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sddave

Looking for post diagnosis celiac specialist in Orange Co or San Diego Co.

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After 3.5 mo. on gluten free diet I've been struggling a series of issues.   All blood work for vitamins and minerals are in range and my kidney is functioning properly.

But I'm getting very lightheaded/vertigo at times...gets worse while driving (even after having a snack).   I'm also having muscle twitching, stomach cramping, acid reflux (I think), and heart palpitations.    None of these issues have lessen as I've gone gluten-free.  In fact they seem to get getting worse/more refrequent for me.

Even though blood work are all in range,  I still take one Multivitamin, a B complex, and a magnesium pill.   All my blood tests were taken when I was off these pills for almost 2 wks.

So I'm will to travel anywhere in Orange County or San Diego County to talk to a celiac post diagnosis doctor.  Can anyone recommend one that deals with post diagnosis issues?    Thx.

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Sheila Crowe at UCSD, head of their Celiac Center.  She also cowrote the book Celiac Disease for Dummies, which says that if you're still having problems after going gluten free, the doctor needs to keep looking.  I find the people who schedule the appointments there a bit obnoxious, but Dr. Crowe is very nice.

https://health.ucsd.edu/specialties/gastro/areas-expertise/Pages/celiac-disease-clinic.aspx

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She is now the head of the American GI Association.  Not sure if she is able to take new patients.  But she would be a great doctor to see!  

https://celiac.org/blog/2017/06/dr-sheila-crowe-becomes-president-american-gastroenterological-association/

I think a consult with a Celiac-Savvy dietician would be helpful.  I think Texas Jen recently visited one at UCLA and found it very worthwhile.  

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Dr. Newton is affiliated with the Wm. K. Warren Medical Research Center for Celiac Disease. The mission of the Center is to

  1. Advance the knowledge of celiac disease pathogenesis and to develop novel diagnostic and therapeutic advances,
  2. Increase the medical and local community's knowledge about celiac disease, and
  3. Provide expert clinical care services to optimize health and quality of life in patients with celiac disease.

 

As of 3 years ago (we have since moved from the area the Celiac dept there gave workshops and other training sessions.  Def check it out.  Excellent facility!

 

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On 8/20/2017 at 0:46 PM, cap6 said:

Dr. Newton is affiliated with the Wm. K. Warren Medical Research Center for Celiac Disease.

As of 3 years ago (we have since moved from the area the Celiac dept there gave workshops and other training sessions.  Def check it out.  Excellent facility!

 

Thank you

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