gluten free food in restaurants is tricky & avoidable, due to cross contamination with other foods & utensils in the common kitchen.

Best of luck..

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
Hehe — I've had IBS for so long I stopped mentioning it to doctors because I know there's nothing they can do. In fact I'm so used to it, when the GP asked if I had any GI symptoms after this test result came through, I said no, before remembering about the IBS! 
  • Blog Entries

  • ×
    ×
    • Create New...