Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Rate this topic

Recommended Posts

Hello everyone I'm new to this site, I'm 21 years old female, and was diagnosed with celaic diease last year 2016. 

 

I had an endoscopy, this was a relief to me since I always had stomach pain everyday and been throwing up so much not knowing the reason.

Im strict on this gluten free diet started preparing my meals at home. If I do eat out I only eat at gluten free restaurants in my area. Which is rare.

I don't know what to do I have this lower stomach ache and back pain all the time I get nauseous everyday I wake up.  I've seen about 7 doctors so far and none of them know what to do.

im starting to get headaches and breaking out all over my arms. I feel this pressure in my stomach when I lay down. 

I have body aches and shivers. I'm scared this is something else separate from celaic diease.

Doctors want to put me on anti depressants but I think this is something else. Does depression make you feel this terrible?

i don't feel like eating anymore my doctor told me I lost a lot weight since last year but she's not concerned because it wasn't all at once.

 

im dropping a lot of pounds recently I just don't know what to do...does anyone else have similar pain?

 

thank you for reading I know this is a lot...

Share this post


Link to post
Share on other sites

Welcome. Have they rerun your celiac panel or done a repeat endo to see if you might have some gluten sneaking in somewhere? Are you eating oats or cereals like Cheerios, Lucky Charms etc? Many celiacs will react to oats the same as they do with the gluten in wheat.  Do you have a significant other who eats gluten? If so they need to brush their teeth before kissing as you can get glutened from kisses if they don't.

You say your arms are breaking out. Is this an intensely itchy rash? If so it might be the skin form of celiac, DH. Those of us with DH often find we are more sensitive than folks who don't have it.

Have you eliminated gluten in your toiletries like shapoos, conditioners, lotion and make-up (if you use)?

Some of us have other intolerances. For example soy protein or flour gives me intense stomach pain. If you do consume stuff with soy you may want to drop the items for a bit and then add back in when you feel better. The same applies to dairy products.

If you haven't already do read the Newbie 101 thread at the top of the coping section as it has a lot of good info.

I hope you can get to the bottom of what is causing you so much misery soon.

Share this post


Link to post
Share on other sites

So sorry you aren't feeling well.

Ravenwoodglass gave a really great list of things to check.

I just thought I'd add, in case it is at all reassuring, that depending on the person, nerve damage and skin symptoms can take longer than a year to heal; if the rashes are DH, it can take up to two years on a gluten free diet for your body to clear it - 

https://www.coeliac.org.uk/coeliac-disease/about-coeliac-disease-and-dermatitis-herpetiformis/dermatitis-herpetiformis/

Quote

The treatment for DH is a lifelong gluten-free diet. This means you will have to remove all sources of gluten, which is found in wheat, barley and rye, from your diet. Some people may also be sensitive to oats.

The time it takes for the skin rash to improve varies between people. Skin symptoms tend to take longer to recover compared to the typical gut symptoms associated with coeliac disease. It can take an average of two years for a gluten-free diet to take full effect, and in some cases longer.

I hope you will find a way to feel better soon.

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
Alaskaguy, Like Knitty Kitty I am one of the researchers on this forum.  she has provide you good links. So I wanted to chime in and share some research I found recently that might help you....entitled "Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide." This is recent research too which can be hard to come by to find something directly that might help you. https://www.ncbi.nlm.nih.gov/pubmed/30390734 Also see this thread about
  • Blog Entries

  • ×
    ×
    • Create New...