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BarryC

Different gluten foods give different reactions?

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I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

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52 minutes ago, BarryC said:

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

I am trying to remember - you are just sort of gluten free?  And don't have celiac?

i think joint pain could be from dehydration.  Beer isn't the best  at rehydrating after sweating.

 

 

Edited by kareng

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Serious question! I am not celiac just intolerant.  Probably high on the spectrum.  Not to disrespect true celiacs at all, just looking for knowledge.

 

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I think that most members on this forum are either seeking a diagnosis or they are learning about how to adhere to the Gluten free diet and cope with a new lifestyle.  No offense meant, but why are you here?  Either trial the gluten-free diet (100%) or find another diet  to help you lose weight or whatever.   

 

Edited by cyclinglady

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6 hours ago, BarryC said:

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

As a celiac my reactions to gluten are pretty consistant. The exception to that is when a gluten ingredient is combined with something else I am intolerant to for example soy. Perhaps you have more than one intolerance?

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8 hours ago, BarryC said:

Serious question! I am not celiac just intolerant.  Probably high on the spectrum.  Not to disrespect true celiacs at all, just looking for knowledge.

 

My point about dehydration causing joint pain, still holds.  I guess you could see if you drank beer when you haven't been hot and sweaty and see if it effects you ? Beer usually has very little gluten, so I would look at  the circumstances or other ingredients or the alcohol itself.

But, when you come on asking questions like this, I am not sure what you are expecting for an answer.   Most of us don't play around with eating different gluten foods.

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10 hours ago, BarryC said:

I get how the reaction can depend on the amount of gluten consumed, but has anyone noticed that different foods give different reactions? I like to have a couple beers after I mow the lawn. I have noticed that when I dont have any beer, my knees are great, but when I do, they flare up. I have mild arthritis in both knees. Since joint pain is a side effect, I wonder if the fact the 'liquid' gluten hits my joints harder.  Other than the pops, I am gluten free. Still waiting for a gluten free beer that is drinkable.

It's kind of mean to come to a celiac board and flaunt drinking regular beer. Just sayin.

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Don't get your knickers in a twist everybody. I am not flaunting anything. Just looking for advice from those who have been through this. I am almost 100% gluten free, but that doesn't mean I cant try to understand how different foods effect(ed)me.  A couple cold ones on a hot day after yard work aint no sin when you cant buy gluten free or even alcohol free where you live, brothers and sisters. I am willing to put up with the consequences.  Also, colorectal cancer runs in my family, and I think the fact my Dad and uncles were big meat eaters had an effect. My brother  went from gluten free to a no carb diet, following the extreme end of the William Davis wheat belly diet. He has lost weight, but I cant help but think it is not healthy in the long run.  I am aware of the We get paranoid about food in our family! 

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You can buy gluten free beers online & have them delivered right to your door. This is one example:

http://www.bringonthebeer.com/Ground-Breaker-Brewing.html

Or you could ask your local liquor store to order gluten free beer for you. 

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6 hours ago, BarryC said:

Don't get your knickers in a twist everybody. I am not flaunting anything. Just looking for advice from those who have been through this. I am almost 100% gluten free, but that doesn't mean I cant try to understand how different foods effect(ed)me.  A couple cold ones on a hot day after yard work aint no sin when you cant buy gluten free or even alcohol free where you live, brothers and sisters. I am willing to put up with the consequences.  Also, colorectal cancer runs in my family, and I think the fact my Dad and uncles were big meat eaters had an effect. My brother  went from gluten free to a no carb diet, following the extreme end of the William Davis wheat belly diet. He has lost weight, but I cant help but think it is not healthy in the long run.  I am aware of the We get paranoid about food in our family! 

So if I can't find gluten-free lasagna noodles in my city, it would be ok to talk about having a long hard day at work and coming home to a fresh baked, gluten filled lasagna  on a CELIAC BoARD? Several servings, in fact! Yes, I do think it's approaching a sin. Your sensitivity level is excruciatingly low.

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No Victoria1234 this is NOT just a celiac board. This is a 'celiac and gluten free diet support board'.  I am attempting to get some support. If you are not interested in giving me any, please keep your comments to yourself.  You dont know me or anything about me, and if you think I am a sinner, than obviously you have more issues than celiac disease.

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Barry I am sorry some folks are giving you such a hard time. You are correct that this is not a group for only those who are celiac. It is a board for people to learn the ins and outs of being gluten free with celiac or gluten intolerance and their freinds and family  That said I came back to this post because after giving it some thought I remembered I do have different reactions to barley malt than I do to wheat gluten. How did I find this out? By drinking a few sips of gluten beers after mowing my lawn a few times.  After I was finally diagnosed.  Was that a bit foolish of me, sure it was but the days were hot and the beer was there.  Long story short, barley malt does not upset my stomach quite as badly as wheat gluten but it does something that a bit of wheat CC doesn't, it gives me terrible tooth and jaw pain.  So yes it is possible that the symptoms you got from those couple of beers are different from what the symptoms might be if you ate a piece of cake. 

It took a while to get used to the taste but I find Redbridge to be toleralble and have tried a couple of the Green's beers. I didn't care for the dark one but the pale one was drinkable though expensive. The ciders like Woodchuck are also nice so perhaps give those a try.  The ciders may be a bit easier to find.

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I was originally not going to respond to this as I assumed it was a troll post. But yes, I recall last time I drank a ale back in like 2010-2012, I got sick withing 10mins and vomiting which normally would take 30mins-2hours for the vomiting to start with solid food.  All my symptoms which are normally spaced out over time with exposure were complied into a much shorter window of starting. No clue how long it lasted I was out cold within the hour in the car til the next morning. Back then did not know it was celiac, but I knew I could not handle beers for some odd reason and stuck ti liquors and mixers.

Also I react differently to inhaled flour, I just get the brain fog, nerve issues, without the major digestive upset.

One other thought between CC and eating straight gluten there is a difference in how severe my nerve issues are and how long my constipation last. Straight gluten will make me loose motor control and collapse on the floor while CC will just cause me to loose feeling in my hands and feet and some some issues walking and handling things, Both result in vomiting etc but the severity is less in CC vs eating straight gluten where I vomit so hard I would have blood in it.

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I react much stronger & much more quickly GI wise, whenever I am exposed to barley malt than to wheat. See? Everyone is different.

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I am not diagnosed with celiac. I am however struggling to get through a gluten challenge right now. My symptoms are strange and mostly tolerable compared to others on this board. My main symptoms are a blistery rash (heavily concentrated in one small area - on 4 of my knuckles), joint pain, fatigue and occasional boughts of dizziness and anxiety. All of which suck, but are tolerable in the grand scheme of life. So I have learned that I can drink a beer here and there with seemingly minor consequence. My reaction to beer is mainly just joint pain. If I eat a piece of bread though then my rash starts developing blisters which then keeps me awake at night.

If I had to guess as to the reason why that is, perhaps there is less concentration of gluten in a glass of beer than a piece of bread. That's my long winded unscientific guess. 

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On 6/20/2017 at 10:47 PM, BarryC said:

 Still waiting for a gluten free beer that is drinkable.

Is Bards available in your area?  I found Bards and Redbridge to be the best, but had to quit both as they  gave me sinus problems. 

I've recently been reading Dr. Gundry's new book, The Plant Paradox. It has helped me with a  new dairy intolerance.   Although a cardiac surgeon, he has shifted focus to the impact diet has on health.  He discusses lectins. Turns out most of the foods I was eating were high in lectins. By choosing lower lectin foods, my recovery has improved.  Joint pain can be a symptom of  a high lectin diet.

Since different foods have different lectin levels, according to this theory, different foods may result in different symptoms.

Scroll down 1/3 of the page to SIDEBAR:LECTINS 101:

http://gundrymd.com/food-pyramid/

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celiac disease typically screws up your whole autoimmune system. in my case, it took several years to identify all of the intolerances.

there are different responses to different substances... you may have one or several of them depending on the substance. Mine include nausea, abdominal pain, lethargy, brain fog, cramping, muscle tightness (resulting in joint pain), muscle spasm, creepy crawly skin, skin dryness leading to lesions/ psoriasis, diarrhea, constipation, sudden weight gain/loss of 2-3 lbs per day.  

the frustrating part is/was that the more I stayed away from gluten and other offenders, the better/stronger i felt but then i would discover another substance that had been hiding but now was brought to the forefront since the maybe-more-offending irritant was now gone. this went on for a couple years.  i now have a huge list of offenders and very few acceptable foods, but I keep reading and experimenting hoping for a more varied and healthier diet.  

i refer to myself as a human test subject because essentially you have to try something in order to gauge its effect.

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BarryC ... I have celiac's and didn't get my knickers in a twist!!! If I did, I'd probably trip and fall flat on my face and have other problems to worry about.  Don't worry about it, we're here to help.  

If I get accidentally glutened, I do not get the intestional issues, but I do get some good body and bone aches. If I can't figure out what's causing it, and keep getting glutened, the brain fog sets in, I so very hate that worse than anything, send me to the retirement home early!

I also miss a good beer, my regular grocery stopped carrying Coor's Peak, which wasn't great but wasn't bad. I have to go a little further to find good gluten-free beers, just try one of each until you find the one that you like. I used to love Heiferweisen beer...wheat beer of all things, but can't have that anymore, and haven't found a good substitute, oh well.  Onward and upward.

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Having this is so frustrating, my knickers are twisted up in knots. It is comforting to know that I am not the only one with multiple symptoms, most of which can be traced to gluten/casein. I have also spent a small fortune on digestive/weight loss supplements. Whats working now to improve my weight and digestion are being gluten/casein free of course, and cutting way back on red meat and alcohol. These two are also the worst for IBS, and really mess with the gluten compromised digestive system of an older person. I have found a store that carries Glutenberg beer, which is not bad but way too expensive. Guess I will stick to Coors Light for now.  The hard stuff really messes up my stomach. Happy summer everybody!

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