Jump to content
Celiac Disease FAQ | This site uses cookies GDPR notice. Read more... ×
  • Sign Up

Rate this topic

Recommended Posts

     
I was gluten free for about a year and feeling great, then I started eating twizzlers and wasn't really thinking about the gluten in them. I was started to feel off all the time. Then I got a really bad cold virus and wanted some warm chicken noodle soup and ate that for about 2 weeks and of course wasn't feeling well because I already had a cold. Then I just completely crashed one day. Started having extreme fatigue and weakness. Muscle pain. Stomach problems. Anxiety and panic attacks. I immediately stopped eating the noodles and went back to gluten free. I noticed that eating oats caused the same reaction. Now it is two months out and I am still feeling weak and fatigued. Other symptoms are: hard time sleeping, muscle pain, crying easily, panic attacks, reactions to almost everything I eat now. However it is gradually seeming to subside. Questions...Can gluten have a cumulative affect where the symptoms just keep getting worse the more you keep eating and eventually cause a crash? Can the symptoms last for 2-3 months or longer? Can oats cause the same reaction (the oats were gluten free)?
 

Share this post


Link to post
Share on other sites

Yes, if your a celiac then your antibodies kept going up and up as you ate it more, celiac is a autoimmune disease where you body reacts to gluten like a virus or germ creating antibodies that end up being misguided and attack other parts of your body (to sum it up and simplify it). The antibodies can take 2-6 weeks to calm back down. Some of us like me and about 10% of other celiacs react to oats exactly or in a similar fashion to gluten.

If you want to be tested for the disease keep eating gluten for a full 6 weeks then go get the blood test done getting a full celiac panel to check for the antibodies. After which you need to keep eating it for the endoscope where they go and check for intestinal damage.

Share this post


Link to post
Share on other sites

So you said 2-6 weeks for me it has been 2 months. Could that be because I ate other things like oats, corn & rice that I also react to during that time & it is keeping my system inflamed?  

Share this post


Link to post
Share on other sites
11 minutes ago, Glmurray said:

So you said 2-6 weeks for me it has been 2 months. Could that be because I ate other things like oats, corn & rice that I also react to during that time & it is keeping my system inflamed?  

If you react to oats then yes it would keep it up, if oat did not bother you before hand they might now, sometimes after extended gluten exposure your body develops new intolerance to foods. These can go away after time but for now you might have also developed a new food intolerance. Try keeping a food diary, write down everything you eat and how you feel 2-6 hours after. Change up your diet and rotate some foods/spices out completely for a few days keeping track like this. You might find some foods that are triggering your issues. These might be a newly developed intolerance or you might find you have a gluten cross contamination issue in something.

Share this post


Link to post
Share on other sites

Hi and welcome :)

17 hours ago, Glmurray said:

I was gluten free for about a year and feeling great

What caused you to go gluten free? Have you ever been tested for celiac?  

 

Share this post


Link to post
Share on other sites

I had muscle aches and fatigue and anxiety when eating wheat.  I had some tests done.  They said something was low, I forget now what it was called, but they recommended that because of it.  For some reason I decided to try it again and I don't know if it was coincidence or not, but my health went downhill quickly after I started eating it everyday again.  I just wasn't sure if the symptoms could last for 3 months.  I have read several articles that say it could take 3-6 months to get over one time eating gluten.  

Share this post


Link to post
Share on other sites

Symptoms can last for months, I think our own CyclingLady said that effects from her last glutening lasted 6 months. They will go eventually however. In very rare cases of refractory celiac they don't, but this is, extremely, rare. Try and take heart that at least you know the cause of the anxiety. I find it a lot easier to cope with now because I know there's a physical cause for it and I know it will eventually pass. 

I think you may want to give some thought as to whether you want to test again for celiac. A positive diagnosis may be useful to you, both to keep you on the diet and for the additional monitoring of your nutrient levels. Of course that would involve a gluten challenge and you've already experienced that going back to gluten after an absence can be tougher than the first time round. So, given that you now know that gluten is a problem for you. if you don't want to do that my other suggestion would be to live your life as if you have a positive celiac diagnosis. However much of a pain the diet can be, it's a lot easier to negotiate if you know that gluten is absolutely not an option for you. 

I hope you're soon feeling better! 

 

Share this post


Link to post
Share on other sites

Jmg-

Thank you for your reply.  I just don't know if I could go through these symptoms again to be tested.  I think I will just continue to be gluten free and never ever decide to try it again.  This has been a rough 3 months and I am hoping that resting and nutrition will cause a turn around soon.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
3 3

  • Top Posters +

  • Upcoming Events

    • February 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×