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susher

DH Symptoms - How do I test?

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I just stumbled on the description of Dermatitis herpetiformis and this describes the rash I get on my hands exactly to a T. I first got it when I was 21 and thought I was allergic to baby wipes. Since then, I get random breakouts during the course of the year. Reg doctors just told me it was a stress exzcema and gave me steroids. But it always comes back. I tried an elimination diet and noticed a difference when i cut out Gluten, but didn't see immediate outbreaks when i reintroduced it so i didn't think it was working. Now this a-ha moment.
So my question is....

Who do i go to truly get tested? A dermatologist, an allergist or a specialist? Help! I want to cut out gluten as soon as possible but want to get tested first. Thanks.

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Your regular GP can start the ball rolling by doing a Celiac panel and referring you to a dermatologist. Taking steroids will effect the results of testing for celiac so if you have taken then recently let the doctor know. Keep eating gluten until all testing is finished for celiac. Make sure the derm knows how to biopsy for DH. The sample needs to be taken from beside an active lesion not on the lesion itself.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Those with dh test negative the celiac blood panel 60% of the time. IMO, the fastest way to get dx'd is to go straight to a derm who is well versed & has experience with dh & how to properly biopsy it. A dx of dh is a dx of celiac & no further testing is needed. As ravenwoodglass stated, you must continue to eat gluten until all testing is done.


Gluten free Dec. 2011
Dermatitis Herpetiformis

Reynaud's October 2018

Rheumatoid Arthritis October 2018

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