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MinNYC

Topical Itch Relief - other than Dapson

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Im new to this site and to DH but not new to this sort of Board. I thought it would be helpful to have ONE thread, pinned if possible, which clearly and coherently listed the methods used to combat this awful itch. It certainly would make things easier for me and other newbies. (Emailed hints on how to "tag" this would be appreciated.) 

Please forgive me if i dont credit you with your suggestion. Ive been busy compiling options for myself and neglected to note the names of the people who posted them.

And please, please add suggestions, your first hand experiences with the various measures  and your identity for the suggestions ive posted below.

From my research on this and other sites: 

 

1) Orajel oral pain reliever for toothache Maximum Strength. The active ingredient is Benzocaine 20%. - the poster says this is absolutely magic and cures the itch for hours and hours

2) Benzocaine spray, Solarcaine spray or the like - great for hard to reach or large areas. gives complete relief but doesnt necessarily last long term

3) "ultra-venilated french green illite clay".  Ive not looked into this but the poster says "I researched it a few years ago, trying to get rid of my HERPES (which I do not believe I have). It is a dry powder, I mix with water, and make a paste, put a thick application on my rash and cover with saran wrap (important to keep moist). Voila.,," 

4) vicks vapor rub 2 x a day to smother it

5) cold compresses, with plain water or a diluted Apple Cider Vinegar

6) showers as scauldingly hot as you can stand them - probably awful for the skin but this is one that worked for me. Warning: it is EXTRAORDINARILY, screamingly painful at first. (And yes, i actually did scream.) But then it feels  like someone is deeply scratching all of those itches - all without making you bleed. And finally, theres a sort of release and numbness so that i didnt itch for a long while plus i was tired and calm enough that id fall right to sleep. At the height of my first major outbreak (i had lesser unidentified ones before), i was taking 3 scaulding showers a day.

7) teatree oil - i love teatrea oil for infections but this didnt work for my rash

8) Baking soda in warm bath water. At least one half cup.

9) Ivy Dry - cream or lotion

10) Band Aid Itch Relief Gel Spritz 

And......


 

 

 

Edited by MinNYC

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I think the first thing is - is it REALLY DH!? Did a dermatologist biopsy it properly and the pathology report confirms Dermatitis Herpetitis?

Second- a strict gluten free diet is the only way, currently, to stop it from getting worse or coming back

Third- there are things a doctor can prescribe for a period of time to help it go away.

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Kareng - Thanks. All 100% true. But since those points are covered in many, many other places on this site, i thought a one stop shop for topical itch relief might be helpful to me and to others.

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I've never been diagnosed with DH, but get a rash that feels like burning match heads in the bottoms of my feet that lasts for weeks. I found applying apple cider vinegar to the area helps, and I second the benzocaine too. 

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I buy Epsom Salt in 50lb. bags 4 at a time to get the free shipping - the UPS guy/gal hates me on those days...  Six cups or more in a tub of warm - medium hot water.  Use the end (the roughest part) of a loofah to remove scaly skin/scabs.  Soak for at least an hour in the salt water.  I've read that the antibodies created in the dh process are stored in the top layer of skin, combine with iodine in some way to create the rash we all know and love.  So logic says - loose the top layer of skin - loose the itch  - at least for a while.  I get relief for several hours at a time if I also apply triamcinolone acetonide cream and moisturizing cream while still a bit wet.

Just another quick point:  Cross Reactions to other proteins is real.  Did the Cyrex Lab Array 4 test and it showed above normal for Tapioca - no wondering I started to itch like crazy on my 3rd cookie (ok - maybe my 5th or 6th) from the great gluten free bakery operated by 5 brothers with celiac disease which I can no longer frequent because Tapioca flour is in their proprietary blend of gluten free flour - and their stuff was delicious - so that one hurt.

I also have a question to ask.  Has anyone tried RSO topically to treat DH?  I've heard people have gotten results using it for other skin conditions including skin cancer.  Seems the magic weed has a lot of anti-inflammatory properties - just wondering if anyone has tried this where available.

Been diagnosed with DH/Celiacs disease for about 3 years.  After I got gluten free, I accidentally glutened myself about 10 months ago, so I know what that's like - just don't know how long the effects last as the antibodies can stay in the skin for a long time.  I have also had severe hay fever rashes erupt over the top of the DH.  Realized this after two years in a row of getting rashes during allergy season, and an especially terrible one last summer after mowing grass and having direct contact.  My allergies were never severe in terms of hay fever, but the onset of the DH has triggered skin reactions to grass pollen for sure and probably other things yet to be identified.  This summer I will limit contact, wear masks, shower immediately after mowing, and take antihistamines daily during allergy season and see how it goes.  Needed a round of Prednizone to get on top of it, and a lot of salt water soaks - so will try and stay ahead of the curve this summer.  The good news is that almost all of my symptoms show up as DH - no stomach or digestive issues at this point.  Am beginning to develop some arthritis especially in joints on my hands where the DH occurs - go figure.  I'm going to do a round or two of CMO as I've seen it work for people who have been diagnosed with Rheumatoid Arthritis - just throwing some more mud at the wall hoping some sticks.  Avoiding  nightshade vegetables, eating anti-inflammatory foods, drinking Tumeric tea, etc... 

I should mention that I did try Dapsone for about 45 days when first diagnosed.  I got very little relief if any - the rash changed - but didn't subside or go away, and when I started to have pain in my side on a daily basis and my blood work started to get to the upper end of "normal" I quit taking the Dapsone.  Other people do get relief using Dapsone to treat DH.

LASTLY - STAY HYDRATED.  I believe people in general don't drink enough water.  People with DH - in my opinion, based on personal experience - need to drink about twice as much water as the average person.  I try to get at least a gallon down every day - easy to forget - when I remember I chug 24 ounces to "catch up".  Pretend you're on the grinder and your DI just ordered you to "HYDRATE!" - chug, chug, chug.

Hope some of this helps.

 

 

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Fluocinonide Cream or ointment 0.05% by prescription only. Works very well!

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Thanks all. Ive actually been having some luck taking one OTC Benadryl each night. May not be the healthiest thing long term but i definitely needed a break from the far too frequent itchy and ugly bumps. And its working.

Hopefully this thread gives others lots of options.

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15 hours ago, MinNYC said:

Thanks all. Ive actually been having some luck taking one OTC Benadryl each night. May not be the healthiest thing long term but i definitely needed a break from the far too frequent itchy and ugly bumps. And its working.

Hopefully this thread gives others lots of options.

What is wrong with one Benadryl per day?

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I googled and it seems to have side effects if used long term. But right now, i dont care. It works. Do you use it too?

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Yes! Benadryl (or genetic version) crosses the blood brain barrier (one reason that it can make you sleepy).  A study showed that it MAY cause dementia.  So, best to use a second generation antihistamine like Zyrtec or Claritin.  I personally save Benadryl for a severe allergic reaction.  

https://www.health.harvard.edu/blog/common-anticholinergic-drugs-like-benadryl-linked-increased-dementia-risk-201501287667

https://www.webmd.com/allergies/news/20160509/anticholinergic-drugs-dementia-link#1

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1 hour ago, MinNYC said:

I googled and it seems to have side effects if used long term. But right now, i dont care. It works. Do you use it too?

I do use it! I just used it last night as I thought I was having a reaction to carmex. Didn't seem to help though. I also used it occasionally for helping with sleep. It did not help me with dh though.

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Didn't help me with dh either.

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On 12/7/2017 at 3:01 PM, Tim (DH Poster Boy) said:

I buy Epsom Salt in 50lb. bags 4 at a time to get the free shipping - the UPS guy/gal hates me on those days...  Six cups or more in a tub of warm - medium hot water.  Use the end (the roughest part) of a loofah to remove scaly skin/scabs.  Soak for at least an hour in the salt water.  I've read that the antibodies created in the dh process are stored in the top layer of skin, combine with iodine in some way to create the rash we all know and love.  So logic says - loose the top layer of skin - loose the itch  - at least for a while.  I get relief for several hours at a time if I also apply triamcinolone acetonide cream and moisturizing cream while still a bit wet.

Just another quick point:  Cross Reactions to other proteins is real.  Did the Cyrex Lab Array 4 test and it showed above normal for Tapioca - no wondering I started to itch like crazy on my 3rd cookie (ok - maybe my 5th or 6th) from the great gluten free bakery operated by 5 brothers with celiac disease which I can no longer frequent because Tapioca flour is in their proprietary blend of gluten free flour - and their stuff was delicious - so that one hurt.

I also have a question to ask.  Has anyone tried RSO topically to treat DH?  I've heard people have gotten results using it for other skin conditions including skin cancer.  Seems the magic weed has a lot of anti-inflammatory properties - just wondering if anyone has tried this where available.

Been diagnosed with DH/Celiacs disease for about 3 years.  After I got gluten free, I accidentally glutened myself about 10 months ago, so I know what that's like - just don't know how long the effects last as the antibodies can stay in the skin for a long time.  I have also had severe hay fever rashes erupt over the top of the DH.  Realized this after two years in a row of getting rashes during allergy season, and an especially terrible one last summer after mowing grass and having direct contact.  My allergies were never severe in terms of hay fever, but the onset of the DH has triggered skin reactions to grass pollen for sure and probably other things yet to be identified.  This summer I will limit contact, wear masks, shower immediately after mowing, and take antihistamines daily during allergy season and see how it goes.  Needed a round of Prednizone to get on top of it, and a lot of salt water soaks - so will try and stay ahead of the curve this summer.  The good news is that almost all of my symptoms show up as DH - no stomach or digestive issues at this point.  Am beginning to develop some arthritis especially in joints on my hands where the DH occurs - go figure.  I'm going to do a round or two of CMO as I've seen it work for people who have been diagnosed with Rheumatoid Arthritis - just throwing some more mud at the wall hoping some sticks.  Avoiding  nightshade vegetables, eating anti-inflammatory foods, drinking Tumeric tea, etc... 

I should mention that I did try Dapsone for about 45 days when first diagnosed.  I got very little relief if any - the rash changed - but didn't subside or go away, and when I started to have pain in my side on a daily basis and my blood work started to get to the upper end of "normal" I quit taking the Dapsone.  Other people do get relief using Dapsone to treat DH.

LASTLY - STAY HYDRATED.  I believe people in general don't drink enough water.  People with DH - in my opinion, based on personal experience - need to drink about twice as much water as the average person.  I try to get at least a gallon down every day - easy to forget - when I remember I chug 24 ounces to "catch up".  Pretend you're on the grinder and your DI just ordered you to "HYDRATE!" - chug, chug, chug.

Hope some of this helps.

 

 

Jamaican Black Castor Oil works well on my DH and it is natural.

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For me, cold water shower helps, and having a bath of salty water. I use dead sea salt. It helped.

And obviously - no gluten, no processed food, no eating out, etc.

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my diagnosis has not yet been confirmed and I am brand new to this board.  But I have been wheat intolerant for over 15 years and the DH makes the most sense for my current condition. 

 

I have found a 30 minute soak in Epsom salts and baking soda followed by a cool shower helps tremendously.  Also helpful is clothing that clings a bit - leggings and long sleeved thumbshirts ease the itching.  Loose clothing tends to irritate and cause itching.  We are in the middle of a heat wave here in Canada and the long black clothes seem a bit odd, but they do help. 

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