Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New to all of this


Beth Rubin

Recommended Posts

Beth Rubin Newbie

I was just diagnosed with Celiac Disease and actually was told I had a genetic marker for the disease, at 55 years old this totally blew me away. I thought I had a gall bladder attack because I was totally symptom free, who knew!  I am learning my way around how to find Gluten and stay gluten free, but one of my biggest challenges is when I have a long distance drive. I used to be able to hit a drive through and was all set, that is a challenge now. Does anyone have any suggestions?

 

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Pack a lunch or snack? Protein bars, sandwich, crackers and cheese slices, etc

 

I hope they diagnosed you on more than a gene?

 

 

ravenwoodglass Mentor

Welcome to the board. Many of us keep safe gluten free snacks on hand for times when we are away from home.  In addition to what Karen mentioned fruits, nuts, hard boiled eggs etc. If it is a long trip a cooler can keep stuff fresh for you and they make ones that you can plug into your car.

How were you diagnosed? Many folks carry the genes but don't develop celiac. You should have had a celiac panel blood test and an endoscopy. If you are new to the lifestyle then do check out the Newbie 101 threead at the top of the Coping section. it has a lot of info to keep you safe.

Celiac4762 Apprentice

Take the opportunity to get healthy! 

 

Nuts, seeds, fruits, take these as snacks on your drive. I personally love almonds and pumpkin seeds. Or bananas and blueberries. Or if you need protein there's lots of gluten free protein bars at gas stations. I like to pack hard boiled eggs too. 

One thing I do for long trips is I make sort of a granola/protein bar at home and take it with me. 

 

1 cup oats

3 eggs

two spoonfuls of peanut butter

some cinnamon

and a banana.

 

mash it all together and bake it like a cake for about 20 minutes. Chop em up into little bars and bag em for your trip.

just get creative and try new things! 

Victoria1234 Experienced
1 hour ago, Celiac4762 said:

Take the opportunity to get healthy! 

 

Nuts, seeds, fruits, take these as snacks on your drive. I personally love almonds and pumpkin seeds. Or bananas and blueberries. Or if you need protein there's lots of gluten free protein bars at gas stations. I like to pack hard boiled eggs too. 

One thing I do for long trips is I make sort of a granola/protein bar at home and take it with me. 

 

1 cup oats

3 eggs

two spoonfuls of peanut butter

some cinnamon

and a banana.

 

mash it all together and bake it like a cake for about 20 minutes. Chop em up into little bars and bag em for your trip.

just get creative and try new things! 

FYI newly diagnosed should not have oats right away. 

  • 2 weeks later...
Beth Rubin Newbie

Thanks everyone. When I saw gastro she thought all tests( ultrasound and endoscopy) would prove gall bladder issue. Nope, duodenum flagged for marker for Celiac so I had multiple blood tests. Also found an ulcer. Antibodies showed positive and had genetic marker test done which also was positive. I have been gluten free for two 1/2 months, at end of October I have blood tests to see if antibodies went down and to check vitamin absorption.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748

    Chloelouise04
    Newest Member
    Chloelouise04
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.