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I am just discovering gluten allergies and I am not 100% I have one only because I haven't been diagnosed yet. About 10yrs ago I was diagnosed with endometriosis after 2 surgeries where nothing was found the doctors told me it was in the muscle and I'd have to get a hysterectomy. They had me on narcotic pain killers for years but even that didn't help much. I got sick wasn't eating for days but discovered that my pain had stopped. I started a food journal and basically eliminated gluten and got off the pain meds. I wasn't 100% gluten free but close. About 5 months ago I started getting a keratin film over my teeth. I've been to 8 doctors/dentist and the ER twice. Nobody seems to know whats going on or believe me for the most part. I started reading on celiac and the autoimmune disorders that go along with it. I have almost all the symptoms of the disorder and have scheduled an appointment for an allergy test. The backs of my teeth have fluid filled bumps on them covered by a transparent skin like film. You can't see it and when exposed to air it hardens which makes it hard for me to convince anyone it's there. I can feel it I can even pop it with my tongue. It's getting worse to the point where i've been able to show it to people by running a dental pick between my teeth an it makes a noise like something is there but you still can't see it. I know this is strange I can't find anything like it on the internet but I am hoping that maybe someone else has experienced this. Please let me know even if it is something similar. 

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49 minutes ago, serenitynow said:

I am just discovering gluten allergies and I am not 100% I have one only because I haven't been diagnosed yet. About 10yrs ago I was diagnosed with endometriosis after 2 surgeries where nothing was found the doctors told me it was in the muscle and I'd have to get a hysterectomy. They had me on narcotic pain killers for years but even that didn't help much. I got sick wasn't eating for days but discovered that my pain had stopped. I started a food journal and basically eliminated gluten and got off the pain meds. I wasn't 100% gluten free but close. About 5 months ago I started getting a keratin film over my teeth. I've been to 8 doctors/dentist and the ER twice. Nobody seems to know whats going on or believe me for the most part. I started reading on celiac and the autoimmune disorders that go along with it. I have almost all the symptoms of the disorder and have scheduled an appointment for an allergy test. The backs of my teeth have fluid filled bumps on them covered by a transparent skin like film. You can't see it and when exposed to air it hardens which makes it hard for me to convince anyone it's there. I can feel it I can even pop it with my tongue. It's getting worse to the point where i've been able to show it to people by running a dental pick between my teeth an it makes a noise like something is there but you still can't see it. I know this is strange I can't find anything like it on the internet but I am hoping that maybe someone else has experienced this. Please let me know even if it is something similar. 

If you have read about Celiac, you know it isn't an allergy and allergy testing won't diagnose it.  you must be on a gluten containing diet to get tested.

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There's 200-300 possible celiac symptoms, and it's not an allergy. You must get a blood test while you are still eating gluten. Never heard of an issue with a film on teeth, with celiac or otherwise.

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I haven't come off gluten 100% and was planing on changing my diet a week prior to the test. I know it's a genetic disease but I'm not sure if it's that or another gluten intolerance. I did think it would show up in an gluten allergy test and I would have to go from there to see what kind of gluten intolerance it was. Thank you I will discuss it with my doctor. 

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What does your dentist say?  

Celiac disease can damage teeth.  Usually that damage occurs when the teeth are developing due to malnutrition during the first seven years of life.  Later, as adults, (most likely because of poor enamel development,  lack of calcium, etc., when their teeth were forming as kids) they have teeth that crack or they suffer from bone loss (not tooth) in their jaws due to malabsorption/osteoporosis.    Celiacs can develop mouth ulcers as well or have delayed tooth eruption.  

http://www.cureceliacdisease.org/wp-content/uploads/CdC_Newsletter_2017_Issue03.pdf

If you seriously think you have celiac disease, ask for these tests:

http://www.cureceliacdisease.org/screening/

 

Edited by cyclinglady

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I haven't come off gluten 100% and was planing on changing my diet a week prior to the test. I know it's a genetic disease but I'm not sure if it's that or another gluten intolerance. I did think it would show up in an gluten allergy test and I would have to go from there to see what kind of gluten intolerance it was. Thank you I will discuss it with my doctor. 

If you are gluten light, your tests may be invalid.  One week of cramming a lot of gluten into your diet might not be effective.  Experts recommend 1 to 2 slices of bread daily for 8 to 12 weeks.  Google it.  

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I know it's a genetic disease but I'm not sure if it's that or another gluten intolerance. I did think it would show up in an gluten allergy test and I would have to go from there to see what kind of gluten intolerance it was. 

There are 3 different conditions: Celiac disease, Non celiac gluten sensitivity and Wheat allergy. 

Celiac disease - blood tests:

Gliadin IgG 

Gliadin IgA 

Endomysium IgG 

Endomysium IgA 

Tissue transglutaminase IgG 

Tissue transglutaminase IgA 

total IgA 

+ intestinal biopsy 

NCGS: there are no tests available - symptoms getting better on the gluten-free diet 'is the test'

Wheat allergy: blood test - another immunoglobulin class is used - IgE; skin prick tests for food allergies are used as well

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What does your dentist say?  

Celiac disease can damage teeth.  Usually that damage occurs when the teeth are developing due to malnutrition during the first seven years of life.  Later, as adults, (most likely because of poor enamel development,  lack of calcium, etc., when their teeth were forming as kids) they have teeth that crack or they suffer from bone loss (not tooth) in their jaws due to malabsorption/osteoporosis.    Celiacs can develop mouth ulcers as well or have delayed tooth eruption.  

http://www.cureceliacdisease.org/wp-content/uploads/CdC_Newsletter_2017_Issue03.pdf

If you seriously think you have celiac disease, ask for these tests:

http://www.cureceliacdisease.org/screening/

 

I first went to the dentist because I had a wood dental pick splinter off into my gums. By my third visit there was a sharp finger nail like growth coming  from my gum above one tooth. There was also a thick liquid so I thought I might have caused an infection. He took more X-rays came in saying it was plaque. It was bendable and unlike any plaque I had seen and I asked about frictional keratinization. He started yelling at me asking if I went to dental school and said he didn't know what keratin was but he knew what plaque was. He asked if I wanted an antibiotic and I asked if I had an infection. He said yes so I took the antibiotic for a couple days which was extremely painful. I got my records from that office went to another and there was no infection. At this point it was covering all of my teeth. There is no differential diagnosis for keratin so I knew it had to be something associated with it. Dentist number 7  started giving me the plaque lecture but I was extremely frustrated at this point started crying telling her my gum line on several teeth had been pushed back by the keratin growth and it was coming out of my incisors. Finally she said she saw ports above each and believed me. She said to change my toothpaste but I already had I've even started making my own. Before I could tell her she was out the door I don't think I've ever seen a dentist run away so fast. I lost my job after that because the sharp pieces kept cutting my tongue to the point that I couldn't speak. My mom ended up taking me to a gum specialist who said I had lynch planus on my tongue which is also a keratin problem. He asked if anyone else had seen it that was there to vouch for me and there wasn't so he told me nothing hard comes out of your gums and sent me on my way. My teeth are attacking themselves so I was thinking autoimmune disorder. I know there are a ton but I have stopped my abdominal pain by cutting gluten out of my diet and decades of other problems due to vitamin and mineral deficiency I thought I should check. Other than minor chipping this is my first dental problem. My kid on the other hand is showing signs of Enamel Hypoplasia she's also started mixing up her words and is sleeping all the time. This worries me the most so I'm getting her vitamin levels tested and an allergy test ( I know now I need a blood test). Its scary not knowing why you're always tired, in pain and confused it's even worse when you see it happening to your kid. 2 decades of doctors and I have no answers so I might be barking up the wrong tree but I'm going to keep barking till I find out why this is happening.  

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There are 3 different conditions: Celiac disease, Non celiac gluten sensitivity and Wheat allergy. 

Celiac disease - blood tests:

Gliadin IgG 

Gliadin IgA 

Endomysium IgG 

Endomysium IgA 

Tissue transglutaminase IgG 

Tissue transglutaminase IgA 

total IgA 

+ intestinal biopsy 

NCGS: there are no tests available - symptoms getting better on the gluten-free diet 'is the test'

Wheat allergy: blood test - another immunoglobulin class is used - IgE; skin prick tests for food allergies are used as well

I feel a lot better since coming off gluten but I still have a ton to learn. I was taking a powdered vitamin and in the middle of drinking it I became tired weak and the brain fog began. My face turned a darker shade as well. This had been happening for 5 days went to the ER they blew me off. I've had iron deficiency before but this was more intense. It takes me about 30min to drink my vitamins and I didn't think a gluten reaction would happen that fast but it could be an allergy to something else completely. I did find out there was gluten in the vitamins. I read about the false negatives and there is no way I'm eating bread for 12 weeks the pain was too bad. I will test for other allergies. I am getting my kid tested she is still eating gluten. I tried to get her off just to see if she improves but she's a teenager and she thinks I'm crazy. 

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I’m sorry you don’t feel well.. it seems like you have many different health problems. If celiac disease/gluten sensitivity is the root cause, all these symptoms might be related.

You said you haven’t come off gluten 100%, but don’t want to do a gluten challenge. So, I think you should go 100% gluten free and see if it helps. There is a difference between ‘gluten free’ and ‘gluten light’, and many members of this forum say they react even to the smallest amount of gluten!

Or, you can get tested but risk a false negative..

I think it’s actually a good thing that your daughter doesn’t want to stop eating gluten now because at least her tests will be relevant and you won’t have to worry about false negatives.

Good luck :)

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I feel a lot better since coming off gluten but I still have a ton to learn. I was taking a powdered vitamin and in the middle of drinking it I became tired weak and the brain fog began. My face turned a darker shade as well. This had been happening for 5 days went to the ER they blew me off. I've had iron deficiency before but this was more intense. It takes me about 30min to drink my vitamins and I didn't think a gluten reaction would happen that fast but it could be an allergy to something else completely. I did find out there was gluten in the vitamins. I read about the false negatives and there is no way I'm eating bread for 12 weeks the pain was too bad. I will test for other allergies. I am getting my kid tested she is still eating gluten. I tried to get her off just to see if she improves but she's a teenager and she thinks I'm crazy. 

I take a gluten-free liquid vitamin supplement. Look up Liquid Health products, I use the Stress & Energy and Neurological support half a dose each (1tbsp) 3 times a day before each meal in tea.

In regards to your teeth issues...unsure about growths, but I get a odd film on mine when i used to eat and drink certain foods that I have a intolerance or allergy to, sort of a mucus my body seems to produce to protect itself and makes my entire mouth feel odd. As to the plaque issues...I have not had plaque that could be scraped off my teeth in years ever since I cut back sugary food, starches and drinks. Since this years NONE at all since I cut all sugars from my diet aside from xylitol (stuff is good for your teeth and keeps your mouth moist, I use the mints and gum)  I do have one thought, it might be some kind of bacteria, or fungi in your mouth that is growing and feeding on stuff. Perhaps try using a Listerine alcohol based mouthwash or one of those mixes of hydrogen peroxide and water twice a day.

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I do have one thought, it might be some kind of bacteria, or fungi in your mouth that is growing and feeding on stuff. 

Exactly - e.g. candida. 

OP: This is an article about 'oral candidosis'.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3205665/

You can also google things like 'candida overgrowth', 'candida diet' etc.

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